scholarly journals Family and healthcare professionals’ perceptions of a pilot hospice at home programme for children: a qualitative study

2016 ◽  
Vol 15 (1) ◽  
Author(s):  
Maria Brenner ◽  
Michael Connolly ◽  
Des Cawley ◽  
Frances Howlin ◽  
Jay Berry ◽  
...  
Keyword(s):  
Qualitative Study ◽  
Healthcare Professionals ◽  
Hospice At Home ◽  
At Home

Hospice-at-home nurses' experiences of caring for patients

2021 ◽  
Vol 27 (1) ◽  
pp. 30-36
Author(s):  
Catherine Jameson
Keyword(s):  
Qualitative Study ◽  
Coping Skills ◽  
Coping Mechanisms ◽  
Protected Time ◽  
Positive Coping ◽  
Dying Patients ◽  
One To One ◽  
Hospice At Home ◽  
Global Population ◽  
At Home

Background: The demand for hospice-at-home (HH) nurses is increasing due to an ageing global population and many people preferring to die at home. Therefore, the retention of existing HH nurses is vital. Aims: This paper explores HH nurses' experiences of caring for dying patients to discover the factors that enable them to maintain their enthusiasm for their work, and cope with the challenges of working in a patient's home. Methods: This qualitative study consisted of multiple unstructured interviews with 16 HH nurses conducted in England. Findings: The interviews show that HH nurses: use a broad range of coping mechanisms; encounter intense, complex, unpredictable and ethically unclear challenges; identify a need for more support; and love their job. Conclusion: In order for nurses to continue to enjoy their job, extra support to incorporate protected time for debriefing at the end of an HH nurse's shift is needed. Nurses also need training to develop positive coping skills, external supervision on a one-to-one basis as needed, and have their value demonstrated, by their employers and managers recognising and acknowledging them. These factors are likely to facilitate in the retention of employment of HH nurses.

scholarly journals Supporting family carers providing end‐of‐life home care: a qualitative study on the impact of a hospice at home service

2014 ◽  
Vol 24 (1-2) ◽  
pp. 131-140 ◽  
Author(s):  
Barbara A Jack ◽  
Mary R O'Brien ◽  
Joyce Scrutton ◽  
Catherine R Baldry ◽  
Karen E Groves
Keyword(s):  
Qualitative Study ◽  
Home Care ◽  
End Of Life ◽  
Family Carers ◽  
Home Service ◽  
Hospice At Home ◽  
The Impact ◽  
At Home

scholarly journals Supporting home care for the dying: an evaluation of healthcare professionals' perspectives of an individually tailored hospice at home service

2013 ◽  
Vol 22 (19-20) ◽  
pp. 2778-2786 ◽  
Author(s):  
Barbara A Jack ◽  
Catherine R Baldry ◽  
Karen E Groves ◽  
Alison Whelan ◽  
Janice Sephton ◽  
...  
Keyword(s):  
Home Care ◽  
Healthcare Professionals ◽  
Home Service ◽  
Hospice At Home ◽  
At Home

scholarly journals A qualitative study of bereaved family caregivers: feeling of security, facilitators and barriers for rural home care and death for persons with advanced cancer

2021 ◽  
Vol 20 (1) ◽  
Author(s):  
Anne Sæle Barlund ◽  
Beate André ◽  
Kari Sand ◽  
Anne-Tove Brenne
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
End Of Life ◽  
Cancer Patients ◽  
Advanced Cancer ◽  
Rural Areas ◽  
Healthcare Professionals ◽  
Healthcare Services ◽  
Personal Factors ◽  
At Home

Abstract Background For cancer patients and their family, an important factor that determines the choice to die at home is the caregivers’ feeling of security when caring for the patient at home. Support to caregivers from healthcare professionals is important for the feeling of security. In rural areas, long distances and variable infrastructure may influence on access to healthcare services. This study explored factors that determined the security of caregivers of patients with advanced cancer who cared for the patients at home at the end of life in the rural region of Sogn og Fjordane in Norway, and what factors that facilitated home death. Methods A qualitative study using semi-structured in-depth interviews with bereaved with experience from caring for cancer patients at home at the end of life was performed. Meaning units were extracted from the transcribed interviews and divided into categories and subcategories using Kvale and Brinkmann’s qualitative method for analysis. Results Ten bereaved caregivers from nine families where recruited. Five had lived together with the deceased. Three main categories of factors contributing to security emerged from the analysis: “Personal factors”, “Healthcare professionals” and “Organization” of healthcare. Healthcare professionals and the organization of healthcare services contributed most to the feeling of security. Conclusion Good competence in palliative care among healthcare professionals caring for patients with advanced cancer at home and well- organized palliative care services with defined responsibilities provided security to caregivers caring for advanced cancer patients at home in Sogn og Fjordane.

scholarly journals An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study. An exploration of the experiences of professionals supporting patients approaching the end of life in medicines management at home. A qualitative study.

2019 ◽  
Author(s):  
Eleanor Wilson ◽  
Glenys Caswell ◽  
Asam Latif ◽  
Claire Anderson ◽  
Christina Faull ◽  
...  
Keyword(s):  
Palliative Care ◽  
Qualitative Study ◽  
End Of Life ◽  
Healthcare Professionals ◽  
Patient Choice ◽  
Medicines Management ◽  
Dose Administration ◽  
Controlled Drugs ◽  
Qualitative Interview Study ◽  
At Home

Abstract Background: The management of medicines towards the end of life can place increasing burdens and responsibilities on patients and families. This has received little attention yet it can be a source of great difficulty and distress patients and families. Dose administration aids can be useful for some patients but there is no evidence for their wide spread use or the implications for their use as patients become increasing unwell. Aim: To explore how healthcare professionals describe the support they provide for patients to manage medications at home at end of life. Methods: Qualitative interview study with thematic analysis. Participants were a purposive sample of 40 community healthcare professionals (including GPs, pharmacists, and specialist palliative care and community nurses) from across two English counties. Results: Healthcare professionals reported a variety of ways in which they tried to support patients to take medications as prescribed. While the paper presents some solutions and strategies reported by professional respondents it was clear from both professional and patient/family caregiver accounts in the wider study that rather few professionals provided this kind of support. Standard solutions offered included: rationalising the number of medications; providing different formulations; explaining what medications were for and how best to take them. Dose administration aids were also regularly provided, and while useful for some, they posed a number of practical difficulties for palliative care. More challenging circumstances such as substance misuse and memory loss required more innovative strategies such as supporting ways to record medication taking; balancing restricted access to controlled drugs and appropriate pain management and supporting patient choice in medication use. Conclusions: The burdens and responsibilities of managing medicines at home for patients approaching the end of life has not been widely recognised or understood. This paper considers some of the strategies reported by professionals in the study, and points to the great potential for a more widely proactive stance in supporting patients and family carers to understand and take their medicines effectively. By adopting tailored, and sometimes, ‘outside the box’ thinking professionals can identify immediate, simple solutions to the problems patients and families experience with managing medicines.

scholarly journals Living with advanced heart failure: A qualitative study

PLoS ONE ◽  
2020 ◽  
Vol 15 (12) ◽  
pp. e0243974
Author(s):  
Caterina Checa ◽  
Laura Medina-Perucha ◽  
Miguel-Ángel Muñoz ◽  
José María Verdú-Rotellar ◽  
Anna Berenguera
Keyword(s):  
Heart Failure ◽  
Social Support ◽  
Locus Of Control ◽  
Qualitative Study ◽  
Coping Strategies ◽  
Healthcare Professionals ◽  
Emotional Health ◽  
Advanced Heart Failure ◽  
Whole Process ◽  
At Home

Introduction Information about how patients with advanced heart failure (HF) live and cope with their disease remains scarce. The objective of this study was to explore, from phenomenological and holistic perspectives, the experiences of patients suffering from advanced HF, attended at home in the primary care setting in 2018. Materials and methods Qualitative study conducted in 4 primary healthcare centers in Barcelona (Spain). Twelve in-depth interviews were conducted in advanced HF patients, aged over 65 and visited regularly at home. We developed a purposeful sampling, accounting for variability in gender, age, and socioeconomic level. Leventhal’s framework was used to analyze the interviews. Results Participants received insufficient and contradictory information about HF. They talked about their cognitive representation and claimed a better communication with healthcare professionals. Due to their advanced age, subjects considered their daily living limitations to be normal rather than as a consequence of HF. Gender differences in emotional representation were clearly observed. Women considered themselves the keystone of correct family “functioning” and thought that they were not useful if they could not correspond to gendered societal expectations. Cognitive coping strategies included specific diets, taking medication, and registering weight and blood pressure. Nevertheless, they perceived the locus of control as external and felt unable to manage HF progression. Their emotional coping strategies included some activities at home such as watching television and reading. Social support was perceived crucial to the whole process. Conclusions Locus of control in advanced HF was perceived as external. Healthcare professionals should adapt emotional health interventions in patients with advanced HF based on a gender perspective. Social support was found to be crucial in facing the disease. Patients reported poor communication with healthcare professionals.

Stress in hospice at home nurses:a qualitative study

2012 ◽  
Vol 2 (Suppl 1) ◽  
pp. A26.1-A26
Author(s):  
Karen Tunnah ◽  
Ros Johnstone ◽  
Angela Jones
Keyword(s):  
Qualitative Study ◽  
Hospice At Home ◽  
At Home
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