Mindful Movement: Tai Chi, Gentle Yoga, and Qi Gong for Hospitalized Pediatric Palliative Care Patients and Family Members

The purpose of this chapter is to define common words associated with grief; to describe factors that affect the grief of family members, the effects of grief on them, and the nurse‘s role in helping grieving individuals and their families; and to discuss the needs of nurses who work in pediatric palliative care.

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Scialorrea e tappi di muco: consigli pratici di gestione nei pazienti eleggibili alle cure palliative pediatriche

QUADERNI ACP ◽

10.53141/qacp.2021.76-79 ◽

2021 ◽

Vol 28 (2) ◽

pp. 76-79

Author(s):

Irene Avagnina ◽

Chiara Paolin ◽

Micaela Santini ◽

Franca Benini

Keyword(s):

Quality Of Life ◽

Palliative Care ◽

Health Professionals ◽

Management Strategies ◽

Family Members ◽

Pediatric Palliative Care ◽

Oncological Disease ◽

Clinical Level ◽

High Care

Pediatric palliative care is a multidisciplinary area of pediatrics that aims to ensure a quality of life for children suffering from incurable diseases with high care complexity and also respond to their needs and those of their families. At the clinical level, there are many disturbing symptoms with a wide impact on the quality of life, which must be managed and treated. In particular some of them represent a major challenge for caregivers and health professionals looking after children eligible for PPC. This work aims to present, with a practical and immediately useful cut for the pediatrician, the management strategies of frequent symptoms, starting with drooling and mucus plugs; the latter are very frequent in children with non-oncological disease, followed by PPC. If not treated, they limit the child’s quality of life and have a significant impact on the concerns and management of family members / caregivers.

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Family Responses to the Death of a Child: The Meaning of Memories

Journal of Palliative Care ◽

10.1177/082585978700300103 ◽

1987 ◽

Vol 3 (1) ◽

pp. 9-15 ◽

Cited By ~ 4

Author(s):

Betty Davies

Keyword(s):

Palliative Care ◽

Clinical Practice ◽

Conceptual Analysis ◽

Family Members ◽

Interview Data ◽

Pediatric Palliative Care ◽

Death Of A Child ◽

The Family ◽

Deceased Child

Pediatric palliative care professionals often encounter questions from parents about how to handle the belongings of their deceased child. This study describes what 34 families did with their child's clothes, room, and mementos after a death from cancer. Further, the study presents a theoretic scheme deriving from a conceptual analysis of the interview data. This theoretic scheme hypothesizes that the deceased child's belongings may serve as memories with meanings, that these meanings may vary among family members, and that discrepant meanings may influence bereavement outcome within the family and its individual members. Areas requiring further research are identified, and implications of the findings for clinical practice are discussed.

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Much Ado About Fried Chicken: Abetting Aspiration or Respecting Autonomy?

American Journal of Speech-Language Pathology ◽

10.1044/2019_ajslp-18-0207 ◽

2019 ◽

Vol 28 (3) ◽

pp. 1356-1362

Author(s):

Laurence Tan Lean Chin ◽

Yu Jun Lim ◽

Wan Ling Choo

Keyword(s):

Palliative Care ◽

End Of Life ◽

Multidisciplinary Team ◽

Biopsychosocial Model ◽

Family Members ◽

Clinical Decisions ◽

Goals Of Care ◽

Complex Needs ◽

Aspiration Risk ◽

Patient Centric

Purpose Palliative care is a philosophy of care that encompasses holistic, patient-centric care involving patients and their family members and loved ones. Palliative care patients often have complex needs. A common challenge in managing patients near their end of life is the complexity of navigating clinical decisions and finding achievable and realistic goals of care that are in line with the values and wishes of patients. This often results in differing opinions and conflicts within the multidisciplinary team. Conclusion This article describes a tool derived from the biopsychosocial model and the 4-quadrant ethical model. The authors describe the use of this tool in managing a patient who wishes to have fried chicken despite aspiration risk and how this tool was used to encourage discussions and reduce conflict and distress within the multidisciplinary team.

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