The Parents’, Hospitalized Child’s, and Health Care Providers’ Perceptions and Experiences of Family-Centered Care Within a Pediatric Critical Care Setting

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission

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Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

Journal of Autism and Developmental Disorders ◽

10.1007/s10803-020-04765-0 ◽

2020 ◽

Author(s):

Lynnea Myers ◽

Sharon M. Karp ◽

Mary S. Dietrich ◽

Wendy S. Looman ◽

Melanie Lutenbacher

Keyword(s):

Health Care Providers ◽

Autism Spectrum ◽

Diagnostic Process ◽

Family Centered Care ◽

Depression And Anxiety ◽

Care Providers ◽

Symptoms Of Depression ◽

Centered Care ◽

Spectrum Disorders ◽

Family Centered

Abstract Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents’ perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis.

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Family Centered Care in a Health Care Setting

Health Care for People with Intellectual and Developmental Disabilities across the Lifespan ◽

10.1007/978-3-319-18096-0_4 ◽

2016 ◽

pp. 49-58 ◽

Cited By ~ 1

Author(s):

Catherine de Haas ◽

Ruth Ryan

Keyword(s):

Health Care ◽

Care Setting ◽

Health Care Setting ◽

Family Centered Care ◽

Centered Care ◽

Family Centered

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Strategies for Acute and Critical Care Nurses Implementing Complementary Therapies Requested by Patients and Their Families

Critical Care Nurse ◽

10.4037/ccn2016974 ◽

2016 ◽

Vol 36 (6) ◽

pp. 52-58 ◽

Cited By ~ 2

Author(s):

Debra Kramlich

Keyword(s):

Critical Care ◽

Complementary Therapies ◽

Care Setting ◽

The United States ◽

Critical Care Nurses ◽

Critical Care Setting ◽

Complementary And Alternative Therapies ◽

Centered Care ◽

Family Centered ◽

Complementary And Alternative

As consumer use of complementary and alternative medicine or modalities continues to increase in the United States, requests for these therapies in the acute and critical care setting will probably continue to expand in scope and frequency. Incorporation of complementary therapies in the plan of care is consistent with principles of patient- and family-centered care and collaborative decision-making and may provide a measure of relief for the distress of admission to an acute or critical care setting. An earlier article provided an overview of complementary and alternative therapies that nurses may encounter in their practices, with specific attention to implications for acute and critical care nurses. This article provides key information on the legal, ethical, safety, quality, and financial challenges that acute and critical care nurses should consider when implementing patient and family requests for complementary therapies.

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The Dying Patient in the Critical Care Setting: Making the Critical Difference

AACN Advanced Critical Care ◽

10.4037/15597768-1990-1018 ◽

1990 ◽

Vol 1 (1) ◽

pp. 178-186 ◽

Cited By ~ 4

Author(s):

Deborah Caswell ◽

Anna Omery

Keyword(s):

Critical Care ◽

Health Care Providers ◽

Care Setting ◽

Critical Care Setting ◽

Critically Ill Patient ◽

Care Providers ◽

Critical Difference ◽

Nursing Diagnosis ◽

Care Situation ◽

Dying Patient

Death is an inevitable fact in the critical care setting. This fact does not make it more comfortable for the nurse who is caring for a critically ill patient who is dying. Some health care providers have recommended that the critical care resources are better utilized for the patient whose prognosis is not death. This position can be countered with the perspective that there may be no better place to provide the intensive nursing care that the dying patient may need than the critical care setting. A new nursing diagnosis, Terminal Syndrome related to the dying process is introduced to assist the nurse in providing comprehensive care for what is often a complex patient care situation. The goal is to achieve for each dying individual in the critical care setting what she or he truly desires, an end to the life process, a death achieved with comfort and dignity.

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