scholarly journals Usability of the Participation and Quality of Life (PAR-QoL) Outcomes Toolkit Website for Spinal Cord Injury

2020 ◽  
Vol 26 (1) ◽  
pp. 64-77 ◽  
Author(s):  
Maude Beaudoin ◽  
Krista L. Best ◽  
François Routhier ◽  
Lynda Atack ◽  
Sander L. Hitzig ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Online Survey ◽  
Community Integration ◽  
Ease Of Use ◽  
Perceived Usefulness ◽  
Perceived Ease Of Use ◽  
Cord Injury

Background: Quality of life (QoL) is an important parameter to monitor during rehabilitation; however, accurate assessment is challenging. Among individuals with spinal cord injury (SCI), assessing QoL is further challenged due to complex sequelae, such as secondary health conditions and factors related to community integration. A Participation and Quality of Life (PAR-QoL) toolkit was created to aid clinicians and researchers in the selection of QoL outcomes tools specific to SCI. Objectives: The aim of this study was to evaluate the use and usability of the PAR-QoL toolkit. Methods: A cross-sectional study was conducted using an online survey from December 2013 to November 2016. Google Analytics were collected from April 2012 to April 2018. Survey sections addressed “use” (behavioral practices and actual use) and “usability” (perceived ease of use and perceived usefulness). Any person who visited the PAR-QoL website was invited to complete the survey. Summary statistics and percent concordances were calculated to describe results from the survey and Google Analytics. Results: The PAR-QoL website had 188,577 users. The five most visited webpages were outcome tools, with bounce rates ranging from 77% to 90%. Of the 46 survey respondents, 67% were not current users of the PAR-QoL website, and 87% intended to use the resources in the future. Conclusion: Uptake of the PAR-QoL website is currently limited. Usability of the PAR-QoL website may be improved by modifying navigation, removing the “less useful” components, ensuring regular updates of content and resources, and promoting the website.

The impact of COVID-19 on community integration, quality of life, depression and anxiety in people with chronic spinal cord injury

2021 ◽  
pp. 1-10
Author(s):  
Alejandro García-Rudolph ◽  
Joan Saurí ◽  
Jaume López Carballo ◽  
Blanca Cegarra ◽  
Mark Andrew Wright ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Community Integration ◽  
Depression And Anxiety ◽  
Chronic Spinal Cord Injury ◽  
Cord Injury ◽  
The Impact

Manual Wheelchair Skills Capacity Predicts Quality of Life and Community Integration in Persons With Spinal Cord Injury

2012 ◽  
Vol 93 (12) ◽  
pp. 2237-2243 ◽  
Author(s):  
Shahla M. Hosseini ◽  
Michelle L. Oyster ◽  
R. Lee Kirby ◽  
Amanda L. Harrington ◽  
Michael L. Boninger
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Community Integration ◽  
Manual Wheelchair ◽  
Cord Injury

Relationships Between Functionality, Depression and Anxiety with Community Integration and Quality of Life in Chronic Traumatic Spinal Cord Injury

2021 ◽  
Vol Publish Ahead of Print ◽  
Author(s):  
Alejandro García-Rudolph ◽  
Blanca Cegarra ◽  
Eloy Opisso ◽  
Josep María Tormos ◽  
Joan Saurí
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Community Integration ◽  
Traumatic Spinal Cord Injury ◽  
Depression And Anxiety ◽  
Cord Injury

Coping and Quality of Life in subjects with Spinal Cord Injury

2010 ◽  
Author(s):  
A. Teixeira ◽  
F. Machado
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cord Injury

The management of neurogenic bladder and quality of life in spinal cord injury

2006 ◽  
Vol 98 (4) ◽  
pp. 739-745 ◽  
Author(s):  
Ja Hyeon Ku
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Neurogenic Bladder ◽  
Cord Injury

scholarly journals Long term outcome of functional independence and quality of life after traumatic SCI in Germany

Spinal Cord ◽  
2021 ◽  
Author(s):  
Florian Möller ◽  
Rüdiger Rupp ◽  
Norbert Weidner ◽  
Christoph Gutenbrunner ◽  
Yorck B. Kalke ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Functional Independence ◽  
Term Outcome ◽  
Long Term Outcome ◽  
Cord Injury ◽  
Over Time

Abstract Study design Multicenter observational study. Objective To describe the long-term outcome of functional independence and quality of life (QoL) for individuals with traumatic and ischemic SCI beyond the first year after injury. Setting A multicenter study in Germany. Methods Participants of the European multicenter study about spinal cord injury (EMSCI) of three German SCI centers were included and followed over time by the German spinal cord injury cohort study (GerSCI). Individuals’ most recent spinal cord independence measure (SCIM) scores assessed by a clinician were followed up by a self-report (SCIM-SR) and correlated to selected items of the WHO short survey of quality of life (WHO-QoL-BREF). Results Data for 359 individuals were obtained. The average time passed the last clinical SCIM examination was 81.47 (SD 51.70) months. In total, 187 of the 359 received questionnaires contained a completely evaluable SCIM-SR. SCIM scores remained stable with the exception of reported management of bladder and bowel resulting in a slight decrease of SCIM-SR of −2.45 points (SD 16.81). SCIM-SR scores showed a significant correlation with the selected items of the WHO-QoL-BREF (p < 0.01) with moderate to strong influence. Conclusion SCIM score stability over time suggests a successful transfer of acquired independence skills obtained during primary rehabilitation into the community setting paralleled by positively related QoL measurements but bladder and bowel management may need special attention.

Excretory dysfunction and quality of life after a spinal cord injury: A cross‐sectional study

2021 ◽  
Vol 30 (9-10) ◽  
pp. 1394-1402
Author(s):  
De Gong ◽  
Yingmin Wang ◽  
Lirong Zhong ◽  
Mengmeng Jia ◽  
Ting Liu ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Cross Sectional Study ◽  
Sectional Study ◽  
Cross Sectional ◽  
Cord Injury

scholarly journals Community reintegration and quality of life following spinal cord injury

Spinal Cord ◽  
1992 ◽  
Vol 30 (2) ◽  
pp. 108-112 ◽  
Author(s):  
M J DeVivo ◽  
J S Richards
Keyword(s):  
Quality Of Life ◽  
Spinal Cord ◽  
Spinal Cord Injury ◽  
Community Reintegration ◽  
Cord Injury
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