Qualitative study of Stroke Survivors’ Perceptions of Secondary Prevention

2021 ◽  
Author(s):  
Beilei Lin ◽  
Zhenxiang Zhang ◽  
Amanda G. Thrift ◽  
Wenna Wang ◽  
Yongxia Mei ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Secondary Prevention ◽  
Stroke Survivors

scholarly journals How do stroke survivors and their carers use practitioners’ advice on secondary prevention medications? Qualitative study of an online forum

2017 ◽  
Vol 34 (5) ◽  
pp. 612-620 ◽  
Author(s):  
Nkeonye J Izuka ◽  
Matthew A W Alexander ◽  
Chantal Balasooriya-Smeekens ◽  
Jonathan Mant ◽  
Anna De Simoni
Keyword(s):  
Qualitative Study ◽  
Secondary Prevention ◽  
Stroke Survivors ◽  
Online Forum

Exploring perceptions of stroke survivors and caregivers about secondary prevention: a longitudinal qualitative study

2019 ◽  
Vol 42 (14) ◽  
pp. 2020-2026 ◽  
Author(s):  
Beena P. Parappilly ◽  
William B. Mortenson ◽  
Thalia S. Field ◽  
Janice J. Eng
Keyword(s):  
Qualitative Study ◽  
Secondary Prevention ◽  
Stroke Survivors

scholarly journals Perceptions of self-rated health among stroke survivors: a qualitative study in the United Kingdom

2018 ◽  
Vol 18 (1) ◽  
Author(s):  
N. Mavaddat ◽  
E. Sadler ◽  
L. Lim ◽  
K. Williams ◽  
E. Warburton ◽  
...  
Keyword(s):  
United Kingdom ◽  
Qualitative Study ◽  
Stroke Survivors ◽  
Self Rated Health ◽  
The United Kingdom

Experience of family caregivers of community-dwelling stroke survivors and risk of elder abuse: a qualitative study

2014 ◽  
Vol 16 (5) ◽  
pp. 276-293 ◽  
Author(s):  
Celia Chow ◽  
Agnes Tiwari
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Local Community ◽  
Service Providers ◽  
Elder Abuse ◽  
Community Dwelling ◽  
Stroke Survivors ◽  
Content Type ◽  
The Disabled ◽  
Personal Resilience

Purpose – The purpose of this paper is to explore the following questions. First, what are the experiences of family caregivers in caring for community-dwelling stroke survivors? Second, what services help or do not help the caregivers in managing their caregiving role? Design/methodology/approach – A qualitative study was conducted with a total of six focus group interviews with 29 stroke caregivers selected using convenience sampling in a local community centre. All interviews were recorded and transcribed for content analysis. Findings – The results pointed to three main themes working together to facilitate desirable outcomes in caregiving and prevent elder abuse: factors contributing to caregiver stress and factors that have a buffering effect on caregiver stress and unmet needs identified from caregivers’ experiences. Research limitations/implications – The authors found that there were a number of factors contributing to caregiver stress. The findings matched with the concept that caregiver stress should not be considered as the primary cause of elder abuse. Findings provided information for further research to investigate positive coping and adjustment for stroke survivors, caregivers and their families. Practical implications – Policy makers and service providers may consider specific policies and tailor-made services to enhance the effectiveness of current practice. The themes emerging from the study could be further reviewed in a longitudinal way to explore the cost-effectiveness, the outcomes and trajectory of interventional programmes. Social implications – Education would be essential to let the public understand caregivers’ difficulties and needs. Prevention of elder abuse may be approached with a range of risk factors for both perpetrating and being elder abuse victim. Originality/value – From the findings of the study, the authors found that there were service gaps within policy and interventions. Concrete suggestions for improving the public's attitude and public facilities/transport for the disabled were captured in the study. In addition to personal resilience, caregivers had a strong wish for a supportive environment and services that would facilitate a better caregiving outcome.

scholarly journals COPING STRATEGIES BY STROKE CAREGIVERS: EVIDENCE FROM A QUALITATIVE STUDY IN SARAWAK, MALAYSIA

2020 ◽  
Vol 20 (1) ◽  
pp. 48-54
Author(s):  
Md Mizanur Rahman ◽  
Zabidah binti Putit ◽  
Norliza binti Suut ◽  
Mohamad Taha Arif ◽  
Asri bin Said ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Coping Strategies ◽  
Qualitative Data ◽  
Service Providers ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Rehabilitation Centre ◽  
Emotion Suppression ◽  
Self Blame ◽  
Community Rehabilitation

Caring for stroke survivors is inevitably a burden to caregivers. It is not uncommon for stroke survivors who are discharged from the hospital and found themselves at home without any help and care from the supposed caregivers. However, in instances where there are available and willing caregivers, a sudden and unpredictable task of caring for stroke survivors require the stroke caregivers to apply their coping strategies due to the demanding nature of looking after a survivor. This study aimed to determine coping strategies undertaken by stroke caregivers in caring for stroke survivors. This was an exploratory qualitative study and data was collected from the caregivers of stroke survivor using a semi-structured guided questionnaire. A total of 18 caregivers were included in the study. The data were collected from November 2015 until June 2016 at a selected community rehabilitation centre in Kuching, Sarawak. The qualitative data analysis revealed that the coping strategies undertaken by stroke caregivers include change of role in life, self-motivation, sharing with other people, crying, trying to forget things that happen, hoping survivors will get better, emotion suppression and self-blame. The study highlighted the experiences by the caregivers for caring for stroke patients and focused on the coping strategies undertaken by the caregivers. Better ununderstanding of these experiences does help the service providers to provide better support and resources for caregivers in caring for stroke survivors.

Abstract WP424: Challenges of Participation in Life Activities Post-Stroke: A Qualitative Study

Stroke ◽  
2020 ◽  
Vol 51 (Suppl_1) ◽  
Author(s):  
Janita P Chau ◽  
Suzanne Hoi Shan Lo
Keyword(s):  
Qualitative Study ◽  
Residential Care ◽  
Real Life ◽  
Care Facility ◽  
Stroke Survivors ◽  
Residential Care Facility ◽  
Residential Care Facilities ◽  
Care Services ◽  
Cognitive Limitations ◽  
Care Facilities

Background and Purpose: Our previous study of 265 stroke survivors recruited immediately before discharge from two regional rehabilitation hospitals found state self-esteem, social support satisfaction, discharge location (home, residential care facility), and gender significantly accounted for 49% of the variance in depressive symptoms. The purpose of this study is to explore the challenges of promoting participation in life activities for stroke survivors. Methods: A qualitative study with individual face-to-face semi-structured interviews were conducted. Adult managerial persons who were responsible for the development of community, rehabilitation or residential care services for stroke survivors were recruited. All participants were asked to share the mission of their institutions, types of care services for stroke survivors, perceived importance of, barriers to and facilitators of promoting participation in life activities, and opportunities for enhancing stroke care services. All interviews were audio recorded and transcribed verbatim for thematic analysis. Results: A total of 11 participants were interviewed. Five were in-charge persons of stroke support groups, two were legislators, two from residential care facilities, and two from community-based organisations. Four key themes were generated: (1) Being institutionalized was found associated with lower levels of psychosocial health, (2) Stroke survivors’ physical and cognitive limitations were perceived as key challenges in promoting participation in life activities, (3) Healthcare providers placed more emphasis on promoting physical rehabilitation than social participation, and (4) Physical environment particularly in residential care facilities posed greater challenges to promoting participation in real life activities. Conclusions: This highlights major challenges for healthcare professionals who care for stroke survivors in residential care facilities. Further studies that investigate the associations between environmental barriers, psychological morbidity and participation restriction is needed.

Development of an online secondary prevention programme for stroke survivors: Prevent 2nd Stroke

2019 ◽  
Vol 5 (1) ◽  
pp. 35-42 ◽  
Author(s):  
Alexandra M J Denham ◽  
Ashleigh Guillaumier ◽  
Sam McCrabb ◽  
Alyna Turner ◽  
Amanda L Baker ◽  
...  
Keyword(s):  
Secondary Prevention ◽  
Health Risk ◽  
Prevention Programme ◽  
Stroke Survivors ◽  
Risk Behaviours ◽  
Stroke Event ◽  
Implementation Framework ◽  
Content Development ◽  
Secondary Prevention Programme ◽  
Health Risk Behaviours

BackgroundStroke events often result in long-term negative health outcomes. People who experience a first stroke event are 30%–40% more likely to experience a second stroke event within 5 years. An online secondary prevention programme for stroke survivors may help stroke survivors improve their health risk behaviours and lower their risk of a second stroke.ObjectivesThis paper describes the development and early iteration testing of the usability and acceptability of an online secondary prevention programme for stroke survivors (Prevent 2nd Stroke, P2S). P2S aims to address six modifiable health risk behaviours of stroke: blood pressure, physical activity, nutrition, depression and anxiety, smoking, and alcohol consumption.MethodsP2S was developed as an eight-module online secondary prevention programme for stroke survivors. Modelled on the DoTTI (Design and development, Testing early iterations, Testing for effectiveness, Integration and implementation) framework for the development of online programmes, the following stages were followed during programme development: (1) content development and design; and (2) testing early iteration. The programme was pilot-tested with 15 stroke survivors who assessed P2S on usability and acceptability.ResultsIn stage 1, experts provided input for the content development of P2S. In stage 2, 15 stroke survivors were recruited for usability testing of P2S. They reported high ratings of usability and acceptability of P2S. P2S was generally regarded as ‘easy to use’ and ‘relevant to stroke survivors’. Participants also largely agreed that it was appropriate to offer lifestyle advice to stroke survivors through the internet.ConclusionsThe study found that an online secondary prevention programme was acceptable and easily usable by stroke survivors. The next step is to conduct a randomised controlled trial to assess the effectiveness of the programme regarding behaviour change and determine the cost-effectiveness of the intervention.

scholarly journals Acceptability of mindfulness from the perspective of stroke survivors and caregivers: a qualitative study

2018 ◽  
Vol 4 (1) ◽  
Author(s):  
Bhautesh Dinesh Jani ◽  
Robert Simpson ◽  
Maggie Lawrence ◽  
Sharon Simpson ◽  
Stewart W. Mercer
Keyword(s):  
Qualitative Study ◽  
Stroke Survivors
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