Treatment outcomes from forensic intellectual disability services: The perspectives of patients and their family/carers

2017 ◽  
Vol 23 (4) ◽  
pp. 473-485 ◽  
Author(s):  
Verity Chester ◽  
Nicole Geach ◽  
Catrin Morrissey
Keyword(s):  
Intellectual Disability ◽  
Treatment Outcomes ◽  
Patient Experience ◽  
Developmental Disability ◽  
Interview Data ◽  
Outcome Studies ◽  
Disability Services ◽  
Family Carers ◽  
Intellectual And Developmental Disability

Introduction: Research investigating the treatment outcomes of forensic intellectual and developmental disability (FIDD) services has largely focused on the perspectives of clinicians and researchers. This study sought the perspectives of patients and family/carers on the outcomes important to them. Methods: Semi-structured consultation groups were conducted with patients in FIDD services ( n = 21) and family carers ( n = 6). Interview data were content analysed, and outcomes identified fell into three main domains (effectiveness, safety and patient experience). Results: The consultations identified outcome domains not considered in the published literature. Patients and carers also had differential perspectives on treatment outcomes commonly reported within literature. Illustrative quotes are used to evidence the domains. Discussion: This study is the first to investigate the outcomes of relevance to patients and their families. These views have been incorporated into an outcomes framework which will form the foundation of future prospective outcome studies.

scholarly journals “You have the right to love and be loved”: participatory theatre for disability justice with self-advocates

2021 ◽  
pp. 146879412110349
Author(s):  
Leyton Schnellert ◽  
Leah Tidey ◽  
RRR Co-creators ◽  
Rachelle Hole
Keyword(s):  
Intellectual Disability ◽  
Developmental Disability ◽  
Executive Director ◽  
Iterative Process ◽  
Sexual Agency ◽  
Sexual Citizenship ◽  
Intellectual And Developmental Disability ◽  
Canadian Institute ◽  
The Right ◽  
The University

Individuals with intellectual disability are often left out of and overlooked in discussions on sexual health and sexuality. Given this, we undertook a participatory theatre research project to better respond to the needs of the individuals with intellectual and developmental disability regarding their sexual agency and sexual citizenship. The project, entitled Romance, Relationships, and Rights arose when the executive director of a community living agency approached researchers at the University of British Columbia’s Canadian Institute for Inclusion and Citizenship to learn about how they, as an agency, could better support their community. To disrupt sexual ableism and traditional theatre hierarchies, we collaboratively turned to participatory and disability theatre with the aim to advance and promote the sexual citizenship of individuals with intellectual and developmental disability, who refer to themselves as self-advocates - those who speak and act with agency. The challenges of equitable co-creation arose throughout the theatre process; the themes of deconstruction/co-construction and uncertainty and liminality reveal the iterative process of centering self-advocate voices.

scholarly journals The Arab Community in Israel Coping with Intellectual and Developmental Disability

2004 ◽  
Vol 4 ◽  
pp. 324-332 ◽  
Author(s):  
Isack Kandel ◽  
Mohammed Morad ◽  
Gideon Vardi ◽  
Joseph Press ◽  
Joav Merrick
Keyword(s):  
Intellectual Disability ◽  
Family Support ◽  
Residential Care ◽  
Developmental Disability ◽  
Total Population ◽  
Extended Family ◽  
Arab Population ◽  
Intellectual And Developmental Disability ◽  
Religious Attitudes ◽  
The Family

The Arab family in Israel is still embedded in the traditional society with extended family support systems, but we see a population in transition influenced by the surrounding society. This paper looks at the different religious attitudes toward the exceptional people in our society (i.e., the family reaction to a child born with intellectual or developmental disability), reviews recent studies on the Arab and Bedouin families in Israel, and presents data on the Arab population in residential care centers.Today, out of 57 residential care centers in Israel for persons with intellectual disability, 13 (22.8%) are providing service to the non-Jewish population. The Arab population constitutes 12–13% of the total residential care population, lower than the 19–20% in the total population. In residential care, the Arab population is characterized by younger children with severe and profound intellectual disability. The informal family support system is still a very important factor in the Arab family in Israel, a fact that we believe should be strengthened by implementing the British and Danish model of nurse home visitation.

scholarly journals Meeting the challenge of interpretation: Hearing the voices of people with intellectual and developmental disability through I-Poems

2017 ◽  
Vol 22 (2) ◽  
pp. 197-205 ◽  
Author(s):  
Deirdre Corby ◽  
Laurence Taggart ◽  
Wendy Cousins
Keyword(s):  
Intellectual Disability ◽  
Data Collection ◽  
Developmental Disability ◽  
Listening Guide ◽  
Intellectual And Developmental Disability ◽  
Systematic Application ◽  
Additional Step ◽  
Methodological Challenges ◽  
Methodological Approaches ◽  
The Listening Guide

Including the inner perspectives of people who have intellectual disability can pose methodological challenges to qualitative researchers. This article explains how the Listening Guide was applied as an additional step in the analysis during a study which used hermeneutic interviews with people with intellectual disability as the sole method of data collection. An argument is made for the systematic application of the guide with a focus on the use of I-Poems. This article advances qualitative methodological approaches and concludes that this method of drawing attention to the participants’ own voices provides a unique basis for interpreting interviews and tasks researchers to examine the use of the Listening Guide.

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