National Cancer Registry. Significance of a reliable database in the implementation of the required structural changes of oncologic care in Hungary

2014 ◽  
Vol 155 (36) ◽  
pp. 1415-1420 ◽  
Author(s):  
Miklós Kásler ◽  
Szabolcs Ottó ◽  
Olimpia Sólyom
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Cancer Registry ◽  
Information Exchange ◽  
Structural Changes ◽  
Mortality And Morbidity ◽  
Cancer Data ◽  
National Cancer Registry ◽  
International Importance ◽  
History Of

The authors summarize the basic objectives and scope of the Hungarian Cancer Registry. They review more than 100-year history of the national cancer database and its effects on current cancer data collection activities, which is outstanding in Europe. The compilation deals with the development of information technology, covers points of principle and practical issues such as parallel display and evaluation of mortality and morbidity statistics and their national and international importance concerning public health. The authors underline that reliable data collection and services of the National Cancer Registry are important for the society because they are public health issues with a critical importance for a better understanding of risk factors, prevention and patient care. Restructuring and European harmonization of the Hungarian cancer system are inevitable using a reliable information exchange and service, taking into account national specificities and international requirements. Orv. Hetil., 2014, 155(36), 1415–1420.

scholarly journals Improving the usability and utilization of cancer registry data : the need to identify a core data set

2012 ◽  
Author(s):  
◽  
Iris Zachary
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Cancer Registry ◽  
Data Use ◽  
Cancer Registries ◽  
Cancer Surveillance ◽  
Registry Data ◽  
Data Standards ◽  
Cancer Data ◽  
Cancer Registry Data

Cancer registries in the US and Canada have a long history of data standards and data collection that have developed from a minimal dataset to the standard dataset that is used now. Central Cancer Registries (CCRs) are good resources for cancer data, but are often underutilized. CCRs are recognized for high quality data standards by the Centers for Disease Control and Prevention (CDC) National Program of Cancer Registries (NPCR) or the National Cancer Institute (NCI) Surveillance, Epidemiology, and End Results (SEER) Program and receive certification from the North American Association of Central Registries (NAACCR). Each year, there are many changes to the data that are collected in the cancer registry field. Standards, requirements, and medical knowledge change frequently. The changes in the data collection process cause interference and decrease in quality of data fields, but also delays in the timely collection of cancer registry data. The objective of this study is to identify what essentially needs to be collected and what can be collected optionally in a cancer registry. The goal is a robust dataset that can be used for other disease registries, cancer data surveillance, public health, and research. CCRs and Cancer Centers (CR) were surveyed to identify and describe the data items that are collected and needed to achieve a dataset that can serve cancer surveillance and research. The surveys were analyzed to identify overlaps of common and special interests, as well as barriers. The results showed that cancer registries have data available, but need to look at the timely release of a core dataset for use in cancer surveillance and research. The surveys also evaluated the barriers to data use from cancer registries and barriers for data use of collected datasets to identify the initial data request process. Data in the cancer registry are in a format that can easily be adopted by public health, surveillance, and research. The requesting process needs to be accessible, understandable, and streamlined to enable successful use of the data.

scholarly journals Trends in Leading Cancer Incidence among Iranian Women: Annual Cancer Registry Reports, 2003-2015

2021 ◽  
Author(s):  
Razieh Bidhendi-Yarandi ◽  
Mohammad Hossein Panahi
Keyword(s):  
Breast Cancer ◽  
Cancer Registry ◽  
Cancer Incidence ◽  
Breast Cancer Incidence ◽  
Iranian Women ◽  
Annual Percent Change ◽  
National Cancer Registry ◽  
Incidence Trends ◽  
History Of ◽  
Increasing Trends

Background: Cancer is one of the most important causes of death in the world and has an increasing trend globally. We aimed at investigating the five leading cancers in Iranian women based on a 10-year history of cancer registry reports and illustrating the trends in all cancer sites and breast cancer as the top leading one from 2003 to 2015. Methods: Data were obtained from national cancer registry study. Age-Specific Incidence Rate (ASR) data were obtained from Iran’s annual national cancer registry reports between 2003 to 2010 and 2014 to 2015. Using Joinpoint regression, we analyzed incidence trends over time for all cancer sites and the top leading cancer from 2003 to 2015. Results: Breast cancer was ranked first in Iranian women. Its ASR raised from 15.96 in 2003 to 32.63 in 2015. Results of trend analysis based on Annual Percent Change (APC) index showed 5.6 (95%CI: 2.9 to 8.3) and 4.6 (95%CI: 2.0 to 7.2) annual increase in the incidence of all cancer sites and breast cancer from 2003 to 2015, respectively. Conclusion: This study indicates significant increasing trends in all cancer sites and breast cancer incidence in Iran. Despite the national coverage of cancer registry over the past decade, more considerations should be taken into account, especially in Breast cancer.

Assessment of Mortality and Morbidity in Covid patients with Previous Pulmonary Pathology of SKZH/CMH

2021 ◽  
Vol 15 (11) ◽  
pp. 2954-2955
Author(s):  
Syed Sajid Ali Bukhari ◽  
Munazza Nazir ◽  
Sohail Khan Raja ◽  
Abdur Rehman ◽  
Muhammad Ashraf ul Islam ◽  
...  
Keyword(s):  
Cohort Study ◽  
Data Collection ◽  
Demographic Data ◽  
Laboratory Findings ◽  
Mortality And Morbidity ◽  
Duration Of Illness ◽  
Treatment Measures ◽  
History Of ◽  
Pulmonary Pathology ◽  
Underlying Diseases

Aim: To study the severity of symptoms, rates of mortality and morbidity in COVID patients with and without previous pulmonary pathology. Methodology: The cohort study consisted of 244 patients and nearly all the individuals had underlying diseases. Data collection forms included demographic data, medical history, history of exposure to infection, symptoms, signs, laboratory findings, HRCT results, treatment measures especially history of corticosteroid use, and duration of illness. Results: In 244 patients, 180 patients were having the pulmonary pathology and other 64 were having no pulmonary pathology. 77.2% (139/180) of the patients showed severe symptoms in the previous pulmonary pathology while 21.8% (10/64) showed severe symptoms in the group with no pulmonary pathology. 16.1% (29/180) patients died because of COVID and were also having pulmonary pathology. While 10.9% (7/64) patients died in the group having no pulmonary pathology. Conclusion: In this study, 16.1% patients died of COVID with pulmonary pathology. While 10.9% patients died having no pulmonary pathology. 77.2% of the patients showed severe symptoms with previous pulmonary pathology while 21.8% showed severe symptoms with no pulmonary pathology. Keywords: Covid-19, Mortality, morbidity

scholarly journals Evidence synthesis - The opioid crisis in Canada: a national perspective

2018 ◽  
Vol 38 (6) ◽  
pp. 224-233 ◽  
Author(s):  
Lisa Belzak ◽  
Jessica Halverson
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Evidence Synthesis ◽  
Health Agency ◽  
Current Evidence ◽  
Public Health Action ◽  
Mortality And Morbidity ◽  
Opioid Crisis ◽  
Potential Risk Factors ◽  
Reported Data

Introduction This review provides a national summary of what is currently known about the Canadian opioid crisis with respect to opioid-related deaths and harms and potential risk factors as of December 2017. Methods We reviewed all public-facing opioid-related surveillance or epidemiological reports published by provincial and territorial ministries of health and chief coroners’ or medical examiners’ offices. In addition, we reviewed publications from federal partners and reports and articles published prior to December 2017. We synthesized the evidence by comparing provincial and territorial opioid-related mortality and morbidity rates with the national rates to look for regional trends. Results The opioid crisis has affected every region of the country, although some jurisdictions have been impacted more than others. As of 2016, apparent opioid-related deaths and hospitalization rates were highest in the western provinces of British Columbia and Alberta and in both Yukon and the Northwest Territories. Nationally, most apparent opioid-related deaths occurred among males; individuals between 30 and 39 years of age accounted for the greatest proportion. Current evidence suggests regional age and sex differences with respect to health outcomes, especially when synthetic opioids are involved. However, differences between data collection methods and reporting requirements may impact the interpretation and comparability of reported data. Conclusion This report identifies gaps in evidence and areas for further investigation to improve our understanding of the national opioid crisis. The Public Health Agency of Canada will continue to work closely with the provinces, territories and national partners to further refine and standardize national data collection, conduct special studies and expand information-sharing to improve the evidence needed to inform public health action and prevent opioid-related deaths and harms.

scholarly journals Information Management in Cancer Registries: Evaluating the Needs for Cancer Data Collection and Cancer Research

2015 ◽  
Vol 7 (2) ◽  
Author(s):  
Iris Zachary ◽  
Suzanne A Boren ◽  
Eduardo Simoes ◽  
Jeannette Jackson-Thompson ◽  
J. Wade Davis ◽  
...  
Keyword(s):  
Public Health ◽  
Data Collection ◽  
Cancer Registry ◽  
Cancer Registries ◽  
Registry Data ◽  
Data Set ◽  
Common Data Elements ◽  
Cancer Registry Data ◽  
Treatment Data ◽  
Data Elements

Cancer registry data collection involves, at a minimum, collecting data on demographics, tumor characteristics, and treatment. A common, identified, and standardized set of data elements is needed to share data quickly and efficiently with consumers of this data. This project highlights the fact that, there is a need to develop common data elements; Surveys were developed for central cancer registries (CCRs) and cancer researchers (CRs) at NCI-designated Cancer Centers, in order to understand data needs. Survey questions were developed based on the project focus, an evaluation of the research registries and database responses, and systematic review of the literature. Questions covered the following topics: 1) Research, 2) Data collection, 3) Database/ repository, 4) Use of data, 5) Additional data items, 6) Data requests, 7) New data fields, and 8) Cancer registry data set. A review of the surveys indicates that all cancer registries’ data are used for public health surveillance, and 96% of the registries indicate the data are also used for research. Data are available online in interactive tables from over 50% of CRs and 87% of CCRs. Some other survey responses indicate that CCR treatment data are not complete for example treatment data, however cancer researchers are interested in treatment variables from CCRs. Cancer registries have many data available for review, but need to examine what data are needed and used by different entities. Cancer Registries can further enhance usage through collaborations and partnerships to connect common interests in the data by making registries visible and accessible.Keywords: Public Health; Disease Registries; Disease Reporting

scholarly journals Historical Evolution of the Malawi National Cancer Registry: A Collaborative Effort to Develop and Sustain an Impactful Cancer Control Resource in a Low-Income Country

2017 ◽  
Vol 3 (2_suppl) ◽  
pp. 3s-3s
Author(s):  
Steady Chasimpha ◽  
Marie-Josèphe Horner ◽  
Charles Dzamalala ◽  
Satish Gopal
Keyword(s):  
Cancer Registry ◽  
Low Income ◽  
Conflicts Of Interest ◽  
Cancer Control ◽  
Population Based ◽  
Cancer Registration ◽  
High Quality ◽  
Cancer Burden ◽  
Cancer Data ◽  
National Cancer Registry

Abstract 26 Background: Population-based cancer registration is essential to inform cancer control, yet high-quality cancer registration is absent in much of Africa. We undertook this work to initiate and sustain the Malawi National Cancer Registry (MNCR) to: collect high-quality, population-based cancer data to describe the national burden; inform national cancer control programs and policies; provide a rich national resource for epidemiologic cancer research; and develop collaborations with other partners to increase MNCR impact. Methods: MNCR began in 1989 as a hospital-based pathology registry in Blantyre, Malawi. A population-based component was introduced in 1993 that initially covered the Blantyre district with active case finding. By using this platform, regular national surveys were initiated in 2005 and are carried out every 5 years. Building on this surveillance program, MNCR has pursued collaborations with the Malawi HIV unit to conduct a national HIV-Cancer Match Study to assess the evolving cancer burden in the antiretroviral scale-up era. MNCR has also collaborated with other regional registries through the African Cancer Registry Network. Results: MNCR has published descriptions of the cancer burden in Malawi and is one of few African data sources to contribute to the WHO’s Cancer Incidence in Five Continents. Kaposi sarcoma and cervical cancer are the most common cancers in men and women, respectively. Approximately 93,000 records from MNCR and the two largest HIV cohorts in Malawi have been linked, with preliminary data demonstrating 3,499 cancers among 15,920 antiretroviral initiators in Lilongwe. MNCR has also contributed to regional studies that have described the high incidence and young age for esophageal cancer in Africa. Conclusion: We must continue to improve the quality and coverage of population-based cancer registration throughout Malawi, update the HIV-cancer record linkage at regular intervals, and pursue further opportunities for collaboration. AUTHORS' DISCLOSURES OF POTENTIAL CONFLICTS OF INTEREST No COIs from the authors.

The natural history of Leydig cell testicular tumours: an analysis of the National Cancer Registry

2017 ◽  
Vol 187 (2) ◽  
pp. 323-326 ◽  
Author(s):  
G. J. Nason ◽  
E. J. Redmond ◽  
S. W. Considine ◽  
S. I. Omer ◽  
D. Power ◽  
...  
Keyword(s):  
Natural History ◽  
Cancer Registry ◽  
Leydig Cell ◽  
Testicular Tumours ◽  
National Cancer Registry ◽  
History Of
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