Papua New Guinea vision-specific quality of life questionnaire: a new patient-reported outcome instrument to assess the impact of impaired vision

Purpose Hepatic resection of colorectal carcinoma (CRC) liver metastases is increasing, but evidence for the impact of surgery on patient-reported outcomes (PROs) is limited. This study aimed to describe comprehensively the impact of liver surgery for CRC hepatic metastases on PROs. Patients and Methods Consecutive patients selected for hepatic resection completed the European Organisation for Research and Treatment of Cancer Quality of Life Questionnaire–C30 and Quality of Life Questionnaire–Liver Metastases C21 before and 3, 6, and 12 months after surgery. For functional scales, mean scores with 95% CIs were calculated at each time point, with differences in scores of at least 10 points considered clinically significant. Responses to symptom scales and items were categorized as minimal or severe. Proportions and 95% CIs for each symptom category were calculated. Results Hepatic surgery was planned in 241 patients but abandoned in nine because of unresectable disease. There were two postoperative deaths, 58 complications (25.2%), and 32 patients (14.9%) with disease recurrence. Questionnaire compliance was excellent (> 95% at all time points). After surgery, most functional aspects of health decreased, and the proportions of patients with severe symptoms increased; role function deteriorated significantly, and 30% of patients reported severe activity/vigor problems. Functional scales recovered by 6 months and were maintained at 1 year. Postoperative symptoms returned to baseline levels at 12 months, but 32.1% of patients reported severe problems with sexual dysfunction and 11.9% with abdominal pain. Conclusion These findings provide new evidence regarding outcomes of liver resection for CRC metastases. It is recommended that patients be reassured that surgery has a minimal and short-lived detrimental impact on health.

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Psychometric Validation of the Role Function Restrictive Domain of the Migraine Specific Quality‐of‐Life Questionnaire Version 2.1 Electronic Patient‐Reported Outcome in Patients With Episodic and Chronic Migraine

Headache The Journal of Head and Face Pain ◽

10.1111/head.13497 ◽

2019 ◽

Vol 59 (5) ◽

pp. 756-774 ◽

Cited By ~ 3

Author(s):

Rebecca M. Speck ◽

Huda Shalhoub ◽

Kathleen W. Wyrwich ◽

Ren Yu ◽

David W. Ayer ◽

...

Keyword(s):

Quality Of Life ◽

Chronic Migraine ◽

Patient Reported Outcome ◽

Psychometric Validation ◽

Life Questionnaire ◽

Quality Of Life Questionnaire ◽

Role Function ◽

Patient Reported ◽

Questionnaire Version

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Occupational and non-occupational allergic contact dermatitis and quality of life: a prospective study

Anais Brasileiros de Dermatologia ◽

10.1590/abd1806-4841.20131950 ◽

2013 ◽

Vol 88 (4) ◽

pp. 670-671 ◽

Cited By ~ 5

Author(s):

Catiussa Spode Brutti ◽

Renan Rangel Bonamigo ◽

Taciana Cappelletti ◽

Gabriela Mynarski Martins-Costa ◽

Ana Paula Salin Menegat

Keyword(s):

Quality Of Life ◽

Statistical Difference ◽

Life Questionnaire ◽

Nickel Sulphate ◽

Quality Of Life Questionnaire ◽

General Data ◽

A Prospective Study ◽

Allergic Contact ◽

The Impact

Attempted to evaluate and compare the impact on quality of life of occupational and non-occupational ACD and to identify the most frequently involved allergens. A quality of life questionnaire was applied. We noted moderate impact on the quality of life of both groups, without a statistical difference. Our study corroborates previous general data on the prevalence of nickel sulphate and paraphenylenediamine as the most common allergens. Potassium bichromate was shown to be one of the main occupational allergens and thimerosal as the main non-occupational allergen in our sample.

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The impact of sociodemographic factors on quality of life and functional impairment in patients treated of oropharyngeal carcinoma

Vojnosanitetski pregled ◽

10.2298/vsp170210134m ◽

2019 ◽

Vol 76 (6) ◽

pp. 598-606

Author(s):

Jovica Milovanovic ◽

Dragoslava Andrejic ◽

Ana Jotic ◽

Vojko Djukic ◽

Oliver Toskovic ◽

...

Keyword(s):

Quality Of Life ◽

Oropharyngeal Cancer ◽

Oropharyngeal Carcinoma ◽

Life Questionnaire ◽

European Organization ◽

Quality Of Life Questionnaire ◽

Hpv Status ◽

Eortc Qlq ◽

The Impact

Backround/Aim. Considering the distinct increase in the incidence of oropharyngeal cancer over oral cavity cancers and changing epidemiology with human papilloma virus (HPV) infection emerging as an important risk factor, there is a need to establish better treatment choices in specific groups of patients with oropharyngeal cancer. The aim of this study was to assess the quality of life (QOL) and functional performance and the impact of different demographical data, stage of disease, and treatment type on these parameters in patients with oropharyngeal cancer with successfully achieved locoregional control a year after the treatment. Methods. Study included 87 patients who underwent QOL and functional impairment assessment 12 to 14 months after finished oncological treatment with the following questionnaires: the European Organization for Research and Treatment of Cancer Quality-of Life-Questionnaire-C30 (EORTC QLQ-C30), European Organization for Research and Treatment of Cancer Quality of- Life Questionnaire-Head and Neck 35 (EORTC QLQ-H&N35) and The Karnofsky Performance Scale (KPS). Results. Specific groups of patients had significantly different post-treatment QOL scores. The factors associated with the worse QOL scores were female gender, not being in a partnership, level of education and HPV status. Conclusion. Clinicians should consider socioeconomic factors and HPV status in planning the recovery after treatment of patients with oropharyngeal carcinoma. Gender, education level and employment are the variables that form a certain risk profiles associated with the lower QOL.

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A systematic review of patient-reported outcome measures (PROMs) in cystic fibrosis

BMJ Open ◽

10.1136/bmjopen-2019-033867 ◽

2020 ◽

Vol 10 (10) ◽

pp. e033867

Author(s):

Irushi Ratnayake ◽

Susannah Ahern ◽

Rasa Ruseckaite

Keyword(s):

Quality Of Life ◽

Cystic Fibrosis ◽

Outcome Measures ◽

Patient Reported Outcome Measures ◽

Patient Reported Outcome ◽

Cochrane Library ◽

Life Questionnaire ◽

Health Measurement ◽

Patient Reported

BackgroundTo determine patient-reported outcome measures (PROMs) which may be suitable for incorporation into the Australian Cystic Fibrosis Data Registry (ACFDR) by identifying PROMs administered in adult and paediatric cystic fibrosis (CF) populations in the last decade.MethodsWe searched MEDLINE, EMBASE, Scopus, CINAHL, PsycINFO and Cochrane Library databases for studies published between January 2009 and February 2019 describing the use of PROMs to measure health-related quality of life (HRQoL) in adult and paediatric patients with CF. Validation studies, observational studies and qualitative studies were included. The search was conducted on 13 February 2019. The COnsensus-based Standards for the selection of health Measurement INstruments Risk of Bias Checklist was used to assess the methodological quality of included studies.ResultsTwenty-seven different PROMs were identified. The most commonly used PROMs were designed specifically for CF. Equal numbers of studies were conducted on adult (32%, n=31), paediatric (35%, n=34) and both (27%, n=26) populations. No PROMs were used within a clinical registry setting previously. The two most widely used PROMs, the Cystic Fibrosis Questionnaire—Revised (CFQ-R) and the Cystic Fibrosis Quality of Life Questionnaire (CFQoL), demonstrated good psychometric properties and acceptability in English-speaking populations.DiscussionWe found that although PROMs are widely used in CF, there is a lack of reporting on the efficacy of methods and timepoints of administration. We identified the CFQ-R and CFQoL as the most suitable for incorporation in the ACFDR as they captured significant effects of CF on HRQoL and were reliable and valid in CF populations. These PROMs will be used in a further qualitative study assessing patients’ with CF and clinicians’ perspectives toward the acceptability and feasibility of incorporating a PROM in the ACFDR.PROSPERO registration numberCRD42019126931.

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