scholarly journals Reliability and validity of the Korean version of the MacNew heart disease Health-related Quality of Life questionnaire

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
Sun Hyoung Bae ◽  
Myeong-Ho Yoon ◽  
Jin-Hee Park
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Validity And Reliability ◽  
Sf 36 ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Abstract Background Myocardial infarction and unstable angina are prevalent in Korea. The MacNew Heart Disease health-related quality of life questionnaire is a widely used patient-reported outcome measure for patients with heart disease in several countries. In this study, we tested the validity and reliability of the Korean version of the MacNew (K-MacNew). Methods Participants were 200 patients who had experienced unstable angina or myocardial infarction, and were recruited from a tertiary hospital in Korea. The K-MacNew was developed using forward–backward translation techniques. Construct validity (including discriminative validity), concurrent validity, and internal consistency reliability of the K-MacNew were assessed. Discriminative validity was assessed by examining the between-group differences in the K-MacNew scores according to functional capacity, anxiety, and depression levels. Concurrent validity was examined by correlating the K-MacNew dimensions with the physical and mental health domains of the 36-item Short Form Health Survey Instrument (SF-36). Results Factor analysis results of the K-MacNew demonstrated a three-factor structure (emotional, physical, and social) that explained 57.92% of the variance. Significant differences in the K-MacNew scores were observed according to patients’ functional capacity, anxiety, and depression levels. The SF-36 physical health domain score showed a moderate positive correlation with the physical dimension score of the K-MacNew (r = 0.517, P < 0.001), and the SF-36 mental health domain score showed a strong positive correlation with the emotional dimension of K-MacNew (r = 0.745, P < 0.001). The K-MacNew showed good internal consistency, with a Cronbach’s α of 0.947 for the global scale. Conclusion The K-MacNew demonstrated good reliability and validity for use as a patient-reported outcome measure and is ready for the assessment of the health-related quality of life of patients with coronary artery disease in Korea. To establish the clinical validity of the K-MacNew, additional studies should be conducted to verify the validity and reliability of the K-MacNew in a number of participants, including those with various types of coronary artery disease.

scholarly journals Reliability and Validity of the Korean Version of the MacNew Heart Disease Health-related Quality of Life Questionnaire

2021 ◽  
Author(s):  
Sun Hyoung Bae ◽  
Myeong-Ho Yoon ◽  
Jin-Hee Park
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Reliability And Validity ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Validity And Reliability ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Abstract Background: Myocardial infraction and unstable angina are prevalent in Korea. A widely used patient-reported outcome for patients with heart disease in other countries is the The MacNew Heart Disease health-related quality of life questionnaire In this study we tested the validity and reliability of the Korean version of the MacNew (K-MacNew). Methods: Participants included 200 patients who had experienced unstable angina or myocardial infarction, and they were recruited from a tertiary hospital in Korea. The K-MacNew was developed using forward-backward translation techniques. Its internal consistency reliability, construct validity, and concurrent validity were assessed. Results: Factor analysis results of the revised K-MacNew demonstrated that it has a three-factor structure (emotional, physical, and social) that supports construct validity. The K-MacNew had a moderate relationship between the physical and mental components of the SF-36 (r = 0.517 to 0.745) and depression and anxiety (r = -0.730 to -0.520). The K-MacNew showed reliable internal consistency, with a Cronbach’s α of .947 for the total scale. Conclusion: The K-MacNew demonstrated good reliability and validity for use as a patient-reported outcome measure and is ready for the assessment of the health-related quality of life of patients with coronary artery disease in Korea. In order to establish the clinical validity of K-MacNew, additional studies should be conducted to verify the validity and reliability of K-MacNew in a number of participants including various types of coronary artery disease.

scholarly journals Validity and reliability of the Italian version of the cardiac quality of life questionnaire for pediatric patients with heart disease (PedsQLTM)

2021 ◽  
Vol 21 (1) ◽  
Author(s):  
Teresa Grimaldi Capitello ◽  
Francesca Bevilacqua ◽  
Roberta Vallone ◽  
Anna Maria Dall’Oglio ◽  
Francesca Santato ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Pediatric Patients ◽  
Life Questionnaire ◽  
Health Related Quality ◽  
Validity And Reliability ◽  
Quality Of Life Questionnaire ◽  
Related Quality ◽  
Health Related

Abstract Background Congenital heart disease (CHD) accounts for nearly a third of all major congenital anomalies. Advances in pediatric cardiology shifted attention from mortality to morbidity and health-related quality of life (HRQOL) of patients with CHD and impact on their families. The purposes of this study were to assess the validity and reliability of the Italian version of the Pediatric Quality of Life (PedsQL) Cardiac Module and to create normative data for the Italian population. Methods This was an observational cross-sectional study of pediatric patients (aged 2–18 years) with congenital or acquired Heart Disease (HD) and their parents. Families were asked to complete the cardiac pediatric health-related quality of life questionnaire (the Italian PedsQL™ 3.0 Cardiac Module) and the generic pediatric health-related quality of life questionnaire (PedsQL™ 4.0 Generic Core Scales). The sequential validation procedure of the original United States version of the PedsQL™ 3.0 Cardiac Module was carried out under the instruction of the MAPI Research Institute. To assess construct validity, Pearson’s correlation coefficients were assessed between scores on the Cardiac Module scales and scores on the scales of the General Module. To determine agreement between patient self-report and parent proxy-report, we used intraclass correlation coefficients (ICCs). To evaluate Internal consistency of items, we used Cronbach’s alpha Coefficient. Results The study enrolled 400 patients. Construct validity is good between PedsQL Cardiac Module total scores and PedsQL total scores (p < 0.001). The recommended standard value of 0.7 was reached on the Cardiac and General Module core scales. Intercorrelations between PedsQL Cardiac module and PedsQL scores revealed medium to large correlations. In general, correlations between Patient self-reports are poorer than Parent-proxy ones. Conclusions Cardiac PedsQL scores are valid and reliable for pediatric patients with congenital and acquired HD and may be useful for future research and clinical management.

Abstract 13633: Predictors of Mental and Physical Health Outcomes of Patients Undergoing an Appointment-based Cardiac Rehabilitation Program

Circulation ◽  
2020 ◽  
Vol 142 (Suppl_3) ◽  
Author(s):  
Catherine Xie ◽  
Sean Fournier ◽  
Susan Hiller ◽  
Joyce Oen Hsiao ◽  
Rachel P Dreyer
Keyword(s):  
Quality Of Life ◽  
Health Status ◽  
Cardiac Rehabilitation ◽  
General Health ◽  
Health Related Quality ◽  
Sf 36 ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related

Introduction: Cardiac rehabilitation (CR) is an evidence-based program to improve secondary prevention outcomes for patients with cardiovascular disease (CVD). Lower health-related quality of life is a known risk factor for worse CVD outcomes. We examined the effects of a patient-driven appointment-based CR program on health-related quality of life. Methods: We utilized data from the Yale New-Haven Health (YNHH) CR program over a 6-year period (2012-2017). Data was collected on patient demographics, clinical characteristics and socioeconomic status. The Medical Outcome Short-Form General Health Survey (SF-36) was used to measure general health status. We evaluated SF-36 score changes pre and post CR with paired T-tests and conducted logistic regression analysis to examine predictors of improvements in health-related quality of life. Results: Over the 6-year study period, a total of 2,135 patients (27.9% women, mean age 65±12 years) were enrolled in the CR program. Patients demonstrated significant improvements in both the SF-36 physical, mental and health transition components (P<0.001) (Table) . In particular, patients had significant improvement in the social functioning domain (measures limitations patients see in their ability to participate in social activities due to physical/emotional issues), with an increase of 23.3 points out of 100. Physician-reported patient stress and/or depression on intake medical exam were significant negative predictors for improvement in the total SF-36 score (OR 0.23, 95% CI 0.08-0.80, P=0.021), with the effect driven largely by its impact on the physical component of SF-36 (OR 0.27, 95% CI 0.09-0.83, P=0.022). Conclusion: We demonstrated that a novel appointment-based CR program produced improvements in patient-reported health-related quality of life. Appointment-based CR could be a viable alternative for patients who prefer more scheduling flexibility, to optimize health status improvement and CVD outcomes.

The psychometric properties of the Russian version of the MacNew Heart Disease Health-related Quality of Life Scale in patients undergoing coronary artery bypass grafting surgery

2013 ◽  
Vol 1 (2) ◽  
pp. 433 ◽  
Author(s):  
Galit Geulayov ◽  
Neil Oldridge ◽  
Arnona Ziv ◽  
Ilia Novikov ◽  
Yaacov Drory ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Heart Disease ◽  
Artery Bypass ◽  
Bypass Grafting ◽  
Health Related Quality ◽  
Russian Version ◽  
Sf 36 ◽  
Related Quality ◽  
Health Related

Rationale and aims: The MacNew questionnaire is a disease-specific health-related quality of life (HRQL) measure designed for patients with heart disease. We aimed to assess the psychometric properties of the Russian MacNew heart-disease health-related quality of life (HRQL) scale in patients undergoing coronary artery bypass grafting (CABG) surgery.Methods: The sample comprised of 226 Russian-speaking CABG patients. Patients were assessed before CABG surgery and 12 months thereafter. They completed the MacNew, the Short Form-36 Health Survey (SF-36), the Hospital Anxiety and Depression Scale and a questionnaire on demographic and lifestyle habits.Results: Of the 226 patients who completed the questionnaires at study entry, 188 (83%) also provided data after 12 months. The internal consistency of the MacNew scales was high (alpha coefficients: 0.88-0.93). There were moderate to high correlations between similar sub-scales of the MacNew and the SF-36 domains (0.69-0.80). The MacNew scales discriminated between patients varying on four variables: gender, depression, anxiety and congestive heart failure. The original 3-factor structure was generally supported. Patients’ scores on the MacNew scale improved over 12 months suggesting it was responsive to change.Conclusions: The Russian version of MacNew was found to be a reliable and valid HRQL tool which is sensitive to change. This instrument offers clinicians and researchers a useful tool for understanding patient’s perspective of the impact of heart disease and its treatment.

scholarly journals Impact of Short-Stay Urethroplasty on Health-Related Quality of Life and Patient’s Perception of Timing of Discharge

2015 ◽  
Vol 2015 ◽  
pp. 1-5 ◽  
Author(s):  
Henry Okafor ◽  
Dmitriy Nikolavsky
Keyword(s):  
Quality Of Life ◽  
Life Questionnaire ◽  
Short Stay ◽  
Health Related Quality ◽  
Severe Problem ◽  
Patient Reported ◽  
Related Quality ◽  
Health Related ◽  
Patient’S Perception

Objective.To evaluate health-related quality of life in patients after a short-stay or outpatient urethroplasty.Methods.Over a 2-year period a validated health-related quality-of-life questionnaire, EuroQol (EQ-5D), was administered to all patients after urethroplasty. Postoperatively patients were offered to be sent home immediately or to stay overnight. Within 24 hours after discharge they were assessed for mobility, self-care, usual activities, pain or discomfort, and anxiety and depression. An additional question assessing timing of discharge was added to the survey. Clinical and operative characteristics were examined.Results.Forty-eight patients after anterior urethroplasty completed the survey. Mean age and mean stricture length were 51.6 years (21–78) and 60 mm (5–200 mm), respectively. Most etiologies were idiopathic (50%n= 24), trauma (19%,n= 9), and iatrogenic (19%,n= 9). Forty-one patients (85%) stayed overnight, while 7 patients (15%) chose to be discharged the same day. Overall, ninety-six percent were discharged within 23 hours of surgery. In the short-stay and the outpatient cohorts, 90% and 86%, respectively, felt they were discharged on time. No patient reported a severe problem with postoperative pain or mobility.Conclusions.The majority of patients discharged soon after their procedure felt that discharge timing was appropriate and their health-related quality of life was only minimally affected.

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