scholarly journals Long-term quality of life in adults following truncus arteriosus repair

2019 ◽  
Vol 29 (6) ◽  
pp. 950-954 ◽  
Author(s):  
Hilson Tay ◽  
Phillip S Naimo ◽  
Li Huang ◽  
Tyson A Fricke ◽  
Johann Brink ◽  
...  

OBJECTIVES To date, few studies have assessed the quality of life following congenital cardiac surgery. In this study, we aimed at determining the quality of life after truncus arteriosus (TA) repair using the Short Form 36 questionnaire in adult survivors. METHODS Seventy-three patients (age >18 years) who underwent TA repair at the Royal Children’s Hospital, Australia were identified for the study. Of these, 42 patients (58%, 42/73) participated in the study and completed the Short Form 36 questionnaire. The results of the 8 domains and the derived health state summary score (Short Form Six Dimension, SF-6D) were compared with age-matched Australian population controls, and with patients who underwent the arterial switch operation (ASO). RESULTS Compared with the age-matched Australian population, 18- to 24-year-old TA patients (31%, 13/42) had lower scores in 6 of 8 domains; 25- to 34-year-old TA patients (36%, 15/42) scored lower in 5 of 8 domains; and 35- to 44-year-old TA patients (33%, 14/42) scored lower in 4 of 8 domains. SF-6D scores were not significantly different between TA patients and the age-matched Australian population. Compared with patients who underwent ASO, 18-to 24-year-old TA patients scored lower in 3 of 8 domains; and 25- to 34-year-old TA patients scored lower in 2 of 8 domains. There was no significant difference in SF-6D scores between TA and patients who underwent the ASO. CONCLUSIONS Adult survivors of TA have similar quality of life compared with age-matched Australian controls measured by SF-6D. Despite a higher reoperation rate in TA patients, they have similar quality of life compared with ASO patients.

Author(s):  
Nazwan Hassa ◽  
Jimmy Eko Budi Hartono ◽  
Dwi Pudjonarko

  DIFFERENCES QUALITY OF LIFE BASED ON SHORT FORM–36 BETWEEN FIRST AND SECOND ATTACK ISCHEMIC STROKE PATIENTSABSTRACTIntroduction: Stroke is the biggest cause of physical disability, emotional, and social life in adults. The recurrent stroke let to decreased the quality of life.Aims: To know whether there is a difference in quality of life based on the Short Form-36 (SF-36) between first and second attack ischemic stroke patients.Methods: Observational analytic with retrospective cross sectional study in Neurology Polyclinic Dr. Kariadi Hospital, Semarang form July-September 2016. Inclusion criteria are patients with first or second attack of ischemic stroke, level education at least elementary school, age between 50-70 years old, and last attack 4 week or less before the sampling conducted. Quality of life were scored based on SF-36 between first and second attack patients. T-test and Mann- Whitney were used to analyze the data.Results: Fifty subject (25 in each group) included with mean age 57.72 (51-65) and 60.24 (51-70) years old in first attack and second attack group respectively. Older age showed lower quality of life score. The quality of life score is lower in older, stroke onset >1 year, and lower education. There was significant quality of life score difference between first and second attack group. Quality of life patients with first attack is better significantly compared to the second attack group in functional and physical domain, energy, and total score.Discussion: There is a significant difference in quality of life based on the SF-36 between first and second attack ischemic stroke patients.Keywords: Ischemic stroke, quality of  life, SF-36ABSTRAKPendahuluan: Stroke merupakan penyebab terbesar ketidakmampuan fisik, emosi, dan kehidupan sosial pada orang dewasa. Serangan stroke berulang menyebabkan peningkatan risiko penurunan kualitas hidup.Tujuan: Mengetahui perbedaan kualitas hidup pasien stroke iskemik serangan pertama dan kedua berdasarkan Short Form-36 (SF-36).Metode: Penelitian analitik observasional secara potong lintang retrospektif di Poliklinik Neurologi RSUP Dr. Kariadi, Semarang pada bulan Juli-September 2016. Kriteria inklusi adalah pasien stroke iskemik serangan pertama atau kedua, berpendidikan minimal SD atau sederajat, berusia antara 50-70 tahun, dan mengalami serangan stroke terakhir minimal 4 minggu sebelum penelitian. Dilakukan penilaian skor kualitas hidup berdasarkan SF–36 antara pasien stroke iskemik serangan pertama dengan kedua. Analisis menggunakan uji T-tes dan Mann-Whitney.Hasil: Terdapat 50 subjek yang terdiri dari masing-masing 25 subjek pada kelompok dengan stroke iskemik serangan pertama dan kelompok dengan serangan kedua dengan rerata usia 57,72 (51–65) tahun dan 60,24 (51–70) tahun. Usia yang semakin meningkat menunjukkan skor kualitas hidup semakin menurun. Skor kualitas hidup lebih rendah pada usia yang lebih tinggi, lama menderita stroke >1 tahun, dan pendidikan yang lebih rendah. Didapatkan perbedaan bermakna antara rerata skor kualitas hidup pasien stroke serangan pertama dan kedua. Kualitas hidup subjek pada serangan stroke pertama lebih baik secara bermakna dibandingkan pada kelompok serangan kedua, dalam domain fungsi dan peranan fisik, energi, serta total skor secara keseluruhan.Diskusi: Terdapat perbedaan bermakna kualitas hidup berdasarkan SF-36 antara pasien stroke iskemik serangan pertama dengan kedua.Kata kunci: SF-36, skor kualitas hidup, stroke iskemik


2021 ◽  
Vol 12 (3) ◽  
pp. 344-351
Author(s):  
Julie Cleuziou ◽  
Anna-Katharina Huber ◽  
Martina Strbad ◽  
Masamichi Ono ◽  
Alfred Hager ◽  
...  

Background: Long-term morbidity and mortality outcomes of the arterial switch operation (ASO) in patients with transposition of the great arteries and Taussig-Bing anomaly are excellent. With an increasing number of patients reaching adolescence and adulthood, more attention is directed toward quality of life. Our study aimed to determine the health-related quality of life (hrQoL) outcomes in patients after the ASO and identify factors influencing their hrQoL. Methods: In this cross-sectional study, hrQoL of patients after ASO was assessed with the German version of the Short Form-36 (SF-36) and the potential association of specified clinical factors was analyzed. Patients of at least 14 years of age who underwent ASO in our institution from 1983 were considered eligible. Results: Of the 355 questionnaires sent to eligible patients, 261 (73%) were available for analysis. Compared to the reference population, patients who had undergone ASO had a significantly higher score in all subscales of the SF-36 except for vitality ( P < .01). Patients with an implanted pacemaker ( P = .002), patients who required at least one reoperation ( P < .001), and patients currently taking cardiac medication ( P < .004) or oral anticoagulation ( P = .036) had lower physical component scores compared to patients without these factors. Conclusions: Patients’ self-assessed and self-reported hrQoL after ASO (using German version of the Short Form 36) is very good. In this population, hrQoL is influenced by reoperation, the need for a pacemaker, and current cardiac medication or anticoagulant use. The development of strategies designed to mitigate or minimize the requirements for, and/or impact of these factors may lead to better hrQoL in this patient population.


2000 ◽  
Vol 35 (2) ◽  
pp. 293-300 ◽  
Author(s):  
Jose A. Diaz-Buxo ◽  
Edmund G. Lowrie ◽  
Nancy L. Lew ◽  
Hongyuan Zhang ◽  
J.Michael Lazarus

Stroke ◽  
2020 ◽  
Vol 51 (Suppl_1) ◽  
Author(s):  
Joan M ODonnell ◽  
Maurizio Manuguerra ◽  
Jemma L Hodge ◽  
Greg Savage ◽  
Michael K Morgan

Background: Studies have questioned the effectiveness of surgery for the management of unruptured intracranial aneurysm (uIA). Few studies have examined the ability to drive and quality of life (QOL) after surgery for uIA. Objective: This study examined the effectiveness of surgical management of uIA by measuring patients’ perceived quality of life and their cognitive abilities related to driving. Methods: Between January 2011 and January 2016 patients with a uIA were assessed using the Quality Metric Short Form 36 (SF36) and the off-road driver screening instrument DriveSafeDriveAware. Reassessments were conducted at the 6-week post-operative follow-up for surgical patients and at 12-month follow-up for surgical and conservatively managed patients. Results: 175 patients enrolled in the study, of which 112(66%) had surgical management of their aneurysm. For the surgical cases who completed all assessments (N=74), there was a trend for the DriveSafe pre-operative mean score of 108 (SD 10.7) to be lower than the 6-week and 12-month post-operative mean scores (111 SD 9.7 and 112 SD 10.2 respectively)(p=0.05). There were no significant changes in DriveAware scores at any epoch or between patient groups nor in the MCS in the surgical group.. There was a significant decline in PCS scores at 6 weeks post-operatively which recovered at 12 months (52 SD 8.1, 46 SD 6.8 and 52 SD 7.1 respectively)( p <0.01). There was no significant difference in 12-month mRS scores between the surgical cases who completed with cases who did not complete all assessments. Conclusion: Surgery for uIA did not affect cognitive abilities for driving at 6 weeks or 12 months after surgery. There was a decline in the QOL in the first months after surgery, however QOL returned to pre-surgical status 12 months after surgery. If the risk of seizures is low and there are no post-operative complications, returning to driving can be recommended.


2018 ◽  
Vol 4 ◽  
pp. 233372141878281 ◽  
Author(s):  
Esmeralda Valdivieso-Mora ◽  
Mirjana Ivanisevic ◽  
Leslie A. Shaw ◽  
Mauricio Garnier-Villarreal ◽  
Zachary D. Green ◽  
...  

2011 ◽  
Vol 18 (2) ◽  
pp. 145-150 ◽  
Author(s):  
Maíra de Menezes Franco ◽  
Flaviane de Oliveira Souza ◽  
Elaine Cristine Lemes Mateus de Vasconcelos ◽  
Maurício Mesquita Sabino de Freitas ◽  
Cristine Homsi Jorge Ferreira

Trata-se de um ensaio clínico prospectivo comparativo que objetivou comparar os efeitos do tratamento com eletroestimulação transvaginal (ET) e do nervo tibial (ENT) sobre a qualidade de vida (QV) e queixas de perda urinária em mulheres com bexiga hiperativa. Participaram 42 pacientes com bexiga hiperativa ou incontinência urinária (IU) mista e foram divididas para tratamento com ET ou ENT. A QV foi avaliada pelo questionário de QV genérico, o Medical Outcomes Study Short Form 36 (SF-36) e um questionário específico para IU, o Incontinence Quality of Life Instrument (I-QOL). Os relatos de perdas urinárias e incômodos ocasionados foram avaliados, respectivamente, por meio do diário miccional de 24 horas e Escala Visual Analógica (EVA). O tratamento foi realizado uma vez por semana, totalizando doze semanas. O grupo da ENT teve melhora significativa em três domínios do I-QOL, na EVA, que avaliou o grau de incômodo causado pela IU e em quatro aspectos do diário miccional. No grupo de ET houve melhora significativa de dois domínios do SF-36, três domínios do I-QOL, na EVA e em quatro aspectos do diário. Houve melhora da QV em ambos os grupos, assim como uma diminuição das queixas de perda urinária, entretanto, o grupo que recebeu ET obteve melhora nos escores em dois domínios do questionário de QV genérico após o tratamento, que teve limitação por aspectos físicos e limitação por aspectos emocionais. O que não ocorreu com o grupo de ENT.


2018 ◽  
Vol 54 (6) ◽  
pp. 1001-1003 ◽  
Author(s):  
Tyson A Fricke ◽  
Benjamin R Loyer ◽  
Li Huang ◽  
Sophie Griffiths ◽  
Nima Yaftian ◽  
...  

2021 ◽  
Author(s):  
Richa Sharma ◽  
Robert Drummond ◽  
William Wiltshire ◽  
Robert Schroth ◽  
Milos Lekic ◽  
...  

ABSTRACT Objectives To investigate adolescent orthodontic patient experiences and quality of life with fixed appliances compared to Invisalign. Materials and Methods Adolescent patients in active treatment with Invisalign or fixed appliances for a minimum of 6 months were provided with the Child Oral Health Impact Profile-Short Form 19 questionnaire, along with additional items of interest that were assessed separately. Pearson's χ2 test was used to compare responses (P &lt; .05), and unpaired t-tests (P &lt; .05) were used to test for differences in mean satisfaction, quality of life, and domain scores. Results In total, 74 patients (37 in each treatment group) participated. Overall, no significant differences were noted in the mean quality of life, satisfaction, or domain scores between the two groups. A significant difference was noted in the time taken to adjust to appliances, with the Invisalign group demonstrating faster adaptation. Additionally, the fixed appliance group was 3.8 times more likely to report missing school because of their appliance (95% confidence interval [CI]: 1.2, 12.5) and 2.7 times more likely to report having difficulty eating certain foods (95% CI: 1.1, 7.1). When the sample of females between the ages of 14 and 18 was analyzed, the Invisalign group reported feeling attractive more often than the fixed appliance group. Conclusions Both treatment groups were generally very satisfied with their treatment modality. The overall quality of life of adolescent orthodontic patients undergoing treatment with fixed appliances and Invisalign for a minimum of 6 months was similar.


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