Designing Participedia: A Collaborative Research Platform

2020 ◽  
Author(s):  
Amber Frid-Jimenez ◽  
Jesi Carson ◽  
Alanna Scott ◽  
Paninee Khantidhara ◽  
Dethe Elza
Keyword(s):  
Collaborative Research ◽  
Research Platform

scholarly journals The GenoDiabMar registry. A collaborative research platform of "real world" type 2 diabetes patients.

2021 ◽  
Author(s):  
Adriana Sierra ◽  
Sol Otero ◽  
Eva Rodriguez ◽  
Anna Faura ◽  
Maria Vera ◽  
...  
Keyword(s):  
Real World ◽  
Collaborative Research ◽  
Rapid Progression ◽  
World Population ◽  
Research Platform ◽  
New Biomarkers ◽  
Clinical Changes ◽  
A Prospective Study ◽  
Overall Mortality

The GenoDiabMar registry is a prospective study aims to provide data on demographic, biochemical and clinical changes, from a real-world population of Type 2 DM (T2D) patients. This registry is addressed to find new biomarkers related to the micro and macrovascular complications of T2D, especially focused on diabetic nephropathy. The registry includes longitudinal serum and urine samples, DNA bank, as well as data on 227 metabolomics profiles, 77 Immunoglobulin G glycomics traits and others emerging biomarkers. 650 patients aged 69.56 +/- 9.31 with different grades of chronic kidney disease; (G1-2 50.3%, G3 31.4%, G4 10.8% and G5 7.5%) were followed up for 4.96 (+/-0.43) years. Regardless of albuminuria, women lost 0.93 (0.40-1.46) glomerular filtration units per year less than men. 17% of the participant experienced rapid progression of renal function, 75.2% men, with differential risk factors between sexes; severe macroalbuminuria >300mg/g for men OR[IQ] 2.40 [1.29:4.44] and concomitant peripheral vascular disease 3.32 [1.10:9.57] for women. An overall mortality of 23% was detected (38% due to Cardiovascular aetiology). This cohort is postulated as a great tool for scientific collaboration for studies, whether they are focused on T2D, or whether they are interested in comparing differential markers between diabetic and non-diabetic populations

scholarly journals Translating Evidence Into Impact: Research and Analyses for Scientific Transformation and Advancement (RASTA)

2021 ◽  
Author(s):  
Keyword(s):  
Family Planning ◽  
Collaborative Research ◽  
Large Body ◽  
Investment Decisions ◽  
Decision Makers ◽  
Close Collaboration ◽  
Analytical Skills ◽  
Key Stakeholders ◽  
Research Platform ◽  
Program Policy

Since its creation in 2017, RASTA’s collaborative research platform has continued to evolve and grow, promoting evidence use, enhancing coordination across a range of partners, and strengthening analytical skills of young Indian researchers to advance family planning and reproductive health (FP/RH). With a large body of research guided by questions developed in close collaboration with decision makers from government and other key stakeholders, RASTA has helped to fill critical evidence gaps and inform program, policy, and investment decisions, including around adolescent health and FP/RH access in the context of COVID-19.

TARPTAUTINĖS MODERNIOSIOS KRAŠTOVAIZDŽIO ARCHITEKTŪROS STUDIJŲ IR TYRIMŲ PLATFORMOS LIETUVOJE IR EUROPOJE. LE:NOTRE PROJEKTO PERSPEKTYVOS

2010 ◽  
Vol 34 (3) ◽  
pp. 173-180
Author(s):  
Gintaras Stauskis
Keyword(s):  
Collaborative Research ◽  
Landscape Architecture ◽  
Teaching Staff ◽  
European Study ◽  
European Regions ◽  
Study Program ◽  
Landscape Studies ◽  
Knowledge Based ◽  
Research Platform

Modern studies and research in the field of architecture are developed on the basis of strengthening international cooperation on different geopolitical spaces. Strategies of developing landscape architecture as well as research and educational services are presented in European Landscape Convention. For this reason this document is reviewed in the paper. International European study and research platform Le:Notre is one of the effective ways to develop integral and coordinated studies and research in landscape architecture. Having virtual easily accessible space for collaborative research, art and studies in landscape as its aim, Le:Notre is becoming a place where innovative knowledge-based products, which are significant internationally and reflecting regional specifics, are created. Researchers and teaching staff of the Faculty of Architecture of Vilnius Gediminas Technical University, including the author of this paper, for several years have been involved in the collaborative research on this platform and are looking forward to improving and widening the prospects for studies and research of landscape architecture at VGTU by working recently in a comprehensive modern European virtual study program in landscape architecture. It is strongly anticipated that this product will affect the quality of landscape studies at VGTU and encourage our students and junior researchers to deepen their knowledge in landscape architecture of Lithuania and other European regions. Santrauka Šiuolaikinės studijos ir tyrimai architektūros srityje atliekami bendradarbiaujant skirtingų šalių mokslininkams plačiose geopolitinėse erdvėse. Europos kraštovaizdžio konvencija apibrėžia pagrindines kraštovaizdžio architektūros vystymo strategijas, taip pat ir šioje srityje vykdomų mokslinių tyrimų bei teikiamų akademinių paslaugų kryptis. Todėl straipsnyje šis dokumentas yra nagrinėjamas. Kraštovaizdžio architektūros studijų ir mokslo integralumo bei koordinacijos siekiama įvairiais būdais, vienas iš jų – tarptautinės virtualiųjų studijų platformos Le:Notre sukūrimas. Siekdama sukurti skirtingų šalių mokslo, kūrybos, studijų ir kitų susijusių sričių žmonių bendravimo ir tobulėjimo erdvę, Le:Notre žinių platforma tapo vieta, kurioje sukuriami nauji universalūs intelektiniai produktai, paliekantys vietos tautiniam ir regioniniam savitumui išreikšti bei prieinami daugeliui besidominčiųjų šiuolaikinėmis nuotolinio bendravimo priemonėmis. VGTU architektūros fakulteto mokslininkai ir pedagogai, taip pat ir šio straipsnio autorius, jau keletą metų aktyviai bendradarbiaujantys šioje erdvėje, siekia praplėsti kraštovaizdžio studijų ir mokslo Architektūros fakultete galimybes bei šiuo metu su partneriais kuria visa apimantį šiuolaikinį Europinės kraštovaizdžio architektūros nuotolinių studijų tinklą. Tikėtina, kad šis akademinis produktas, būdamas prieinamas vietos studentams ir pedagogams, paveiks kraštovaizdžio architektūros studijų ir mokslo VGTU Architektūros fakultete kokybę bei paskatins studentus ir jaunuosius tyrėjus giliau domėtis kraštovaizdžio architektūros klausimais Lietuvoje ir kituose Europos regionuose.

scholarly journals Maternal and perinatal Health Research Collaboration, India (MaatHRI): methodology for establishing a hospital-based research platform in a low and middle income country setting

F1000Research ◽  
2020 ◽  
Vol 9 ◽  
pp. 683
Author(s):  
Manisha Nair ◽  
Babul Bezbaruah ◽  
Amrit Krishna Bora ◽  
Krishnaram Bora ◽  
Shakuntala Chhabra ◽  
...  
Keyword(s):  
Health Research ◽  
Collaborative Research ◽  
Research Collaboration ◽  
Perinatal Health ◽  
General Physician ◽  
Middle Income ◽  
Data Safety ◽  
Pilot Model ◽  
Research Platform ◽  
Low And Middle Income

Background: Maternal and perinatal Health Research collaboration, India (MaatHRI) is a research platform that aims to improve evidence-based pregnancy care and outcomes for mothers and babies in India, a country with the second highest burden of maternal and perinatal deaths. The objective of this paper is to describe the methods used to establish and standardise the platform and the results of the process. Methods: MaatHRI is a hospital-based collaborative research platform. It is adapted from the UK Obstetric Surveillance System (UKOSS) and built on a pilot model (IndOSS-Assam), which has been extensively standardised using the following methods: (i) establishing a network of hospitals; (ii) setting up a secure system for data collection, storage and transfer; (iii) developing a standardised laboratory infrastructure; and (iv) developing and implementing regulatory systems. Results: MaatHRI was established in September 2018. Fourteen hospitals participate across four states in India – Assam, Meghalaya, Uttar Pradesh and Maharashtra. The research team includes 20 nurses, a project manager, 16 obstetricians, two pathologists, a public health specialist, a general physician and a paediatrician. MaatHRI has advanced standardisation of data and laboratory parameters, real-time monitoring of data and participant safety, and secure transfer of data. Four observational epidemiological studies are presently being undertaken through the platform. MaatHRI has enabled bi-directional capacity building. It is overseen by a steering committee and a data safety and monitoring board, a process that is not normally used, but was found to be highly effective in ensuring data safety and equitable partnerships in the context of low and middle income countries (LMICs). Conclusion: MaatHRI is the first prototype of UKOSS and other similar platforms in a LMIC setting. The model is built on existing methods but applies new standardisation processes to develop a collaborative research platform that can be replicated in other LMICs.

scholarly journals Buoyant Ecologies: Research, Collaboration, and Resilience at the Edge

2017 ◽  
Author(s):  
Adam Marcus ◽  
Keyword(s):  
Sea Level Rise ◽  
Sea Level ◽  
Collaborative Research ◽  
Research Collaboration ◽  
Feedback Loops ◽  
Research Platform ◽  
Pragmatic Knowledge ◽  
Collaborative Structure ◽  
Waterfront Structures ◽  
Innovative Approaches

Buoyant Ecologies is a collaborative research platform that brings together architects, marine ecologists, and fabricators to address the implications of sea level rise through innovative approaches to designing and constructing resilient waterfront structures. This paper describes how the project’s unique collaborative structure incorporates expertise from ecological researchers and industry manufacturers to promote recursive, interdisciplinary feedback loops between speculative thinking and pragmatic knowledge.

scholarly journals Maternal and perinatal Health Research Collaboration, India (MaatHRI): methodology for establishing a hospital-based research platform in a low and middle income country setting

F1000Research ◽  
2021 ◽  
Vol 9 ◽  
pp. 683
Author(s):  
Manisha Nair ◽  
Babul Bezbaruah ◽  
Amrit Krishna Bora ◽  
Krishnaram Bora ◽  
Shakuntala Chhabra ◽  
...  
Keyword(s):  
Health Research ◽  
Collaborative Research ◽  
Research Collaboration ◽  
Perinatal Health ◽  
General Physician ◽  
Middle Income ◽  
Data Safety ◽  
Pilot Model ◽  
Research Platform ◽  
Low And Middle Income

Background: Maternal and perinatal Health Research collaboration, India (MaatHRI) is a research platform that aims to improve evidence-based pregnancy care and outcomes for mothers and babies in India, a country with the second highest burden of maternal and perinatal deaths. The objective of this paper is to describe the methods used to establish and standardise the platform and the results of the process. Methods: MaatHRI is a hospital-based collaborative research platform. It is adapted from the UK Obstetric Surveillance System (UKOSS) and built on a pilot model (IndOSS-Assam), which has been extensively standardised using the following methods: (i) establishing a network of hospitals; (ii) setting up a secure system for data collection, storage and transfer; (iii) developing a standardised laboratory infrastructure; and (iv) developing and implementing regulatory systems. Results: MaatHRI was established in September 2018. Fourteen hospitals participate across four states in India – Assam, Meghalaya, Uttar Pradesh and Maharashtra. The research team includes 20 nurses, a project manager, 16 obstetricians, two pathologists, a public health specialist, a general physician and a paediatrician. MaatHRI has advanced standardisation of data and laboratory parameters, real-time monitoring of data and participant safety, and secure transfer of data. Four observational epidemiological studies are presently being undertaken through the platform. MaatHRI has enabled bi-directional capacity building. It is overseen by a steering committee and a data safety and monitoring board, a process that is not normally used, but was found to be highly effective in ensuring data safety and equitable partnerships in the context of low and middle income countries (LMICs). Conclusion: MaatHRI is the first prototype of UKOSS and other similar platforms in a LMIC setting. The model is built on existing methods but applies new standardisation processes to develop a collaborative research platform that can be replicated in other LMICs.

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