Patients’ information needs and attitudes about post-treatment surveillance for colorectal cancer in the United States: a multi-perspective, mixed methods study

ObjectiveWe sought to determine patients’ informational needs for post-treatment surveillance and elicit clinicians’ and patient advocates’ (ie, stakeholders) opinions regarding what patients should know about post-treatment surveillance in the USA.DesignA mixed-methods study, using semi-structured interviews followed by a survey study.SettingParticipants for the interviews were from two large academic medical centres and a safety-net hospital. The stakeholders were recruited from attendees at the Alliance for Clinical Trials in Oncology Network Spring 2016 meeting.ParticipantsParticipants for the in-depth interviews were purposively sampled. Eligible patients were 6 months to 5 years post curative resection for colorectal cancer and were fluent in English. Participants for the anonymous survey were stakeholders.Main outcome(s) and measure(s)The main outcome was patients’ with colorectal cancer informational needs for post-treatment surveillance, using an interview guide. The second outcome was the importance of the identified informational needs using an anonymous survey.ResultsOf the 67 patients approached, 31 were interviewed (response rate=46%), the majority were between 1 and 3 years post-treatment (81%) and diagnosed at stage III (74%). Despite a desire to monitor for cancer recurrence, patients had little understanding of the concept of post-treatment surveillance, equating surveillance with screening and a belief that if a recurrence was found early there would be a higher likelihood of cure. The survey suggested that clinicians (n=38) and patient advocates (n=11) had some differing opinions regarding what patients should know about surveillance to be active in decisions. For example, compared with clinicians, patient advocates felt that patients should know recurrence treatment options (100% vs 58%) and likelihood for cure following recurrence treatment (100% vs 38%).ConclusionsThe results of this exploratory mixed-methods study suggest that novel educational interventions targeting both patients and clinicians are needed to address the informational needs for post-treatment surveillance of colorectal cancer.

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Abstract PO-085: A mixed-methods study of minority recruitment for cancer genomics research at a large urban safety net hospital

10.1158/1538-7755.disp21-po-085 ◽

2022 ◽

Author(s):

Tina Zhang ◽

Nina Modanlo ◽

David Li ◽

Kiana Mahdaviani ◽

Naomi Ko

Keyword(s):

Mixed Methods ◽

Cancer Genomics ◽

Safety Net ◽

Mixed Methods Study ◽

Minority Recruitment ◽

Safety Net Hospital ◽

Genomics Research ◽

Urban Safety

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Quality and satisfaction with care following changes to the structure of obstetric care during the COVID-19 pandemic in a safety-net hospital in Georgia: Results from a mixed-methods study

Journal of the National Medical Association ◽

10.1016/j.jnma.2021.12.017 ◽

2022 ◽

Author(s):

Kaitlyn K Stanhope ◽

Kendra Piper ◽

Peggy Goedken ◽

Tatyana Johnson ◽

Naima T Joseph ◽

...

Keyword(s):

Mixed Methods ◽

Obstetric Care ◽

Safety Net ◽

Mixed Methods Study ◽

Satisfaction With Care ◽

Safety Net Hospital

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Feasibility, Acceptability, and Adoption of an Inpatient Tobacco Treatment Service at a Safety-Net Hospital: A Mixed-Methods Study

Annals of the American Thoracic Society ◽

10.1513/annalsats.201906-424oc ◽

2020 ◽

Vol 17 (1) ◽

pp. 63-71 ◽

Cited By ~ 2

Author(s):

Bhavna Seth ◽

Nicole Herbst ◽

Katia Oleinik ◽

Kristopher Clark ◽

Eric D. Helm ◽

...

Keyword(s):

Mixed Methods ◽

Safety Net ◽

Mixed Methods Study ◽

Treatment Service ◽

Tobacco Treatment ◽

Safety Net Hospital

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Adolescent Preferences and Design Recommendations for an Asthma Self-Management App: Mixed-Methods Study (Preprint)

10.2196/preprints.10055 ◽

2018 ◽

Author(s):

Courtney Roberts ◽

Adam Sage ◽

Lorie Geryk ◽

Betsy Sleath ◽

Delesha Carpenter

Keyword(s):

Mixed Methods ◽

Persistent Asthma ◽

The United States ◽

Clinic Visit ◽

Mixed Methods Study ◽

Self Management ◽

Informational Needs ◽

Design Recommendations ◽

App Development ◽

Design Preferences

BACKGROUND Approximately 10% of adolescents in the United States have asthma. Adolescents widely use apps on mobile phones and tablet technology for social networking and gaming purposes. Given the increase in recreational app use among adolescents, leveraging apps to support adolescent asthma disease management seems warranted. However, little empirical research has influenced asthma app development; adolescent users are seldom involved in the app design process. OBJECTIVE The aim of this mixed-methods study was to assess adolescent preferences and design recommendations for an asthma self-management app. METHODS A total of 20 adolescents with persistent asthma (aged 12-16 years) provided feedback on two asthma self-management apps during in-person semistructured interviews following their regularly scheduled asthma clinic visit and via telephone 1 week later. Interviews were audiorecorded, transcribed verbatim, analyzed using SPSS v24, and coded thematically using MAXQDA 11. RESULTS Regarding esthetics, app layout and perceived visual simplicity were important to facilitate initial app use. Adolescents were more likely to continually engage with apps that were deemed useful and met their informational needs. Adolescents also desired app features that fit within their existing paradigm or schema and included familiar components (eg, medication alerts that appear and sound like FaceTime notifications and games modeled after Quiz Up and Minecraft), as well as the ability to customize app components. They also suggested that apps include other features, such as an air quality tracker and voice command. CONCLUSIONS Adolescents desire specific app characteristics including customization and tailoring to meet their asthma informational needs. Involving adolescents in early stages of app development is likely to result in an asthma app that meets their self-management needs and design preferences and ultimately the adoption and maintenance of positive asthma self-management behaviors.

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Factors associated with initial participation in a population-based screening for colorectal cancer in Catalonia, Spain: A mixed-methods study

Preventive Medicine ◽

10.1016/j.ypmed.2011.01.012 ◽

2011 ◽

Cited By ~ 1

Author(s):

M. García ◽

J.M. Borràs ◽

N. Milà ◽

J.A. Espinàs ◽

G. Binefa ◽

...

Keyword(s):

Colorectal Cancer ◽

Mixed Methods ◽

Population Based ◽

Mixed Methods Study ◽

Factors Associated

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Abstract 090: Armenian Ethnicity: An Independent Risk Factor for Positive Exercise Treadmill Tests

Circulation Cardiovascular Quality and Outcomes ◽

10.1161/circoutcomes.10.suppl_3.090 ◽

2017 ◽

Vol 10 (suppl_3) ◽

Author(s):

Ara H Rostomian ◽

Daniel Sanchez ◽

Jonathan Soverow

Keyword(s):

Risk Factors ◽

Los Angeles ◽

Multivariate Logistic Regression Analysis ◽

Safety Net ◽

The United States ◽

World Health ◽

Limited Information ◽

Safety Net Hospital ◽

Exercise Treadmill ◽

History Of

Background: Several studies have examined the risk of cardiovascular disease (CVD) among larger racial and ethnic groups such as Hispanics and African-Americans in the United States, but limited information is available on smaller subgroups such as Armenians. According to the World Health Organization, Armenia ranks eighth in CVD rates among all countries however it is unclear if Armenian immigrants living in the US have the same high rates of disease. This study examined whether being of Armenian descent increased the risk of having a positive exercise treadmill test (ETT) among patients treated at a safety net hospital in Los Angeles County. Methods: Data on patients who received an ETT from 2008-2011 were used to conduct a retrospective analysis of the relationship between Armenian ethnicity and ETT result as a surrogate measure for CVD. A multivariate logistic regression analysis was used to estimate the odds ratios (OR) for having a positive ETT among Armenians relative to non-Armenians, adjusting for the following pre-specified covariates: gender, age, diabetes, hypertension, hyperlipidemia, smoking, family history of coronary artery disease (CAD), and patient history of CAD. Results: A total of 5,297 patients, ages 18 to 89, were included. Of these, 13% were Armenian and 46% were male, with an average age of 53 years. Armenians had higher odds of having a positive ETT than non-Armenians (Crude OR=1.30, p=0.037, CI:1.02,1.66). After adjusting for CV risk factors, Armenians were still significantly more likely to have a positive ETT than non-Armenians (OR=1.33, p=0.029, CI:1.03,1.71). CAD (OR 2.02, p<0.001, CI:1.38,2.96), and hyperlipidemia (OR=1.31, p=0.008, CI:1.07,1.60) were also significantly associated with a positive ETT. Conclusion: Armenians have a higher likelihood of having a positive ETT than non-Armenians. This relationship appears to be independent of traditional CV risk factors and suggests a role for cultural and/or genetic influences.

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