scholarly journals Reflections From Co-Researchers With Intellectual Disability: Benefits to Inclusion in a Research Study Team

2018 ◽  
Vol 56 (4) ◽  
pp. 251-262 ◽  
Author(s):  
Brittany St. John ◽  
Iulia Mihaila ◽  
Katelyn Dorrance ◽  
Leann Smith DaWalt ◽  
Karla K. Ausderau

Abstract Participatory action research methodologies may empower and protect marginalized individuals; however, they remain underutilized. Limited studies have investigated the impact of participatory action research, specifically on individuals with intellectual disability (ID). This study examines (1) the perspectives of co-researchers with ID on their involvement in the research process and (2) the feasibility of their inclusion based on perspectives of research staff (academic faculty and graduate students without ID). Three co-researchers with ID were interviewed regarding their research participation. Thematic analysis of interviews identified four themes: (1) Shared Experience of Disability, (2) Teaching and Guidance, (3) Acquisition of Skills and Knowledge, and (4) Value of Participation. Research staff reviewed field notes and identified benefits and challenges to feasibility of including co-researchers with ID. Inclusion of co-researchers with ID was found to be both meaningful and feasible.

2021 ◽  
Author(s):  
◽  
Duc Tran

<p>This research employed a Participatory Action Research methodology to work with minority inter-provincial students and unearth their lived experiences at the University of Danang in Vietnam. It focused on examining the undervaluation of inter-provincial students’ voices in the university’s policies – and to a wider extent, in most Vietnamese universities – by facilitating a process in which their challenges and ideas for change at university could be heard.  This research also sought to observe and analyse the influences of power dynamics within a Confucian-heritaged context on the participatory research process itself. Vietnam is believed to be a society in which hierarchical power takes its deepest roots due to the effects of Confucianism. By using Participatory Action Research with a variety of methods – photovoice, diagraming, group discussion, interviewing and exhibition – I sought to facilitate student voices and document some of the potential and constraints of the methodology within this cultural context.  The research involved eleven student participants and ten teacher participants over a period of six weeks. Data was collectively analysed and shared by student participants with invited teachers through an exhibition at the University of Danang. Throughout the process, I took extensive field notes of my observations and interactions with participants. Data analysis was then written and presented in this thesis based on what participants had provided. Key themes that this thesis explores are: (1) challenges that faced inter-provincial students, (2) the impact of Confucius hierarchical power on participants’ involvement and ownership in the research and (3) the role of language and emotion when undertaking Participatory Action Research in such a context.  The process generated clear evidence of the common challenges facing interprovincial students associated with limited finances, mentality/spirituality, and poor living conditions. From analysis of these challenges, the research provides recommendations for teachers, university administrators and policy-makers. These recommendations promote a more holistic pedagogy that better encourages students to develop themselves throughout their time at university.  The thesis also concludes that the use of Participatory Action Research within higher education settings in Vietnam can serve as a research model for the betterment of disadvantaged minority students. It could help minimise the effects of neoliberalism on the country’s higher education sector and foster better development outcomes for students and their home provinces.</p>


2021 ◽  
Author(s):  
◽  
Duc Tran

<p>This research employed a Participatory Action Research methodology to work with minority inter-provincial students and unearth their lived experiences at the University of Danang in Vietnam. It focused on examining the undervaluation of inter-provincial students’ voices in the university’s policies – and to a wider extent, in most Vietnamese universities – by facilitating a process in which their challenges and ideas for change at university could be heard.  This research also sought to observe and analyse the influences of power dynamics within a Confucian-heritaged context on the participatory research process itself. Vietnam is believed to be a society in which hierarchical power takes its deepest roots due to the effects of Confucianism. By using Participatory Action Research with a variety of methods – photovoice, diagraming, group discussion, interviewing and exhibition – I sought to facilitate student voices and document some of the potential and constraints of the methodology within this cultural context.  The research involved eleven student participants and ten teacher participants over a period of six weeks. Data was collectively analysed and shared by student participants with invited teachers through an exhibition at the University of Danang. Throughout the process, I took extensive field notes of my observations and interactions with participants. Data analysis was then written and presented in this thesis based on what participants had provided. Key themes that this thesis explores are: (1) challenges that faced inter-provincial students, (2) the impact of Confucius hierarchical power on participants’ involvement and ownership in the research and (3) the role of language and emotion when undertaking Participatory Action Research in such a context.  The process generated clear evidence of the common challenges facing interprovincial students associated with limited finances, mentality/spirituality, and poor living conditions. From analysis of these challenges, the research provides recommendations for teachers, university administrators and policy-makers. These recommendations promote a more holistic pedagogy that better encourages students to develop themselves throughout their time at university.  The thesis also concludes that the use of Participatory Action Research within higher education settings in Vietnam can serve as a research model for the betterment of disadvantaged minority students. It could help minimise the effects of neoliberalism on the country’s higher education sector and foster better development outcomes for students and their home provinces.</p>


2020 ◽  
pp. 1-21
Author(s):  
Elena Bendien ◽  
Barbara Groot ◽  
Tineke Abma

Abstract Participatory action research (PAR) advocates end-user involvement in various societal domains. This paper aims to identify and analyse impacts of PAR involving older persons as co-researchers, and how these impacts spread and are enhanced throughout the research process and after its completion. By impact we mean transformational change throughout and after a PAR study. We present a qualitative community-based research project involving older people who live in sparsely populated areas in the Netherlands, and explore three types of PAR impact: personal, interpersonal and community impacts. We demonstrate how these impacts unfold through expanding circles, from a personal to a community level, and how these circles enhance each other. The project was conducted by a PAR team consisting of one researcher and seven co-researchers. The data were collected from observations, interviews and minutes of meetings, which the team subsequently analysed. The results are presented as a narrative account, whereby four project stages are followed by reflection on the impact it made. The discussion addresses the circles of impact, and whether and how they can strengthen each other in community-based projects involving older people. The concluding remarks address the influence of group dynamics on PAR, whether frail older adults can be expected to take an active part in PAR projects and the extent to which the results from such community-based PAR projects can be generalised.


Author(s):  
Marjorie Mayo

Governments have supported popular education initiatives in the past. And so have community organisations and social movements. But the spaces for popular education have been shrinking in recent times, as part of the impact of neo-liberal globalisation. Public services have been increasingly subjected to pressures from market forces, pressures that have impacted on community-based education and lifelong learning. Despite these wider pressures, educators have continued to find spaces and places for popular education and participatory action research, however, working across sectors in a variety of contexts. The chapter includes examples of innovatory approaches in both formal settings and informal settings (such as libraries and community centres) including examples from both Northern and Southern American contexts.


Author(s):  
Lina Trigos-Carrillo ◽  
Laura Fonseca

Conducting critical community research during the COVID-19 pandemic has brought unexpected challenges to academic communities. In this chapter, the authors analyze the obstacles faced in a Critical Participatory Action Research (CPAR) education project with a rural community of former guerrilla members in the Amazon piedmont in Colombia. After this analysis, the authors present four CPAR principles to support critical community work during difficult times. The authors argue that communicative action, horizontal community participation in all the stages of the research process, time commitment, and the leverage of other competing needs should be guaranteed and maintained during times of crisis. CPAR offers opportunities to advocate better conditions for the most affected communities in moments of increasing inequality.


2004 ◽  
Vol 10 (3) ◽  
pp. 130 ◽  
Author(s):  
Komla Tsey ◽  
Mark Wenitong ◽  
Janya McCalman ◽  
Mary Whiteside ◽  
Leslie Baird ◽  
...  

Since 2001 a team of academic researchers and medical practitioners have been collaborating with Yarrabah Men?s Health Group leaders to implement a participatory action research (PAR) process designed to support the men to (in their own words) ?take their rightful place? in contemporary Australian society. The formative stages of the PAR process and progress over the first 12 months have been documented in previous papers in order to provide much needed direction for others interested in undertaking similar community action-oriented research (Tsey, Patterson, Whiteside, Baird, & Baird, 2002; Tsey et al., 2004). The present paper addresses the need for innovative evaluation methodologies to enable participants in the PAR process to monitor and reinforce the small improvement they are making towards achieving their goals, and to maintain their vision for the future. Participation in men?s group activities resulted in modest but significant change in the men?s personal development and growth and in their response to family responsibilities. Men had the opportunity to dialogue and reflect on their gender responsibilities such as housework, which constitutes a major source of conflict in the family. Several men also gained the confidence and motivation to stand for local government. The study highlights the value of demystifying and making research more relevant to people?s day-to-day living experiences.


2019 ◽  
Vol 51 (Supplement) ◽  
pp. 240
Author(s):  
Mary A. Kennedy ◽  
Robert U. Newton ◽  
Sara Bayes ◽  
Dennis R. Taaffe ◽  
Nigel Spry ◽  
...  

2021 ◽  
Vol 10 (1) ◽  
Author(s):  
Lulza Olim de Sousa ◽  
Emerentia Antoinette Hay ◽  
Schalk Petrus Raath ◽  
Aubrey Albertino Fransman ◽  
Barend Wilhelm Richter

This article reflects the learning of five researchers in higher education in South Africa who took part in a participatory action research project to educate teachers how to integrate climate change issues into their teaching and learning. It was the first time any of the researchers had used participatory action research. We are all from natural science backgrounds and now involved in education for sustainable development. We had been trained in more traditional, objective, and researcher-driven methodologies grounded in a positivist paradigm. The purpose of this article is to share our learning about the changes we had to make in our thinking and practices to align with a participatory paradigm. We used reflective diaries to record our journey through the action research cycles. A thematic analysis of our diaries was supplemented by recorded discussions between the researchers. The analysis revealed that, while it was challenging to begin thinking in a different paradigm, we came to appreciate the value of the action research process that enabled teachers to integrate climate change issues into their teaching in a participatory way. We also concluded that we require more development to be able to conduct participatory research in a manner true to its values and principles. The conclusions we came to through our collaborative reflections may be of value to other researchers from similar scientific backgrounds who wish to learn what shifts in paradigm, methods, and processes are needed to be able to conduct community-based research in a participatory way.


2011 ◽  
Vol 3 (2) ◽  
pp. 22-35 ◽  
Author(s):  
M. Brinton Lykes ◽  
Rachel M. Hershberg ◽  
Kalina M. Brabeck

An interdisciplinary participatory action research (PAR) project was designed in collaboration with local immigrant organizations to document the impact of deportation policy on Central American immigrant families living in the northeastern U.S. This paper reports on selected methodological challenges of university-based co-researchers in this community-university PAR process which is currently concluding its fourth year. The paper discusses the iterative action-reflection processes focusing on: (1) an overview of the PAR project and its multiple phases within the U.S. and in Guatemala; (2) select challenges and contributions of the PAR approach for participating immigrant families “living in the shadows” and, (3) methodological concerns from the three coauthors, who include a graduate student who joined the early stages of partnership-building; an assistant professor in the early stages of her career; and a senior scholar with many years of experience in activist scholarship. We conclude with thoughts on why, despite these challenges, PAR is “worth the trouble”.


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