scholarly journals Unmet supportive care needs associated with quality of life for people with lung cancer: A systematic review of the evidence 2007–2020

2021 ◽  
Author(s):  
Andy Cochrane ◽  
Siobhan Woods ◽  
Simon Dunne ◽  
Pamela Gallagher
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Systematic Review ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals Supportive care needs and health-related quality of life among Chinese lung cancer survivors

2012 ◽  
Vol 01 (02) ◽  
pp. 5-12 ◽  
Author(s):  
Dorothy Ngo-Sheung Chan ◽  
Kai-Chow Choi ◽  
Carmen Wing-Han Chan ◽  
Rayman Wai-Man Wan ◽  
Suzanne So-Shan Mak ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Supportive Care Needs ◽  
Health Related Quality ◽  
Care Needs ◽  
Related Quality ◽  
Health Related

QOLP-30. LONG-TERM UNMET SUPPORTIVE CARE NEEDS OF TYA CHILDHOOD BRAIN TUMOUR SURVIVORS AND THEIR CAREGIVERS: A CROSS-SECTIONAL SURVEY

2021 ◽  
Vol 23 (Supplement_6) ◽  
pp. vi189-vi189
Author(s):  
Emma Nicklin ◽  
Galina Velikova ◽  
Adam Glaser ◽  
Michelle Kwok-WIlliam ◽  
Miguel Debono ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Supportive Care ◽  
Brain Tumour ◽  
Unmet Needs ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Long Term Follow Up

Abstract INTRODUCTION The supportive care needs of long-term childhood brain tumour survivors, now teenagers and young adults (TYAs), and their caregivers are largely unknown. TYAs are a unique patient cohort with specific challenges and vulnerabilities differing from children or older adults. We aimed to describe their supportive care needs and explore associations between needs and quality of life (QoL).This is the first study to collect quantitative data about needs in this survivorship group. METHODS Participants were recruited from long-term follow-up clinics (in three National Health Service Trusts in England) and online. Participants included childhood brain tumour survivors, ≥ 5 years from diagnosis, currently aged 13-30, and their primary caregivers. Survivors completed the Supportive Care Needs Survey (SCNS) Short-Form and Paediatric Functional Assessment of Cancer Therapy – Brain (Peds-FACT-Br). While caregivers completed the SCNS-Partners and Caregivers (SCNS-P&C) and the Caregiver Quality of Life Index–Cancer (CQOLC). RESULTS In total, 112 individuals (69 survivors/43 caregivers) participated. Survivors reported on average 9.4 (±8.5) unmet needs. Needs were greatest in the psychological domain, with anxiety (60.3%), uncertainty about the future (50.7%) and feeling down and depressed (48.5%) most commonly reported. Caregivers reported on average 12.4 (±12.3) unmet needs. Again, the greatest number of unmet needs were observed in the psychological domain. Many caregivers also reported information needs around financial support/government benefits (42.9%) and possible survivor fertility problems (42.9%). Multivariable linear regression analysis showed that female survivors, unemployed survivors, survivors further away from diagnosis, and single caregivers were more likely to report unmet needs. More unmet needs were significantly associated with poorer QoL in survivors and caregivers. CONCLUSION This research provides leads to improving supportive care and long-term follow-up services. Psychological support appears to be the biggest gap in care. Understanding unmet needs and recognising what services are required is critical to improving quality of long-term survival.

Perceived unmet supportive care needs and determinants of quality of life among head and neck cancer survivors: a research protocol

2013 ◽  
Vol 69 (12) ◽  
pp. 2750-2758 ◽  
Author(s):  
Winnie K.W. So ◽  
K.C. Choi ◽  
Carmen W.H. Chan ◽  
Winnie P.Y. Tang ◽  
Alice W.Y. Leung ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Head And Neck Cancer ◽  
Supportive Care ◽  
Cancer Survivors ◽  
Head And Neck ◽  
Neck Cancer ◽  
Supportive Care Needs ◽  
Research Protocol ◽  
Care Needs

scholarly journals Unmet supportive care needs, psychological well-being and quality of life in patients living with multiple myeloma and their partners

2010 ◽  
Vol 20 (1) ◽  
pp. 88-97 ◽  
Author(s):  
Alex Molassiotis ◽  
Barbara Wilson ◽  
Susan Blair ◽  
Tracy Howe ◽  
James Cavet
Keyword(s):  
Quality Of Life ◽  
Multiple Myeloma ◽  
Supportive Care ◽  
Well Being ◽  
Supportive Care Needs ◽  
Care Needs ◽  
Psychological Well Being

Changes of Supportive Care Needs and Quality of Life in Patients with Breast Cancer

2016 ◽  
Vol 16 (4) ◽  
pp. 217 ◽  
Author(s):  
Jin-Hee Park ◽  
Mison Chun ◽  
Yong-Sik Jung ◽  
Young-Mi Jung
Keyword(s):  
Breast Cancer ◽  
Quality Of Life ◽  
Supportive Care ◽  
Supportive Care Needs ◽  
Care Needs

scholarly journals Feasibility, acceptability, and efficacy of online supportive care for individuals living with and beyond lung cancer: a systematic review

2021 ◽  
Author(s):  
Jordan Curry ◽  
Michael Patterson ◽  
Sarah Greenley ◽  
Mark Pearson ◽  
Cynthia C. Forbes
Keyword(s):  
Quality Of Life ◽  
Lung Cancer ◽  
Supportive Care ◽  
Emotional Functioning ◽  
Symptom Burden ◽  
Feasibility Studies ◽  
Symptom Distress ◽  
Care Needs ◽  
Cancer Data

Abstract Purpose To examine the evidence of the feasibility, acceptability, and potential efficacy of online supportive care interventions for people living with and beyond lung cancer (LWBLC). Methods Studies were identified through searches of Medline, EMBASE, PsychINFO, and CINAHL databases using a structured search strategy. The inclusion criteria (1) examined the feasibility, acceptability, and/or efficacy of an online intervention aiming to provide supportive care for people living with and beyond lung cancer; (2) delivered an intervention in a single arm or RCT study pre/post design; (3) if a mixed sample, presented independent lung cancer data. Results Eight studies were included; two randomised controlled trials (RCTs). Included studies reported on the following outcomes: feasibility and acceptability of an online, supportive care intervention, and/or changes in quality of life, emotional functioning, physical functioning, and/or symptom distress. Conclusion Preliminary evidence suggests that online supportive care among individuals LWBLC is feasible and acceptable, although there is little high-level evidence. Most were small pilot and feasibility studies, suggesting that online supportive care in this group is in its infancy. The integration of online supportive care into the cancer pathway may improve quality of life, physical and emotional functioning, and reduce symptom distress. Online modalities of supportive care can increase reach and accessibility of supportive care platforms, which could provide tailored support. People LWBLC display high symptom burden and unmet supportive care needs. More research is needed to address the dearth of literature in online supportive care for people LWBLC.

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