scholarly journals Trust Building Recruitment Strategies for Researchers Conducting Studies in African American (AA) Churches

2016 ◽  
Vol 34 (10) ◽  
pp. 912-917 ◽  
Author(s):  
Gloria Bonner ◽  
Sharon Williams ◽  
Diana Wilkie ◽  
Alysha Hart ◽  
Glenda Burnett ◽  
...  
Keyword(s):  
Palliative Care ◽  
African American ◽  
Church Leaders ◽  
Trust Building ◽  
Sensitive Information ◽  
Care Research ◽  
Data Elements ◽  
Faith Based Institutions ◽  
Hospice And Palliative Care ◽  
The Church

Background: An initial and vital important step in recruiting participants for church-based hospice and palliative care research is the establishment of trust and credibility within the church community. Mistrust of medical research is an extremely important barrier hindering recruitment in African American (AA) communities. A church-based EOL dementia education project is currently being conducted at four large urban AA churches. Church leaders voiced mistrust concerns of previous researchers who conducted investigations in their faith-based institutions. We explored strategies to ameliorate the mistrust concerns. Specific aim: To identify trust-rebuilding elements for researchers following others who violated trust of AA church leaders. Methods: Face-to-face, in-depth interviews were conducted from a convenient sample of four established AA church leaders. Interviews were held in the informants’ churches to promote candor and comfort in revealing sensitive information about trust /mistrust. Content analysis framework was used to analyze the data. Elements identified from the analysis were then used to create themes. Results: Multidimensional overarching themes emerged from the analysis included: Experience with researchers (positive and extremely negative), violation of trust and trust building strategies. Conclusions: Findings suggest that researchers who wish to conduct successful studies in the AA religious institutions must implement trust rebuilding strategies that include mutual respect, collaboration and partnership building. If general moral practices continue to be violated, threat to future hospice and palliative care research within the institutions may prevail. Thus, potential benefits are thwarted for the church members, AA community, and advancement of EOL care scholarship.

scholarly journals Refining a Checklist for Reporting Patient Populations and Service Characteristics in Hospice and Palliative Care Research

2012 ◽  
Vol 43 (5) ◽  
pp. 902-910 ◽  
Author(s):  
David C. Currow ◽  
Jennifer J. Tieman ◽  
Aine Greene ◽  
S. Yousuf Zafar ◽  
Jane L. Wheeler ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Research ◽  
Service Characteristics ◽  
Hospice And Palliative Care

Building Strong Clinician-Researcher Collaborations for Successful Hospice and Palliative Care Research

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Susan Lysaght Hurley ◽  
Susan DeSanto-Madeya ◽  
Christine A. Fortney ◽  
Seiko Izumi ◽  
Veerawat Phongtankuel ◽  
...  
Keyword(s):  
Palliative Care ◽  
Care Research ◽  
Hospice And Palliative Care

Faith Beliefs of African American Church Leaders Are Aligned With the Principles of Palliative and Hospice Care: A Community-Based Assessment and Intervention

2020 ◽  
pp. 104990912094822 ◽  
Author(s):  
Jerry Johnson ◽  
Tara Hayden ◽  
Lynne Allen Taylor ◽  
M. Arthur Gilbert
Keyword(s):  
Palliative Care ◽  
African American ◽  
Educational Intervention ◽  
Hospice Care ◽  
Church Leaders ◽  
Post Intervention ◽  
Community Based ◽  
Loved One ◽  
Post Assessment ◽  
Beliefs And Attitudes

Background: African American (AA) church leaders often advise AAs with serious and life-limiting illnesses (LLIs). Objectives: 1) determine beliefs of AA church leaders about palliative care and hospice care (PCHC), 2) assess association of participants’ attitude about encouraging a loved one to learn about PCHC with whether PC or HC is consistent with faith beliefs and can reduce suffering and bring comfort, and 3) evaluate an interactive, educational intervention. Design: prospective, one group, pre and post assessment of beliefs and attitudes Settings/Subjects: 100 church leaders from 3 AA Churches and one AA Church Consortium. Results: At baseline, participants held more receptive beliefs about HC than about PC. Those who reported knowing the meaning of PC believed PC is consistent with their faith (81% vs 28%, phi=.53) and can reduce suffering and bring comfort (86% vs 38%, phi =.50). Participants who believed PC was consistent with their faith were more likely to encourage a loved one with a LLI to learn about PCHC than did participants who did not (100% vs 77%, phi =.39, p < 0.001). Post intervention, more participants: 1) perceived that they knew the meaning of PC (48% vs 96%), 2) viewed PC as consistent with their faith (58% vs. 94%), and 3) viewed PC as a means to reduce suffering and bring comfort (67% vs 93%) with a p < 0.0001 for each item. The post intervention results for HC were variable. Conclusions: Faith beliefs of AA Church leaders may be aligned with the principles of PCHC.

scholarly journals Gaps in Hospice and Palliative Care Research: A Scoping Review of the North American Literature

2020 ◽  
Vol 2020 ◽  
pp. 1-16
Author(s):  
Rebecca Antonacci ◽  
Carol Barrie ◽  
Sharon Baxter ◽  
Sarah Chaffey ◽  
Srini Chary ◽  
...  
Keyword(s):  
Palliative Care ◽  
American Literature ◽  
Scoping Review ◽  
North American ◽  
Public Awareness ◽  
Care Utilization ◽  
Research Gaps ◽  
Future Directions ◽  
Care Research ◽  
Hospice And Palliative Care

Background. The demand for hospice and palliative care is growing as a result of the increase of an aging population, which is most prominent in North America. Despite the importance of the topic and an increase in hospice and palliative care utilization, there still are gaps in research and evidence within the field. Aim. To determine what gaps currently exist in hospice and palliative/end-of-life care research within the context of a North American setting to ensure that future directions are grounded in appropriate evidence. Methods. Using Arksey and O’Malley’s scoping review framework, six peer-reviewed, and four grey electronic literature databases in healthcare and the social sciences were searched in mid-2019. 111 full-text articles were retrieved, with 25 articles and reports meeting the inclusion criteria. Major themes were identified through thematic context analysis: (1) clinical, (2) system access to care, (3) research methodology, and (4) caregiving-related research gaps. Results. Findings include strategies for engaging stakeholder organizations and funding agencies, implications for other stakeholder groups such as clinicians and researchers, and highlight implications for policy (e.g., national framework discussion) and practice (e.g., healthcare provider education and training and public awareness). Conclusion. Reviewing and addressing targeted research gaps is essential to inform future directions in Canada and beyond.

African American Faith Leaders' Experience, Knowledge, and Perceptions of Hospice and Palliative Care (RP525)

2020 ◽  
Vol 60 (1) ◽  
pp. 243
Author(s):  
Clare Stacey ◽  
Nicholas Kreatsoulas ◽  
Debra Pohlman ◽  
Brittany Watts ◽  
Steven Radwany
Keyword(s):  
Palliative Care ◽  
African American ◽  
Faith Leaders ◽  
Hospice And Palliative Care

Overcoming Barriers to Access and Utilization of Hospice and Palliative Care Services in African-American Communities

2005 ◽  
Vol 50 (2) ◽  
pp. 151-163 ◽  
Author(s):  
Carole A. Winston ◽  
Paula Leshner ◽  
Jennifer Kramer ◽  
Gillian Allen
Keyword(s):  
Health Care ◽  
Palliative Care ◽  
African American ◽  
Access To Health Care ◽  
Cultural Beliefs ◽  
Ample Evidence ◽  
Care Services ◽  
Palliative Care Services ◽  
African American Communities ◽  
Hospice And Palliative Care

While there is ample evidence to support the need for hospice and palliative care services for African Americans, only 8% of patients who utilize those services are from African-American communities. The underutilization of end-of-life and palliative care can be attributed to several barriers to service access including incompatibility between hospice philosophy and African-American religious, spiritual, and cultural beliefs; health care disparities; distrust of the medical establishment; physician influence; financial disincentives, and hospice admission criteria. Suggestions for dismantling barriers to care access include developing culturally competent professionals in the health and human services, expanding the philosophy of hospice to include spiritual advisors from client communities, and funding national initiatives to promote improved access to health care at all stages in the life cycle of members of all underserved communities.

Sign in / Sign up

Export Citation Format

Share Document