The Disabled Church: Human Difference and the Art of Communal Worship. Rebecca F. Spurrier, New York: Fordham University Press, 2019, 272 pp., Paper, $30.00, ISBN: 9780823285525

Author(s):  
Bill Gaventa
2021 ◽  
Vol 15 (4) ◽  
pp. 437-453
Author(s):  
Rae Piwarski

Critically praised for its portrayal of a compassionate physician, Cristin O’Keefe Aptowicz’s 2014 New York Times bestselling biography, Dr. Mütter’s Marvels: A True Tale of Intrigue and Innovation at the Dawn of Modern Medicine, follows the life and work of Thomas Dent Mütter, an eccentric and brilliant man who supposedly cured his patients of their unacceptable deformities, thus excising their socially-constructed monstrosity. A continual emphasis on curing benign physical difference in this text is troubling, however, as cure implies a default normative body exists. By characterizing the fact that Mütter treated unique bodies as an act of heroism, the biography upholds ideals that people with unique bodies must live up to unattainable standards. Aptowicz’s emphasis on this idea creates an excavation-worthy rhetoric surrounding curative violence as it meets benign corporeal difference. In her work on curative violence, Eunjung Kim constructs the disability proxy, or person who assists the disabled or different to return to their normative state, and Mütter most certainly occupies this proxy position in Aptowicz’s biography. In the wake of curative violence, bodies that deviate from an unattainable norm must labor at all costs to reach its ill-defined center, lest they carry a stigmatizing label: monster. Through this process of emphasizing the heroic curative practices of doctors, the biographer inadvertently conjures up ableist tropes. While biographers like Aptowicz have the best of intentions when deploying the term cure, even the best of intentions benefit from critique.


1986 ◽  
Vol 4 (3) ◽  
pp. 409-418

2018 ◽  
Vol 27 (1) ◽  
pp. 112-127 ◽  
Author(s):  
Patrick Bixby

This essay examines a remarkable 2012 production of Endgame (‘the Endgame project’) starring Dan Moran and Chris Jones, longtime New York actors who both live with Parkinson's disease. Rejecting the limiting assumptions imposed upon them by their profession (and the critical tendency to assimilate the disabled body to philosophical abstraction), the actors drew the attention of their audience to corporeal difference as a nexus of observation, contemplation, and appreciation in the theater. But this is not to say that the production somehow arrested the oscillation between affirmation and negation that defines the discursive structures of the play. Rather, it is argued here, the Endgame project enters into this textual uncertainty to highlight precisely those issues that have too often been absented or occluded in critical responses to the play: the ethical difficulties of giving witness to suffering, the problems of disentangling compassion and oppression, the matters of valuing and regulating the body.


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