scholarly journals Characterising common challenges faced by parental caregivers of children with type 1 diabetes mellitus in mainland China: a qualitative study

BMJ Open ◽  
2022 ◽  
Vol 12 (1) ◽  
pp. e048763
Author(s):  
Huijuan Tong ◽  
Feng Qiu ◽  
Ling Fan
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Emotional Regulation ◽  
Financial Burden ◽  
Social Activity ◽  
Well Being ◽  
Secondary Outcome ◽  
Parental Caregivers

ObjectivesThe mental state of parental caregivers affects outcomes in children with type 1 diabetes mellitus (T1DM). This study aimed to qualitatively examine perception of common challenges among parental caregivers of children with T1DM.SettingSemistructured interviews 45–60 min long were conducted with parental caregivers of children with T1DM. Interview recordings were transcribed and coded in NVivo V.11.0 to observe emergent themes.ParticipantsEligible T1DM caregiving parents (parent(s) and/or legal guardian(s)) were identified from caregivers attending visits with children hospitalised or assessed in the Pediatric Neuroendocrinology Department of Shengjing Hospital, China Medical University in Shenyang from January 2018 to June 2019.Primary and secondary outcome measuresNot applicable.ResultsA total of 20 T1DM caregiving parents were interviewed, aged 30–53 years, including 7 fathers and 13 mothers, with their children whose mean age was 10.6±2.45 years. Content analysis revealed 5 major themes with 13 subthemes, including persistent psychological stress (catastrophic emotions, emotional distress and altered self-efficacy), family function change (altered family life patterns and changes in parental role/function), challenges in daily management (technical challenges, emotional regulation, parent–child conflict and transition of care autonomy from parent to child), financial burden (cost burden of treatment and altered family economics), and lack of social support (social activity limitations and insufficient support system).ConclusionsThe period of emotional disturbance during initial diagnosis, psychological stresses of long-term caregiving, and conflict emerging from transition from parental to child responsibility all can cause psychological response detrimental to parental caregivers and children with T1DM. This work provides compelling evidence for the role of assessment and intervention in parental caregivers’ psychological and emotional well-being in diabetes care, as well as for the necessity of improved social and school support for children with T1DM in China.

scholarly journals Characterizing Common Challenges Faced by Parental Caregivers of Children With Type 1 Diabetes Mellitus in Mainland China: A Qualitative Study

2020 ◽  
Author(s):  
Huijuan Tong ◽  
Feng Qiu ◽  
Ling Fan
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Financial Burden ◽  
School Support ◽  
Emotional Wellbeing ◽  
Term Care ◽  
Parental Caregivers ◽  
Care Giving

Abstract Background: Parental caregiver psychology affects outcomes of children with Type 1 Diabetes Mellitus (T1DM). Objectives: To qualitatively examine perceptions of commo n challenges among parental caregivers of children with T1DM (T1DM Parental Caregivers). Methods: 45-60 minutes semi structured interviews were conducted with T1DM Parental Caregivers at Shengjing Hospital, China Medical University form January 2018 to Jun e 2019. Interview recordings were transcribed and coded in NVivo 11.0 to observe emergent themes. Results: Content analysis revealed 5 common themes with 14 subthemes, including persistent psychological stress (catastrophic emotions, emotional distress, a nd altered self efficacy), family function change (altered family life patterns and changes in parental role/function), challenges in daily management (technical challenges, emotional regulation, parent child conflict, and transition of care autonomy from parent to child), financial burden (cost burden of treatment and altered family economics), and lack of social support (social activity limitations and insufficient support systems). All were highly saturated across interview data. Conclusions: Young children with T1DM rely on parental caregivers for disease management and to one day become capable of autonomous self management as they age. However, both the period of emotional disturbance during initial diagnosis, psychological stresses of long term care giving, and conflict emerging from transition for parental to child responsibility for care can cause psychological effects detrimental to parental caregivers and T1DM children. This work provides compelling evidence for the role of assessment and intervention in parental caregiver psychological and emotional wellbeing in diabetes care, as well as the need for improved social and school support for children with T1DM in China. school support for children with T1DM in China.

Impact of ubiquinone (coenzyme Q10) treatment on glycaemic control, insulin requirement and well-being in patients with Type 1 diabetes mellitus

1999 ◽  
Vol 16 (4) ◽  
pp. 312-318 ◽  
Author(s):  
J. E. Henriksen ◽  
C. Bruun Andersen ◽  
O. Hother-Nielsen ◽  
A. Vaag ◽  
S. Aage Mortensen ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Glycaemic Control ◽  
Type 1 Diabetes Mellitus ◽  
Coenzyme Q10 ◽  
Well Being ◽  
Insulin Requirement

The influence of a program of structured diabetes education on the glycemic control and quality of life during transition of the patients with type 1 diabetes mellitus to insulin pump therapy with continuous real-time monitoring blood glucose leve

2014 ◽  
Vol 60 (1) ◽  
pp. 39-45
Author(s):  
L I Ibragimova ◽  
Yu I Philippov ◽  
A Yu Mayorov
Keyword(s):  
Quality Of Life ◽  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Glycemic Control ◽  
Type 1 Diabetes Mellitus ◽  
Diabetes Education ◽  
Well Being ◽  
Control Group

Aim of the study. To estimate the effectiveness of the new program of structured diabetes education for the groups of the patients with type 1 diabetes mellitus (DM1) during their transition to sensor-augmented pump (SAP) therapy in terms of improvement of the glycemic control and quality of life (QL). Material and methods. The study included 35 patients presenting with DM1: 14 men, mean age 26.5 years (24; 36). The patients were divided into two groups. Those in the study group received a structured diabetes education (n=19), those in the control group were given conventional education (n=16). The patients of group 1 were transferred to SAP therapy in the framework of group education based on the specialized structured program. The education of control patients was carried out on an individual basis in the previous period at the places of residence. Quality of life and emotional well-being were estimated with the use of the validated Russian versions of the SF-36, ADDQoL, and WB-Q12 questionnaires. The effectiveness of glycemic control and QL were evaluated within 4 months after the completion of education and transition to SAP. Results. The patients of both groups were not initially different in the HbA1c level: 8.1 (8.0; 9.2) versus 8.8 (7.7; 9.0) (p>0.05). The HbA1c level: decreased in the two groups within 4 months after the initiation of SAP therapy: 7.3 (6.3; 7.8) versus 8.0 (6.3; 8.5) (p>0.05). The decrease was more pronounced in the group of the patients who received the structured diabetes education than in the control group (p=0.036). The patients transferred to SAP in the framework of the structured education program tended to have higher indices of QL and emotional well-being than the patients given the standard education. Conclusion. The use of the specialized structured program for the education for the groups of the patients with type 1 diabetes mellitus during transition to SAP therapy results not only in a more pronounced improvement of glycemic control indices but also in the positive changes of certain QL characteristics.

scholarly journals Short-Term Effects of COVID-19 Lockdown in Italian Children and Adolescents with Type 1 Diabetes Mellitus: The Role of Separation Anxiety

2021 ◽  
Vol 18 (11) ◽  
pp. 5549
Author(s):  
Daniela Di Riso ◽  
Simone Bertini ◽  
Silvia Spaggiari ◽  
Francesca Olivieri ◽  
Silvana Zaffani ◽  
...  
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Therapeutic Range ◽  
Separation Anxiety ◽  
Insulin Dose ◽  
Female Gender ◽  
Chronically Ill ◽  
Well Being

In March 2020, the Italian Government imposed mandatory home confinement to limit the spread of COVID-19. Few studies assessed the psychophysical impact of COVID-19 on chronically ill children. This study examined these effects on children with Type 1 Diabetes Mellitus (T1D) and their caregivers. Seventy-one patients (7–13 years) with T1D and their caregivers were administered a survey created ad hoc and some standardized questionnaires, assessing psychological well-being and anxiety. Medical data (physical and biochemical characteristics) were recorded before (T0, January–February) and after (T1, May–June) the lockdown. Paired Student t-test, Spearman two-tailed correlations, and a linear regression model were used for statistical analysis. Children at T1 showed higher BMI (body mass index), daily total and basal insulin dose, and time spent in therapeutic range, and they showed lower HbA1c (glycated hemoglobin), time spent above the therapeutic range, and standard deviations of the mean glucose values than at T0. A total of 32.9% scored in the clinical range for separation anxiety. The increase in separation anxiety was predicted by younger age, female gender, more recent T1D diagnosis, less time spent in therapeutic range at T1, and higher perceived fear of COVID-19 infection. In a pandemic context, separation anxiety may be stronger in younger females, with more recent T1D diagnosis and poor metabolic control, thus affecting the parent’s ability to manage diabetes and to support children’s autonomy.

scholarly journals Assessment of phsychological well-being and prevalence of depressive symptoms amoung young adults with type-1 diabetes mellitus

2017 ◽  
Vol 6 (1) ◽  
pp. 177
Author(s):  
Anu Anna Jacob ◽  
Divya Deodhar
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Young Adults ◽  
Type 1 Diabetes Mellitus ◽  
Well Being ◽  
Diabetic Group ◽  
Adolescents And Young Adults ◽  
World Health ◽  
Icd 10

Background: Depression in adolescents and young adults with type-1 diabetes mellitus has been associated with poor glycemic control and recurrent hospitalizations. The World Health Organization-Five Well- being index (WHO-5) is a simple, short and positively worded screening method to assess the level of emotional well-being and has been validated for use in adolescents with type-1 diabetes mellitus. Aims and objectives to assess the psychological well-being in adolescents and young adults with type-1 diabetes mellitus using the WHO-5 well-being index. To estimate the prevalence of symptoms of depression in type-1 diabetes mellitus using the major (ICD-10) depression inventory (MDI-ICD-10) of the psychiatric research unit.Methods: Study was a prospective study. Cases were patients with type-1 diabetes mellitus who attended the “Juvenile Diabetic Club” in CMC Ludhiana consisting of children and adolescents. Controls were healthy age matched adolescents within the family of the patients. Informed consent was taken, and they were asked to fill up the structured WHO-5 Well-being index (version 1998) questionnaire and the WHO-Major (ICD-10) Depression Inventory (MDI-ICD-10) questionnaire.Results: 36 patients were chosen for the study. There were 20 boys and 16 girls. 12 (33.3%) patients (diabetic group) had scores indicating poor well- being. P value is 0.0455, statistically significant. Among the healthy control (non- diabetic group), all of them had a scores suggesting good well- being.Conclusions: 33% of the diabetic children are depressed compared to the non-diabetic candidates in whom none are depressed.

scholarly journals Intervention in emotional abilities for adolescents with type 1 diabetes mellitus in a hospital setting: a study protocol for a randomised controlled trial

BMJ Open ◽  
2019 ◽  
Vol 9 (8) ◽  
pp. e027913
Author(s):  
Desiree Ruiz-Aranda ◽  
Davinia M Resurrección ◽  
Mencia R Gutierrez-Colosia ◽  
Maria Asuncion Martinez-Brocca
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Metabolic Control ◽  
Study Protocol ◽  
Well Being ◽  
Control Group ◽  
Haemoglobin A1c ◽  
Strong Impact

IntroductionType 1 diabetes mellitus (T1DM) is one of the most frequent chronic endocrine diseases in the paediatric population. As a result, this disease has a strong impact on psychological well-being. In line with this, emotional factors play an important role in adaptation. The aim of the present study protocol is to design an emotional abilities programme to improve metabolic control assessed by haemoglobin A1c (HbA1c) samples. Specifically, this intervention will be focused on adaptive coping strategies to deal with unpleasant emotions associated with T1DM. The primary aim of this project is to assess whether the employment of this new psychological intervention improves the emotional abilities of adolescents with T1DM.Methods and analysisTwo focus groups will be carried out for the design and evaluation of the programme following the APEASE criteria (affordability, practicability, effectiveness, acceptability, side effects/safety and equity). Behavioural change will be based on the Behaviour Change Wheel. Sixty-two participants from 12 to 18 years of age will be recruited at a public hospital and randomised to either an intervention or a control group. The intervention group will receive an emotional abilities training programme. The control group will receive usual educational intervention. The primary outcomes are metabolic control and emotional abilities. The secondary outcomes include emotional distress control, positive and negative affect, healthy habits, and quality of life. Data will be collected at baseline, immediately postintervention, and at follow-up visits at 6 and 12 months. A feasibility analysis will be conducted.Ethics and disseminationThe study has been approved by the Ethics Committee of Universidad Loyola Andalucía. Results will be submitted for publication in peer-reviewed journals and disseminated across the scientific community.Trial registration numberNCT03734367.

scholarly journals The Lived Experience of Continuous Subcutaneous Insulin Infusion in Adults With Type 1 Diabetes Mellitus: A Phenomenological Inquiry

2021 ◽  
Vol 8 ◽  
pp. 233339362098105
Author(s):  
V. Renee Callahan Fagan ◽  
Karen Parsons
Keyword(s):  
Diabetes Mellitus ◽  
Type 1 Diabetes ◽  
Type 1 Diabetes Mellitus ◽  
Lived Experience ◽  
Continuous Subcutaneous Insulin Infusion ◽  
Insulin Infusion ◽  
Well Being ◽  
Subcutaneous Insulin ◽  
Metabolic Complications

Continuous subcutaneous insulin infusion (CSII) is a complex, medical device for the management of Type 1 Diabetes Mellitus (T1DM). There is limited research exploring the everyday experiences living with this device. The purpose of this study was to understand the lived experience of adults using CSII therapy to manage T1DM. Lived experiences from eight individuals were collected through semi-structured interviews and then analyzed using a hermeneutic approach to phenomenology. Four substantive themes with supporting subthemes were identified and represent the essence of participant experiences; that is, living with CSII eventually took ascendancy over managing T1DM.CSII therapy has gained popularity due to reported improvements in metabolic control and flexibility. However, the burden of the responsibility and psychological implications of CSII took ascendancy over T1DM. Living with CSII impacts the psychological well-being of individuals so psychological complications are as important to assess by healthcare professionals as physical and metabolic complications.

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