Self-Care and Self-Advocacy

2021 ◽  
pp. 164-173
Author(s):  
Jenny Braunginn ◽  
Katie Larsen-Klodd ◽  
Lauri Pagano ◽  
Nancy Vargas
Keyword(s):  
Quality Of Life ◽  
Social Workers ◽  
Self Care ◽  
Workplace Stress ◽  
Life Assessment ◽  
School Social Workers ◽  
New Professionals ◽  
Self Advocacy

New professionals in the school social work field must be able to identify the symptoms of stress related to their work with students and families. This chapter explores the art and necessity of self-care for the school social workers and provides basic information about workplace stress, tools for quality-of-life assessment, and strategies to build immediate and long-term self-care routines. The goal is to enable school social workers to accurately assess their own quality of life and develop strong self-care practices in order to increase their engagement. Basic strategies are offered to increase compassion satisfaction, self-advocacy, and engagement within the helping profession.

Long-Term Effectiveness of Fingolimod for Multiple Sclerosis in a Real-World Clinical Setting

2021 ◽  
pp. 1-6
Author(s):  
Cihat Uzunköprü ◽  
Yesim Beckmann ◽  
Sabiha Türe
Keyword(s):  
Quality Of Life ◽  
Multiple Sclerosis ◽  
Real Life ◽  
Life Assessment ◽  
Health Related Quality ◽  
Serious Adverse Events ◽  
Related Quality ◽  
Health Related

<b><i>Introduction:</i></b> The primary aim of the present study was to evaluate the long-term efficacy of fingolimod in patients with multiple sclerosis (MS); secondary aims were to describe the safety of fingolimod with the evaluation of treatment satisfaction and impact on the quality of life in real life. <b><i>Methods:</i></b> We collected clinical, demographical, neuroradiological, and treatment data, including pre- and posttreatment status health-related quality of life from 286 MS patients consecutively treated with fingolimod. Clinical assessment was based on the Expanded Disability Status Scale (EDSS), and quality of life assessment was performed with MS-related quality of life inventory (MSQOLI). The data were recorded at baseline and every 6 months for 2 years. <b><i>Results:</i></b> One hundred and fourteen males and 172 females were enrolled. The annualized relapse rate and EDSS showed a statistically significant reduction during the observation period (<i>p</i> &#x3c; 0.001). The patients also demonstrated substantial improvements in magnetic resonance imaging (MRI) outcomes (<i>p</i> &#x3c; 0.001). Health-related quality of life scores improved significantly between baseline and 24-month visit (<i>p</i> &#x3c; 0.001). No serious adverse events occurred. <b><i>Conclusion:</i></b> In our cohort, fingolimod treatment was associated with reduced relapse, MRI activity, and improved EDSS and MSQOLI scores. Additionally, fingolimod has been able to maintain its effectiveness over a considerable long period of treatment.

“Kind, Sensitive, and Above All, Honest”: Long-Term Cancer Survivors’ Quality of Life and Self-Advocacy

2015 ◽  
Vol 32 (4) ◽  
pp. 373-378 ◽  
Author(s):  
Kristian G. E. Borofka ◽  
Justin P. Boren ◽  
Laura L. Ellingson
Keyword(s):  
Quality Of Life ◽  
Cancer Survivors ◽  
Self Advocacy

Liver transplantation for Wilson???s disease: long-term results and quality-of-life assessment

2003 ◽  
pp. 1003-1006 ◽  
Author(s):  
Robert P. Sutcliffe ◽  
Donal D. Maguire ◽  
Paolo Muiesan ◽  
Anil Dhawan ◽  
Giorgina Mieli-Vergani ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Liver Transplantation ◽  
Life Assessment ◽  
Long Term Results ◽  
Quality Of Life Assessment

scholarly journals Does long-term GH replacement therapy in hypopituitary adults with GH deficiency normalise quality of life?

2006 ◽  
Vol 155 (1) ◽  
pp. 109-119 ◽  
Author(s):  
Maria Koltowska-Häggström ◽  
Anders F Mattsson ◽  
John P Monson ◽  
Paul Kind ◽  
Xavier Badia ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Gh Deficiency ◽  
Disease Onset ◽  
Life Assessment ◽  
Hormone Deficiency ◽  
Gh Replacement ◽  
Country Specific

Objective: To determine whether impaired quality of life (QoL) in adults with GH deficiency (GHD) is reversible with long-term GH therapy and whether the responses in QoL dimensions differ from each other. Methods: QoL was measured by the Quality of Life–Assessment for Growth Hormone Deficiency in Adults (QoL-AGHDA) in general population samples in England & Wales, The Netherlands, Spain and Sweden (n = 892, 1038, 868 and 1682 respectively) and compared with corresponding patients’ data from KIMS (Pfizer International Metabolic Database) (n = 758, 247, 197 and 484 respectively) for 4–6 years a follow-up. The subsets of patients from England and Wales, and Sweden with longitudinal data for 5 years’ follow-up were also analysed. The change of the total QoL-AGHDA scores and responses within dimensions were evaluated. Subanalyses were performed to identify any specificity in response pattern for gender, age, disease-onset and aetiology. Results: Irrespective of the degree of impairment, overall QoL improved dramatically in the first 12 months, with steady progress thereafter towards the country-specific population mean. Problems with memory and tiredness were the most serious burden for untreated patients, followed by tenseness, self-confidence and problems with socialising. With treatment, these improved in the reverse order, normalising for the latter three. Conclusions: Long-term GH replacement results in sustained improvements towards the normative country-specific values in overall QoL and in most impaired dimensions. The lasting improvement and almost identical pattern of response in each patient subgroup and independent of the level of QoL impairment support the hypothesis that GHD may cause these patients’ psychological problems.

Long-Term Quality of Life Assessment in Patients With Auricular Prostheses

2013 ◽  
Vol 24 (2) ◽  
pp. 392-397 ◽  
Author(s):  
Hanneke Kievit ◽  
Godelieve W.J.A. Verhage-Damen ◽  
Koen J. Ingels ◽  
Emmanuel A.M. Mylanus ◽  
Myrthe K.S. Hol
Keyword(s):  
Quality Of Life ◽  
Life Assessment ◽  
Quality Of Life Assessment
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