Proposition of a structured list of information items to be transmitted to primary caregivers after in-hospital medication optimization: a qualitative study

Background Parents play an important role in the lives of adolescents, and supporting and addressing the needs of families continue to be the focus of many researchers and policy makers. Mobile health interventions have great potential for supporting parents at a population level because of their broad reach and convenience. However, limited evidence exists for such interventions for parents of adolescents. This study reports on the formative work conducted with parents and/or primary caregivers to identify their needs and preferences for the development of MyTeen—an SMS text messaging program on promoting parental competence and mental health literacy for parents of adolescents (aged 10-15 years). Objective The aim of this qualitative study was to explore parents and/or primary caregivers’ perspectives around youth well-being, parenting, and parenting support and their input on the development of MyTeen SMS text messaging parenting intervention. Methods A total of 5 focus groups (n=45) were conducted with parents or primary caregivers of adolescents aged 10 to 15 years between October and December 2017 in New Zealand. A semistructured interview guideline and prompts were used. Data were audiotaped, transcribed, and analyzed using inductive thematic analysis. Results Participants were concerned about youth mental health (ie, stigma and increasing demand on adolescents), and a number of parenting challenges (ie, social expectations, time, impact of technology, changes in family communication pattern, and recognizing and talking about mental health issues) were noted. Importantly, participants reported the lack of services and support available for families, and many were not aware of services for parents themselves. A number of recommendations were given on the style, content, and frequency of developing the text messaging program. Conclusions Findings from this qualitative work informed the development of MyTeen, an SMS text messaging program designed to increase parental competence and improve mental health literacy for parents of adolescents.

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Primary caregivers, healthcare workers, teachers and community leaders’ perceptions and experiences of their involvement, practice and challenges of disclosure of HIV status to children living with HIV in Malawi: a qualitative study

BMC Public Health ◽

10.1186/s12889-018-5820-z ◽

2018 ◽

Vol 18 (1) ◽

Cited By ~ 1

Author(s):

Fatch W. Kalembo ◽

Garth E. Kendall ◽

Mohammed Ali ◽

Angela F. Chimwaza ◽

Mary M. Tallon

Keyword(s):

Qualitative Study ◽

Healthcare Workers ◽

Primary Caregivers ◽

Community Leaders ◽

Hiv Status ◽

Living With Hiv

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Caring for a stroke patient: The burden and experiences of primary caregivers in Uganda – A qualitative study

Nursing Open ◽

10.1002/nop2.356 ◽

2019 ◽

Vol 6 (4) ◽

pp. 1551-1558 ◽

Cited By ~ 3

Author(s):

Namale Gertrude ◽

Rachel Kawuma ◽

Winifred Nalukenge ◽

Onesmus Kamacooko ◽

Laetitia Yperzeele ◽

...

Keyword(s):

Qualitative Study ◽

Stroke Patient ◽

Primary Caregivers

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Professional Roles of General Practitioners, Community Pharmacists and Specialist Providers in Collaborative Medication Deprescribing - A Qualitative Study

10.21203/rs.3.rs-21840/v2 ◽

2020 ◽

Author(s):

Navina Gerlach ◽

Matthias Michiels-Corsten ◽

Annika Viniol ◽

Tanja Schleef ◽

Ulrike Junius-Walker ◽

...

Keyword(s):

Qualitative Study ◽

General Practitioners ◽

Collaborative Care ◽

Social Influences ◽

Theoretical Domains Framework ◽

Community Pharmacists ◽

Environmental Context ◽

Structural Factors ◽

Role Perceptions ◽

Medication Optimization

Abstract Background: Collaborative care approaches between general practitioners (GPs) and pharmacists have received international recognition for medication optimization and deprescribing efforts. Although specialist providers have been shown to influence deprescribing, their profession so far remains omitted from collaborative care approaches for medication optimization. Similarly, while explorative studies on role perception and collaboration between GPs and pharmacists grow, interaction with specialists for medication optimization is neglected. Our qualitative study therefore aims to explore GPs’, community pharmacists’ and specialist providers’ role perceptions of deprescribing, and to identify interpersonal as well as structural factors that may influence collaborative medication optimization approaches.Method: Seven focus-group discussions with GPs, community pharmacists and community specialists were conducted in Hesse and Lower Saxony, Germany. The topic guide focused on views and experiences with deprescribing with special attention to inter-professional collaboration. We conducted conventional content analysis and conceptualized emerging themes using the Theoretical Domains Framework.Results: 26 GPs, four community pharmacists and three community specialists took part in the study. The main themes corresponded to the four domains ´Social/professional role and identity` (1), ´Social influences’ (2), ´Reinforcement` (3) and ´Environmental context and resources’ (4) which were further described by beliefs statements, that is inductively developed key messages. For (1), GPs emerged as central medication managers while pharmacists and specialists were assigned confined or subordinated tasks in deprescribing. Social influences (2) encompassed patients’ trust in GPs as a support, while specialists and pharmacists were believed to threaten GPs’ role and deprescribing attempts. Reinforcements (3) negatively affected GPs’ and pharmacists’ effort in medication optimization by social reprimand and lacking reward. Environmental context (4) impeded deprescribing efforts by deficient reimbursement and resources as well as fragmentation of care, while informational and gate-keeping resources remained underutilized. Conclusion: Understanding stakeholders’ role perceptions on collaborative deprescribing is a prerequisite for joint approaches to medication management. We found that clear definition and dissemination of roles and responsibilities are premise for avoiding intergroup conflicts. Role performance and collaboration must further be supported by structural factors like adequate reimbursement, resources and a transparent continuity of care.

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