Explain the ‘unexplainable’: A qualitative enquiry of the representations of the caregivers of brain-injured people

2016 ◽  
Vol 23 (8) ◽  
pp. 1050-1062 ◽  
Author(s):  
Magali Huet ◽  
Lionel Dany ◽  
Thémistoklis Apostolidis
Keyword(s):  
Social Representations ◽  
Care Facility ◽  
Structured Interviews ◽  
Term Care ◽  
Long Term Care Facility ◽  
Individualized Care ◽  
Injured Person ◽  
Brain Injured ◽  
Traumatic Brain Injured

The aim of our research is to highlight the role of social representations of the traumatic brain-injured person in the adjustments made by caregivers in building and maintaining quality of care. Twenty-three semi-structured interviews were conducted with nursing assistants and medico-psychological assistants, working in a long-term care facility. The interviews were the subject of a thematic content analysis. The analysis shows the role of representations of the traumatic brain-injured person in the way caregivers explain behaviours and situations and in the orientation of their professional practices. In explaining the inexplicable, caregivers establish a more human relationship through individualized care.

Long-term care placement: The transitional support needs and preferences of spousal dementia caregivers

Dementia ◽  
2021 ◽  
pp. 147130122110564
Author(s):  
Deborah Brooks ◽  
Elizabeth Beattie ◽  
Elaine Fielding ◽  
Katy Wyles ◽  
Helen Edwards
Keyword(s):  
Long Term Care ◽  
Intervention Development ◽  
Care Facility ◽  
Spousal Caregivers ◽  
Support Needs ◽  
Structured Interviews ◽  
Term Care ◽  
Long Term Care Facility ◽  
Facility Staff

Background and objectives Many spousal caregivers experience stress, depression, loneliness, guilt and grief when placing a partner with dementia into long-term care. However, there is little research about their transitional support experiences, needs and preferences. This study aimed to gain a deeper understanding of these issues from spousal caregiver and long-term care facility staff perspectives, to inform subsequent support and intervention development. Research design and methods Semi-structured interviews and small group discussions were held separately with spousal caregivers ( n = 9) and care facility staff ( n = 11). Criterion and variation sampling aimed to ensure a range of experiences and perspectives. The ‘Framework’ approach was utilised for data analysis. Interpretation was with respect to underpinning models of stress-grief process in dementia caregiving. Findings A range of informational, psychoeducational and psychosocial supports were identified to help spousal caregivers cope better with the stressors and losses experienced throughout the transition from home to long-term care. Improved education about disease progression, information relating to long-term care provision, peer support and dementia-specific grief counselling were deemed important. Opportunities for better support within care facilities were also identified. Support should be tailored to individual needs and preferences. Discussion and implications The findings suggest a supportive care framework be developed, encompassing the trajectory from assessment for and admission into long-term care to end-of-life and post-bereavement support. Spousal caregivers should have their support needs assessed by trained health or social care professionals and be offered a range of support options as appropriate.

Requirements-Based Design of Serious Games and Learning Software

2019 ◽  
pp. 1-34
Author(s):  
Brock Randall Dubbels
Keyword(s):  
Design Thinking ◽  
Care Facility ◽  
Serious Game ◽  
Multiple Traits ◽  
Term Care ◽  
Long Term Care Facility ◽  
Learning Software ◽  
Newly Hired

A serious game can be entertaining and enjoyable, but it is designed to facilitate the acquisition of skills and knowledge performance in the workplace, classroom, or therapeutic context. Claims of improvement can be validated through assessments successful, measurable practice beyond the game experience, the targeted context of the workplace, classroom, or clinical using the same tools as multiple traits and multiple measure (MTMM) models. This chapter provides a post-mortem describing the development of the initial design and development of a measurable model to inform the design requirements for validation for a serious game. In this chapter, the reader will gain insight into the implementation of lean process, design thinking, and field observations for generative research. This data informs the assessments and measurement of performance, validated through the MTMM model criteria for requirements. The emphasis examines the role of research insights for onboarding and professional development of newly hired certified nursing assistants in a long-term care facility.

A Norovirus Outbreak at a Long-Term-Care Facility: The Role of Environmental Surface Contamination

2005 ◽  
Vol 26 (10) ◽  
pp. 802-810 ◽  
Author(s):  
Henry M. Wu ◽  
Mary Fornek ◽  
Kellogg J. Schwab ◽  
Amy R. Chapin ◽  
Kristen Gibson ◽  
...  
Keyword(s):  
Risk Factors ◽  
Long Term Care ◽  
Care Facility ◽  
Rt Pcr ◽  
Term Care ◽  
Term Care Facility ◽  
Long Term Care Facility ◽  
Environmental Surface

AbstractBackground:The role of environmental surface contamination in the propagation of norovirus outbreaks is unclear. An outbreak of acute gastroenteritis was reported among residents of a 240-bed veterans long-term-care facility.Objectives:To identify the likely mode of transmission, to characterize risk factors for illness, and to evaluate for environmental contamination in this norovirus outbreak.Methods:An outbreak investigation was conducted to identify risk factors for illness among residents and employees. Stool and vomitus samples were tested for norovirus by reverse transcription polymerase chain reaction (RT-PCR). Fourteen days after outbreak detection, ongoing cases among the residents prompted environmental surface testing for norovirus by RT-PCR.Results:One hundred twenty-seven (52%) of 246 residents and 84 (46%) of 181 surveyed employees had gastroenteritis. Case-residents did not differ from non-case-residents by comorbidities, diet, room type, or level of mobility. Index cases were among the nursing staff. Eight of 11 resident stool or vomitus samples tested positive for genogroup II norovirus. The all-cause mortality rate during the month of the outbreak peak was significantly higher than the expected rate. Environmental surface swabs from case-resident rooms, a dining room table, and an elevator button used only by employees were positive for norovirus. Environmental and clinical norovirus sequences were identical.Conclusion:Extensive contamination of environmental surfaces may play a role in prolonged norovirus outbreaks and should be addressed in control interventions.

Cycling Without Age Program: The Impact for Residents in Long-Term Care

2019 ◽  
Vol 42 (9) ◽  
pp. 728-735 ◽  
Author(s):  
Paula McNiel ◽  
Judith Westphal
Keyword(s):  
Lived Experience ◽  
Long Term Care ◽  
Care Facility ◽  
The United States ◽  
Structured Interviews ◽  
Term Care ◽  
Long Term Care Facility ◽  
Centered Care ◽  
The Impact

Long-term care facilities seek ways to enhance the quality of life for residents. Cycling Without Age (CWA), a new international cycling program, is gaining momentum for older adults. This study explored resident riders’ and trishaw pilots’ lived experience of their participation in the CWA program using a qualitative approach at a long-term care facility in the United States. Researchers conducted 27 face-to-face, semi-structured interviews with riders and pilots. For resident riders, the three themes identified included (a) breath of fresh air; (b) wave, chat, and remember; and (c) sit back and relax. Two themes were identified for the pilots: (a) change in frame of mind, and (b) mental and physical rewards. CWA can be as a new strategy for person-centered care. The CWA program provides nursing an opportunity to advocate, recommend, and obtain an order for residents to participate in the program.

Promoting Resident and Family Councils: a pilot evaluation

2016 ◽  
Vol 20 (2) ◽  
pp. 101-109
Author(s):  
Jamie Znidarsich ◽  
Susan Davies ◽  
Susan Mary Sullivan
Keyword(s):  
Long Term Care ◽  
Care Facility ◽  
Original Research ◽  
Structured Interviews ◽  
Term Care ◽  
Content Type ◽  
Long Term Care Facility ◽  
Care Facilities ◽  
The Status

Purpose – The purpose of this paper is to evaluate the status and impact of a recently formed Resident and Family Council to determine whether the group was achieving the goals of improving long-term care facility relationships, enhancing communication and promoting positive change within the facility. Design/methodology/approach – The pilot evaluation was designed to develop recommendations for future sustainability, of the council, as well as providing wider lessons about the benefits and potential pitfalls of such groups. Data were gathered utilizing participatory qualitative research methods. Semi-structured interviews were conducted with nine council members, representing all groups within the Resident and Family Council. Documents relating to the work of the council and observational field notes maintained during meetings were also analyzed. Findings – A number of themes and dynamics were identified relating to communication, collaboration and future sustainability. Practical implications – Recommendations for initiating Resident and Family Councils should include surveying interest within long-term care facilities, involving the facility ombudsmen or volunteer coordinator, and assessing resources within the community, such as volunteer organizations or partnering with local education organizations. Originality/value – This original research can serve as a template for establishing Resident and Family Councils within long-term care facilities.

scholarly journals DEMENTIA IN INSTITUTIONALIZED ELDERLY: A NURSING TEAM’S EXPERIENCES AND PERCEPTIONS

2021 ◽  
Vol 30 ◽  
Author(s):  
Josiane Steil Siewert ◽  
Angela Maria Alvarez ◽  
Fabiana Almeida Brito ◽  
Silvia Maria Azevedo dos Santos ◽  
Rosimere Ferreira Santana ◽  
...  
Keyword(s):  
Nursing Care ◽  
Long Term Care ◽  
Care Facility ◽  
Term Care ◽  
Institutionalized Elderly ◽  
Elderly Individuals ◽  
Term Care Facility ◽  
Long Term Care Facility ◽  
Individualized Care

ABSTRACT Objective: to understand nursing workers' experiences with the nursing care provided to elderly individuals with dementia living in a long-term care facility. Method: comprehensive qualitative study conducted in a long-term care facility located in Joinville, Santa Catarina, Brazil, from July to September 2018. Thirteen nursing technicians and one nurse participated. Data were collected using questionnaires, field diaries, individual interviews, and participatory observation. Thematic content analysis was used to interpret content. Results: three themes emerged from data analysis: "Knowledge acquired with practice and gap existing in the care provided to institutionalized elderly individuals with dementia"; "Individualized care provided to elderly individuals and bonding"; and "Conflicts the nursing staff faces when reconciling care needs, the time available, and the facility's routines". These themes originated the central theme: Meanings assigned to the nursing care provided to institutionalized elderly individuals with dementia. By sharing information regarding care actions that obtained positive results, the staff perceived the importance of an individualized approach and of establishing bonds as a therapeutic process. Gaps were identified in the professionals' knowledge regarding how to provide hygiene care when individuals become aggressive, agitated, or resist care. Conclusion: health workers' experience is a source of evidence for evidence-based practice and is also essential to fill in existing gaps between knowledge and care delivery.

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