PD Check‐In: The development and trial of a supported self‐management program for people with Parkinson's disease following intensive speech intervention

2021 ◽  
Author(s):  
Ann Finnimore ◽  
Deborah Theodoros ◽  
Anna F. Rumbach
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Management Program ◽  
Self Management ◽  
Speech Intervention

Benefits of a Self-Management Program for the Couple Living With Parkinson’s Disease: A Pilot Study

2020 ◽  
pp. 073346482091813 ◽  
Author(s):  
Karen S. Lyons ◽  
Alex Zajack ◽  
Melissa Greer ◽  
Holly Chaimov ◽  
Nathan F. Dieckmann ◽  
...  
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Pilot Study ◽  
Intervention Group ◽  
Management Program ◽  
Self Management ◽  
Relaxation Techniques ◽  
Community Based ◽  
Aerobic Activity ◽  
Mental Relaxation

The goal of this pilot study was to explore health benefits for couples participating together in an existing community-based self-management workshop for Parkinson’s disease (PD). A quasi-experimental two-wave design explored the effects of the Strive to Thrive program in comparison to a wait-list control condition. Preliminary data ( n = 39 couples) showed that spouses in the intervention group had greater engagement in mental relaxation techniques at 7 weeks than those in the control condition (large effect size). Small effects were observed for increases in aerobic activity and mental relaxation for the adult with PD, increases in strength-based activities and self-efficacy for spouses, declines in depressive symptoms for spouses, and decreases in protective buffering for both adults with PD and spouses. The program showed potential for existing community-based programs to benefit couples living with chronic illness.

Home-based exercise monitored with telehealth is feasible and acceptable compared to centre-based exercise in Parkinson’s disease: A randomised pilot study

2020 ◽  
pp. 026921552097626
Author(s):  
Allyson Flynn ◽  
Elisabeth Preston ◽  
Sarah Dennis ◽  
Colleen G Canning ◽  
Natalie E Allen
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Freezing Of Gait ◽  
Management Program ◽  
Self Management ◽  
Randomised Control Trial ◽  
Secondary Outcome ◽  
Mixed Response ◽  
Home Based ◽  
At Home

Objectives: To investigate the feasibility and acceptability of a home-based exercise program monitored using telehealth for people with Parkinson’s disease. Design: Pilot randomised control trial. Setting: University physiotherapy clinic, participants’ homes. Participants: Forty people with mild to moderate Parkinson’s disease, mean age 72 (6.9). Intervention: In Block 1 (5 weeks) all participants completed predominantly centre-based exercise plus a self-management program. Participants were then randomised to continue the centre-based exercise ( n = 20) or to a home-based program with telehealth ( n = 20) for Block 2 (5 weeks). The exercises targeted balance and gait. Outcomes: The primary outcomes were the feasibility and acceptability of the intervention. Secondary outcomes were balance, gait speed and freezing of gait. Results: Adherence was high in Block 1 (93%), and Block 2 (centre-based group = 93%, home-based group = 84%). In Block 2, the physiotherapist spent 6.4 hours providing telehealth to the home-based group (mean 10 (4) minutes per participant) and 32.5 hours delivering the centre-based exercise classes (98 minutes per participant). Participants reported that exercise was helpful, they could follow the home program and they would recommend exercising at home or in a group. However, exercising at home was less satisfying and there was a mixed response to the acceptability of the self-management program. There was no difference between groups in any of the secondary outcome measures (preferred walking speed mean difference −0.04 (95% CI: −0.12 to 0.05). Conclusion: Home-based exercise monitored using telehealth for people with Parkinson’s disease is feasible and acceptable.

scholarly journals 174 Benefits of a Self-Management Program for the Older Couple Living with Parkinson’s Disease: A Pilot Study

2019 ◽  
Vol 48 (Supplement_3) ◽  
pp. iii17-iii65
Author(s):  
Karen Lyons ◽  
Alex Zajack ◽  
Melissa Greer ◽  
Holly Chaimoy ◽  
Nathan Dieckmann ◽  
...  
Keyword(s):  
Older Adults ◽  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Intervention Group ◽  
Management Program ◽  
Self Management ◽  
Relaxation Techniques ◽  
Wait List ◽  
Wait List Control ◽  
Mental Relaxation

Abstract Background Although community-based self-management workshops have been found to benefit older adults with Parkinson’s disease (PD), it is unclear if there could be added value for the couple if the spouse also participated. Methods A quasi-experimental two-wave design (0 and seven week follow-up) was used to explore the effects of a self-management program on the health and relational outcomes of older adults with PD and their spouses in comparison to a wait-list control condition. Thirty nine couples were enrolled and completed the study (19 in the intervention group and 20 in the wait-list control). Results Adjusting for baseline outcome values, spouses in the intervention group had significantly greater engagement in mental relaxation techniques (p < .001; d = 1.28) than those in the control condition at seven weeks. Additionally, moderate effect sizes were observed for increases in the mental relaxation (d = 0.44) and aerobic activity (d = 0.44) of older adults with PD and the strength-based activities of spouses (d = 0.33) in the intervention group. Small to moderate effects were observed for declines in the depressive symptoms of spouses (d = 0.29) and older adults with PD (d = 0.14) and care strain of spouses (d = 0.15) in the intervention group. Finally, perceptions of marital quality improved for older adults with PD (d = 0.46) and spouses (d = 0.41) and reports of protective buffering (i.e. hiding concerns) declined for older adults with PD (d = 0.24) and spouses (d = 0.33) in the intervention group compared to the wait-list control condition. Conclusion Preliminary data showed promise for self-management programs benefiting couples living with Parkinson’s disease. Although larger samples and randomized controlled trials are needed to establish the full benefit of such programs, greater attention to interventions for the older couple is warranted.

The Development and Effects of a Self-management Program for Patients with Parkinson's Disease

2007 ◽  
Vol 37 (6) ◽  
pp. 891 ◽  
Author(s):  
Kyeong Yae Sohng ◽  
Jung Soon Moon ◽  
Kwang Soo Lee ◽  
Dong Won Choi
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Management Program ◽  
Self Management

scholarly journals An Innovative Personalised Management Program for Older Adults with Parkinson’s Disease: New Concepts and Future Directions

2021 ◽  
Vol 11 (1) ◽  
pp. 43
Author(s):  
Piyush Varma ◽  
Lakshanaa Narayan ◽  
Jane Alty ◽  
Virginia Painter ◽  
Chandrasekhara Padmakumar
Keyword(s):  
Parkinson’S Disease ◽  
Parkinson's Disease ◽  
Older Persons ◽  
Clinical Manifestations ◽  
Clinical Syndrome ◽  
Management Program ◽  
Older Person ◽  
Care Needs ◽  
Future Directions ◽  
New Concepts

Introduction: Parkinson’s disease is a heterogeneous clinical syndrome. Parkinson’s disease in older persons presents with a diverse array of clinical manifestations leading to unique care needs. This raises the need for the healthcare community to proactively address the care needs of older persons with Parkinson’s disease. Though it is tempting to categorise different phenotypes of Parkinson’s disease, a strong evidence based for the same is lacking. There is considerable literature describing the varying clinical manifestations in old age. This article aims to review the literature looking for strategies in personalising the management of an older person with Parkinson’s disease.

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