So No One Dies Alone: A Study of Hospice Volunteering with Rural Seniors

2007 ◽  
Vol 23 (3) ◽  
pp. 163-172 ◽  
Author(s):  
Margaret Mckee ◽  
Mary Lou Kelley ◽  
Manal Guirguis-Younger
Keyword(s):  
Rural Communities ◽  
End Of Life ◽  
End Of Life Care ◽  
Northwestern Ontario ◽  
Hospice Volunteers ◽  
Adequate Care ◽  
Volunteer Programs ◽  
The Ideal

This paper summarizes the results of a qualitative study of hospice volunteering in the rural communities of northwestern Ontario. In this region, there are 13 independent and active hospice volunteer programs serving communities ranging in population from 1,000 to 15,000. The 13 volunteer coordinators in these communities participated in a phone interview in which they described the role of hospice volunteers in their community and the kinds of clients they serve. The results indicate that the hospice volunteers in this rural region spend a large part of their time visiting medically frail and lonely seniors who are at risk of dying alone or without adequate care and companionship at the end of life. Long-term visiting to build relationships of trust and genuine caring are considered the ideal in these communities. Implications for end-of-life care for rural seniors are discussed.

Expanding the Concept of End‐of‐life Care in Long‐term Care: A Scoping Review Exploring the Role of Healthcare Assistants

2020 ◽  
Author(s):  
Danielle T. Just ◽  
Hannah M. O’Rourke ◽  
Whitney B. Berta ◽  
Caroline Variath ◽  
Lisa A. Cranley
Keyword(s):  
End Of Life ◽  
Scoping Review ◽  
End Of Life Care ◽  
Long Term Care ◽  
Life Care ◽  
Term Care

scholarly journals Cost of shifting from healthcare to long-term care in later life across major diseases: analysis of end-of-life care during the last 24 months of life

2018 ◽  
Vol 13 (1) ◽  
pp. 40-47 ◽  
Author(s):  
Tomoko Terada ◽  
Keiko Nakamura ◽  
Kaoruko Seino ◽  
Masashi Kizuki ◽  
Naohiko Inase
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Long Term Care ◽  
Later Life ◽  
Life Care ◽  
Term Care

End of life care in the community: the role of ambulance clinicians

2013 ◽  
Vol 5 (7) ◽  
pp. 394-399 ◽  
Author(s):  
Annie Pettifer ◽  
Rosanna Bronnert
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Life Care

scholarly journals END-OF-LIFE CARE PREFERENCES AND WELL-BEING IN LONG-TERM CARE RESIDENTS

2019 ◽  
Vol 3 (Supplement_1) ◽  
pp. S669-S669
Author(s):  
Kelly Shryock ◽  
Jacinta Dickens ◽  
Anisha Thomas ◽  
Suzanne Meeks
Keyword(s):  
Quality Of Life ◽  
Positive Affect ◽  
End Of Life ◽  
End Of Life Care ◽  
Long Term Care ◽  
Well Being ◽  
Life Care ◽  
Term Care

Abstract Research on end-of-life care in nursing homes comes largely from the viewpoint of staff or family members. We examined patient perspectives on end-of-life care, preferences for care, and quality of life in long-term care settings. We hypothesized that fulfillment of the Self Determination Theory (SDT) needs of autonomy, competence, and relatedness would be related to better well-being and that the degree to which end-of-life care preferences are seen as possible in the setting would be related to SDT need fulfillment and well-being. Preliminary data, collected from older individuals at the end of life (over 55, presence of significant chronic disease, in long term care setting) (n= 72), demonstrated that autonomy, competence, and relatedness measures were moderately and significantly correlated with well-being as measured by life satisfaction, higher positive affect, lower negative affect, and overall quality of life measures The degree to which residents believed that their end-of-life care preferences could be honored in the setting was also significantly correlated with autonomy, competence, relatedness, positive affect, and psychological quality of life. These results are consistent with SDT and suggest that if long term care settings can promote autonomy, connection, and competence in making end of life decisions, possibly by discovering and fulfilling preferences for end of life care, individuals who end their lives on those settings have potential for greater satisfaction and happiness. These results suggest that SDT is a useful framework for ongoing research on how to improve the end of life experiences of older adults in long term care.

scholarly journals Continuation of end-of-life care in a special elderly nursing home and the role of doctors

2012 ◽  
Vol 49 (3) ◽  
pp. 336-343
Author(s):  
Akira Kurita ◽  
Naosuke Shinagawa ◽  
Eitarou Kodani ◽  
Shinichirou Iwahara ◽  
Bonpei Takase ◽  
...  
Keyword(s):  
Nursing Home ◽  
End Of Life ◽  
End Of Life Care ◽  
Life Care

Meritocracy and its Enemies: Is There an Alternative to the “Tyranny of the Merit”?

2021 ◽  
pp. 30
Author(s):  
Dmitriy Davydov
Keyword(s):  
Technological Development ◽  
Social Institutions ◽  
Practical Application ◽  
Skilled Workers ◽  
Highly Educated ◽  
Technical Competencies ◽  
State Of Affairs ◽  
The Ideal

The article examines  the idea of meritocracy, now increasingly criticized. It is shown that the relevance of the discourse on meritocracy is due to the objectively increased role of education and various creative and technical talents in the context of rapid technological development. At the same time, critics rightly point out that meritocracy today has become largely a myth that plutocrats turn to justify their privileges, status and wealth. The very idea of a meritocracy that focuses exclusively on the technical competencies and abilities demanded by the neoliberal economy is also criticized. Many authors talk about the need to fairly reward and respect low-skilled workers, who often (especially in the context of the COVID-19 pandemic) bring more public benefit than highly educated financiers or bankers. Nevertheless, the article shows that this criticism is a hidden apology for meritocracy. In this case, critics justify deeper inequalities associated with long-term prospects and self-realization. It leads to cementing the “secondary” status of workers of the “hand” and “heart”, whose fate in the context of automation and the development of artificial intelligence technologies may turn out to be unenviable. In the author's opinion, the only alternative to this state of affairs is the rejection of meritocracy as a normative concept. It should be recognized as an inevitable evil associated with the imperfection of social institutions and, in part, human nature. Accordingly, the author contrasts the meritocratic pursuit of status and power with the ideal of universal striving for the maximum possible and, what is remarkable, all-round development and practical application of the talents of all without exception.

scholarly journals Bridging worlds: community led visual methods amidst climate change related disasters in Australia

2019 ◽  
Vol 29 (Supplement_4) ◽  
Author(s):  
C Macdougall ◽  
L Gibbs
Keyword(s):  
Climate Change ◽  
Rural Communities ◽  
Service Providers ◽  
Natural Environments ◽  
Visual Methods ◽  
Community Recovery ◽  
Visual Record ◽  
And Control

Abstract Background In February 2009 Victorian rural communities were hit by the worst bushfires in Australian history. Immediately we evaluated community groups preparing residents for bushfires. Ten years on, we are one of the few teams to evaluate medium to long term community recovery using multiple methods. As climate change becomes more visible, the frequency and intensity of disasters will increase so communities, governments and service providers need more evidence based strategies and policies. We explore how participant led visual methods provide new knowledge. Methods In study 1 participants in 3 of 7 focus groups in peoples’ homes spontaneously brought photos for us to examine before the discussions. In another participants spoke of the importance of photos they took at the time. We returned to the field to interview people in their homes about the meaning and role of photos. Results Participants wanted to inform us-as outsiders-of the awe and enormity of the fires. They created a visual record to communicate with key interest groups and ward off complacity as memories receded. Photos helped them construct timelines and meanings of the intense fires. Crucially, they recorded recovery and rebuilding in both the built and natural environments. Over the next ten years we chronicled stories from community led visual methods of communication, recovery and empowerment. We incorporated into qualitative methods participant led tours of their environments, with visual methods. Visual data collected by communities focused more strongly on the natural environment than researcher led verbal methods. Conclusions Visual sociology changes as technology provides participants in research with increased access to, and control over, visual methods. These changes can rebalance power relations between qualitative researchers and participants and bridge visual and verbal methods; crafting striking stories to influence those Australian policies unresponsive to climate change. Key messages Technological change enables participants in qualitative research to initiate visual methods to build bridges between them and researchers. Community led visual methods provide new types of data useful for theory and knowledge translation.

Nursing Guidelines for End-Of-Life Care in Long-Term Care Settings: Sustainable Improvements to Care

2011 ◽  
Vol 27 (3) ◽  
pp. 229-237 ◽  
Author(s):  
Carole Gill ◽  
Loretta M. Hillier ◽  
Jacqueline M. Crandall ◽  
Julie Johnston
Keyword(s):  
End Of Life ◽  
End Of Life Care ◽  
Long Term Care ◽  
Life Care ◽  
Term Care ◽  
Nursing Guidelines
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