scholarly journals Living with advanced heart failure: A qualitative study

PLoS ONE ◽  
2020 ◽  
Vol 15 (12) ◽  
pp. e0243974
Author(s):  
Caterina Checa ◽  
Laura Medina-Perucha ◽  
Miguel-Ángel Muñoz ◽  
José María Verdú-Rotellar ◽  
Anna Berenguera

Introduction Information about how patients with advanced heart failure (HF) live and cope with their disease remains scarce. The objective of this study was to explore, from phenomenological and holistic perspectives, the experiences of patients suffering from advanced HF, attended at home in the primary care setting in 2018. Materials and methods Qualitative study conducted in 4 primary healthcare centers in Barcelona (Spain). Twelve in-depth interviews were conducted in advanced HF patients, aged over 65 and visited regularly at home. We developed a purposeful sampling, accounting for variability in gender, age, and socioeconomic level. Leventhal’s framework was used to analyze the interviews. Results Participants received insufficient and contradictory information about HF. They talked about their cognitive representation and claimed a better communication with healthcare professionals. Due to their advanced age, subjects considered their daily living limitations to be normal rather than as a consequence of HF. Gender differences in emotional representation were clearly observed. Women considered themselves the keystone of correct family “functioning” and thought that they were not useful if they could not correspond to gendered societal expectations. Cognitive coping strategies included specific diets, taking medication, and registering weight and blood pressure. Nevertheless, they perceived the locus of control as external and felt unable to manage HF progression. Their emotional coping strategies included some activities at home such as watching television and reading. Social support was perceived crucial to the whole process. Conclusions Locus of control in advanced HF was perceived as external. Healthcare professionals should adapt emotional health interventions in patients with advanced HF based on a gender perspective. Social support was found to be crucial in facing the disease. Patients reported poor communication with healthcare professionals.

2016 ◽  
Vol 15 (1) ◽  
Author(s):  
Maria Brenner ◽  
Michael Connolly ◽  
Des Cawley ◽  
Frances Howlin ◽  
Jay Berry ◽  
...  

Open Heart ◽  
2018 ◽  
Vol 5 (1) ◽  
pp. e000734
Author(s):  
Jingwen Jessica Chen ◽  
Kathryn Gamble ◽  
Lisa Graham-Wisener ◽  
Kieran McGlade ◽  
Jennifer Doherty ◽  
...  

2017 ◽  
Vol 22 (1) ◽  
Author(s):  
Camila Amaral Borghi ◽  
Regina Szylit ◽  
Carolliny Rossi de Faria Ichikawa ◽  
Michelle Freire Baliza ◽  
Uyara Talmatare Jesus Camara ◽  
...  

Abstract Objective: This study aimed to understand how social networking websites are used by adolescents and their importance during the hospitalization process. Method: A descriptive and qualitative study was supported by the virtual ethnographic method and resorted to the symbolic interactionism as theoretical framework. Eleven hospitalized adolescents were interviewed. Results: Three categories were identified based on the analysis of interviews and posts: Being able to use social networking websites during hospitalization; Using the Facebook® chat to keep connected to friends; Seeking support from friends through social networking websites. Final considerations: Facebook® was the social networking website that adolescents used the most, standing out as an important form of entertainment during hospitalization that facilitates communication and social support. Healthcare professionals should value the use of social networking websites by hospitalized adolescents and encourage access to these tools, providing hospital resources to expand and facilitate this access.


2015 ◽  
Vol 3 (1) ◽  
Author(s):  
Aristotelis Koinis ◽  
Vasiliki Giannou ◽  
Vasiliki Drantaki ◽  
Sophia Angelaina ◽  
Elpida Stratou ◽  
...  

Workplace stress can influence healthcare professionals’ physical and emotional well-being by curbing their efficiency and having a negative impact on their overall quality of life. The aim of the present study was to investigate the impact that work environment in a local public general hospital can have on the health workers’ mental-emotional health and find strategies in order to cope with negative consequences. The study took place from July 2010 to October 2010. Our sample consisted of 200 healthcare professionals aged 21-58 years working in a 240-bed general hospital and the response rate was 91.36%). Our research protocol was first approved by the hospital’s review board. A standardized questionnaire that investigates strategies for coping with stressful conditions was used. A standardized questionnaire was used in the present study Coping Strategies for Stressful Events, evaluating the strategies that persons employ in order to overcome a stressful situation or event. The questionnaire was first tested for validity and reliability which were found satisfactory (Cronbach’s α=0.862). Strict anonymity of the participants was guaranteed. The SPSS 16.0 software was used for the statistical analysis. Regression analysis showed that health professionals’ emotional health can be influenced by strategies for dealing with stressful events, since positive re-assessment, quitting and seeking social support are predisposing factors regarding the three first quality of life factors of the World Health Organization Quality of Life -BREF. More specifically, for the physical health factor, positive re-assessment (t=3.370, P=0.001) and quitting (t=−2.564, P=0.011) are predisposing factors. For the ‘mental health and spirituality’ regression model, positive re-assessment (t=5.528, P=0.000) and seeking social support (t=−1.991, P=0.048) are also predisposing factors, while regarding social relationships positive re-assessment (t=4.289, P=0.000) is a predisposing factor. According to our findings, there was a notable lack of workplace stress management strategies, which the participants usually perceive as a lack of interest on behalf of the management regarding their emotional state. Some significant factors for lowering workplace stress were found to be the need to encourage and morally reward the staff and also to provide them with opportunities for further or continuous education.


Author(s):  
Kara Chan ◽  
Miranda Wong

A qualitative study was conducted to examine the experience of stress and coping strategies among 15 pastors’ wives from a city in mainland China. Results indicated that nearly all interviewees experienced financial stress and loneliness, a phenomenon consistent with that seen in literature in the West. However, stress arising from role expectations among the spouses’ congregations was low. Most interviewees coped with stress through family and social support, as well as through praying.


2013 ◽  
Vol 23 (1-2) ◽  
pp. 132-144 ◽  
Author(s):  
Peter Fairbrother ◽  
Jenny Ure ◽  
Janet Hanley ◽  
Lucy McCloughan ◽  
Martin Denvir ◽  
...  

Midwifery ◽  
2011 ◽  
Vol 27 (2) ◽  
pp. 237-242 ◽  
Author(s):  
C. Razurel ◽  
M. Bruchon-Schweitzer ◽  
A. Dupanloup ◽  
O. Irion ◽  
M. Epiney

2020 ◽  
Vol 4 (4) ◽  
pp. 109-116
Author(s):  
La Rakhmat Wabula ◽  
Syahfitrah Umamity ◽  
Ellen Lombonaung

Resilience was a dynamic process that adapts positively to the difficulties it has. This term was often used by researchers in cancer patients. Controversy often occurs in its conception and little is known by patients in the use of the term resilience in their lives. The subject of this paper was cancer patients. The literature review was conducted by examining qualitative studies that discuss the use of terms in cancer patients and the use of themes used in terms of resilience. A systematic review of reviews through SCOPUS, MEDLINE, Psyc INFO and CINAHL reviewed from 2000 to 2017. Thematic analysis was used to encode themes in the studio and produce analytical themes, and resolution resolutions in the studio. After being invited to 573 citations, there were only 32 suitable studies. Four categories emerged, including coping strategies, social support, spirituality, and growth. The conclusion is no use of the term resilience in cancer patients, but cancer patients more often use other terms with the same meaning as resilience. Cancer patients rarely use the term direct resilience, but more often use terms such as coping strategies, social support, growth, and spiritual as terms related to resilience. Keywords: resilience; cancer patients


2019 ◽  
Vol 4 (2) ◽  
pp. 22-27
Author(s):  
Paramjit Singh Jamir Singh ◽  
Azlinda Azman ◽  
Syazwani Drani

Drug use in Malaysia has steadily increased over the past decade. Drug addiction does not only affect the addict, but it also impacts the lives of their family members. This qualitative study seeks to explore how the drug user’s family members cope with the drug abuse problems in the family. A total of 20 respondents, acting as heads of their families, from the state of Penang, were interviewed. The findings indicated that the respondents utilized both problem-focused and emotion-focused coping strategies to cope with the drug addiction problems in the family. The respondents in this study also used both formal and informal social support systems to cope with the drug abuse problems caused by drug abuse within the family. This study suggests that the drug user’s family members should engage themselves in self-help and support groups to find and learn about constructive coping strategies used by other families who have a similar experience in dealing with drug abuse problems in the family. In addition, by engaging themselves in self-help and support groups, it will help the drug user’s family members gain emotional and social support from other drug user’s family members.


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