Seriously Ill Patients' Beliefs Regarding How Their Preferences For End-Of-Life Care Will Be Promoted

2012 ◽  
Author(s):  
Mary McKenzie ◽  
Kelly Vranas ◽  
Elizabeth Cooney ◽  
Tatiana Silva ◽  
Susan Metzger ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Seriously Ill Patients ◽  
Seriously Ill

Planning for End of Life

Pained ◽  
2020 ◽  
pp. 217-218
Author(s):  
Michael D. Stein ◽  
Sandro Galea
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
College Education ◽  
Growing Up ◽  
Life Care ◽  
Treatment Paradigm ◽  
Life Sustaining Treatment ◽  
The One ◽  
Seriously Ill Patients ◽  
Seriously Ill

This chapter discusses the planning for end-of-life care. Results of a 2017 survey show that older adults are likelier than younger people to have documented their end-of-life wishes. Yet few adults with or without written documents have discussed end-of-life care with their doctors. Age, education, and discussions about death were predictors of having such a plan. Those with a college education or higher were most likely to have a written document, compared to those with some college, high school, or less education. Also, talking about death while growing up correlated with having written documents about wishes for medical care. Care settings encouraging or mandating doctors to use an advanced directive toolkit, such as the one created by the National Physician Orders for Life-Sustaining Treatment Paradigm, can improve the communication gap with providers and help seriously ill patients better express their wishes for end-of-life care.

Factors Considered Important at the End of Life (DRAFT)

2018 ◽  
Author(s):  
Ravi B. Parikh ◽  
Oreofe O. Odejide
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Survey Study ◽  
Good Death ◽  
Life Care ◽  
Care Providers ◽  
Broad Variation ◽  
Definition Of ◽  
Seriously Ill Patients ◽  
Seriously Ill

The chapter describes the national survey study by Steinhauser and colleagues, which assessed perspectives of seriously ill patients, family members, physicians, and other care providers (i.e., nurses, social workers, and chaplains) regarding the importance of several factors at the end of life. Survey respondents were asked to rate and rank the importance of attributes of quality at the end of life. This chapter highlights attributes that met consensus among all groups of respondents, those that were important to patients but not physicians, and attributes that had broad variation across all groups. It also includes items that were ranked the most important and least important by all groups. This chapter emphasizes areas of agreement as well as areas of diversity in the definition of a “good death” and discusses implications of these findings in providing end-of-life care.

Fact file 9: Palliative care

2017 ◽  
Author(s):  
Daisy Fancourt
Keyword(s):  
Quality Of Life ◽  
Palliative Care ◽  
End Of Life ◽  
End Of Life Care ◽  
Improve Quality ◽  
Spiritual Support ◽  
Life Care ◽  
Seriously Ill Patients ◽  
Seriously Ill

Palliative care is support for seriously ill patients and their families. The aim of palliative care is to minimize pain and discomfort as much as possible and provide psychological, social, and spiritual support. An important part of palliative care is end-of-life care, which aims to improve quality of life as much as possible while patients are alive and then help them to die with dignity....

scholarly journals Decision-making styles of seriously ill male Veterans for end-of-life care: Autonomists, Altruists, Authorizers, Absolute Trusters, and Avoiders

2014 ◽  
Vol 94 (3) ◽  
pp. 334-341 ◽  
Author(s):  
Ursula K. Braun ◽  
Rebecca J. Beyth ◽  
Marvella E. Ford ◽  
Donna Espadas ◽  
Laurence B. McCullough
Keyword(s):  
Decision Making ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care ◽  
Male Veterans ◽  
Decision Making Styles ◽  
Seriously Ill

scholarly journals MANAGING DEATH IN THE FIELD: HOW EMERGENCY MEDICAL SERVICES TEAMS PROVIDE END-OF-LIFE CARE

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S499-S499
Author(s):  
Deborah P Waldrop ◽  
Jacqueline M McGinley ◽  
Brian M Clemency
Keyword(s):  
Older Adults ◽  
Decision Making ◽  
Emergency Medical Services ◽  
End Of Life ◽  
End Of Life Care ◽  
Medical Services ◽  
Life Care ◽  
Serious Illness ◽  
Emergency Medical ◽  
Seriously Ill

Abstract Emergency medical services (EMS) providers respond more frequently to calls for older adults with serious illness than for people in other age groups. Recent legislation that makes it possible to document healthcare decisions has facilitated an era of choice in end-of-life care. EMS teams make time-sensitive decisions about care, resuscitation and hospital transport that influence how and where a seriously ill older adult will die and how his/her family will experience the death. Yet, EMS providers’ perspectives on urgent decision-making and how they work with families are unknown. The purpose of this study was to explore the decision-making process that occurs how EMS teams respond when someone is dying from a serious illness (vs. an injury). In-depth in-person interviews were conducted with 50 EMS providers (24 emergency medical technicians [EMTs] and 26 Paramedics) from four ambulance services. Participants’ ages ranged from 21-57 (M=37.9) and 70% were male. Qualitative data was coded using Atlas.ti software. Three themes illuminated participants’ experiences with end-of-life calls: (1) How legally binding documents (e.g. Do Not Resuscitate [DNR] orders, Medical Orders for Life Sustaining Treatment [MOLST]) inform care; (2) Decision-making about foregoing or halting resuscitation (e.g. no hospitalization, death at home); and (3) Family care, support and education. The results suggest that EMS providers have critically important roles in upholding the wishes of seriously ill older adults and helping caregiving families through the end-of-life transition. Implications: Discussions about the meaning of legally binding documents (e.g. DNR, MOLST) and EMS calls are important in advance care planning.

Family Satisfaction with End-of-Life Care in Seriously Ill Hospitalized Adults

2000 ◽  
Vol 48 (S1) ◽  
pp. S61-S69 ◽  
Author(s):  
Rose Baker ◽  
MS Hyg ◽  
Albert W. Wu ◽  
Joan M. Teno ◽  
Barbara Kreling ◽  
...  
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Family Satisfaction ◽  
Life Care ◽  
Seriously Ill

scholarly journals National and international non-therapeutic recommendations for adult palliative and end-of-life care in times of pandemics: A scoping review

2021 ◽  
pp. 1-13
Author(s):  
Daniela Gesell ◽  
Eva Lehmann ◽  
Sonja Gauder ◽  
Marie Wallner ◽  
Steffen Simon ◽  
...  
Keyword(s):  
Palliative Care ◽  
End Of Life ◽  
Scoping Review ◽  
End Of Life Care ◽  
Physical Contact ◽  
Healthcare Sector ◽  
Publication Date ◽  
Life Care ◽  
Therapeutic Recommendations ◽  
Seriously Ill

Abstract Objective The care of seriously ill and dying people is an important task, especially in times of pandemics and regardless of the patients’ infection status. Before the SARS-CoV-2 pandemic, healthcare systems were not sufficiently prepared for the challenges of palliative and end-of-life care during a pandemic. The aim was to identify and synthesize relevant aspects and non-therapeutic recommendations of palliative and end-of-life care of seriously ill and dying people, infected and uninfected, and their relatives after one year into the pandemic to outline what actions, practices, and procedures were taken to deal with the pandemic and its consequences. Method A scoping literature review following the methods of the PRISMA-ScR. The electronic literature search was conducted in 09/2020 and updated in 02/2021 using MEDLINE (Pubmed), with no restriction of publication date and eligibility criteria. In addition, a manual search was carried out. Results A total of 280 studies met the inclusion criteria and three main aspects have emerged. The reduction of physical contact due to the risk of infection severely limited the work of palliative care professionals and solutions had to be found to maintain palliative and end-of-life care structures. This has been accompanied by strict visitor restrictions and the need to support patients, relatives, and enable contact. The third relevant aspect is the integration of specialist palliative care expertise into other clinical settings. Significance of results This scoping review demonstrates the need for basic palliative care training for every healthcare professional. It supports the importance of developing a national strategy for palliative care in pandemic times in every country, including the digitalization of the healthcare sector to offer telecommunication/telemedicine.

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