scholarly journals Family-Centered Care: How Close Do We Get When Talking to Parents of Children Undergoing Diagnosis for Autism Spectrum Disorders?

2020 ◽  
Author(s):  
Lynnea Myers ◽  
Sharon M. Karp ◽  
Mary S. Dietrich ◽  
Wendy S. Looman ◽  
Melanie Lutenbacher
Keyword(s):  
Health Care Providers ◽  
Autism Spectrum ◽  
Diagnostic Process ◽  
Family Centered Care ◽  
Depression And Anxiety ◽  
Care Providers ◽  
Symptoms Of Depression ◽  
Centered Care ◽  
Spectrum Disorders ◽  
Family Centered

Abstract Autism spectrum disorder (ASD) affects 1:59 children, yet little is known about parents’ perceptions of family-centered care (FCC) during the diagnostic process leading up to diagnosis. This mixed-methods study explored key elements of FCC from 31 parents of children recently diagnosed with ASD using parallel qualitative and quantitative measures. Parents rated highly their receipt of FCC and discussed ways providers demonstrated FCC. However, the majority of parents indicated that the period when their child was undergoing diagnosis was stressful and reported symptoms of depression and anxiety. The study points to ways in which health care providers can enhance FCC provided to families when a child is undergoing ASD diagnosis.

Autism Spectrum Disorders Family-Centered Care Interview Guide

2021 ◽  
Author(s):  
Lynnea Myers ◽  
Sharon M. Karp ◽  
Mary S. Dietrich ◽  
Wendy S. Looman ◽  
Melanie Lutenbacher
Keyword(s):  
Autism Spectrum Disorders ◽  
Autism Spectrum ◽  
Family Centered Care ◽  
Interview Guide ◽  
Centered Care ◽  
Spectrum Disorders ◽  
Family Centered

Visitation in the Pediatric Intensive Care Unit: Controversy and Compromise

1994 ◽  
Vol 5 (3) ◽  
pp. 289-295 ◽  
Author(s):  
Nancy E. Page ◽  
Nancy M. Boeing
Keyword(s):  
Health Care ◽  
Intensive Care Unit ◽  
Intensive Care ◽  
Pediatric Intensive Care Unit ◽  
Health Care Providers ◽  
Pediatric Intensive Care ◽  
Care Providers ◽  
The Family ◽  
Centered Care ◽  
Family Centered

Much controversy has arisen in the last few decades regarding parental and family visitation in the intensive care setting. The greatest needs of parents while their child is in an intensive care unit include: to be near their child, to receive honest information, and to believe their child is receiving the best care possible. The barriers that exist to the implementation of open visitation mostly are staff attitudes and misconceptions of parental needs. Open visitation has been found in some studies to make the health-care providers’ job easier, decrease parental anxiety, and increase a child’s cooperativeness with procedures. To provide family-centered care in the pediatric intensive care unit, the family must be involved in their child’s care from the day of admission. As health-care providers, the goal is to empower the family to be able to advocate and care for their child throughout and beyond the life crisis of a pediatric intensive care unit admission

Interprofessional Education and Practice: A Family-Centered Approach to Autism

2017 ◽  
Vol 38 (05) ◽  
pp. 360-367 ◽  
Author(s):  
Marie-Christine Potvin ◽  
Liliane Savard ◽  
Patricia Prelock
Keyword(s):  
Health Care Providers ◽  
Interprofessional Education ◽  
Core Competencies ◽  
Quality Care ◽  
Autism Spectrum ◽  
Care Providers ◽  
Interprofessional Team ◽  
The Core ◽  
Family Centered

AbstractThe article discusses the role of interprofessional education (IPE) and interprofessional collaborative practice (IPCP) in the delivery of service to a young child with autism spectrum disorder (ASD) and his family. An introduction to the concepts is provided with an outline of the strengths and challenges evident in implementing an IPCP approach to quality care. The core competencies for IPE and IPCP are also explained with examples of their application to children with ASD and their families. After reading this article, health care providers should be able to summarize their role in IPE and IPCP and identify their responsibility as a member of a collaborative team. The value of an interprofessional team in practice is emphasized, and ways to build successful teams are explained.

scholarly journals Standards of diagnostic assessment for autism spectrum disorder

2019 ◽  
Vol 24 (7) ◽  
pp. 444-451 ◽  
Author(s):  
Jessica A Brian ◽  
Lonnie Zwaigenbaum ◽  
Angie Ip
Keyword(s):  
Autism Spectrum Disorder ◽  
Health Care Providers ◽  
Wait Time ◽  
Primary Care Providers ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Diagnostic Evaluation ◽  
Diagnostic Process ◽  
Care Providers ◽  
Community Based

Abstract The rising prevalence of autism spectrum disorder (ASD) has created a need to expand ASD diagnostic capacity by community-based paediatricians and other primary care providers. Although evidence suggests that some children can be definitively diagnosed by 2 years of age, many are not diagnosed until 4 to 5 years of age. Most clinical guidelines recommend multidisciplinary team involvement in the ASD diagnostic process. Although a maximal wait time of 3 to 6 months has been recommended by three recent ASD guidelines, the time from referral to a team-based ASD diagnostic evaluation commonly takes more than a year in many Canadian communities. More paediatric health care providers should be trained to diagnose less complex cases of ASD. This statement provides community-based paediatric clinicians with recommendations, tools, and resources to perform or assist in the diagnostic evaluation of ASD. It also offers guidance on referral for a comprehensive needs assessment both for treatment and intervention planning, using a flexible, multilevel approach.

scholarly journals Initial steps to measurement and improvement of family-centered communication during the pediatric patient journey of bone marrow transplantation

2020 ◽  
pp. 488-504
Keyword(s):  
Quality Improvement ◽  
Healthcare System ◽  
Health Care Providers ◽  
Quality Improvement Initiative ◽  
Inpatient Setting ◽  
Care Providers ◽  
Patient Journey ◽  
Family Centeredness ◽  
Centered Care ◽  
Family Centered

Often, pediatric patients' caregivers feel like they are not being heard or consulted by the healthcare system they have entrusted for their loved ones’ care. These difficulties are well known to the healthcare system, and significant research has been conducted to understand how to provide what’s come to be known as patient- and family-centered care (PFCC). PFCC is grounded in mutually beneficial partnerships among health care providers, patients, and families. In 2019 we started a quality improvement initiative, partnering with families to increase our family-centeredness, initially focusing on communication. We report our quality improvement initiative's initial steps to understand communication between patients and caregivers in the inpatient setting. We report variables identified as barriers to PFCC, and our initial interventions, including small tests of change, to implement and improve PFCC in the inpatient setting. We hope that our experience will inspire others to undertake similar initiatives at their institutions.

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