Physical activity participation by adults with cystic fibrosis: An observational study

Respirology ◽  
2015 ◽  
Vol 21 (3) ◽  
pp. 511-518 ◽  
Author(s):  
Narelle S. Cox ◽  
Jennifer A. Alison ◽  
Brenda M. Button ◽  
John W. Wilson ◽  
Judith M. Morton ◽  
...  
2019 ◽  
Vol 19 (1) ◽  
Author(s):  
Narelle S. Cox ◽  
◽  
Beverley Eldridge ◽  
Sarah Rawlings ◽  
Julianna Dreger ◽  
...  

Abstract Background Regular participation in physical activity by people with cystic fibrosis (CF) promotes positive clinical and health outcomes including reduced rate of decline in lung function, fewer hospitalizations and greater wellbeing. However adherence to exercise and activity programs is low, in part due to the substantial daily therapy burden for young people with CF. Strict infection control requirements limit the role of group exercise programs that are commonly used in other clinical groups. Investigation of methods to promote physical activity in this group has been limited. The Active Online Physical Activity in Cystic fibrosis Trial (ActionPACT) is an assessor-blinded, multi-centre, randomized controlled trial designed to compare the efficacy of a novel web-based program (ActivOnline) compared to usual care in promoting physical activity participation in adolescents and young adults with CF. Methods Adolescents and young adults with CF will be recruited on discharge from hospital for a respiratory exacerbation. Participants randomized to the intervention group will have access to a web-based physical activity platform for the 12-week intervention period. ActivOnline allows users to track their physical activity, set goals, and self-monitor progress. All participants in both groups will be provided with standardised information regarding general physical activity recommendations for adolescents and young adults. Outcomes will be assessed by a blinded assessor at baseline, after completion of the intervention, and at 3-months followup. Healthcare utilization will be assessed at 12 months from intervention completion. The primary outcome is change in moderate-to-vigorous physical activity participation measured objectively by accelerometry. Secondary outcomes include aerobic fitness, health-related quality of life, anxiety and depression and sleep quality. Discussion This trial will establish whether a web-based application can improve physical activity participation more effectively than usual care in the period following hospitalization for a respiratory exacerbation. The web-based application under investigation can be made readily and widely available to all individuals with CF, to support physical activity and exercise participation at a time and location of the user’s choosing, regardless of microbiological status. Trial registration Clinical trial registered on July 13, 2017 with the Australian and New Zealand Clinical Trials Register at (ACTRN12617001009303).


2020 ◽  
Author(s):  
Nicola Hurley ◽  
Niall Moyna ◽  
Bróna Kehoe ◽  
Noel McCaffrey ◽  
Karen Redmond ◽  
...  

Abstract Background: Despite the well-established physical and psychological benefits of physical activity (PA) for cystic fibrosis (CF) populations, adherence to PA programmes within this population remains low. This study aimed to investigate the factors that influence engagement in physical activity, and to explore exercise preferences, among adults with cystic fibrosis. Methods: Semi-structured telephone interviews were conducted. Participants were twenty-one adults (mean age 35 years, SD ± 8) with an established diagnosis of CF, living in Ireland. Interview scripts were digitally recorded and transcribed verbatim. Thematic analysis was used to analyze the data. Results: Four main themes emerged: barriers, motives, value of exercise-related outcomes, and exercise preferences. The main barriers included: fatigue, low energy levels, time, the weather, and exercise-related confidence. Motives for regular physical activity participation included: enjoyment and perceived competence. Participants who were regularly active valued personally identified exercise-related outcomes such as, accomplishment and affect regulation. Participants indicated a preference for home-based physical activity programs compared to gym- or facility-based programs.Conclusion: Interventions aimed at promoting physical activity among adults with CF should involve home-based programs that foster autonomous motivation confidence, enjoyable activities, personally identified outcomes and competence. Clinical Implications: To increase physical activity participation among adults with CF, home-based interventions that pay attention to the patients’ personally-valued exercise outcomes may be required. Wearable technology that provides real-time feedback may enhance feelings of competence and accomplishment, found to underpin autonomous motivation.


2012 ◽  
Vol 15 ◽  
pp. S79-S80
Author(s):  
N. Cox ◽  
J. Alison ◽  
J. Morton ◽  
J. Wilson ◽  
B. Button ◽  
...  

2006 ◽  
Vol 18 (1) ◽  
pp. 76-88 ◽  
Author(s):  
Risto Telama ◽  
Xiaolin Yang ◽  
Mirja Hirvensalo ◽  
Olli Raitakari

The aim of this study was to investigate how participation in organized competitive youth sport predicts adult physical activity. A random sample of 2,309 boys and girls ages 9–18 years participated in the Cardiovascular Risk in Young Finns Study in 1980, and 1,606 (70%) of them again in 2001. Physical activity was measured using a short, validated questionnaire. The results showed that participation in youth sport, and persistent participation in particular, significantly predicted adult physical activity. Participation in sport competitions increased the probability of high activity in adulthood more among males than females.


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