Self-management abilities and quality of life among frail community-dwelling individuals: the role of community nurses in the Netherlands

2016 ◽  
Vol 25 (2) ◽  
pp. 394-401 ◽  
Author(s):  
Jane Murray Cramm ◽  
Anna Petra Nieboer
Keyword(s):  
Quality Of Life ◽  
The Netherlands ◽  
Community Dwelling ◽  
Self Management

What does quality of life mean to older frail and non-frail community-dwelling adults in the Netherlands?

2006 ◽  
Vol 16 (2) ◽  
pp. 263-277 ◽  
Author(s):  
M. T. E. Puts ◽  
N. Shekary ◽  
G. Widdershoven ◽  
J. Heldens ◽  
P. Lips ◽  
...  
Keyword(s):  
Quality Of Life ◽  
The Netherlands ◽  
Community Dwelling

scholarly journals The role of the nurse in the care and management of patients with atopic dermatitis

BMC Nursing ◽  
2020 ◽  
Vol 19 (1) ◽  
Author(s):  
Harmieke van Os-Medendorp ◽  
Elfie Deprez ◽  
Nele Maes ◽  
Sheila Ryan ◽  
Karina Jackson ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
Treatment Adherence ◽  
Self Management ◽  
Severe Atopic Dermatitis ◽  
Main Body ◽  
Wide Range

Abstract Background The purpose of this paper is to provide an overview of key aspects of specialised dermatology nursing practice in the management of patients with moderate to severe atopic dermatitis. The role of dermatology nurse specialists in supporting patients and promoting disease understanding, education and treatment adherence continues to evolve. As features of specialised nursing care can also inform other nursing staff in a wide range of care settings, an overview of key components is examined. Observations presented are from a pan-European perspective and represent the collected view of a group of dermatology nurse specialists, dermatologists and patient advocates following two round-table discussions. Main body Atopic dermatitis is a common, chronic, inflammatory disease characterised by erythematous/scaling skin lesions, with often intense pruritus. Disease course is cyclic with periodic disease flares of varying intensity, presenting management challenges to patients and families. Dermatology nurse specialists play a key role in providing education and substantial patient support to improve treatment outcomes and quality of life to patients and their family, delivered within a multidisciplinary team framework. Nurse-led education and 'eczema schools’ are of benefit in reducing disease severity and improving quality of life by enhancing self-management, adherence and patient engagement. eHealth tools, such as patient portals or online training platforms, can provide online learning, individualised education, and help to improve engagement. These and other initiatives, such as written action plans, are all essential to improve or maintain treatment adherence, self-management and quality of life. Conclusions Dermatology nurse specialists play a central role in the assessment and management of moderate to severe atopic dermatitis patients and families. This places them in an ideal position to build strong and often long-term relationships with patients and parents. Such engagement promotes trust, assists in setting realistic expectations of treatment and outcomes, and enhances self-management and engagement in their own care. Providing emotional support, as well as formal and systematic education (including individualised practical advice) all contribute to improved treatment adherence and can enhance the quality of life of patients and their families throughout the course of this long-term condition.

scholarly journals The Interplay between Quality of Life and Resilience Factors in Later Life: A Network Analysis

2021 ◽  
Author(s):  
Lotte Brinkhof ◽  
Karoline Huth ◽  
Jaap M. J. Murre ◽  
sanne de wit ◽  
Harm Krugers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Network Analysis ◽  
Later Life ◽  
Experimental Manipulation ◽  
Community Dwelling ◽  
Self Management ◽  
Age Related ◽  
Management Ability ◽  
Resilience Factors

Age-related challenges and transitions can have considerable social, psychological, and physical consequences that may lead to significant changes in quality of life (QoL). As such, maintaining high levels of QoL in later life may crucially depend on the ability to demonstrate resilience (i.e., successful adaptation to late-life challenges). The current study set out to explore the interplay between several resilience factors, and how these contribute to the realization and maintenance of (different facets of) QoL. Based on previous work, we identified behavioral coping, positive appraisal, self-management ability, and physical activity as key resilience factors. Their interplay with (various facets of) QoL, as measured with the WHOQOL-OLD, was established through network analysis. In a sample of community-dwelling older adults (55+; N = 1392), we found that QoL was most strongly (and directly) related to positive appraisal style and self-management ability. Among those, taking care of multifunctional resources (i.e., yielding various benefits at the same time) seemed to be crucial. It connected directly to “satisfaction with past, present, and future activities”, a key facet of QoL with strong interconnections to other QoL facets. Our analysis also identified resilience factor(s) with the potential to promote QoL when targeted by training, intervention or other experimental manipulation. The appropriate set of resilience factors to manipulate may depend on the goal and/or facet of QoL that one aims to improve.

scholarly journals The Interplay Between Quality of Life and Resilience Factors in Later Life: A Network Analysis

2021 ◽  
Vol 12 ◽  
Author(s):  
Lotte P. Brinkhof ◽  
Karoline B. S. Huth ◽  
Jaap M. J. Murre ◽  
Sanne de Wit ◽  
Harm J. Krugers ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Network Analysis ◽  
Later Life ◽  
Experimental Manipulation ◽  
Community Dwelling ◽  
Self Management ◽  
Age Related ◽  
Management Ability ◽  
Resilience Factors

Age-related challenges and transitions can have considerable social, psychological, and physical consequences that may lead to significant changes in quality of life (QoL). As such, maintaining high levels of QoL in later life may crucially depend on the ability to demonstrate resilience (i.e., successful adaptation to late-life challenges). The current study set out to explore the interplay between several resilience factors, and how these contribute to the realization and maintenance of (different facets of) QoL. Based on the previous work, we identified behavioral coping, positive appraisal, self-management ability, and physical activity as key resilience factors. Their interplay with (various facets of) QoL, as measured with the WHOQOL-OLD, was established through network analysis. In a sample of community-dwelling older adults (55+; N=1,392), we found that QoL was most strongly (and directly) related to positive appraisal style and self-management ability. Among those, taking care of multifunctional resources (i.e., yielding various benefits at the same time) seemed to be crucial. It connected directly to “satisfaction with past, present, and future activities,” a key facet of QoL with strong interconnections to other QoL facets. Our analysis also identified resilience factor(s) with the potential to promote QoL when targeted by training, intervention, or other experimental manipulation. The appropriate set of resilience factors to manipulate may depend on the goal and/or facet of QoL that one aims to improve.

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