scholarly journals Evaluating the impact of COVID‐19 on supportive care needs, psychological distress and quality of life in UK cancer survivors and their support network

Author(s):  
Nicholas J. Hulbert‐Williams ◽  
Monica Leslie ◽  
Lee Hulbert‐Williams ◽  
Eilidh Smith ◽  
Lesley Howells ◽  
...  
2013 ◽  
Vol 69 (12) ◽  
pp. 2750-2758 ◽  
Author(s):  
Winnie K.W. So ◽  
K.C. Choi ◽  
Carmen W.H. Chan ◽  
Winnie P.Y. Tang ◽  
Alice W.Y. Leung ◽  
...  

2019 ◽  
Vol 41 (10) ◽  
pp. 1385-1406 ◽  
Author(s):  
Anne M. Reb ◽  
Diane G. Cope

Gynecologic cancer survivors experience significant distress that can impact quality of life (QOL). Optimal survivorship care requires an understanding of the survivor’s QOL and supportive care needs. The purpose of this study was to describe the QOL and needs of gynecologic cancer survivors. Women with an initial diagnosis of gynecologic cancer within 7 months of completing primary treatment ( N = 34) completed the QOL-Cancer Survivor tool and the Cancer Survivors’ Unmet Needs Survey. Fear of cancer recurrence was a repetitive theme for both tools. The lowest ranking QOL items were distress from diagnosis and treatment, family distress, and uncertainty about the future. Commonly reported needs included help to reduce stress, manage side effects, cope with fears of cancer recurrence, and gain reassurance that providers were communicating, and providing the very best medical care. Appreciating QOL and needs can facilitate the development of support services specifically tailored to gynecologic survivors.


2021 ◽  
Vol 10 (19) ◽  
pp. 4449
Author(s):  
Emma Lidington ◽  
Anne-Sophie Darlington ◽  
Amy Din ◽  
Susannah Stanway ◽  
Susana Banerjee ◽  
...  

Few studies describe supportive care needs among young adults (YAs) with cancer ages 25 to 39 using validated questionnaires. Previous findings identified the need for psychological and information support and suggest that gender, age, psychological distress, and coping may be associated with greater need for this support. To substantiate these findings, this study aimed to (1) describe the supportive care needs of YAs in each domain of the Supportive Care Needs Survey and (2) explore the relationship between unmet supportive care needs and clinical and demographic factors, health-related quality of life, psychological distress, illness cognitions, and service needs using latent class analysis. Clinical teams from six hospitals in England invited eligible patients to a cross-sectional survey by post. A total of 317 participants completed the survey online or on paper. YAs expressed the most need in the psychological and sexuality domains. Using latent class analysis, we identified three classes of YAs based on level of supportive care need: no need (53.3%), low need (28.3%), and moderate need (18.4%). In each class, median domain scores in each domain were similar. Low and moderate need classes were associated with worse health-related quality of life and greater helplessness. Unmet service needs were associated with the moderate-need class only. Patients with unmet supportive care needs should be offered holistic care across supportive care domains.


2012 ◽  
Vol 01 (02) ◽  
pp. 5-12 ◽  
Author(s):  
Dorothy Ngo-Sheung Chan ◽  
Kai-Chow Choi ◽  
Carmen Wing-Han Chan ◽  
Rayman Wai-Man Wan ◽  
Suzanne So-Shan Mak ◽  
...  

2021 ◽  
Vol 8 (2) ◽  
pp. 164
Author(s):  
Eunju Choi ◽  
SooHyun Kim ◽  
YoungWhee Lee ◽  
Hwasoon Kim ◽  
YoungMog Shim ◽  
...  

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