Parent perspective on powered wheelchair standing devices

2021 ◽  
Author(s):  
Jennifer Lyman
Keyword(s):  
Parent Perspective ◽  
Powered Wheelchair

scholarly journals SWK-12. PEDIATRIC NEURO-ONCOLOGY PARENT PERSPECTIVE ON ASPECTS OF SOCIAL AND EMOTIONAL SUPPORT FOR ONLINE APPLICATION

2020 ◽  
Vol 22 (Supplement_3) ◽  
pp. iii466-iii467
Author(s):  
Kendra Koch ◽  
Tatum Fettig ◽  
Meghan Slining
Keyword(s):  
Focus Group ◽  
Emotional Support ◽  
Deep Understanding ◽  
Personal Characteristics ◽  
Evidence Based ◽  
Family Needs ◽  
Social Emotional ◽  
Online Application ◽  
Parent Perspective ◽  
Social And Emotional

Abstract Addressing family needs for social/emotional support is part of the duty of oncology care teams. This research presents a (2020) scoping review and a (2019) focus group initiated to explore pediatric neuro-oncology parent experience of social/emotional support in conjunction with developing an online peer application to address family needs. Currently, the value of online support is in the forefront of clinical conversation. The focus group queried eight parents whose children were under neuro-oncology treatment in the Northwest USA. Thematic findings include—parents want supportive peers who have (1) a personal and deep understanding of parenting a child with serious illness (they “get it”); (2) particular characteristics and skills that promote and sustain relationships, including—(a) good social skills, (b) ability to engage in “balanced” (cancer/non-cancer) conversations, (c) individual similarities (beliefs, age of children, cancer diagnosis/treatment), (d) logistic commonalities (location, availability), (e) pro-social personal characteristics (i.e. sense of humor, emotional/social flexibility), and an (f) ability to navigate and maintain social/emotional boundaries. Parents also initiated discussion about “the burden of supportive relationships” and supporting families doing “normal” activities without worrying about treatment side effects and contagions. The literature review supports finding (1) above; reveals the paucity of evidence-based supports available to this population; underscores the critical need for practitioners and researchers to develop more evidence-based supports and interventions for families of children experiencing cancer; and supports practitioners’ consistently assessing parent and sibling social and emotional needs and then consistently referring or intervening when needs are identified.

scholarly journals Designing and Analyzing 3D-Printed Personal Steering Controller for Outdoor Electric-Powered Wheelchair Users: A Randomized Controlled Trial on Stroke Patients

2021 ◽  
Vol 11 (6) ◽  
pp. 2743
Author(s):  
Seoyoon Heo ◽  
Wansuk Choi
Keyword(s):  
Controlled Trial ◽  
Performance Score ◽  
Stroke Patients ◽  
Laser Probe ◽  
Wheelchair Users ◽  
Powered Wheelchair ◽  
Physical Conditions ◽  
Randomized Controlled ◽  
3D Printed ◽  
Males And Females

While the physical conditions of stroke patients are diverse, the joystick-type steering controller of the electric-powered wheelchair (EPW) is almost the same, making the user uncomfortable and not fully utilizing the function of the wheelchair. The purpose of this study was to investigate the effects of the EPW steering controller, specifically the so-called joystick type (3DSC; 3D-printed steering controller, conventional steering controllers; CSC), on surface electromyography (sEMG), Wheelchair Skills Test 4.2 (WST), and QUEST 2.0. The participants were 23 hemiplegic stroke patients (14 males and 9 females) (range 40–65 years) recruited from multi-center process. The 3DSC manufacturing process used a scanner (Precision Laser Probe SLP-500) and a modelling program (SOLIDWORKS 2015). The CSC users’ muscle activities were generally higher than those of the 3DSC users in both males and females (p < 0.05). WST total performance score of CSC is statistically significantly lower than those of 3DSC for both males (3DSC = 49.28 ± 2.19; CSC = 42.85 ± 4.31) (z = −3.935; p < 0.05) and females (3DSC = 48.17 ± 0.44; CSC = 41.11 ± 0.78) (z = −1.910; p < 0.05). QUEST 2.0 scores in CSC (male = 2.40 ± 0.70; female = 2.11 ± 0.78) were significantly lower than those of 3DSC (male = 3.50 ± 0.85; female = 2.90 ± 0.51) in effectiveness categories (p < 0.05). We suggest that 3DSC contributes to reducing the user’s muscle activities and raising the scores of WST performance and QUEST.

Sign in / Sign up

Export Citation Format

Share Document