scholarly journals Family-Based Consent to Organ Transplantation: A Cross-Cultural Exploration

Author(s):  
Mark J Cherry ◽  
Ruiping Fan ◽  
Kelly Kate Evans

Abstract This special thematic issue of The Journal of Medicine and Philosophy brings together a cross-cultural set of scholars from Asia, Europe, and North America critically to explore foundational questions of familial authority and the implications of such findings for organ procurement policies designed to increase access to transplantation. The substantial disparity between the available supply of human organs and demand for organ transplantation creates significant pressure to manipulate public policy to increase organ procurement. As the articles in this issue explore, however, even if well intentioned, the desire to maximize organ procurement does not justify undermining foundational elements of human flourishing, such as the family. While defending at times quite different understandings of autonomy, informed consent, and familial authority, each author makes clear that a principled appreciation of the family is necessary. Otherwise, health care practice will treat the family in a cynical and instrumental fashion unlikely to support social or individual good.

2011 ◽  
Vol 17 (4) ◽  
pp. 378 ◽  
Author(s):  
Chris Rossiter ◽  
Cathrine Fowler ◽  
Nick Hopwood ◽  
Alison Lee ◽  
Roger Dunston

Family circumstances in infancy are persistent and powerful determinants of children’s physical and mental health, influencing inequalities that trace from childhood through to adulthood. While the social factors that perpetuate patterns of inequality are more complex than can be addressed through single interventions, child and family health (CFH) services represent crucial sites where trajectories of inequality can be disrupted. In particular, approaches that foster opportunities for practitioner–parent engagement that challenge traditional hierarchical health care practice, such as the Family Partnership Model (FPM), are recommended as ways of addressing disadvantage. Little is known about how practitioners implement models of working in partnership with families and, consequently, there is a gap in understanding how best to develop and sustain these new CFH practices. This paper reports a research project that investigated the experiences of 25 health professionals working within a FPM framework with vulnerable families. Through discussion of four key themes – redefining expertise, changing practices, establishing new relationships with parents and the complexities of partnership practice – the paper offers first-hand accounts of reframing practices that recognise the needs, skills and expertise of parents and thus contribute to empowerment of families.


2013 ◽  
Vol 17 (2) ◽  
Author(s):  
Rosana Santana de Souza ◽  
Rosângela Aparecida Pimenta Ferrari ◽  
Tabatha de Freitas Moreira Santos ◽  
Mauren Teresa G. Mendes Tacla

2008 ◽  
Vol 18 (3) ◽  
pp. 111-118
Author(s):  
Lourdes Ramos-Heinrichs ◽  
Lynn Hansberry Mayo ◽  
Sandra Garzon

Abstract Providing adequate speech therapy services to Latinos who stutter can present challenges that are not obvious to the practicing clinician. This article addresses cultural, religious, and foreign language concerns to the therapeutic relationship between the Latino client and the clinician. Suggestions are made for building cross-cultural connections with clients and incorporating the family into a collaborative partnership with the service provider.


1984 ◽  
Vol 15 (2) ◽  
pp. 211-230 ◽  
Author(s):  
S. Linder-Pelz ◽  
S. Levy ◽  
A. Tamir ◽  
T. Spenser ◽  
L. M. Epstein

2019 ◽  
Vol 2 (1) ◽  
pp. 27-34
Author(s):  
Richard Moreno ◽  
◽  
Cristinel Ștefănescu ◽  
Beatrice Gabriela Ioan ◽  
Mariana Cuceu ◽  
...  

2021 ◽  
pp. 1-16
Author(s):  
Bjørn Hofmann

Abstract Although efficiency is a core concept in health economics, its impact on health care practice still is modest. Despite an increased pressure on resource allocation, a widespread use of low-value care is identified. Nonetheless, disinvestments are rare. Why is this so? This is the key question of this paper: why are disinvestments not more prevalent and improving the efficiency of the health care system, given their sound foundation in health economics, their morally important rationale, the significant evidence for a long list of low-value care and available alternatives? Although several external barriers to disinvestments have been identified, this paper looks inside us for mental mechanisms that hamper rational assessment, implementation, use and disinvestment of health technologies. Critically identifying and assessing internal inclinations, such as cognitive biases, affective biases and imperatives, is the first step toward a more rational handling of health technologies. In order to provide accountable and efficient care we must engage in the quest against the figments of our minds; to disinvest in low-value care in order to provide high-value health care.


2011 ◽  
Vol 6 (4) ◽  
pp. 179-185 ◽  
Author(s):  
Michelle O'Reilly ◽  
Nicola Parker ◽  
Ian Hutchby

Using video to facilitate data collection has become increasingly common in health research. Using video in research, however, does raise additional ethical concerns. In this paper we utilize family therapy data to provide empirical evidence of how recording equipment is treated. We show that families made a distinction between what was observed through the video by the reflecting team and what was being recorded onto videotape. We show that all parties actively negotiated what should and should not go ‘on the record’, with particular attention to sensitive topics and the responsibility of the therapist. Our findings have important implications for both clinical professionals and researchers using video data. We maintain that informed consent should be an ongoing process and with this in mind we present some arguments pertaining to the current debates in this field of health-care practice.


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