Day-to-Day Decision Making by Adolescents and Young Adults with Cancer

Background: Adolescents and young adults (AYAs) with cancer must negotiate the transition between childhood and adulthood while dealing with a life-threatening illness. AYA involvement in decision making varies depending on the type of decision and when decisions occur during treatment, and evidence suggests that AYAs want to be involved in decision making. Objective: To explore involvement of AYAs with cancer in day-to-day decisions affected by their cancer and treatment. Methods: This qualitative study used interpretive focused ethnography within the sociologic tradition, informed by symbolic interactionism. Semi-structured interviews and informal participant observation took place at two quaternary pediatric oncology programs. Results: Thirty-one interviews were conducted with 16 AYAs ages 15 to 20 years. Major day to day decision-making categories identified included: (1) mental mindset, (2) self-care practices, (3) self-advocacy, and (4) negotiating relationships. Participants described how they came to grips with their illness early on and decided to fight their cancer. They described decisions they made to protect their health, how they advocated for themselves and decisions they made about relationships with family and friends. Conclusions: Through day-to-day decisions, participants managed the impact of cancer and its treatment on their daily lives. Research should focus on developing and implementing interventions to empower AYAs to participate in day-to-day decisions that will affect how they manage their cancer, its treatment and ultimately their outcomes. Implications for Practice: Healthcare providers can facilitate AYA's participation in day-to-day decision making through encouraging autonomy and self-efficacy by providing support and through effective communication.

High School Experiences That Support Post-School Success: What Can We Learn?

Students with disabilities continue to lag behind their peers without disabilities in the area of post-school success. This study qualitatively analyzed individual responses from 6 years of post-school outcomes survey data in one state to identify positive experiences said to help students reach their post-school goals. Respondents reported nine themes as being the most helpful in meeting their goals after high school, including having supportive staff members, taking career development coursework, and developing success attributes such as self-advocacy. A negative experience theme also emerged in the analysis. Implications for educators are discussed related to emphasizing instruction in self-determination and career development. Implications for states are discussed related to the post-school outcomes data collection process.

Correlates of disclosure of non-suicidal self-injury amongst Australian university students

Purpose Non-suicidal self-injury (NSSI) is associated with psychological disorders and suicidal thoughts and behaviours; disclosure of NSSI can serve as a catalyst for help-seeking and self-advocacy amongst people who have self-injured. This study aims to identify the socio-demographic, NSSI-related, socio-cognitive and socio-emotional correlates of NSSI disclosure. Given elevated rates of NSSI amongst university students, this study aimed to investigate these factors amongst this population. Design/methodology/approach Australian university students (n = 573) completed online surveys; 80.2% had previously disclosed self-injury. Findings NSSI disclosure was associated with having a mental illness diagnosis, intrapersonal NSSI functions, specifically marking distress and anti-dissociation, having physical scars from NSSI, greater perceived impact of NSSI, less expectation that NSSI would result in communication and greater social support from friends and significant others. Originality/value Expanding on previous works in the area, this study incorporated cognitions about NSSI. The ways in which individuals think about the noticeability and impact of their NSSI, and the potential to gain support, are associated with the decision to disclose self-injury. Addressing the way individuals with lived experience consolidate these considerations could facilitate their agency in whether to disclose their NSSI and highlight considerations for health-care professionals working with clients who have lived experience of NSSI.

Accessibility, Self-Advocacy, and Self-Efficacy of Students With Disabilities in the 21st Century University

Few studies have addressed the challenging transition that occurs when students with disabilities graduate from the K-12 system and enter the world of higher education. Once in college, students with disabilities no longer have, among other federally-mandated supports, a child-study team to represent them, and thus must develop strong self-advocacy and self-efficacy skills in order to receive the accommodations and modifications they need to succeed academically. This chapter discusses the issues facing students with disabilities during this transition, details the services and support offered by colleges to guide students with disabilities, and shares recommended best practices for instructional strategies higher education can employ to ensure that these students flourish in the classroom and as self-assured, independent adults in society.

Roads to Success: The Career Attainment Experiences of Lawyers With Visual Impairments in South Korea

Problem: Disability issues have long been a topic at the margins of HRD research and have rarely been examined outside the United States context or with a focus on a specific disability type. Additionally, largely due to a homogeneous national culture, people with disabilities in South Korea experience unique barriers in career development. Solution: The authors report the findings of a multiple case study on the career attainment experiences of lawyers with visual impairments in South Korea. Data analyzed from interviews with five participants showed that various individual (perseverance, identity as a person with a visual impairment, self-advocacy, and strategic mindset) and social (family and peer support, reasonable accommodation, precedent, and having a leader with a vision for inclusion) factors contributed to their career attainment. Stakeholders: The findings of this study can aid organizational leaders, hiring managers, HRD practitioners in charge of providing reasonable accommodations, and educators of people with disabilities.

The Importance of Disability Identity, Self-Advocacy, and Disability Activism

Disability identity development is an important part of the experience of people with disabilities. Participation in disability community activism and advocacy for the goals of the disability community is related to self-advocacy and plays a fundamental role in shifting individuals’ views of themselves and their disabilities. This article explores a political disability identity conceptual framework and provides recommendations for teachers to develop an understanding of disability in school focused on self-worth and pride; awareness of discrimination, common cause within the disability community, and policy alternatives; and engagement in political action.

Promising or problematic? Perceptions of active learning from STEM students with ADHD and specific learning disabilities

STEM instructors are encouraged to adopt active learning in their courses, yet our understanding of how active learning affects different groups of students is still developing. One group often overlooked in higher education research is students with disabilities. Two of the most commonly occurring disabilities on college campuses are attention-deficit/hyperactivity disorder (ADHD) and specific learning disorders (SLD). We investigated how the incorporation of active-learning practices influences the learning and self-advocacy experiences of students with ADHD and/or SLD (ADHD/SLD) in undergraduate STEM courses. Semi-structured interviews with 25 STEM majors with ADHD/SLD were conducted and data were analyzed using qualitative methods. Most participants perceived themselves to learn best in a STEM course with at least some elements of active learning. Participants described how they perceived active learning to support or hinder their learning and how active learning affected their self-advocacy. Active-learning barriers could be attributed to a combination of instructional factors. These factors included how a particular active-learning practice was implemented within a STEM course and limited awareness of universal design for learning. Defining the supports and barriers perceived by students with ADHD/SLD is a crucial first step in developing more inclusive active-learning STEM courses. Suggestions for research and teaching are provided.

Designing Participatory Aging Research on Exclusion From Social Relations: A Citizen Science Project

Many policies and initiatives aim at enhancing the social participation of older adults. Despite this growing interest in increasing social inclusion and combating social exclusion in older age, the voices of socially-excluded older adults and their experiences remain underrepresented in research. Based on data from the Austrian research project “Socially Excluded Older Adults: Voices and Experiences” (SEVEN), I reflect on what it means to co-create research with the hard-to-reach populations of socially excluded older adults. Data discussed is derived By inviting this group to participate in each stage of the research, the project develops an innovative approach that, on the one hand, facilitates and advances ways for socially-excluded older adults to express their voices, thereby empowering them and their self-advocacy, and, on the other hand, creates research insights that are able to grasp the life worlds of older, socially excluded adults more accurately.