Psychosocial Status of Turkish Families of Pediatric Cancer Patients

2019 ◽  
Vol 31 (3) ◽  
pp. 227-241
Author(s):  
Melike Ayca Ay ◽  
Imatullah Akyar
Keyword(s):  
Cancer Patients ◽  
Pediatric Cancer ◽  
Family Members ◽  
Psychosocial Care ◽  
Psychosocial Interventions ◽  
Care Quality ◽  
Psychosocial Effects ◽  
Pediatric Cancer Patients ◽  
Sample Characteristics

Introduction: In some countries, family members are not involved in routine pediatric cancer psychosocial care although it is essential. This integrative review aims to determine the extent of research on family members of pediatric cancer patients in Turkey. Method: Four main keywords were used: parent/sibling/family, child/pediatric, cancer and psychosocial outcomes to search articles on PubMed, EKUAL, ULAKBİM, WOS databases (limited to 1997-2017). Among first 317 hits, 284 records were excluded. Of 33 eligible articles, 14 were excluded due to sample characteristics. Results: Research on psychosocial effects of pediatric cancer on family members is mostly descriptive and offers moderate-quality evidence. The reported psychosocial effects are (1) depression, anxiety, hopelessness, acceptance; (2) burden of care, quality of life, posttraumatic stress disorder; and (3) need for social support, information. Discussion: This study will contribute to the literature and help for the planning of protective psychosocial interventions for family members of children with cancer in Turkey.

Quality of life in school-age pediatric cancer patients

2013 ◽  
Author(s):  
Fransisca M. Sidabutar ◽  
Anggie Regia Anandari ◽  
Ingrid Karli ◽  
Yusnita Katagori ◽  
Henny E. Wirawan
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
School Age ◽  
Pediatric Cancer Patients

“AeRop exercise” can improve the sleep quality of Indonesian pediatric cancer patients

2019 ◽  
Vol 29 ◽  
pp. 342-345
Author(s):  
Khoirunnisa ◽  
Happy Hayati ◽  
Yati Afiyanti ◽  
Allenidekania
Keyword(s):  
Sleep Quality ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Pediatric Cancer Patients

scholarly journals A systematic review of instruments assessing dimensions of distress among caregivers of adult and pediatric cancer patients

2016 ◽  
Vol 15 (1) ◽  
pp. 110-124 ◽  
Author(s):  
Kimberson Tanco ◽  
Ji Chan Park ◽  
Agustina Cerana ◽  
Amy Sisson ◽  
Nikhil Sobti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Literature Search ◽  
Healthcare Delivery ◽  
Self Report ◽  
Caregiver Distress ◽  
Pediatric Cancer Patients ◽  
Cancer Caregiver

AbstractObjective:Caregivers of cancer patients face intense demands throughout the course of the disease, survivorship, and bereavement. Caregiver burden, needs, satisfaction, quality of life, and other significant areas of caregiving are not monitored regularly in the clinic setting, resulting in a need to address the availability and clinical effectiveness of cancer caregiver distress tools. This review aimed to determine the availability of cancer caregiver instruments, the variation of instruments between different domains of distress, and that between adult and pediatric cancer patient populations.Method:A literature search was conducted using various databases from 1937 to 2013. Original articles on instruments were extracted separately if not included in the original literature search. The instruments were divided into different areas of caregiver distress and into adult versus pediatric populations. Psychometric data were also evaluated.Results:A total of 5,541 articles were reviewed, and 135 articles (2.4%) were accepted based on our inclusion criteria. Some 59 instruments were identified, which fell into the following categories: burden (n = 26, 44%); satisfaction with healthcare delivery (n = 5, 8.5%); needs (n = 14, 23.7%); quality of life (n = 9, 15.3%); and other issues (n = 5, 8.5%). The median number of items was 29 (4–125): 20/59 instruments (33.9%) had ≤20 items; 13 (22%) had ≤20 items and were psychometrically sound, with 12 of these 13 (92.3%) being self-report questionnaires. There were 44 instruments (74.6%) that measured caregiver distress for adult cancer patients and 15 (25.4%) for caregivers of pediatric patients.Significance of results:There is a significant number of cancer caregiver instruments that are self-reported, concise, and psychometrically sound, which makes them attractive for further research into their clinical use, outcomes, and effectiveness.

scholarly journals Prevalence of Sleep Disturbances in Pediatric Cancer Patients and Their Diagnosis and Management

Children ◽  
2021 ◽  
Vol 8 (12) ◽  
pp. 1100
Author(s):  
Irtiza N. Sheikh ◽  
Michael Roth ◽  
Peter L. Stavinoha
Keyword(s):  
Quality Of Life ◽  
Risk Factors ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Sleep Disturbances ◽  
Negative Impact ◽  
Management Strategies ◽  
Common Source ◽  
Pediatric Cancer Patients

Sleep disturbances represent an understudied yet common source of distress among pediatric cancer patients and survivors, with deleterious effects on quality of life. Sleep issues stem from multiple risk factors, yet individual contributors are difficult to isolate, consequently impeding the identification of targets for intervention. In many pediatric cancer patients, disrupted sleep and its negative impact on quality of life continue into adulthood and may affect various functional domains. This literature review highlights the types and prevalence of sleep disturbances in pediatric cancer patients during active treatment and through survivorship. Potential etiological and risk factors for disturbed sleep are summarized, including the effects of cancer and its treatment, psychosocial and family factors, as well as individual-patient aspects, such as genetics, mood and coping skills. While existing assessment and management strategies are reviewed, the literature is incomplete, and significant gaps emerge in our understanding of sleep disturbances in pediatric cancer patients and survivors. The review concludes with recommendations of areas where further research is needed. The aims of this review include increasing clinicians’ awareness of sleep disturbances as a significant source of poor quality of life in pediatric cancer patients and survivors and directing researchers to gaps in our understanding of sleep disturbances in pediatric cancer patients and survivors.

scholarly journals Psychological impact of COVID-19 on parents of pediatric cancer patients

2020 ◽  
Author(s):  
antonella guido ◽  
elisa marconi ◽  
laura peruzzi ◽  
nicola di napoli ◽  
gianpiero tamburrini ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Cancer Patients ◽  
Pediatric Cancer ◽  
Psychological Impact ◽  
High Stress ◽  
Impact Of Event Scale ◽  
Event Scale ◽  
Pediatric Cancer Patients ◽  
Clinically Significant

Background. The changes and general alarm of the current COVID-19 pandemic have amplified the sense of precariousness and vulnerability for family members who, in addition to the emotional trauma of the cancer diagnosis, add the distress and fear of the risks associated with infection. The primary objectives of the present study was to investigate the psychological impact of the COVID-19 pandemic on the parents of pediatric cancer patients, and to investigate the level of stress, anxiety, and the child’s quality of life perceived by the parents during the Covid-19 epidemic. Methods. The parents of 45 consecutive children with solid and haematological tumors were enrolled. Four questionnaires (Impact of Event Scale-Revised - IES-R ; Perceived Stress Scale - PSS; Spielberger State - Trait Anxiety Inventory - STAI-Y ; Pediatric Quality of Life Inventory - PedsQL) were administered to the parents at the beginning of the pandemic lockdown. Results. 75% of parents exhibited remarkable levels of anxiety, with 60 subjects in state scale and 45 subjects in trait scale having scores that reached and exceeded the STAI-Y cut off. The bivariate matrix of correlation (Figure 1) found a strong significant positive correlation between the IES-R and PSS scores (r = 0.55, P < 0.001). There was a positive correlations between the PSS and PedsQL (emotional needs) scale (P < 0.001) and a negative correlation between IES-R and STAI-Y (P < 0.001). Conclusion. The results confirm that parents of pediatric cancer patients have a high psychological risk for post-traumatic symptoms, high stress levels, and the presence of clinically significant levels of anxiety.

Sign in / Sign up

Export Citation Format

Share Document