scholarly journals The Arab Community in Israel Coping with Intellectual and Developmental Disability

2004 ◽  
Vol 4 ◽  
pp. 324-332 ◽  
Author(s):  
Isack Kandel ◽  
Mohammed Morad ◽  
Gideon Vardi ◽  
Joseph Press ◽  
Joav Merrick
Keyword(s):  
Intellectual Disability ◽  
Family Support ◽  
Residential Care ◽  
Developmental Disability ◽  
Total Population ◽  
Extended Family ◽  
Arab Population ◽  
Intellectual And Developmental Disability ◽  
Religious Attitudes ◽  
The Family

The Arab family in Israel is still embedded in the traditional society with extended family support systems, but we see a population in transition influenced by the surrounding society. This paper looks at the different religious attitudes toward the exceptional people in our society (i.e., the family reaction to a child born with intellectual or developmental disability), reviews recent studies on the Arab and Bedouin families in Israel, and presents data on the Arab population in residential care centers.Today, out of 57 residential care centers in Israel for persons with intellectual disability, 13 (22.8%) are providing service to the non-Jewish population. The Arab population constitutes 12–13% of the total residential care population, lower than the 19–20% in the total population. In residential care, the Arab population is characterized by younger children with severe and profound intellectual disability. The informal family support system is still a very important factor in the Arab family in Israel, a fact that we believe should be strengthened by implementing the British and Danish model of nurse home visitation.

scholarly journals Qualitative Study of Family Support for Women’s Health Seeking-Behaviour in Rural Areas District Sleman

2019 ◽  
Vol 4 (1) ◽  
pp. 70
Author(s):  
Jati Untari ◽  
Ariyanto Nugroho2
Keyword(s):  
Family Support ◽  
Rural Areas ◽  
Extended Family ◽  
Health Seeking ◽  
Health Seeking Behavior ◽  
The Family ◽  
Seeking Behavior ◽  
Women And Children ◽  
Depth Interviews

Introduction: Health is a field that is very closely related to women's duties because the role of women is the reproductive role that is in the realm of the household. Health seeking behavior is preceded by a decision-making process that requires social support from spouses or other family members so that it can potentially improve the health status of women and children in the family. This study aims to explore the differences in family support for mothers in health seeking behavior when ANC, childbirth, and toddlers are sick in rural areas. Methods:The study was conducted using qualitative methods with in-depth interviews with 6 mothers, 6 husbands and 4 mother-in-laws who in their families had toddlers who had experienced illness in the last 3 months. The study was conducted in Banaran subvillage, Sleman District. Results :The results found that family support for maternal health seeking behavior during ANC, childbirth and when sick toddlers are always discussed by husband and wife, while the role of in-laws is very small, that is giving advice. In the condition of the childbirth, the family support not only from her husband and mother-in-laws but also from the whole extended family on the part of the mother who does not live in one house. Conclussions: In conclusion, mothers get considerable support from their families, both from their husbands, mother-in-laws or large families who do not live in the same house in health seeking behavior, especially during childbirth.

Residential care centers for persons with intellectual disability in Israel. Trends in the number of children 1999–2008

2011 ◽  
Vol 23 (1) ◽  
Author(s):  
Joav Merrick ◽  
Isack Kandel ◽  
Meir Lotan ◽  
Shoshana Aspler ◽  
Brian Seth Fuchs ◽  
...  
Keyword(s):  
Intellectual Disability ◽  
Health Services ◽  
Social Services ◽  
Residential Care ◽  
Total Population ◽  
Medical Director ◽  
Downward Trend ◽  
Residential Care Facilities ◽  
Number Of Children ◽  
Care Facilities

Abstract In 1998, a questionnaire was developed by the Health Services, Office of the Medical Director at the Ministry of Social Affairs and Social Services. This questionnaire was aimed to assess, on a yearly basis, the health of the residents with intellectual disability and the services provided to them by specific residential care centers within Israel. The present study was conducted to examine trends in the number of children with intellectual disability in residential care centers in Israel during 1999–2008. We demonstrated a clear downward trend with regard to the percent of children living in residential care facilities, from 18.1% of the total population in 1999 to 12.8% in 2008.

scholarly journals “You have the right to love and be loved”: participatory theatre for disability justice with self-advocates

2021 ◽  
pp. 146879412110349
Author(s):  
Leyton Schnellert ◽  
Leah Tidey ◽  
RRR Co-creators ◽  
Rachelle Hole
Keyword(s):  
Intellectual Disability ◽  
Developmental Disability ◽  
Executive Director ◽  
Iterative Process ◽  
Sexual Agency ◽  
Sexual Citizenship ◽  
Intellectual And Developmental Disability ◽  
Canadian Institute ◽  
The Right ◽  
The University

Individuals with intellectual disability are often left out of and overlooked in discussions on sexual health and sexuality. Given this, we undertook a participatory theatre research project to better respond to the needs of the individuals with intellectual and developmental disability regarding their sexual agency and sexual citizenship. The project, entitled Romance, Relationships, and Rights arose when the executive director of a community living agency approached researchers at the University of British Columbia’s Canadian Institute for Inclusion and Citizenship to learn about how they, as an agency, could better support their community. To disrupt sexual ableism and traditional theatre hierarchies, we collaboratively turned to participatory and disability theatre with the aim to advance and promote the sexual citizenship of individuals with intellectual and developmental disability, who refer to themselves as self-advocates - those who speak and act with agency. The challenges of equitable co-creation arose throughout the theatre process; the themes of deconstruction/co-construction and uncertainty and liminality reveal the iterative process of centering self-advocate voices.

scholarly journals Meeting the challenge of interpretation: Hearing the voices of people with intellectual and developmental disability through I-Poems

2017 ◽  
Vol 22 (2) ◽  
pp. 197-205 ◽  
Author(s):  
Deirdre Corby ◽  
Laurence Taggart ◽  
Wendy Cousins
Keyword(s):  
Intellectual Disability ◽  
Data Collection ◽  
Developmental Disability ◽  
Listening Guide ◽  
Intellectual And Developmental Disability ◽  
Systematic Application ◽  
Additional Step ◽  
Methodological Challenges ◽  
Methodological Approaches ◽  
The Listening Guide

Including the inner perspectives of people who have intellectual disability can pose methodological challenges to qualitative researchers. This article explains how the Listening Guide was applied as an additional step in the analysis during a study which used hermeneutic interviews with people with intellectual disability as the sole method of data collection. An argument is made for the systematic application of the guide with a focus on the use of I-Poems. This article advances qualitative methodological approaches and concludes that this method of drawing attention to the participants’ own voices provides a unique basis for interpreting interviews and tasks researchers to examine the use of the Listening Guide.

Treatment outcomes from forensic intellectual disability services: The perspectives of patients and their family/carers

2017 ◽  
Vol 23 (4) ◽  
pp. 473-485 ◽  
Author(s):  
Verity Chester ◽  
Nicole Geach ◽  
Catrin Morrissey
Keyword(s):  
Intellectual Disability ◽  
Treatment Outcomes ◽  
Patient Experience ◽  
Developmental Disability ◽  
Interview Data ◽  
Outcome Studies ◽  
Disability Services ◽  
Family Carers ◽  
Intellectual And Developmental Disability

Introduction: Research investigating the treatment outcomes of forensic intellectual and developmental disability (FIDD) services has largely focused on the perspectives of clinicians and researchers. This study sought the perspectives of patients and family/carers on the outcomes important to them. Methods: Semi-structured consultation groups were conducted with patients in FIDD services ( n = 21) and family carers ( n = 6). Interview data were content analysed, and outcomes identified fell into three main domains (effectiveness, safety and patient experience). Results: The consultations identified outcome domains not considered in the published literature. Patients and carers also had differential perspectives on treatment outcomes commonly reported within literature. Illustrative quotes are used to evidence the domains. Discussion: This study is the first to investigate the outcomes of relevance to patients and their families. These views have been incorporated into an outcomes framework which will form the foundation of future prospective outcome studies.

HUBUNGAN DUKUNGAN KELUARGA TERHADAP TINGKAT KEMANDIRIAN ANAK RETARDASI MENTAL

2019 ◽  
Vol 11 (2) ◽  
pp. 87-92
Author(s):  
Dwi Indah Iswanti ◽  
Fery Agusman Motuho Mendrofa ◽  
Diyanto Diyanto
Keyword(s):  
Family Support ◽  
Quantitative Method ◽  
Statistical Tests ◽  
Sampling Technique ◽  
Mentally Retarded ◽  
P Value ◽  
Cross Sectional ◽  
Need Support ◽  
The Family ◽  
Mentally Retarded Children

Kemandirian bukanlah keterampilan yang muncul secara tiba-tiba tetapi perlu diajarkan dan dilatih pada anak agar tidak menghambat tugas- tugas perkembangan anak selanjutnya. Terutama pada anak yang mengalami retardasi mental akan sangat membutuhkan dukungan dari keluarga. Tujuan penelitian untuk mengetahui hubungan  dukungan keluarga dengan tingkat kemandirian anak retardasi mental di SLB Negeri Semarang. Penelitian ini menggunakan metode kuantitatif dengan pendekatan cross sectional. Populasi dalam penelitian ini adalah seluruh orang tua siswa kelas IV-VI di SLB Negeri Semarang yang berjumlah 64 siswa. Teknik sampling yang digunakan adalah total sampling. Dukungan keluarga pada anak retardasi mental sebagian besar adalah mendukung yaitu sebanyak 53,1%, kemandirian anak retardasi mental sebagian besar adalah kurang mandiri yaitu sebanyak 53,1%. Hasil uji statistik menemukan ada hubungan antara dukungan keluarga dengan kemandirian anak retardasi mental di SLB Negeri Semarang, dengan p value sebesar 0,000.   Kata kunci : dukungan keluarga, kemandirian anak retardasi mental THE CORRELATION BETWEEN FAMILY SUPPORT AND THE LEVEL OF INDEPENDENCE OF MENTALLY RETARDED CHILDREN   ABSTRACT Independence is not a skill that emerges suddenly but needs to be taught and trained in children so as not to inhibit the tasks of further child development. Especially for children who are mentally retarded, they will need support from the family. Research objectives to find out the correlation between family support and the level of independence of mentally retarded children in extraordinary school State of Semarang. This study uses a quantitative method with a cross sectional approach. The population in this study were all parents of students in class IV-VI in Semarang State SLB, amounting to 64 students. The sampling technique used is total sampling. Family support for mentally retarded children was mostly supportive, as much as 53.1%, the independence of most mentally retarded children was less independent, which was as much as 53.1%. The results of statistical tests found that there was a correlation between family support and the independence of mentally retarded children in Semarang State SLB, with a p value of 0,000.   Keywords: family support, independence of mentally retarded children

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