Experience of family caregivers of community-dwelling stroke survivors and risk of elder abuse: a qualitative study

2014 ◽  
Vol 16 (5) ◽  
pp. 276-293 ◽  
Author(s):  
Celia Chow ◽  
Agnes Tiwari
Keyword(s):  
Qualitative Study ◽  
Family Caregivers ◽  
Local Community ◽  
Service Providers ◽  
Elder Abuse ◽  
Community Dwelling ◽  
Stroke Survivors ◽  
Content Type ◽  
The Disabled ◽  
Personal Resilience

Purpose – The purpose of this paper is to explore the following questions. First, what are the experiences of family caregivers in caring for community-dwelling stroke survivors? Second, what services help or do not help the caregivers in managing their caregiving role? Design/methodology/approach – A qualitative study was conducted with a total of six focus group interviews with 29 stroke caregivers selected using convenience sampling in a local community centre. All interviews were recorded and transcribed for content analysis. Findings – The results pointed to three main themes working together to facilitate desirable outcomes in caregiving and prevent elder abuse: factors contributing to caregiver stress and factors that have a buffering effect on caregiver stress and unmet needs identified from caregivers’ experiences. Research limitations/implications – The authors found that there were a number of factors contributing to caregiver stress. The findings matched with the concept that caregiver stress should not be considered as the primary cause of elder abuse. Findings provided information for further research to investigate positive coping and adjustment for stroke survivors, caregivers and their families. Practical implications – Policy makers and service providers may consider specific policies and tailor-made services to enhance the effectiveness of current practice. The themes emerging from the study could be further reviewed in a longitudinal way to explore the cost-effectiveness, the outcomes and trajectory of interventional programmes. Social implications – Education would be essential to let the public understand caregivers’ difficulties and needs. Prevention of elder abuse may be approached with a range of risk factors for both perpetrating and being elder abuse victim. Originality/value – From the findings of the study, the authors found that there were service gaps within policy and interventions. Concrete suggestions for improving the public's attitude and public facilities/transport for the disabled were captured in the study. In addition to personal resilience, caregivers had a strong wish for a supportive environment and services that would facilitate a better caregiving outcome.

scholarly journals COPING STRATEGIES BY STROKE CAREGIVERS: EVIDENCE FROM A QUALITATIVE STUDY IN SARAWAK, MALAYSIA

2020 ◽  
Vol 20 (1) ◽  
pp. 48-54
Author(s):  
Md Mizanur Rahman ◽  
Zabidah binti Putit ◽  
Norliza binti Suut ◽  
Mohamad Taha Arif ◽  
Asri bin Said ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Coping Strategies ◽  
Qualitative Data ◽  
Service Providers ◽  
Stroke Survivor ◽  
Stroke Survivors ◽  
Rehabilitation Centre ◽  
Emotion Suppression ◽  
Self Blame ◽  
Community Rehabilitation

Caring for stroke survivors is inevitably a burden to caregivers. It is not uncommon for stroke survivors who are discharged from the hospital and found themselves at home without any help and care from the supposed caregivers. However, in instances where there are available and willing caregivers, a sudden and unpredictable task of caring for stroke survivors require the stroke caregivers to apply their coping strategies due to the demanding nature of looking after a survivor. This study aimed to determine coping strategies undertaken by stroke caregivers in caring for stroke survivors. This was an exploratory qualitative study and data was collected from the caregivers of stroke survivor using a semi-structured guided questionnaire. A total of 18 caregivers were included in the study. The data were collected from November 2015 until June 2016 at a selected community rehabilitation centre in Kuching, Sarawak. The qualitative data analysis revealed that the coping strategies undertaken by stroke caregivers include change of role in life, self-motivation, sharing with other people, crying, trying to forget things that happen, hoping survivors will get better, emotion suppression and self-blame. The study highlighted the experiences by the caregivers for caring for stroke patients and focused on the coping strategies undertaken by the caregivers. Better ununderstanding of these experiences does help the service providers to provide better support and resources for caregivers in caring for stroke survivors.

Abstract TP383: Creating Educational Modules for Family Caregivers to Reduce Potentially Preventable Hospitalizations in Stroke Survivors

Stroke ◽  
2016 ◽  
Vol 47 (suppl_1) ◽  
Author(s):  
Linda L Pierce ◽  
Victoria Steiner
Keyword(s):  
Family Caregivers ◽  
Nurse Practitioners ◽  
Reading Level ◽  
Community Dwelling ◽  
Chronic Obstructive ◽  
Stroke Survivors ◽  
Comorbid Conditions ◽  
Preventable Hospitalizations ◽  
Potentially Preventable Hospitalizations ◽  
Educational Modules

Background and Issues: Preventable hospitalization utilization among stroke survivors is common. Although about 1/3 of potentially preventable hospitalizations are attributed to recurrent ischemic stroke, other comorbidities that lead to hospitalization are prevalent and need to be monitored. Timely and appropriate care for community-dwelling stroke survivors is critical. Since family caregivers provide the majority of care in the home, support and education of caregivers is essential to monitoring comorbid conditions. Purpose: This project’s aim was to develop brief educational modules on common comorbid conditions (e.g. chronic obstructive pulmonary disease, congestive heart failure, gastroenteritis); have family caregivers and nurse practitioners (NPs) review the content for validity; and then construct 8-10 minute voice-over PowerPoint presentations for each module. Methods: Based on evidence from randomized controlled trials, these modules were developed to provide caregivers with needed information to competently care for stroke survivors. Each module was concisely written at an 8th grade reading level and consists of: 1) a short introduction to the topic and key points; 2) what caregivers can do to alleviate the condition, should watch for, and should report to healthcare providers; 3) linked websites for more information and references; and 4) a four-question assessment about what they learned. Results: Once developed, these modules were evaluated by family caregiver (n=10) and NP (n=5) reviewers. The caregivers thought that the modules were appropriate in length to facilitate easy reading and understanding. The NPs noted that some content needed to be added, such as additional websites and drug information, but overall believed the modules contained supportive resources for caregivers. To provide an alternate learning modality, audio-presentations that highlight pertinent information for each module were then constructed. Conclusions: Registered nurses are well-suited to assess, teach, and support family caregivers. These modules are appropriate for inclusion in web-based or in-person education/support for these caregivers.

What is the host community perception of slum tourism in Colombia?

2019 ◽  
Vol 11 (2) ◽  
pp. 140-146
Author(s):  
María Dolores Herrero Amo ◽  
Chandana (Chandi) Jayawardena ◽  
Salomé Laloum Gaultier
Keyword(s):  
Qualitative Study ◽  
Design Methodology ◽  
Local Community ◽  
Host Community ◽  
Community Perception ◽  
Positive Perception ◽  
Structured Interviews ◽  
Content Type ◽  
Slum Tourism ◽  
Research Questions

Purpose This paper aims to find answers to two research questions: What is the perception of the Moravia community on tourism in their neighbourhood? What are the conditions under which they can accept slum tourism? Design/methodology/approach The foundation of this paper was laid during a field trip to Medellin, Colombia, in March 2018. More than three weeks were spent in the neighbourhood of Moravia, one of Medellin’s “barrios” or slums, where a qualitative study was led. Semi-structured interviews with the local community were done around the neighbourhood. Findings The main finding of this research is the positive perception of slum tourism within the Moravia community. The researchers found that the locals are proud when outsiders visit to see their neighbourhood. The locals felt that, it breaks the prejudice surrounding their homes, and tourists are seen as spokespeople for the barrio. There are visible improvements made to the barrio owing to tourism. This research drew attention to the conditions under which this type of tourism can be accepted in the neighbourhood: community participation, interaction between hosts and tourists, education and respect of tourists and the visible improvements to the neighbourhood. Originality/value Slum tourism is an understudied topic in Colombia, especially in Medellin. By researching on the host perception on slum tourism, this paper contributes to literature on slum tourism from a new angle.

Community-based island tourism: the case of Boa Vista in Cape Verde

2014 ◽  
Vol 8 (2) ◽  
pp. 219-233 ◽  
Author(s):  
Sandra M. Sánchez-Cañizares ◽  
Ana María Castillo-Canalejo
Keyword(s):  
Local Community ◽  
Service Providers ◽  
Cape Verde ◽  
Current Status ◽  
Supply Side ◽  
Demand Side ◽  
Negative Effects ◽  
Community Based ◽  
Content Type ◽  
Positive Effects

Purpose – This paper tries to explore the possibilities of developing sustainable, community-based tourism (CBT) in Boa Vista in Cape Verde, Africa. Island territories are generally considered preferential tourist destinations. However, the negative effects of tourism in these destinations should not be overlooked, among them environmental concerns and impacts on the culture of the island’s inhabitants. The development of CBT takes on special relevance, as it based on planning schemes in conjunction with the local community who share the positive effects derived from tourism. Design/methodology/approach – The methodology used consisted in designing two surveys: one focusing on the supply side and another on the demand side of tourism to define and analyse the current status of this sector in Boa Vista. The survey on tourism supply was distributed among a panel of experts formed by tourism service providers located in Boa Vista. The statistical results of the responses and the discussion carried out by the panel of experts permitted the development of a SWOT matrix. The survey on demand was administered to foreign tourists in different parts of the island. A total of 202 valid surveys were obtained. Findings – The main results of the fieldwork are twofold. On the supply side of tourism, the community is making an enormous effort to actively participate in the development of sustainable tourism, efforts which are often constrained by the geographical barriers of Boa Vista (sandy soil, poor accessibility to other islands) and the institutional and political situation of the island. As regards the demand side of tourism, the vast majority of tourists stay at the island’s all-inclusive resorts, whereas few tourists require the services provided by the community, mainly because they are unaware that such services exist. Originality/value – Certain island destinations are more appropriate for tourists wishing to flee mass tourism enclaves due to their natural environment, relative isolation and the traditional culture of their inhabitants. For this reason, it is important to develop a CBT model for these destinations in which initiatives are planned in conjunction with members of the local community who participate in decision-making processes and benefit equally from the positive effects of tourism. Although several case studies have been reported in the research on CBT initiatives, few studies have been carried out on CBT in island territories. This is the main contribution in this paper.

Exploring the experience of post-stroke fatigue in community dwelling stroke survivors: a prospective qualitative study

2012 ◽  
Vol 34 (16) ◽  
pp. 1376-1384 ◽  
Author(s):  
Jennifer Helen White ◽  
Kimberley R. Gray ◽  
Parker Magin ◽  
John Attia ◽  
Jonathan Sturm ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Community Dwelling ◽  
Stroke Survivors ◽  
Post Stroke

Empowering the insured under health insurance: a case study in center of Iran

2019 ◽  
Vol 12 (5) ◽  
pp. 328-338
Author(s):  
Mohsen Pakdaman ◽  
Sara Geravandi ◽  
Ali Hejazi ◽  
Mobin Salehi ◽  
Mahboobeh Davoodifar
Keyword(s):  
Health Insurance ◽  
Qualitative Study ◽  
Access To Health Care ◽  
Service Providers ◽  
Structured Interview ◽  
Content Type ◽  
Goods And Services ◽  
Effective Strategies ◽  
The Status ◽  
Health Decision

Purpose Currently, the health system is a treatment-oriented system focused on service providers. In this system, the main focus is on the health market, with little attention on insured. One way to get out of existing conditions is to empower the insured in order to involve them actively in maintaining and improving health. The paper aims to discuss these issues. Design/methodology/approach This qualitative study was done using the content analysis method. Based on the purposive sampling method and theoretical saturation criterion, 24 individuals including 12 health insurance experts and 12 insured participated in the study in 2018. The semi-structured interview method was used to collect data. Data were analyzed using MAXQDA10 software. Findings Having analyzed the interviews, 750 codes were obtained. These codes were categorized into two categories of “insurance experts” and “insured” and ten subcategories of “informing and educating, cost reduction, intersectional activities, expectations from the insured, services package, access to services, inability to pay costs, participation, and expectations from the insurance organization.” Originality/value This qualitative study was conducted to assess and determine the effective strategies for empowering the insured under health insurance. The results of this study are helpful to the health insurance organizations and health decision makers to detect the effective ways to develop the quality of insurance services, improve the status of insured, and increase access to health care goods and services.

Stepping On after Stroke falls-prevention programme for community stroke survivors in Singapore: A feasibility study

2020 ◽  
pp. 030802262094664
Author(s):  
Tianma Xu ◽  
Lindy Clemson ◽  
Kate O’Loughlin ◽  
Natasha Lannin ◽  
Catherine M Dean ◽  
...  
Keyword(s):  
Family Caregivers ◽  
Intervention Studies ◽  
Community Dwelling ◽  
Falls Prevention ◽  
Prevention Programme ◽  
Stroke Survivors ◽  
Attendance Rate ◽  
Recruitment Process ◽  
Post Intervention ◽  
Test Feasibility

Introduction Intervention studies to date have shown limited evidence of falls reduction in community-dwelling stroke survivors. This study tests the acceptability and feasibility of the Stepping On after Stroke programme in Singapore. Method A pre–post-intervention study design was used over a 6-month period. Falls incidence was the main outcome measure, with the recruitment process and attendance rate recorded to test feasibility. Data analysis from evaluation questionnaires (descriptive statistics) and interviews (content analysis) were applied to determine acceptability. Results Eight stroke participants and seven caregivers completed the programme at two community sites facilitated by two programme leaders. Stroke participants achieved full attendance over the 7-week programme but family caregivers did not (38%). All participants highlighted their acceptability of the group-based falls-prevention programme. Both programme leaders achieved 92% fidelity in session delivery. Four stroke participants fell during the study period. Stroke participants demonstrated clinically meaningful improvements in community participation at 1 month post-intervention. Family caregivers reported no changes in pre–post evaluations. Conclusion The Stepping On after Stroke programme appears feasible and acceptable to therapists and service users in Singapore; however, caregivers’ participation was limited. Findings can be used to further improve the programme and its methodology before testing its effectiveness in a larger-scale trial.

Perceptions of childhood vaccination practices among beneficiaries and healthcare service providers in slums under the national immunization program of India: a qualitative study

2021 ◽  
Vol ahead-of-print (ahead-of-print) ◽  
Author(s):  
Sanjeev Singh ◽  
Damodar Sahu ◽  
Ashish Agrawal ◽  
Meeta Dhaval Vashi
Keyword(s):  
Qualitative Study ◽  
Healthcare Service ◽  
Service Providers ◽  
Childhood Vaccination ◽  
Community Members ◽  
Immunization Program ◽  
Content Type ◽  
High Expectations ◽  
Factors Associated ◽  
National Immunization

PurposeA qualitative study can help in understanding the unpolluted perspectives of key stakeholders involved in the vaccination practices and can explore vital factors that could influence vaccination-related behaviors and their utilization. This study aims to document the perceptions of caretakers, community members and healthcare service providers related to childhood vaccination practices in slums under the national immunization program (NIP) of India.Design/methodology/approachThis was a qualitative community-based cross-sectional study. Focus group discussions with caretakers, community members and healthcare service providers were used to build a holistic, detailed description and analysis of the factors associated with childhood vaccination practices within its real-world context.FindingsLack of awareness, fear of adverse events following immunization, inappropriate timing of vaccination sessions, loss of daily earnings, migration, lack of good behavior of health staffs, shortage of logistics and vaccines, limited resources and infrastructures and high expectations of beneficiaries were some of the vital barriers impacting vaccination practices in slums.Research limitations/implicationsThough this study provides significant good information on the indicators that can be considered to improve the vaccination practices in any slum settings, it has is also a limitations too due to its setting. Therefore, one needs to be cautious while generalizing these results to other settings like rural. In addition, Though we believe that these strategies could be useful in any setting, it is also important to tailor these observations them as per the need of the society and the population. Also, this is a self-reported qualitative study and therefore the perspectives reported in this study need to be taken with caution. Further, low vaccination, poor awareness, compromised healthcare services, high expectations could be considered as a stigma/fear among the responders and therefore there is always a chance of underreporting. Thus, it would be important in future to conduct a study involving a broader group of people in society and to establish factors associated with the vaccination coverage. that can help in improvement of vaccination.Originality/valueInitiatives such as regular interactions at different levels, effective communication including reminders, behavior interventions, the continued supply of vaccines and logistics, additional resources for the vaccination program, incentives and recognition, extended sessions and people-friendly healthcare delivery system could be helpful to strengthen the routine vaccination practices in slums.

“As soon as people hear that word…”: associative stigma among clinicians working with people with serious mental illness

2018 ◽  
Vol 17 (1) ◽  
pp. 20-28 ◽  
Author(s):  
Beth A. Vayshenker ◽  
Joseph DeLuca ◽  
Timothy Bustle ◽  
Philip Yanos
Keyword(s):  
Mental Illness ◽  
Qualitative Study ◽  
Serious Mental Illness ◽  
Service Providers ◽  
Personal Characteristics ◽  
Content Type ◽  
Work Related ◽  
Stigma By Association ◽  
Related Stigma ◽  
Associative Stigma

Purpose Stigma by association occurs when members affiliated with a marginalized group become discredited themselves. The purpose of this paper is to explore associative stigma among mental health (MH) clinicians working with individuals diagnosed with serious mental illness (SMI). Design/methodology/approach In total, 47 eligible service providers completed an online qualitative study, with open-ended questions about areas touching on associative stigma such as assumptions about the MH profession, personal experiences of work-related stigma, and ways of coping. Findings The data revealed that MH clinicians commonly endorse experiences of associative stigma. The following themes were derived: experiences of stigma in describing the profession to others, media portrayal of MH professionals, assumptions about the field, ascriptions of personal characteristics, job devaluation, means of coping with associative stigma, and impact of associative stigma on work on clients. Originality/value This is the first qualitative study to examine the phenomenon of associative stigma with MH clinicians. This study suggests that MH providers working with people with SMI do encounter associative stigma when discussing their profession with community members. Professionals discussed encountering the stereotype that the work that they do is dangerous, that it is something “unwanted” and that it does not require much skill but could be done by anyone. Associative stigma could be an important component in the understanding of factors related to professional burnout.

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