Development and evaluation of the Singapore Caregiver Quality of Life Scale - Dementia

Abstract Purpose To develop and evaluate a measurement scale for multi-domain assessment of the quality of life of family caregivers of persons with dementia (PWD) in Singapore, a multi-ethic society in South-East Asia where English is the lingua franca. Methods Items from the Singapore Caregiver Quality of Life Scale (SCQOLS), which was originally developed in the context of advanced cancers, were adopted as candidate items. Furthermore, a multi-disciplinary panel reviewed dementia-specific caregiver quality of life scales to identified items not covered in SCQOLS for inclusion as candidate items. A pilot study of 31 family caregivers of PWD was conducted to solicit inputs on candidate items; 102 family caregivers of PWD were surveyed for evaluation of the scale’s measurement properties. Results Factor analysis confirmed a 5-domain structure of the 63 candidate items. The Root Mean Square Error of Approximation was 0.056 and Comparative Fit Index was 0.928. Convergent validity of the total and domain scores was demonstrated in terms of correlation with the Brief Assessment Scale for Caregivers and its sub-scales. The scores also showed an expected pattern of correlation with hours spent on caregiving per week. Known-group validity was demonstrated by differences in mean scores between functional staging groups. Cronbach’s alpha of the total and domain scores ranged from 0.89 to 0.95. Test-retest reliability (intraclass correlation coefficient) ranged from 0.77 to 0.92. Conclusions The Singapore Caregiver Quality of Life Scale – Dementia (SCQOLS-D) is a quality of life measurement scale for family caregivers of persons with dementia that is valid and reliable.

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Development of a short form of the Singapore Caregiver Quality of Life Scale – Dementia: SCQOLS-D-15

Journal of Patient-Reported Outcomes ◽

10.1186/s41687-021-00330-0 ◽

2021 ◽

Vol 5 (1) ◽

Author(s):

Chun Fan Lee ◽

Dennis C. C. Seow ◽

Irene Teo ◽

Shirlyn H. S. Neo ◽

Grace M. Yang ◽

...

Keyword(s):

Quality Of Life ◽

Short Form ◽

Measurement Properties ◽

Personal Impact ◽

Quality Of Life Scale ◽

Long Form ◽

Caregiver Quality ◽

Life Scale ◽

Domain Scores

Abstract Purpose The Singapore Caregiver Quality of Life Scale – Dementia (SCQOLS-D), developed based on the Singapore Caregiver Quality of Life Scale (SCQOLS), comprises 5 domains and 63 items. It has been shown to be a valid and reliable measurement scale. This study aimed to develop and evaluate a short form of the SCQOLS-D. Methods Data were collected from 102 family caregivers of person with dementia in Singapore. Candidate items were shortlisted by factor analysis, correlation and best subset regression. Shortlisted items with the best measurement properties including correlations with the long form and other established measures, internal consistency and test-retest reliability were identified. Their properties were compared with the corresponding domain scores in the long form of SCQOLS-D and a short form of the SCQOLS. A total score based on the average of the domain scores was also evaluated. Results A total of fifteen items, two to four items per domain, were selected. The total and domain scores generated from these items strongly correlated with the corresponding score of the long form (correlation coefficients: 0.83–0.97). The short and long forms had comparable correlation coefficients with Negative Personal Impact and Positive Personal Impact measures. The short form showed good internal consistency (Cronbach’s alpha: 0.84–0.92) and test-retest reliability (intra-class correlation coefficient: 0.72–0.93). These 15 items form the SCQOLS-D-15, an abbreviated version of the SCQOLS-D. Conclusion The SCQOLS-D-15 showed acceptable measurement properties. This serves as an alternative to the SCQOLS-D to provide rapid assessment of the overall and domain-specific quality of life of caregivers of persons with dementia.

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Reference values for the short forms of the Singapore Caregiver Quality of Life Scale

Journal of Patient-Reported Outcomes ◽

10.1186/s41687-021-00290-5 ◽

2021 ◽

Vol 5 (1) ◽

Author(s):

Chun Fan Lee ◽

Hwee Lin Wee ◽

Irene Teo ◽

Geok Ling Lee ◽

Julian Thumboo ◽

...

Keyword(s):

Quality Of Life ◽

Reference Values ◽

Well Being ◽

Full Length ◽

Short Forms ◽

Quality Of Life Scale ◽

Caregiver Quality ◽

Life Scale ◽

Domain Scores

Abstract Purpose The 15- and 10-item short forms of the Singapore Caregiver Quality of Life Scale (SCQOLS-15 and SCQOLS-10) were recently developed as a quick assessment of caregiver quality of life. Reference values describing the distribution of the total and domain scores are available for the full-length version, but they are not yet available for the short forms. This study aimed to estimate the reference values for the short forms. Methods Data from a cross-sectional survey of 612 family caregivers of patients with advanced cancer in Singapore were fitted in quantile regression models. Percentiles were estimated by regressing the short forms’ scores on caregiver characteristics. Classification by the reference values for the short forms and the full-length version were compared and agreement was evaluated. Results The caregiver’s role in caring for the patient and the patient’s performance status were associated with the percentiles of the total scores and most domain scores (each Bonferroni-adjusted p-value, PB, < 0.05). Higher-educated caregivers were categorized into higher percentiles according to the SCQOLS-15 and SCQOLS-10 total scores and the SCQOLS-15 Mental Well-being and Financial Well-being domain scores (each PB < 0.05). Ethnicity was associated with the SCQOLS-15 Physical Well-being and Experience & Meaning domains (each PB < 0.05). The percentiles for the short forms showed moderate to substantial agreement with those for the full-length version in terms of classifying caregivers into percentile intervals (quadratic-weighted Kappa = 0.72 to 0.92). Conclusion Reference values for the SCQOLS-15 and SCQOLS-10 were estimated in relation to caregiver characteristics to facilitate interpretation of the short form scores.

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Two valid and reliable short forms of the Singapore caregiver quality of life scale were developed: SCQOLS-10 and SCQOLS-15

Journal of Clinical Epidemiology ◽

10.1016/j.jclinepi.2020.02.003 ◽

2020 ◽

Vol 121 ◽

pp. 101-108

Author(s):

Yin Bun Cheung ◽

Shirlyn H.S. Neo ◽

Grace M. Yang ◽

Geok Ling Lee ◽

Irene Teo ◽

...

Keyword(s):

Quality Of Life ◽

Short Forms ◽

Quality Of Life Scale ◽

Caregiver Quality ◽

Life Scale

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Penerimaan dan Kualitas Hidup Caregiver dengan Kekambuhan pada Pasien Rawat Jalan Skizofrenia

PHILANTHROPY Journal of Psychology ◽

10.26623/philanthropy.v5i2.3171 ◽

2021 ◽

Vol 5 (2) ◽

pp. 347

Author(s):

Medina Hayati ◽

Rin Widya Agustin ◽

Rahmah Saniatuzzulfa

Keyword(s):

Quality Of Life ◽

Psychiatric Hospital ◽

Linear Regression Analysis ◽

Sampling Technique ◽

Multiple Linear Regression Analysis ◽

Patient Acceptance ◽

Quality Of Life Scale ◽

Caregiver Quality ◽

Life Scale

Abstract. Relapse is a state of recurrence and worsening symptom experienced by patient. Acceptance and quality of life of caregivers can affect their attitude toward patient and might be affecting the possibility of schizophrenia relapse. This study intended to seek the correlation between caregiver’s acceptance and quality of life with relapse of schizophrenia outpatient in Surakarta Regional Psychiatric Hospital that involved 35 caregivers with incidental sampling technique. The measurement used on this study are BPRS for assessing schizophrenia relapse (α = 0,908), Caregiver Acceptance Scale (α = 0,934), and Caregiver Quality of Life Scale (α = 0,960). This study used multiple linear regression analysis to analyze the output. Based on the data showed that the level of acceptance and quality of life perceived by caregivers didn’t affect the likelihood of relapse of schizophrenia outpatient in Surakarta Regional Psychiatric Hospital.Keywords: Acceptance, Caregiver, Schizophrenia Relapse, Quality of LifeAbstrak. Relapse merupakan keadaan muncul kembali dan bertambah parah simptom yang dialami oleh pasien skizofrenia. Penerimaan dan kualitas hidup dari caregiver dapat mempengaruhi sikapnya dalam merawat pasien sehingga mungkin mempengaruhi kemungkinan terjadinya relapse. Penelitian ini bertujuan untuk mengetahui hubungan antara penerimaan dan kualitas hidup caregiver dengan relapse pada pasien rawat jalan skizofrenia di RSJ Daerah Surakarta yang melibatkan 35 caregiver dengan teknik incidental sampling. Instrumen yang digunakan adalah Skala Relapse Skizofrenia (α = 0,908), Skala Penerimaan Caregiver (α = 0,934), dan Skala Kualitas Hidup Caregiver (α = 0,960). Analisis data dalam penelitian ini menggunakan uji regresi linear berganda. Berdasarkan hasil data penelitian menunjukkan bahwa tingkatan penerimaan dan kualitas hidup dari caregiver tidak memiliki pengaruh terhadap munculnya relapse pada pasien rawat jalan skizofrenia di RSJ Daerah Surakarta.Kata Kunci: Caregiver, Kualitas Hidup, Penerimaan, Relapse Skizofrenia

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Reference values for and interpretation of the Singapore Caregiver Quality of Life Scale: a quantile regression approach

Journal of Patient-Reported Outcomes ◽

10.1186/s41687-020-00201-0 ◽

2020 ◽

Vol 4 (1) ◽

Author(s):

Yin Bun Cheung ◽

Shirlyn H. S. Neo ◽

Grace M. Yang ◽

Irene Teo ◽

Geok Ling Lee ◽

...

Keyword(s):

Quality Of Life ◽

Quantile Regression ◽

Reference Values ◽

Quality Of Life Scale ◽

Regression Approach ◽

Caregiver Quality ◽

Life Scale

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Psychometric validation of the Japanese version of Alcohol Quality of Life Scale (AQoLS-Japan) in the treatment of patients with alcohol use disorder

Quality of Life Research ◽

10.1007/s11136-019-02310-w ◽

2019 ◽

Vol 29 (1) ◽

pp. 223-235

Author(s):

Susumu Higuchi ◽

Yoshiya Moriguchi ◽

Kristin Hui Xian Tan

Keyword(s):

Quality Of Life ◽

Alcohol Use ◽

Intraclass Correlation ◽

Japanese Version ◽

Psychometric Validation ◽

Group Level ◽

Routine Treatment ◽

Quality Of Life Scale ◽

Life Scale

Abstract Purpose The Alcohol Quality of Life Scale (AQoLS) is accepted as a useful measure in assessing impact of alcohol use disorders (AUD) on health-related quality of life (HR-QoL) in Western cultures. We aimed to assess the psychometric properties of the Japanese version of the AQoLS (AQoLS-Japan). Methods This was a 3-month, observational cohort study in patients undergoing routine treatment for AUD in Japan. HR-QoL was assessed using the AQoLS-Japan (34 items, 7 dimensions). Scale psychometrics were analyzed using correlative techniques. Results Data from 132 patients were analyzed. Inter-item and item-scale correlations for the AQoLS-Japan scale were moderate to strong. Confirmatory factor analysis results supported the AQoLS-Japan structure but there was evidence of interdependency among some items and factors. Cronbach’s alpha coefficients for internal consistency ranged from 0.73 to 0.97, and intraclass correlation coefficients for scores between test (baseline) and retest (2 weeks) ranged from 0.65 to 0.82. Convergent and divergent validity and known-groups validity were supported. Evaluation of within-group change demonstrated that the AQoLS-Japan total and domains consistently demonstrated statistically significant improvement (p < 0.001 in all cases) in HR-QoL over time. Estimates for minimal clinically important difference on the AQoLS-Japan total score ranged from 13.2 to 18.2 for group-level change and from 2.4 to 15.7 for a group-level difference. Conclusions The AQoLS-Japan is a reliable and valid measure of HR-QoL that is able to demonstrate benefits associated with the routine treatment of AUD in Japan.

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The Quality of Life Scale for Children (QoL-C)

Journal of Children s Services ◽

10.1108/jcs-05-2013-0019 ◽

2014 ◽

Vol 9 (1) ◽

pp. 4-17 ◽

Cited By ~ 4

Author(s):

Hannah L. Thompson ◽

Marie-Claire Reville ◽

Anna Price ◽

Laura Reynolds ◽

Lauren Rodgers ◽

...

Keyword(s):

Quality Of Life ◽

Convergent Validity ◽

Intraclass Correlation ◽

Test Reliability ◽

Primary School Children ◽

Content Type ◽

Quality Of Life Scale ◽

Life Scale ◽

One To One

Purpose – There is a lack of valid and reliable generic measures of Health-Related Quality of Life (HRQoL) for children under eight. The purpose of this paper is to assess the psychometric properties of the newly formulated Quality of Life Scale for Children (QoL-C), which uses a pictorial response format. Design/methodology/approach – In total, 335 primary school children completed the QoL-C on two occasions, two weeks apart. Children aged four to seven were interviewed one-to-one while children aged eight to nine completed the measure as a class activity. Test-re-test reliability, convergent validity and child-parent concordance were assessed. Findings – Only one child refused to complete the QoL-C, which suggests the measure is user-friendly. Test-re-test reliability was moderate for the measure's total score (intraclass correlation coefficient =0.48, 95 percent CI 0.39, 0.57) but low to fair for individual items (K from 0.13 to 0.37). Internal consistency was moderate (α=0.42 time one, 0.53 time two). A small significant correlation was found between the QoL-C and Child Health Meter in the expected direction (r=−0.32), suggesting convergent validity. There was low concordance between the children's QoL-C responses and parent's responses (r=0.19) to a parallel measure. Research limitations/implications – The results suggest that further development of this measure is needed. However, the findings indicate that one-to-one support increases the reliability of very young children's responses. The use of pictures, emoticons and minimal text used in the QoL-C should be investigated further. Originality/value – Low parent-child concordance underscores the importance of younger children getting the opportunity to share their views about their HRQoL.

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