scholarly journals Palliative care research promotion in policy and practice: a knowledge exchange process

2021 ◽  
pp. bmjspcare-2021-003096
Author(s):  
Anne Finucane ◽  
Emma Carduff ◽  
Richard Meade ◽  
Sarah Doyle ◽  
Stephen Fenning ◽  
...  

In palliative care, as in many areas of medicine, there is a considerable amount of research conducted that makes sound recommendations but does not result consistently in improved care. For instance, though palliative care has been shown to benefit all people with a life-threatening illness, its main reach continues to be for those with cancer. Drawing on relational models of research use, we set out to engage policy-makers, educators, clinicians, commissioners and service providers in a knowledge exchange process to identify implications of research for Scottish palliative care priorities. First, we mapped the existing palliative care research evidence in Scotland. We then organised evidence review meetings and a wider stakeholder event where research producers and users came together to coproduce implications of the evidence for policy, education and practice. We used questionnaires and key stakeholder feedback meetings to explore impacts of this process on research uptake and use immediately after the events and over time. In this paper, we reflect on this knowledge exchange process and the broader context in which it was set. We found that participation fostered relationships and led to a rich and enthusiastic exploration of research evidence from multiple perspectives. Potential impacts relating to earlier identification for palliative care, education and need-based commissioning ensued. We make suggestions to guide replication.

2021 ◽  
Vol 20 ◽  
pp. 160940692110150
Author(s):  
David Fearon ◽  
Sean Hughes ◽  
Sarah G. Brearley

Case study research facilitates the in-depth, real-life exploration of complex phenomena from multiple perspectives. It is a well-established approach to deal with the complexities involved in palliative care research. Case studies are not aligned to a single epistemological paradigm but are defined by the identification of the case to be studied. This article examines the methodological issues of carrying out constructivist Stakian multi-case study research. It is based on the lessons learned from our case study exploring the experiences of advanced breast cancer in Mauritania, a resource-limited, Muslim majority context. Stake provides suggestions and boundaries for the case study researcher, but there is no blueprint available for a Stakian multi-case study. The researcher is encouraged to employ their creativity, intuition and ingenuity. We exercised this freedom by incorporating mixed methods of data collection within our constructivist paradigm. We resourcefully revisited the identity of the case and embedded mini-cases, we rejected traditional views of triangulation in favor of crystallization, and we employed assorted approaches to guide and enrich our within- and cross-case analyses to formulate overarching themes and multi-case assertions. Stakian case study should not be limited to constructivist researchers. We encourage any case study researchers to consider this approach, especially those who wish to employ their intuition and ingenuity to understand and describe experiences and phenomena.


2019 ◽  
pp. 332-342
Author(s):  
Jessica M. Ruck ◽  
Fabian M. Johnston

While palliative care research has grown in both breadth and depth in recent years, there has been limited exploration of palliative care within surgical patient populations. Since palliative care is appropriate for patients with debilitating and life-limiting illnesses, many surgical patient populations would likely benefit from the integration of palliative care practices and principles into surgical care. As surgeon-researchers begin to address these large gaps in knowledge and practice, it is important to identify areas in which research is needed. This chapter describes current gaps in research related to palliative care education, change management and quality, policy, appropriate measurement of intervention outcomes, disparities in access and utilization, and optimization of dissemination and implementation, as well as ethical considerations.


Author(s):  
Ihor Pysmennyi

In recent years we’ve seen breakthrough research success in medicine and computer science enabled by novel technology advancements, data analyses capabilities and learning techniques. Despite this, quality care doesn’t have full cove­ rage even in developed countries and access to care is recognised as one of the biggest challenges to the global healthcare system. Bound with population growth in remote areas in developing regions, which lack skilled professionals and medical resources, as well as aging in developed countries this caused a strong need for increasing healthcare effectiveness. Enabled by development of cloud technologies, quick expansion of mobile network coverage and internet access Clinical Information Management Systems integrated with decision support systems, Telemedicine (inclu­ ding distributed Virtual Healthcare Teams and medical imaging), Mobile Healthcare, medical Internet of Things (mIoT), Consumer Health Informatics with personal intelligent health assistants, Health Information Exchanges and deep learning techniques for diagnostics and knowledge extraction are among the state-of-the-art solutions which are more or less successfully used for coping with the problem mentioned above. This paper reviews current situation with implementing these novel informational systems, analyses their advantages, drawbacks, implementation impediments and outcome effectiveness suggesting platform for empowering their integration and maximizing output of each module. Such solution will have a synergy effect and result in a drastic increase of medical resource utilization effectiveness, service quality and providing bigger and fuller coverage with less spending at the same time empowering knowledge exchange process and laying foundation for future development and innovations in the whole healthcare domain.


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