scholarly journals Exploring the emotional and behavioural reactions to receiving personalized melanoma genomic risk information: a qualitative study

2019 ◽  
Vol 180 (6) ◽  
pp. 1390-1396 ◽  
Author(s):  
G.L. Fenton ◽  
A.K. Smit ◽  
L. Keogh ◽  
A.E. Cust
Keyword(s):  
Qualitative Study ◽  
Risk Information ◽  
Genomic Risk

scholarly journals Implementation considerations for offering personal genomic risk information to the public: a qualitative study

2020 ◽  
Vol 20 (1) ◽  
Author(s):  
Amelia K. Smit ◽  
Gillian Reyes-Marcelino ◽  
Louise Keogh ◽  
Kate Dunlop ◽  
Ainsley J. Newson ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Risk Information ◽  
Personal Genomic ◽  
The Public ◽  
Genomic Risk

scholarly journals Users’ perceptions about receiving personalized depression risk information: findings from a qualitative study

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Heidi Eccles ◽  
Doaa Nadouri ◽  
Molly Nannarone ◽  
Bonnie Lashewicz ◽  
Norbert Schmitz ◽  
...  
Keyword(s):  
Mental Health ◽  
Qualitative Study ◽  
Risk Communication ◽  
Risk Score ◽  
Controlled Trial ◽  
Qualitative Interviews ◽  
Risk Information ◽  
Depression Risk ◽  
Communication Program ◽  
The Impact

Abstract Objectives To understand users’ perceptions about receiving their personalized depression risk score and to gain an understanding about how to improve the efficiency of risk communication from the user perspective. Methods A qualitative study embedded in a randomized controlled trial (RCT) on evaluating the impact of providing personalized depression risk information on psychological harms and benefits. The participants (20 males and 20 females) were randomly selected from the intervention arm of the RCT after the 12-month assessment. The qualitative interviews were conducted through telephone, audio recorded and transcribed verbatim. We conducted a content analysis to describe the content and contextual meaning of data collected from participants. Results The first theme explained the motivation for receiving a risk score. Most participants chose to receive their personalised depression risk score with the goal of improving their self-awareness. The results revealed three sub-themes surrounding perceptions and implication of receiving their risk score: positive, negative, and neutral. Most participants found that receiving their score was positive because it improved their awareness of their mental health, but some participants could see that some people would have negative feelings when getting the score causing them to be more likely to get depression. The final theme focussed on improvements including: the best delivery methods, having resources and strategies, and targeting younger people. Conclusion The most significant motivation for, and benefit of receiving one’s personalized depression risk score was improved awareness of one’s mental health. A comprehensive risk communication program may improve the uptake and maximize the impact on behavior changes and risk reduction.

scholarly journals Public preferences for communicating personal genomic risk information: a focus group study

2015 ◽  
Vol 19 (6) ◽  
pp. 1203-1214 ◽  
Author(s):  
Amelia K. Smit ◽  
Louise A. Keogh ◽  
Jolyn Hersch ◽  
Ainsley J. Newson ◽  
Phyllis Butow ◽  
...  
Keyword(s):  
Focus Group ◽  
Risk Information ◽  
Focus Group Study ◽  
Public Preferences ◽  
Personal Genomic ◽  
Genomic Risk

scholarly journals Comprehending and Acting on Pandemic Health Risk Information Differently: A Qualitative Study Using the Mental Models’ Approach

2021 ◽  
Author(s):  
Siv Hilde Berg ◽  
Marie Therese Shortt ◽  
Henriette Thune ◽  
Jo Røislien ◽  
Jane K. O’Hara ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Health Risk ◽  
Risk Communication ◽  
Mental Models ◽  
Virus Transmission ◽  
Relevant Information ◽  
Risk Information ◽  
Interview Data ◽  
Scientific Uncertainty ◽  
Geographical Regions

Abstract BackgroundA worldwide pandemic of a new and unknown virus is characterised by scientific uncertainty. Yet, health authorities still need to communicate complex health risk information to the public – despite this uncertainty. The mental models approach to risk communication describes how people perceive and make decisions regarding complex risks, with the aim of identifying decision-relevant information that can be targeted in risk communication interventions. This study used COVID-19 as a case to explore how people make sense of scientific information and apply it to their lives and behaviour using the concept of mental models.MethodsThis qualitative study included 15 male and female participants of different ages and from different geographical regions in Norway, occupational areas and with different education levels. The participants were interviewed individually, and the interview data analysed via directed content analysis, with predetermined themes and codes derived the Norwegian Institute of Public Health’s official website. Materials in the interview data not represented by deductive codes were coded inductively. The participants’ perceptions and behaviours related to health risk information were analysed across three themes: virus transmission, exposure to risk and consequences of COVID-19. ResultsThe results imply that people put different meanings to the medical and scientific words used by experts to explain the pandemic, e.g. virus transmission and the reproduction number. And while some people expressed the need to comprehend why certain behavior and activities involve a high risk, others preferred simple, clear messages focusing on what to do and how to protect themselves. Similarly, information about health consequences caused panic for some and awareness for others. ConclusionThere is no one-size fits all to public health risk communication, and empowering people with decision-relevant information necessitates targeted and balanced risk communication.

scholarly journals Does genomic risk information motivate people to change their behavior?

10.1186/gm37 ◽  
2009 ◽  
Vol 1 (3) ◽  
pp. 37 ◽  
Author(s):  
Nora B Henrikson ◽  
Deborah Bowen ◽  
Wylie Burke
Keyword(s):  
Risk Information ◽  
Genomic Risk

The psychological impact of providing women with risk information for pre-eclampsia: A qualitative study

Midwifery ◽  
2014 ◽  
Vol 30 (12) ◽  
pp. 1187-1195 ◽  
Author(s):  
J.M. Harris ◽  
L. Franck ◽  
B. Green ◽  
S. Michie
Keyword(s):  
Qualitative Study ◽  
Psychological Impact ◽  
Risk Information

scholarly journals Incorporating cancer risk information into general practice: a qualitative study using focus groups with health professionals

2017 ◽  
Vol 67 (656) ◽  
pp. e218-e226 ◽  
Author(s):  
Juliet A Usher-Smith ◽  
Barbora Silarova ◽  
Alison Ward ◽  
Jane Youell ◽  
Kenneth R Muir ◽  
...  
Keyword(s):  
General Practice ◽  
Qualitative Study ◽  
Cancer Risk ◽  
Focus Groups ◽  
Behaviour Change ◽  
Health Professionals ◽  
Lifestyle Factors ◽  
Risk Information ◽  
Lifestyle Advice ◽  
Risk Of Cancer

BackgroundIt is estimated that approximately 40% of all cases of cancer are attributable to lifestyle factors. Providing people with personalised information about their future risk of cancer may help promote behaviour change.AimTo explore the views of health professionals on incorporating personalised cancer risk information, based on lifestyle factors, into general practice.Design and settingQualitative study using data from six focus groups with a total of 24 general practice health professionals from the NHS Nene Clinical Commissioning Group in England.MethodThe focus groups were guided by a schedule covering current provision of lifestyle advice relating to cancer and views on incorporating personalised cancer risk information. Data were audiotaped, transcribed verbatim, and then analysed using thematic analysis.ResultsProviding lifestyle advice was viewed as a core activity within general practice but the influence of lifestyle on cancer risk was rarely discussed. The word ‘cancer’ was seen as a potentially powerful motivator for lifestyle change but the fact that it could generate health anxiety was also recognised. Most focus group participants felt that a numerical risk estimate was more likely to influence behaviour than generic advice. All felt that general practice should provide this information, but there was a clear need for additional resources for it to be offered widely.ConclusionStudy participants were in support of providing personalised cancer risk information in general practice. The findings highlight a number of potential benefits and challenges that will inform the future development of interventions in general practice to promote behaviour change for cancer prevention.

scholarly journals Using quantitative risk information in decisions about statins: a qualitative study in a community setting

2015 ◽  
Vol 65 (633) ◽  
pp. e264-e269 ◽  
Author(s):  
Louisa Polak ◽  
Judith Green
Keyword(s):  
Qualitative Study ◽  
Community Setting ◽  
Risk Information
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