Family Responses to the Death of a Child: The Meaning of Memories

1987 ◽  
Vol 3 (1) ◽  
pp. 9-15 ◽  
Author(s):  
Betty Davies
Keyword(s):  
Palliative Care ◽  
Clinical Practice ◽  
Conceptual Analysis ◽  
Family Members ◽  
Interview Data ◽  
Pediatric Palliative Care ◽  
Death Of A Child ◽  
The Family ◽  
Deceased Child

Pediatric palliative care professionals often encounter questions from parents about how to handle the belongings of their deceased child. This study describes what 34 families did with their child's clothes, room, and mementos after a death from cancer. Further, the study presents a theoretic scheme deriving from a conceptual analysis of the interview data. This theoretic scheme hypothesizes that the deceased child's belongings may serve as memories with meanings, that these meanings may vary among family members, and that discrepant meanings may influence bereavement outcome within the family and its individual members. Areas requiring further research are identified, and implications of the findings for clinical practice are discussed.

Bereaved Families: A Comparison of Parents' and Grandparents' Reactions to the Death of a Child

1992 ◽  
Vol 25 (1) ◽  
pp. 63-71 ◽  
Author(s):  
James J. Ponzetti
Keyword(s):  
Family Members ◽  
Behavior Patterns ◽  
Death Of A Child ◽  
The Family ◽  
Deceased Child ◽  
Child's Death ◽  
Grief Reactions

Most research has dealt with the bereaved person as an individual and ignored the context in which the person grieves. The occurrence of a death in the family is experienced in various ways, depending on the nature of the relationships within the family. The purpose of this study was to investigate how different family members experience a child's death by comparing the grief reactions of parents and grandparents within the same family. Most parents and grandparents reported subjectively experiencing affective changes in reflecting on the death that did not appear to alter behavior patterns. The majority of parents mentioned that they felt or acted differently toward their surviving children as a result of the death, whereas only one third of the grandparents noted any differences toward their grandchildren. Overall, parents' reactions centered on their deceased child whereas grandparents' concerns focused on their children (i.e., the parents of the deceased child).

Palliative care in South Korea

2015 ◽  
pp. 1136-1143 ◽  
Author(s):  
Hyun Sook Kim ◽  
Boon Han Kim
Keyword(s):  
Palliative Care ◽  
Family Members ◽  
Terminally Ill ◽  
The West ◽  
Korean Family ◽  
The Family ◽  
Life Sustaining Treatment ◽  
Patients Experience ◽  
High Degree ◽  
Hospice Palliative Care

Most Koreans would prefer to withdraw from medically futile life-sustaining treatment, but many Koreans still receive futile treatment even after their conditions are diagnosed as terminal. Korean law does not allow doctors to remove life-sustaining treatment, regardless of the patient‘s condition or desires or those of family members. The limited hospice palliative care that is offered often demands a high degree of family responsibility; the caregivers of terminal patients are usually immediate family members or private caregivers hired by the family. For these reasons, Korean family members of terminally ill patients experience heavy physical, emotional, and social stresses, much more so than families in the West.

Social Reactions to the Survivor of a Suicide in the Family: A Review of the Literature

1991 ◽  
Vol 23 (2) ◽  
pp. 95-107 ◽  
Author(s):  
Lawrence G. Calhoun ◽  
Breon G. Allen
Keyword(s):  
Clinical Practice ◽  
Cause Of Death ◽  
Family Members ◽  
Future Research ◽  
Review Of The Literature ◽  
Social Reactions ◽  
The Family ◽  
The Way

This article reviews the available literature on reactions to family members surviving another member's suicide. Three factors determining the reaction of others to persons bereaved by suicide are investigated: 1) the cause of death, 2) characteristics of the deceased, and 3) characteristics of the respondent. The perceptions that persons bereaved by suicide have of the way others view them are reviewed. Methodological flaws and limitations of the current research are noted, with suggestions for the direction of future research. Tentative generalizations and suggestions for clinical practice are also made.

scholarly journals The Role of Resilience in the Sibling Experience of Pediatric Palliative Care: What Is the Theory and Evidence?

Children ◽  
2018 ◽  
Vol 5 (7) ◽  
pp. 97 ◽  
Author(s):  
Wei Chin ◽  
Tiina Jaaniste ◽  
Susan Trethewie
Keyword(s):  
Palliative Care ◽  
Family System ◽  
Pediatric Palliative Care ◽  
Future Research ◽  
Medical Conditions ◽  
Disease Trajectory ◽  
Care Services ◽  
The Family ◽  
Palliative Care Services

Siblings of children with life limiting conditions (LLC) are an important part of the broader family system and require consideration in the holistic care of the family. There can be considerable variation in the functioning and adjustment of these siblings. The current paper explores the resilience paradigm, particularly in the context of siblings of children with LLC and serious medical conditions. The potential impact of children living with a seriously ill brother or sister will be overviewed, and a range of functional outcomes considered. Factors contributing to sibling resilience are detailed, including individual, family, and broader external and social factors. Given the limited research with siblings of children with LLC, literature has also been drawn from the siblings of children with serious and/or chronic medical conditions. Implications for clinical practice and future research are considered. Pediatric palliative care services may be well placed to contribute to this body of research as they have commonly extended relationships with the families of children with LLC, which span across the child’s disease trajectory.

The upward transmission of civic ‘virtues’

2020 ◽  
pp. 159-176
Author(s):  
Esther Muddiman ◽  
Sally Power ◽  
Chris Taylor
Keyword(s):  
Family Members ◽  
Learning Experiences ◽  
Gender And Sexuality ◽  
Interview Data ◽  
Environmental Concerns ◽  
The Family ◽  
Civic Virtues ◽  
Family Home ◽  
The One

This chapter explores the significance of younger generations in changing their parents' and grandparents' perspectives, moving beyond common conceptualisations of the one-directional sharing of values and practices from older to younger generations. Drawing on the interview data, it focuses on the synergistic learning experiences described by parents and grandparents. The chapter looks at how conversations with younger generations can prompt reflection on deeply held values and attitudes, and can contribute to a shift in perspectives. Most notably, it details how the rising prominence of environmental concerns has been brought to the attention of older family members, and how environmentalism is brought into the family home via knowledges and practices learnt by younger family members in the classroom. The chapter also considers how discussions with children and grandchildren present an opportunity for parents and grandparents to 'update' their perspectives on gender and sexuality.

Palliative Care at Home: Reflections on HIV/AIDS Family Caregiving Experiences

1998 ◽  
Vol 14 (2) ◽  
pp. 14-22 ◽  
Author(s):  
Kelli I. Stajduhar ◽  
Betty Davies
Keyword(s):  
Palliative Care ◽  
Qualitative Methods ◽  
Family Caregiving ◽  
Family Members ◽  
Loved One ◽  
The Family ◽  
Care At Home ◽  
Depth Interviews ◽  
Hiv Aids ◽  
At Home

This study explored the day-to-day experiences of family members providing care at home for their dying loved one with HIV/AIDS. In-depth interviews with seven caregivers were analyzed using grounded theory qualitative methods. A conceptualization of the family caregiving experience portrays HIV/AIDS caregiving as an intense, emotional, and powerful experience filled with pride and enrichment, and conversely, with anger and disillusionment. Findings reflected a significant need for interventions designed to provide direct and effective support for family members caring for a loved one with HIV/AIDS.

scholarly journals Assistance to children in palliative care in the Brazilian scientific literature

2014 ◽  
Vol 32 (1) ◽  
pp. 99-106 ◽  
Author(s):  
Nathalia Rodrigues Garcia-Schinzari ◽  
Franklin Santana Santos
Keyword(s):  
Palliative Care ◽  
Terminal Illness ◽  
Scientific Literature ◽  
Target Population ◽  
Study Data ◽  
Pediatric Palliative Care ◽  
Structured Interviews ◽  
Publication Type ◽  
The Family ◽  
Number Of Publications

Objective: To describe what has been published in Brazilian scientific literature regarding pediatric palliative care. Data sources: Bibliographic review with a descriptive approach. In LILACS and SciELO databases, the descriptors "palliative care", "child", "pediatrics", "terminal illness" and "death" were sought, from January 2002 to December 2011. The eight selected articles were analyzed according to year of publication, type of study, data collected, target population, pathology, professionals involved, types of care and main findings. Data synthesis: Regarding the year of publication, there was an increase in the number of publications related to pediatric palliative care. Regarding the type of study, four articles were literature reviews and four were qualitative researches. Data was collected mainly by semi-structured interviews. The participants of the majority of the studies were children's relatives and health professionals. The main pathology addressed was cancer and the nurses were the most frequently cited professionals. The types of care provided were related to physical aspects, general care and psychological, social and spiritual aspects (less emphasis). The main findings were: little emphasis on the children's needs, the importance of including the family in the care provided and the lack of preparation of the health team. Conclusions: Despite the difficulties and the challenges in establishing pediatric palliative care, many articles brought important considerations for the development of this practice in the country.

Sign in / Sign up

Export Citation Format

Share Document