scholarly journals Augmentation Therapy for Alpha-1 Antitrypsin Deficiency: Improved Survival and Quality of Life Compared to Matched Augmentation Naive Controls Followed for Up to 15 Years

2020 ◽  
Author(s):  
R.A. Sandhaus ◽  
P. Ellis ◽  
K. Holm ◽  
R. Choate ◽  
D. Mannino ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Augmentation Therapy ◽  
Antitrypsin Deficiency ◽  
Alpha 1 Antitrypsin Deficiency ◽  
Alpha 1 Antitrypsin

scholarly journals Alpha-1 Antitrypsin Deficiency: Home Therapy

2021 ◽  
Vol 12 ◽  
Author(s):  
Anna Annunziata ◽  
Maurizia Lanza ◽  
Antonietta Coppola ◽  
Paolo Andreozzi ◽  
Sara Spinelli ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Home Care ◽  
Home Treatment ◽  
Augmentation Therapy ◽  
Home Therapy ◽  
Antitrypsin Deficiency ◽  
Alpha 1 Antitrypsin Deficiency ◽  
Alpha 1 Antitrypsin

While available in only a few countries, home therapy is a possible strategy for the treatment of alpha-1 antitrypsin deficiency. We want to describe our experience in the management of human alpha-1 antitrypsin using home care intravenous augmentation therapy during this emergency period caused by SARS-CoV2 infection. We assessed the safety of the home treatment and the quality of life of patients enrolled in the program.

Health-Related Quality of Life in Patients with Alpha-1 Antitrypsin Deficiency: The French Experience

2015 ◽  
Vol 12 (sup1) ◽  
pp. 46-51 ◽  
Author(s):  
Clément Gauvain ◽  
Jean-François Mornex ◽  
Christophe Pison ◽  
Antoine Cuvelier ◽  
Malika Balduyck ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Health Related Quality ◽  
French Experience ◽  
Antitrypsin Deficiency ◽  
Related Quality ◽  
Health Related ◽  
Alpha 1 Antitrypsin Deficiency ◽  
Alpha 1 Antitrypsin
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