The outcomes of using self-study modules in energy conservation education for people with multiple sclerosis

2005 ◽  
Vol 19 (5) ◽  
pp. 475-481 ◽  
Author(s):  
Alisa L Lamb ◽  
Marcia Finlayson ◽  
Virgil Mathiowetz ◽  
Hua Yun Chen
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Conservation Education ◽  
Self Study

Evaluation of a Teleconference-Delivered Energy Conservation Education Program for People with Multiple Sclerosis

2007 ◽  
Vol 74 (4) ◽  
pp. 337-347 ◽  
Author(s):  
Marcia Finlayson ◽  
Christa Holberg
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Education Program ◽  
Leadership Skills ◽  
Group Cohesion ◽  
Occupational Therapists ◽  
Conservation Education ◽  
Group Leadership ◽  
Delivery Format ◽  
Technical Issues

Background. Little is known about the strengths and limitations of teleconference delivery for energy conservation education for people with multiple sclerosis (MS). This study evaluated such a program to address this gap. Methods. Data were collected from 28 individuals with MS who participated in a teleconference-delivered energy conservation education program. Participants shared their perspectives on the course and its delivery format. Session notes from the three occupational therapists who delivered the program were also reviewed. Findings. Participants found the format to be convenient and relaxed, and the content to be relevant to their everyday lives. Technical issues, lack of time for sharing, and lack of time to practice strategies were limitations. Although the format challenged the occupational therapists' group leadership skills, they were surprised at the extent of group cohesion that developed using this format. Implications. Feedback from both people with MS and occupational therapists suggests that providing energy conservation education by teleconference is acceptable, practical, and worth pursuing in the future.

scholarly journals Effects of Cognition on Quiz Performance, Behavior Change, and Vitality After Energy Conservation Course Among People With Multiple Sclerosis

2007 ◽  
Vol 9 (1) ◽  
pp. 13-21 ◽  
Author(s):  
Marcia Finlayson ◽  
Eynat Shevil ◽  
Ping Luo ◽  
Hua Yun Chen ◽  
Virgil Mathiowetz
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Behavior Change ◽  
Education Program ◽  
Cognitive Abilities ◽  
Word List ◽  
Cognitive Status ◽  
Conservation Education ◽  
Conservation Strategies ◽  
Actual Behavior

This secondary analysis of randomized control trial data evaluated the influence of cognitive abilities on the outcomes of people with multiple sclerosis (MS) who participated in a 6-week community-based energy conservation education program. Baseline measures of cognitive status included the four scales from the Neuropsychological Screening Battery for MS: Consistent Long-Term Retrieval Test (CLTR), Word List Generation Test (WLGT), Paced Auditory Serial Addition Test (PASAT), and Spatial Recall Test (SRT). Scores on knowledge quizzes, number of energy conservation strategies used postintervention, and change in SF-36 vitality subscale postintervention were analyzed via multiple regression and generalized estimating equation models. After adjusting for age, education, and sex, only SRT influenced scores on the knowledge quizzes and change in the level of vitality postintervention. CLTR, WLGT, and PASAT scores influenced the use of energy conservation strategies, after similar adjustment. In conclusion, cognitive abilities have a differential influence on outcomes in an energy conservation education program for people with MS. Actual behavior change postintervention was influenced the most by cognitive abilities.

scholarly journals Participant Evaluation of Energy Conservation Course for People With Multiple Sclerosis

2006 ◽  
Vol 8 (3) ◽  
pp. 98-106 ◽  
Author(s):  
Virgil Mathiowetz ◽  
Melody L. Busch
Keyword(s):  
Multiple Sclerosis ◽  
Randomized Controlled Trial ◽  
Energy Conservation ◽  
Controlled Trial ◽  
Descriptive Statistics ◽  
Course Evaluations ◽  
High Rate ◽  
Descriptive Data ◽  
Participant Satisfaction ◽  
Randomized Controlled

This article discusses how people with multiple sclerosis (MS) perceive an energy conservation (EC) course. The study included 140 people with MS who reported fatigue secondary to MS and participated in a randomized controlled trial of an EC course. Descriptive data from course evaluations collected during the trial were analyzed to determine how participants perceived the quality and helpfulness of the course and ways to improve it. Descriptive statistics, percentages, and frequency of comments demonstrated that the course was rated highly among participants. Participants found the major concepts of the course and the opportunity to interact with others particularly helpful. Suggestions as to how to improve the course included small modifications to the format. The high rate of participant satisfaction supports the use of this EC course for people with MS.

Effectiveness of energy conservation management on fatigue and participation in multiple sclerosis: A randomized controlled trial

2017 ◽  
Vol 23 (11) ◽  
pp. 1527-1541 ◽  
Author(s):  
Lyan JM Blikman ◽  
Jetty van Meeteren ◽  
Jos WR Twisk ◽  
Fred AJ de Laat ◽  
Vincent de Groot ◽  
...  
Keyword(s):  
Multiple Sclerosis ◽  
Energy Conservation ◽  
Social Relations ◽  
Conservation Management ◽  
Controlled Trial ◽  
Outpatient Rehabilitation ◽  
Control Group ◽  
Intention To Treat ◽  
Unfavourable Effect ◽  
The Individual

Background: Fatigue is a frequently reported and disabling symptom in multiple sclerosis (MS). Objective: To investigate the effectiveness of an individual energy conservation management (ECM) intervention on fatigue and participation in persons with primary MS-related fatigue. Methods: A total of 86 severely fatigued and ambulatory adults with a definite diagnosis of MS were randomized in a single-blind, two-parallel-arm randomized clinical trial to the ECM group or the information-only control group in outpatient rehabilitation departments. Blinded assessments were carried out at baseline and at 8, 16, 26 and 52 weeks after randomization. Primary outcomes were fatigue (fatigue subscale of Checklist Individual Strength – CIS20r) and participation (Impact on Participation and Autonomy scale – IPA). Results: Modified intention-to-treat analysis was based on 76 randomized patients (ECM, n = 36; MS nurse, n=40). No significant ECM effects were found for fatigue (overall difference CIS20r between the groups = −0.81; 95% confidence interval (CI), −3.71 to 2.11) or for four out of five IPA domains. An overall unfavourable effect was found in the ECM group for the IPA domain social relations (difference between the groups = 0.19; 95% CI, 0.03 to 0.35). Conclusion: The individual ECM format used in this study did not reduce MS-related fatigue and restrictions in participation more than an information-only control condition.

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