scholarly journals Occupational performance of children with autism spectrum disorder and quality of life of their mothers

2022 ◽  
Vol 15 (1) ◽  
Author(s):  
Seyedeh Zeinab Beheshti ◽  
Seyed-Sirvan Hosseini ◽  
Saman Maroufizadeh ◽  
Amir Almasi-Hashiani
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Self Care ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Occupational Performance ◽  
Function Score ◽  
Total Satisfaction

Abstract Objectives Limited studies were found to investigate the occupational performance of autistic children and their parents’ quality of life. Therefore, this study aimed to investigate occupational performance of children with Autism Spectrum Disorder (ASD) and QoL of their mothers. Results In this study, 88 participants were selected from autism centers in Arak, Iran, 2020. The Canadian Occupational Performance Measure (COPM) and the parent version of Quality of Life in Autism Questionnaire (QoLA-P) were used to assess the occupational performance of ASD children and their mothers QoL. QoLA-P consists of parts A which is related to the quality of life and part-B related to the problems that these children have and are related to the parents or their caregivers. Regarding occupational performance, the first priority of mothers is self-care with frequency 64.8%. The finding suggested a significant correlation between total function score of COPM and the score of part-A (r = 0.227, p = 0.033) of QoLA-P. Also, the results revealed a significant correlation between the total satisfaction score of COPM and the score of part-A (r = 0.236, p = 0.026) and part-B of QoLA-P questionnaire (r = 0.231, p = 0.030). The mothers’ first priority is self-care and, the total satisfaction and function score of COPM showed a significant correlation with mothers’ QoL.

Parents’ perceptions of raising children with autism spectrum disorders in the United States and Arab countries: A comparative review

Autism ◽  
2019 ◽  
Vol 23 (7) ◽  
pp. 1645-1654 ◽  
Author(s):  
Jamal M Al Khateeb ◽  
Louise Kaczmarek ◽  
Muna S Al Hadidi
Keyword(s):  
Quality Of Life ◽  
United States ◽  
Autism Spectrum Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Arab Countries ◽  
Spectrum Disorder ◽  
Raising Children ◽  
Us Studies

Four databases were searched to identify studies published by Arab researchers on parents’ perceptions of autism spectrum disorder and studies conducted by US researchers and published in systematic reviews of this topic. The electronic search resulted in 14 studies published by Arab researchers and 55 studies published by US researchers. The results showed that autism spectrum disorder has many of the same effects on Arab and American families. Six major areas were identified in the results. Financial difficulties associated with raising children with autism spectrum disorder were mentioned more in Arab studies than in US studies. Arab studies had more emphasis on gender than US studies. The results related to quality of life of parents of children with autism spectrum disorder in Arab studies were equivocal. US studies included comparisons with families without a child with autism spectrum disorder, and addressed factors that were associated with quality of life indicators. More health, educational, and social services were available in United States than in Arab countries, but some frustration was reported by US parents in obtaining appropriate services in some studies. A higher percentage of Arab studies mentioned the role of religious faith than US studies. Finally, social stigma was evidenced in both cultures, but not much research was available.

Burden of major depressive disorder and quality of life among mothers of children with autism spectrum disorder in urban bangladesh

2019 ◽  
Vol 13 (2) ◽  
pp. 284-297 ◽  
Author(s):  
Aliya Naheed ◽  
Md. Saimul Islam ◽  
Saima Wazed Hossain ◽  
Helal Uddin Ahmed ◽  
M. M. Jalal Uddin ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Major Depressive Disorder ◽  
Depressive Disorder ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Major Depressive

Addressing Quality of Life of Children With Autism Spectrum Disorder and Intellectual Disability

2020 ◽  
Vol 58 (5) ◽  
pp. 393-408
Author(s):  
Laura E. Gómez ◽  
M. Lucía Morán ◽  
M. Ángeles Alcedo ◽  
Víctor B. Arias ◽  
Miguel-Ángel Verdugo
Keyword(s):  
Quality Of Life ◽  
Autism Spectrum Disorder ◽  
Intellectual Disability ◽  
Children With Autism ◽  
Autism Spectrum ◽  
Spectrum Disorder ◽  
Good Reliability ◽  
Assess Quality ◽  
Study Participants

Abstract Despite the advances on the assessment of quality of life, this concept is barely studied and is riddled with important limitations for those with autism spectrum disorder (ASD). This article is aimed at validating a questionnaire to assess quality of life of children with ASD and intellectual disability (ID). Based on the KidsLife Scale, geared toward people with ID, the most reliable items for those with ASD were selected. Study participants were 420 persons, from 4 to 21 years old. Results indicated that the KidsLife-ASD Scale measured eight intercorrelated domains, had good reliability, and exhibited adequate evidences of validity. KidsLife-ASD emerges as a helpful tool to guide person-centered planning addressed at improving quality of life.

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