scholarly journals Corrections to “Mapping unmet supportive care needs, quality-of-life perceptions and current symptoms in cancer survivors across the Asia-Pacific region: results from the International STEP Study”

2019 ◽  
Vol 30 (3) ◽  
pp. 493 ◽  
Author(s):  
A. Molassiotis ◽  
P. Yates ◽  
Q. Li ◽  
W.K.W. So ◽  
K. Pongthavornkamol ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Supportive Care Needs ◽  
Asia Pacific ◽  
Pacific Region ◽  
Asia Pacific Region ◽  
Care Needs ◽  
Step Study

Perceived unmet supportive care needs and determinants of quality of life among head and neck cancer survivors: a research protocol

2013 ◽  
Vol 69 (12) ◽  
pp. 2750-2758 ◽  
Author(s):  
Winnie K.W. So ◽  
K.C. Choi ◽  
Carmen W.H. Chan ◽  
Winnie P.Y. Tang ◽  
Alice W.Y. Leung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Head And Neck ◽  
Neck Cancer ◽  
Supportive Care Needs ◽  
Research Protocol ◽  
Care Needs

Quality of Life and Supportive Care Needs of Gynecologic Cancer Survivors

2019 ◽  
Vol 41 (10) ◽  
pp. 1385-1406 ◽  
Author(s):  
Anne M. Reb ◽  
Diane G. Cope
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Gynecologic Cancer ◽  
Cancer Recurrence ◽  
Primary Treatment ◽  
Supportive Care Needs ◽  
Fear Of Cancer Recurrence ◽  
Care Needs

Gynecologic cancer survivors experience significant distress that can impact quality of life (QOL). Optimal survivorship care requires an understanding of the survivor’s QOL and supportive care needs. The purpose of this study was to describe the QOL and needs of gynecologic cancer survivors. Women with an initial diagnosis of gynecologic cancer within 7 months of completing primary treatment ( N = 34) completed the QOL-Cancer Survivor tool and the Cancer Survivors’ Unmet Needs Survey. Fear of cancer recurrence was a repetitive theme for both tools. The lowest ranking QOL items were distress from diagnosis and treatment, family distress, and uncertainty about the future. Commonly reported needs included help to reduce stress, manage side effects, cope with fears of cancer recurrence, and gain reassurance that providers were communicating, and providing the very best medical care. Appreciating QOL and needs can facilitate the development of support services specifically tailored to gynecologic survivors.

scholarly journals Supportive care needs and health-related quality of life among Chinese lung cancer survivors

2012 ◽  
Vol 01 (02) ◽  
pp. 5-12 ◽  
Author(s):  
Dorothy Ngo-Sheung Chan ◽  
Kai-Chow Choi ◽  
Carmen Wing-Han Chan ◽  
Rayman Wai-Man Wan ◽  
Suzanne So-Shan Mak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Supportive Care Needs ◽  
Health Related Quality ◽  
Care Needs ◽  
Related Quality ◽  
Health Related

scholarly journals Supportive Care Needs and Health-Related Quality of Life of Esophageal Cancer Survivors

2021 ◽  
Vol 8 (2) ◽  
pp. 164
Author(s):  
Eunju Choi ◽  
SooHyun Kim ◽  
YoungWhee Lee ◽  
Hwasoon Kim ◽  
YoungMog Shim ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Esophageal Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Supportive Care Needs ◽  
Health Related Quality ◽  
Care Needs ◽  
Related Quality ◽  
Health Related

QOLP-30. LONG-TERM UNMET SUPPORTIVE CARE NEEDS OF TYA CHILDHOOD BRAIN TUMOUR SURVIVORS AND THEIR CAREGIVERS: A CROSS-SECTIONAL SURVEY

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi189-vi189
Author(s):  
Emma Nicklin ◽  
Galina Velikova ◽  
Adam Glaser ◽  
Michelle Kwok-WIlliam ◽  
Miguel Debono ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Brain Tumour ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Long Term Follow Up

Abstract INTRODUCTION The supportive care needs of long-term childhood brain tumour survivors, now teenagers and young adults (TYAs), and their caregivers are largely unknown. TYAs are a unique patient cohort with specific challenges and vulnerabilities differing from children or older adults. We aimed to describe their supportive care needs and explore associations between needs and quality of life (QoL).This is the first study to collect quantitative data about needs in this survivorship group. METHODS Participants were recruited from long-term follow-up clinics (in three National Health Service Trusts in England) and online. Participants included childhood brain tumour survivors, ≥ 5 years from diagnosis, currently aged 13-30, and their primary caregivers. Survivors completed the Supportive Care Needs Survey (SCNS) Short-Form and Paediatric Functional Assessment of Cancer Therapy – Brain (Peds-FACT-Br). While caregivers completed the SCNS-Partners and Caregivers (SCNS-P&C) and the Caregiver Quality of Life Index–Cancer (CQOLC). RESULTS In total, 112 individuals (69 survivors/43 caregivers) participated. Survivors reported on average 9.4 (±8.5) unmet needs. Needs were greatest in the psychological domain, with anxiety (60.3%), uncertainty about the future (50.7%) and feeling down and depressed (48.5%) most commonly reported. Caregivers reported on average 12.4 (±12.3) unmet needs. Again, the greatest number of unmet needs were observed in the psychological domain. Many caregivers also reported information needs around financial support/government benefits (42.9%) and possible survivor fertility problems (42.9%). Multivariable linear regression analysis showed that female survivors, unemployed survivors, survivors further away from diagnosis, and single caregivers were more likely to report unmet needs. More unmet needs were significantly associated with poorer QoL in survivors and caregivers. CONCLUSION This research provides leads to improving supportive care and long-term follow-up services. Psychological support appears to be the biggest gap in care. Understanding unmet needs and recognising what services are required is critical to improving quality of long-term survival.

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