Patient and public involvement in integrated psychosocial care

2019 ◽  
Vol 28 (2) ◽  
pp. 135-143
Author(s):  
Io Vassiliadou ◽  
Esther Tolani ◽  
Lindsay Ip ◽  
Abigail Smith ◽  
Iliatha Papachristou Nadal
Keyword(s):  
Mental Health ◽  
Public Involvement ◽  
Healthcare Professionals ◽  
Psychosocial Care ◽  
Patient And Public Involvement ◽  
Service Users ◽  
Long Term Conditions ◽  
Improvement Project ◽  
Content Type

Purpose Recent models of care incorporate service user involvement within the development and sustainability of a quality improvement project. The purpose of this paper is to demonstrate the significance of working with patients and members of the public for the integration of psychosocial care into long-term condition (LTC) management. Design/methodology/approach Research shows that mental health difficulties are more prevalent in people with LTC. The three Dimensions for Long-term Conditions (3DLC) is a patient-centred multidisciplinary service which integrates psychological and social care into the usual physical care. Thematic analysis was conducted on the discussions of the two patient and public involvement workshops that were facilitated by the service. The workshops included healthcare professionals, patients with LTC and their carers. Findings Several themes and subthemes emerged which highlighted the importance of discussing and treating mental health in a physical health setting, the challenges that both the patients and healthcare professionals encounter and the ways in which an integrated care service may address these barriers. The findings show that there was an emphasis on patient-centeredness, accessibility of services and the need for better communication. Practical implications People with LTC can be empowered to better self-manage their condition, whilst having access to all types of care, physical, social and psychological. By involving service users in the implementation process of the 3DLC service, the components of an effective integrated service are delineated. Originality/value The service users have identified barriers and facilitators of integrating a biopsychosocial model in care pathways. This has helped the 3DLC team to further develop the model to ensure improvements in condition-specific outcomes, quality of life and healthcare utilisation.

scholarly journals Therapeutic institutions of violence: conceptualising the biographical narratives of mental health service users/survivors accessing long term “treatment” in England

2020 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Stephen J. Macdonald
Keyword(s):  
Mental Health ◽  
Family Members ◽  
Psychiatric Hospitals ◽  
Term Treatment ◽  
Service Users ◽  
Content Type ◽  
Criminal Violence ◽  
Long Term Treatment ◽  
Forms Of Violence

Purpose This paper aims to conceptualise the residential and psychiatric hospital as a space where criminality and social harms can emerge. Because of recent media scandals over the past 10 years concerning privately-owned hospitals, this study examines the lived experiences of service users/survivors, family members and practitioners to examine historic and contemporary encounters of distress and violence in hospital settings. Design/methodology/approach The study consists of 16 biographical accounts exploring issues of dehumanising and harmful practices, such as practices of restraint and rituals of coercive violence. A biographical methodology has been used to analyse the life stories of service users/survivors (n = 9), family members (n = 3) and professional health-care employees (n = 4). Service users/survivors in this study have experienced over 40 years of short-term and long-term periods of hospitalisation. Findings The study discovered that institutional forms of violence had changed after the deinstitutionalisation of care. Practitioners recalled comprehensive experiences of violence within historic mental hospitals, although violence that may be considered criminal appeared to disappear from hospitals after the Mental Health Act (1983). These reports of criminal violence and coercive abuse appeared to be replaced with dehumanising and harmful procedures, such as practices of restraint. Originality/value The data findings offer a unique interpretation, both historical and contemporary, of dehumanising psychiatric rituals experienced by service users/survivors, which are relevant to criminology and MAD studies. The study concludes by challenging oppressive psychiatric “harms” to promote social justice for service users/survivors currently being “treated” within the contemporary psychiatric system. The study intends to conceptualise residential and psychiatric hospitals as a space where criminality and social harms can emerge. The three aims of the study examined risk factors concerning criminality and social harms, oppressive and harmful practices within hospitals and evidence that violence occurs within these institutionalised settings. The study discovered that institutional forms of violence had changed after the deinstitutionalisation of care. These reports of violence include dehumanising attitudes, practices of restraint and coercive abuse.

Administrative staff self-reported long-term conditions

2019 ◽  
Vol 12 (6) ◽  
pp. 483-494
Author(s):  
Kathy Lee Wright ◽  
Karen Verney ◽  
Daryl Brennan ◽  
David Lindsay ◽  
Daniel Lindsay ◽  
...  
Keyword(s):  
Mental Health ◽  
Health Service ◽  
Self Report ◽  
Physical And Mental Health ◽  
Cross Sectional Survey ◽  
Long Term Conditions ◽  
Content Type ◽  
Musculoskeletal Conditions ◽  
Term Condition

Purpose The purpose of this paper is to investigate the long-term conditions affecting the administration workforce of a regional Australian health service, and their self-management of these conditions. Design/methodology/approach A cross-sectional survey design was used. The sample consisted of all administration staff members employed in 2018 across a large regional health service in Northern Australia. Findings Of the 328 respondents, 167 (51 per cent) reported having at least one long-term condition. Of these, 136 (81.4 per cent) indicated a single main condition for which management strategies were used. Musculoskeletal conditions were the most commonly nominated category (59.6 per cent), followed by mental health (10.3 per cent). Respondents with musculoskeletal conditions were statistically more likely to have a co-existing mental health long-term condition, χ2(1) = 95.64, p<0.001. There was also a statistically significant association between respondents reporting a mental health condition and being overweight, χ2(1) = 54.27, p< 0.05. Research limitations/implications The response rate of 35 per cent, whilst relatively low, is a slight increase on similar surveys within this organisation. The reliability of the self-report data, presence of study bias and a weakening of the study’s external validity is acknowledged. Practical implications Targeted workplace intervention strategies, such as holistic wellness programs, should complement personal approaches, promote an ergonomic environment and create opportunities for increased dialogue between employees and their line managers, particularly regarding the complex interplay between long-term physical and mental health. Originality/value This is the first study of self-reported long-term conditions among administration staff within a health service, and augments findings from previous studies involving health professional groups in the same organisation.

Developing and evaluating guidelines for patient and public involvement (PPI) in research

2015 ◽  
Vol 28 (2) ◽  
pp. 141-155 ◽  
Author(s):  
Katherine Pollard ◽  
Anne-Laure Donskoy ◽  
Pamela Moule ◽  
Christine Donald ◽  
Michelle Lima ◽  
...  
Keyword(s):  
Service User ◽  
Public Involvement ◽  
Good Practice ◽  
Patient And Public Involvement ◽  
Service Users ◽  
User Research ◽  
Content Type ◽  
Research Guidelines ◽  
Health And Social Care ◽  
Service User Research

Purpose – A growing literature reports the benefits and challenges of patient and public involvement (PPI) in research; nevertheless, understanding PPI in research design remains under-developed. The purpose of this paper is to report learning experiences from involving service users as research partners in two projects that developed and evaluated guidelines for good practice in this regard. The main objective was to evaluate these guidelines. Design/methodology/approach – PPI research guidelines were developed through five workshops involving service users/patients, carers, health and social care professionals/managers and academics. Using a participatory qualitative approach, these guidelines were evaluated through mapping them against the two service user research partners’ experience within another project. Findings – The guidelines were found to be fit for purpose, as they allowed problems to be easily identified and reassurance that required standards were being met. Both academic and service user research partners learned and gained relevant skills. Two service user research partners also found their daily living skills unexpectedly enhanced by project participation. Originality/value – The PPI guidelines, the authors developed were produced by consensus involving several stakeholders. Service users involved as research partners in the project experienced unanticipated personal benefits.

Shared housing and long-term mental illness

2014 ◽  
Vol 17 (1) ◽  
pp. 41-47
Author(s):  
David Abrahamson
Keyword(s):  
Mental Health ◽  
Mental Health Service ◽  
Health Service ◽  
Independent Living ◽  
Service Users ◽  
Personal View ◽  
Content Type ◽  
Shared Housing ◽  
Hospital Wards

Purpose – The purpose of this paper is to give an account by a rehabilitation psychiatrist of many years of involvement in shared housing for former long-stay hospital residents and other long-term mental health service users. Design/methodology/approach – The paper offers a personal view based on developments in one locality of East London, blending case study narrative with cited earlier published papers that confirm and/or give greater detail on specific aspects of the experience gained. Findings – Long-term mental health service users, given the opportunity via shared housing to develop more lasting and natural relationships, proved to have social and interactive capacity that was obscured by both the conditions of hospital wards and by isolating accommodation “in the community”. The experience provides lessons for a better understanding of patients’ problems. Practical implications – Shared housing is often seen as simply a poor substitute for independent living; but the experience recounted here suggests that shared living may have particular value for some client groups. Originality/value – The housing developments and the associated research remain unusual and of potential value for planners of long-term services.

scholarly journals Healthcare professionals’ perspectives on identifying and managing perinatal anxiety: a qualitative study

2019 ◽  
Vol 69 (688) ◽  
pp. e768-e776 ◽  
Author(s):  
Victoria Silverwood ◽  
Annabel Nash ◽  
Carolyn A Chew-Graham ◽  
Jacqualyn Walsh-House ◽  
Athula Sumathipala ◽  
...  
Keyword(s):  
Mental Health ◽  
Qualitative Study ◽  
Public Involvement ◽  
Healthcare Professionals ◽  
Mental Health Problems ◽  
Patient And Public Involvement ◽  
Perinatal Mental Health ◽  
Data Generation ◽  
Structured Interviews ◽  
Perinatal Anxiety

BackgroundPerinatal mental health problems are those that occur during pregnancy or up to 12 months postpartum, and affect up to 20% of women. Perinatal anxiety (PNA) is at least as common as depression during the perinatal phase and can adversely impact on both mother and child. Despite this, research into anxiety has received less attention than depression. The National Institute for Health and Care Excellence guidance on perinatal mental health has identified PNA as a research priority.AimTo explore the perspectives and experiences of healthcare professionals (HCPs) in the identification and management of PNA.Design and settingThis was a qualitative study in primary and secondary care set in the West Midlands from February 2017 to December 2017.MethodSemi-structured interviews (n = 23) with a range of HCPs. Iterative approach to data generation and analysis, using principles of constant comparison. Patient and Public Involvement and Engagement (PPIE) group was involved throughout the study.ResultsTwenty-three HCPs interviewed: 10 GPs, seven midwives, five health visitors, and one obstetrician. Four themes were uncovered: PNA as an ‘unfamiliar concept’; reliance on clinical intuition and not clinical tools; fragmentation of care; and opportunities to improve care.ConclusionAwareness and understanding of PNA among HCPs is variable, with debate over what is ‘normal’ anxiety in pregnancy. HCPs suggested that PNA can be challenging to identify, with mixed views on the use and value of case-finding tools. Opportunistic identification was noted to be significant to aid diagnosis. Care for women diagnosed with PNA was reported to be fragmented and interprofessional communication poor. Potential solutions to improve care were identified.

Using patient and public involvement to identify priorities for research in long-term conditions management

2020 ◽  
Vol 29 (11) ◽  
pp. 612-617
Author(s):  
Sarah Brand ◽  
Louise Bramley ◽  
Eleanore Dring ◽  
Alison Musgrove
Keyword(s):  
Public Involvement ◽  
Research Priorities ◽  
Research Process ◽  
Patient And Public Involvement ◽  
Healthcare Research ◽  
Long Term Conditions ◽  
Research Themes ◽  
Fundamental Research ◽  
Experience Of Illness

Background: Patient and public involvement (PPI) is increasingly important in healthcare research. Although this is accepted at the level of individual research studies, it has been less well used in scoping fundamental research priorities. It has been suggested that patients with long-term conditions (LTCs) are well placed to influence research priorities in this area due to their accumulated experience of illness over time. Aims: To obtain PPI in research-priority setting for a group with a special interest in LTC research. Discussion: PPI representatives provided views on issues they thought required further research. The facilitators were able to move from the specifics of these ideas to identify cross-cutting research priorities. Conclusion: It was possible to determine broad research themes despite PPI representatives initially articulating identified issues in very specific terms. Facilitating a better understanding of the research process for PPI representatives would allow their contribution to be more effective. Implications for practice PPI should be considered at the beginning of the process when broad research priorities are considered and before the study design. This is particularly so for broad, non-specialty-focused research themes such as LTCs. More work is required to ensure the views of harder-to-reach groups are included in this type of PPI.

scholarly journals Transferring, translating and transforming knowledge: the role of brokering in healthcare networks

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sharon J. Williams ◽  
Zoe Radnor ◽  
James Aitken ◽  
Ann Esain ◽  
Olga Matthias
Keyword(s):  
Conceptual Framework ◽  
Information Exchange ◽  
Healthcare Professionals ◽  
Participant Observation ◽  
Knowledge Exchange ◽  
Long Term Conditions ◽  
Content Type ◽  
The Uk

PurposeThis research examines how knowledge and information are managed within two care networks. We develop a conceptual framework drawing on the notion of brokering and the 3T framework, which is used to describe the relative complexity of boundaries (referred to in the framework as syntactic, semantic and pragmatic) as well as capabilities and processes required to exchange information within the network. Previous research on brokering has focused on healthcare managers and professionals, but this research extends to patients and caregivers. Understanding knowledge exchange and brokering practices in healthcare is critical to the delivery of effective services.Design/methodology/approachFor this case research, non-participant observation and experienced-based interviews were undertaken with healthcare professionals, patients and caregivers within two care networks.FindingsThe findings reveal brokering roles occupied by healthcare professionals, patients and caregivers support the transfer, translation and transformation of knowledge and information across functional and organisational boundaries. Enablers and disablers to brokering and the exchange of knowledge and information are also identified.Research limitations/implicationsThe study is limited to two care networks for long-term conditions within the UK. Further research opportunities exist to examine similar care networks that extend across professional and organisational boundaries.Practical implicationsThis research informs healthcare professionals of the brokering capabilities that occur within networks and the enabling and disabling factors to managing knowledge across boundaries.Originality/valueThis paper provides a conceptual framework that categorises how increased levels of knowledge and information exchange and brokering practices are managed within care networks.

scholarly journals Involving service users to identify research priorities in a UK forensic mental health service

2020 ◽  
pp. 1-6
Author(s):  
Anne Aboaja ◽  
Bunny Forsyth ◽  
Helen Bates ◽  
Robert Wood
Keyword(s):  
Mental Health ◽  
Mental Health Services ◽  
Health Services ◽  
Public Involvement ◽  
Research Priorities ◽  
Patient And Public Involvement ◽  
Service Users ◽  
Two Phase ◽  
Research Themes ◽  
Mental Health Settings

Aims and method Patient and public involvement (PPI) is a priority for health research. PPI improves the relevance and quality of research. The study aimed to involve service users in identifying research priorities for the service. A two-phase adapted Delphi technique was used to generate a list of research topics from service users in secure in-patient mental health settings and on specialist mental health prison wings. Topic content analysis was undertaken. Service users were further consulted, and research themes were ranked in order of priority. Results Of the eight research themes identified, the three given the highest priority by service users were, in descending order, physical health, future plans and moving on, and causes of illness and crime. Clinical implications Service users are willing to be involved in setting research priorities for mental health services. Through non-tokenistic PPI, service users can uniquely shape the research agenda of mental health services.

Now they’re listening: involvement in clinical psychology training

2019 ◽  
Vol 23 (1) ◽  
pp. 23-29
Author(s):  
Laura Lea ◽  
Sue Holttum ◽  
Victoria Butters ◽  
Diana Byrne ◽  
Helen Cable ◽  
...  
Keyword(s):  
Mental Health ◽  
Mental Health Professionals ◽  
Clinical Psychology ◽  
Health Professionals ◽  
Service User ◽  
Health Workers ◽  
Psychology Training ◽  
Service Users ◽  
Clinical Psychology Training ◽  
Content Type

PurposeThe 2014/2015 UK requirement for involvement of service users and carers in training mental health professionals has prompted the authors to review the work of involvement in clinical psychology training in the university programme. Have the voices of service users and carers been heard? The paper aims to discuss this issue.Design/methodology/approachThe authors update the paper of 2011 in which the authors described the challenges of inclusion and the specific approaches the authors take to involvement. The authors do this in the context of the recent change to UK standards for service user and carer involvement, and recent developments in relation to partnership working and co-production in mental healthcare. The authors describe the work carried out by the authors – members of a service user involvement group at a UK university – to ensure the voices of people affected by mental health difficulties are included in all aspects of training.FindingsCareful work and the need for dedicated time is required to enable inclusive, effective and comprehensive participation in a mental health training programme. It is apparent that there is a group of service users whose voice is less heard: those who are training to be mental health workers.Social implicationsFor some people, involvement has increased. Trainee mental health professionals’ own experience of distress may need more recognition and valuing.Originality/valueThe authors are in a unique position to review a service-user-led project, which has run for 12 years, whose aim has been to embed involvement in training. The authors can identify both achievements and challenges.

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