scholarly journals Health related quality of life and buffering factors in adult survivors of acute pediatric lymphoblastic leukemia and their siblings

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Katarina Aili ◽  
Susann Arvidsson ◽  
Jens M. Nygren
Keyword(s):  
Mental Health ◽  
Social Support ◽  
Self Efficacy ◽  
General Health ◽  
Adult Life ◽  
Role Emotional ◽  
Related Quality ◽  
Health Related ◽  
Pediatric All

Abstract Background The improvement in treatment of pediatric acute lymphatic leukemia (ALL) has introduced new challenges for pediatric oncology care in understanding and handling long-term treatment-related complications later in adult life. The aim of this study was to describe health related quality of life (HRQoL) and the relation to buffering factors among young adult (YA) pediatric ALL survivors and their siblings. Methods This cross-sectional study was performed among 227 adults, treated for pediatric ALL in Sweden between 1985 and 1997 and their siblings (n = 70). Group means of HRQoL (SF-36) were compared between YA ALL survivors and the siblings, as well as to normative values from the general population. Self-efficacy (GSES) and social support (SS-13 subscale AVSI) was considering potential buffering factors for HRQoL and mental health. Associations between HRQoL and mental health respectively and self-efficacy and social support was analyzed. Results The YA ALL survivors scored significantly lower on the HRQoL parameters general health (69.6 vs. 78.4, p = 0.004) and role emotional (77.1 vs. 88.1, p = 0.014), than the siblings. Further, they reported significantly lower general health (69.6 vs. 75.8), vitality (56.9 vs. 68.8), social functioning (84.5 vs. 88.6), role emotional (77.1 vs. 85.7) and mental health (71.3 vs. 80.9) compared with Swedish norms. Both YA ALL survivors and the siblings reported lower vitality and worse mental health than the general population. The HRQoL parameters, depression, stress and anxiety were all associated with both self-efficacy and social support among the YA ALL survivors. Among the siblings however, only general health, vitality, role emotional, mental health and depression were associated with social support, and only general health and mental health were associated with general self-efficacy. Conclusion The results from this study show that buffering factors, like social support and self-efficacy, may play an important role for psychosocial outcomes and HRQoL among YA ALL survivors later in life. The results suggest that this group could benefit from continuous support in adult life to handle consequences of their pediatric disease.

scholarly journals Psychosocial Resources for Hedonic Balance, Life Satisfaction and Happiness in the Elderly: A Path Analysis

2020 ◽  
Vol 17 (16) ◽  
pp. 5684
Author(s):  
Raquel Lara ◽  
Mᵃ Luisa Vázquez ◽  
Adelaida Ogallar ◽  
Débora Godoy-Izquierdo
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Older Adults ◽  
Life Satisfaction ◽  
Self Efficacy ◽  
Psychosocial Resources ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

We explored possible paths from physical and mental health-related quality of life, self-efficacy, optimism, and social support to happiness in older adults, considering hedonic balance and life satisfaction as mediators. A total of 154 Spanish male and female (50%) older adults (65–96 years old, M = 77.44, SD = 8.03; 64% noninstitutionalized elderly) voluntarily participated in this correlational, cross-sectional study. The participants completed self-reports on their perceived health status, self-efficacy, social support, optimism, and global subjective well-being (SWB) as well as its dimensions. Path analysis was used to examine direct and indirect relationships. The final model had an excellent fit with the data (χ2(10) = 11.837, p = 0.296, χ2/df = 1.184; SRMR = 0.050, CFI = 0.994, RMSEA = 0.035), revealing the unique causal effects of all the included predictors on happiness. With the exception of self-efficacy, the psychosocial resources predicted older adults’ current happiness, and this relationship was fully mediated by hedonic balance and life satisfaction, which were found to be putative intermediary factors for SWB. Self-efficacy in turn predicted the remaining psychosocial resources. Our findings extend the existing evidence on the influences of health-related quality of life, self-efficacy, optimism, and social support on SWB. Furthermore, they support the proposal of hedonic balance and life satisfaction as dimensions of SWB, thus supporting the tripartite hierarchical model of happiness. These results may inform future interventions seeking to improve happiness in late adulthood.

scholarly journals Predictors of health-related quality of life in Chinese patients receiving treatment for neovascular age-related macular degeneration: A Prospective Longitudinal study

2020 ◽  
Author(s):  
Wei Bian ◽  
Junli Wan ◽  
Mingqiong Tan ◽  
Jun Su ◽  
Yi Yuan ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Self Efficacy ◽  
Age Related Macular Degeneration ◽  
Health Related Quality ◽  
Age Related ◽  
Related Quality ◽  
Health Related

Abstract Background: Age-related macular degeneration (AMD) is currently the leading cause of irreversible visual impairment in developed countries and seriously affects the health-related quality of life (HRQoL) of patients. However, the majority of the research in this area employs cross-sectional design; longitudinal research investigating changes in HRQoL and influencing factors is limited. The aim of this study was to use a longitudinal study design to investigate descriptive trends in HRQoL and their predictive factors in Chinese AMD patients receiving treatment with vascular endothelial growth factor inhibitors (anti-VEGF) at baseline and follow-ups.Methods: In a sample of 142 AMD patients from the outpatient clinic of the Southwest Eye Hospital, a tertiary major hospital in the southwest of China, each patient completed a self-administered questionnaire assessing demographics, clinical features, HRQoL, depression, anxiety, coping style, social support, and self-efficacy at baseline and at 1-, 3-, 6-, and 12-month follow-up appointments.Results: The total score of HRQoL fluctuated, with the highest score at the 6-month follow-up and the lowest score at baseline. Multivariable linear regression showed the predictors of HRQoL are best-corrected visual acuity (BCVA), income level, depression, and visual acuity (VA) of the treated eye at baseline; BCVA, income, and depression at the 1-month follow-up; duration, area of residence, gender, VA of the treated eye, BCVA, income, anxiety, social support, self-efficacy, and depression at the 3-month follow-up; gender, BCVA, income, anxiety, social support, self-efficacy, depression, negative coping, and positive coping at the 6-month follow-up; and BCVA, social support, self-efficacy, and depression at the 12-month follow-up.Conclusions: The HRQoL and its predictive factors in Chinese AMD patients receiving anti-VEGF treatment fluctuated over time. It is suggested that medical staff should get more information when planning precise care for improving patients’ HRQoL.

scholarly journals Relationship Between General Health and Health-Related Quality of Life in Educational Hospitals' Nurses in Ahvaz

2021 ◽  
Author(s):  
Mehdi Rezaei Far ◽  
Farzad Faraji-Khiavi
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Physical Health ◽  
General Health ◽  
Pearson Correlation ◽  
P Value ◽  
Health Related Quality ◽  
Related Quality ◽  
Health Related

Background: Nurses face a lot of stress in their jobs, and the quality of life has a significant impact on the quality of their services. Therefore, the purpose of this study was to determine the relationship between general health and the quality of life conditions in nurses working in hospitals affiliated with Jundishapur University of Medical Sciences in Ahvaz. Methods: This cross-sectional descriptive-analytic study was conducted in 2017 on nurses working in educational hospitals in Ahvaz. The sample size was 265. A categorized random sampling was used for the research The collected data were analyzed using mean, standard deviation, independent t-test, ANOVA, regresson and Pearson correlation tests. Data collection tools included the general health questionnaire (GHQ) and the questionnaire on health-related quality of life (HRQOL). Results: Nurses had fairly good general health (23.9 ± 12.4) and their health-related quality of life was moderate (60.29 ± 16.07). Their physical health (63.4 ± 22.5) was found better than their mental health (61.7 ± 20.3) as a factor in the health-related quality of life states. General health had a strong and negative correlation with the quality of life associated with physical health (P-value < 0.001 and r = - 0.61) and the quality of life associated with mental health (P-value < 0.001 and r = - 0.68). Conclusion: Many aspects of health-related quality of life are influenced by general health factors. Therefore, it is recommended that prevention, identification, and treatment of physical and psychological problems and factors affecting the quality of life be considered as a priority, leading to an improvement in nurses’ quality of life.

Health-related quality of life in systemic lupus erythematosus: a longitudinal study on the impact of problematic support and self-efficacy

Lupus ◽  
2016 ◽  
Vol 26 (2) ◽  
pp. 125-131 ◽  
Author(s):  
D Mazzoni ◽  
E Cicognani ◽  
G Prati
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Systemic Lupus Erythematosus ◽  
Lupus Erythematosus ◽  
Self Efficacy ◽  
Health Related Quality ◽  
Systemic Lupus ◽  
Related Quality ◽  
Health Related

Objectives: Systemic lupus erythematosus (SLE) is a chronic autoimmune disease which can affect any organ in the body, reducing patients' health-related quality of life (HR-QOL). Psychosocial research on SLE is quite recent and is mostly based on qualitative and cross-sectional evidence. Some studies suggest that a protective role is played by perceived self-efficacy in the management of the disease, while a detrimental role is played by problematic social interactions. Methods: In a longitudinal study, we tested the independent contribution of self-efficacy and problematic social support, in predicting patients' HR-QOL after 11 months. An online questionnaire was completed by 162 participants with SLE, the second questionnaire after 11 months. Results: Controlling for corticosteroids and hydroxychloroquine use, self-efficacy in the management of the disease at Time 1 showed a significant and positive effect on HR-QOL at Time 2, while problematic social support (denying/uninformed) showed a negative effect. Conclusions: HR-QOL of SLE patients is influenced by self-efficacy in the management of the disease and problematic support. Specific attention should be paid to the quality of patients' social relationships and their perceived efficacy in the management of the disease in focused interventions as in daily clinical practice.

scholarly journals Loneliness as a mediator of social relationships and health-related quality of life among refugees living in North Rhine-Westphalia, Germany

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Matthias Hans Belau ◽  
Heiko Becher ◽  
Alexander Kraemer
Keyword(s):  
Quality Of Life ◽  
Mental Health ◽  
Social Support ◽  
Social Integration ◽  
Social Relationships ◽  
Health Related Quality ◽  
Mediation Analyses ◽  
Related Quality ◽  
Health Related

Abstract Background Since 2015, more than one million people fled to Germany – mainly from war-affected countries. Nevertheless, little is known about social determinants in refugees located in Germany. This study aims to test the mediation effect of loneliness between social relationships, comprising social integration and social support, and health-related quality of life among refugees living in North Rhine-Westphalia, Germany. Methods The investigation utilizes data from the FlueGe Health Study (N=326), a cross-sectional study conducted by Bielefeld University. The data was collected between February and November 2018 and included interviews and examinations. Participants were recruited from shared and private accommodation in several cities in North Rhine-Westphalia, Germany. We first analyzed correlations between social integration, social support, loneliness, and physical and mental component of health-related quality of life. We then conducted mediation analyses using structural equation modeling. Results The majority of respondents were socially isolated, perceiving a moderate degree of loneliness and social support. In addition, the physical and mental components of health-related quality of life indicate that participants predominantly experienced mental rather than physical impairments. Results from mediation analyses showed indirect effects of loneliness on the association between social integration and mental health (ß = 0.495, 95% bias-corrected and accelerated confidence interval (BCa CI) = [0.018, 0.972]), and between social support and both physical (ß = 0.022, 95% BCa CI = [0.004, 0.040]) and mental health (ß = 0.067, 95% BCa CI = [0.037, 0.097]). Conclusions Loneliness played a mediating role in the association between social relationships and health-related quality of life among refugees living in North Rhine-Westphalia, Germany. The results provide implications for both, health policy and the host society.

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