The Lived Experience with Inclusive Education: A Case Study of a Teenager with Diabetes, His Mother, and His Teacher

2021 ◽  
Vol 10 (2) ◽  
pp. 183-220
Author(s):  
D. Sedlackova ◽  
J. Kantor
Keyword(s):  
Lived Experience ◽  
Peer Relationships ◽  
Inclusive Education ◽  
Secondary School Student ◽  
Diabetes Mellitus Type 1 ◽  
Educational Goals ◽  
Structured Interviews ◽  
Self Reflection ◽  
Teacher Data

The project aimed to understand the lived experience with inclusive education in the case of a secondary school student with diabetes mellitus type 1 (DM1), his mother and a teacher. Data collected by semi-structured interviews were analyzed by van Manen's thematic analyses of lived experience, whereas three significant themes were identified. Firstly, the quality of communication between school and parents; secondly, the level of empathy, understanding and helpfulness, and thirdly, collaboration between colleagues. Research shows the necessity to expand the education of teachers on the issue of special needs of learners with chronic diseases and extend the educational goals to psychological factors associated with their increased emotional burden. Mutual collaboration of all participants and self-reflection of teachers, supporting good peer relationships and positive school climate is essential.

scholarly journals Lived Experiences of Educational Leaders in Iranian Medical Education System: A Qualitative Study

2015 ◽  
Vol 8 (7) ◽  
pp. 251 ◽  
Author(s):  
Zohreh Sohrabi ◽  
Masoomeh Kheirkhah ◽  
Zohreh Vanaki ◽  
Kamran Soltani Arabshahi ◽  
Mohammad Mahdi Farshad ◽  
...  
Keyword(s):  
Medical Education ◽  
Content Analysis ◽  
Lived Experience ◽  
Interpersonal Relationship ◽  
Medical Science ◽  
Educational Leaders ◽  
Educational Systems ◽  
Structured Interviews ◽  
Vice Chancellors

<p><strong>INTRODUCTION: </strong>High quality educational systems are necessary for sustainable development and responding to the needs of society. In the recent decades, concerns have increased on the quality of education and competency of graduates. Since graduates of medical education are directly involved with the health of society, the quality of this system is of high importance. Investigation in the lived experience of educational leaders in the medical education systems can help to promote its quality. The present research examines this issue in Iran.</p><p><strong>METHODOLOGY:</strong> The study was done using content-analysis qualitative approach and semi-structured interviews. The participants included 26 authorities including university chancellors and vice-chancellors, ministry heads and deputies, deans of medical and basic sciences departments, education expert, graduates, and students of medical fields. Sampling was done using purposive snowball method. Data were analyzed using conventional content analysis.</p><p><strong>FINDINGS:</strong> Five main categories and 14 sub-categories were extracted from data analysis including: quantity-orientation, ambiguity in the trainings, unsuitable educational environment, personalization of the educational management, and ineffective interpersonal relationship. The final theme was identified as “Education in shadow”.</p><p><strong>CONCLUSION:</strong> Personalization and inclusion of personal preferences in management styles, lack of suitable grounds, ambiguity in the structure and process of education has pushed medical education toward shadows and it is not the first priority; this can lead to incompetency of medical science graduates.</p>

On the Lived Experience of Sex Offenders’ Therapists: Their Perceptions of Intrapersonal and Interpersonal Consequences and Patterns of Coping

2016 ◽  
Vol 34 (4) ◽  
pp. 848-872 ◽  
Author(s):  
Haneen Elias ◽  
Muhammad M. Haj-Yahia
Keyword(s):  
Sex Offenders ◽  
Lived Experience ◽  
Stress And Coping ◽  
Future Research ◽  
Structured Interviews ◽  
Coping Theory ◽  
Interpersonal Consequences ◽  
Therapeutic Encounter ◽  
And Coping

In the last two decades, there has been a growing understanding that the therapeutic encounter with sex offenders takes a cost and has consequences on therapists. Despite the increasing research on the consequences of treating sex offenders, these studies in fact, have merely described the consequences, without providing an outlook for how therapists cope with them. The study presented in this article was part of a larger qualitative research project conducted among social workers, using in-depth semi-structured interviews. Emphasis is placed on therapists’ perceptions of the intrapersonal and interpersonal consequences they experience from treating sex offenders, as well as the strategies they use to cope with these consequences. The study’s central findings concern the therapists’ perception of the intrapersonal consequences, which included two levels: primary responses and cumulative responses, and their perception of the interpersonal consequences that included their parenting relationships, intimate relationships, their attitude toward others (strangers and acquaintances), loss of their quality of life, and further positive consequences. The findings indicated a sequence and integrated use of the strategies to cope with the consequences. The results are discussed in light of the theoretical framework of Lazarus and Folkman’s stress and coping theory. The limitations of the study as well as its implications for future research are discussed.

scholarly journals Lived Experience of Patients Undergoing Hemodialysis: Quality of Life Perspective

2016 ◽  
Vol 3 (2) ◽  
Author(s):  
Mrs. Rohini. T ◽  
Dr. Punitha. V. Ezhilarasu
Keyword(s):  
Quality Of Life ◽  
Lived Experience ◽  
Structured Interviews ◽  
Van Manen ◽  
Related Quality ◽  
Health Related ◽  
Stage Renal Disease ◽  
End Stage ◽  
Esrd Patients

There is growing recognition of Health-Related Quality of Life (HRQOL) issues in End Stage Renal Disease (ESRD) patients undergoing Hemodialysis (HD). The aim of the present study was to explore the lived experience of Quality of Life (QOL) among patients undergoing Hemodialysis. The study involved a qualitative approach that used an interpretive hermeneutic phenomenology based on Van Manen’s method. The sample included seven patients undergoing Hemodialysis in two selected hospitals at Ernakulam district in Kerala. They were recruited by purposive sampling. Data were collected using semi-structured interviews. The thematic analysis followed the six steps delineated by Max Van Manen and four themes emerged. They were crestfallen life (3 sub themes; hard pressed life, deserted life and abounding losses); support and comfort; accompanying death and unfulfilled wishes. The findings shed light on the lived experience of QOL that has not yet been researched in an Indian scenario. The generated knowledge can be used by health professionals including nurses to help patients undergoing HD lead a life with better quality of life.

scholarly journals Guardians of Care Humanization during the Pandemic: Child Neuropsychiatry Residents’ Experience as Volunteers in Italian COVID-19-Designated Hospitals

2020 ◽  
Author(s):  
Livio Provenzi ◽  
Stefano Parravicini ◽  
Serena Barello ◽  
Tiziana Nania ◽  
Serena Grumi ◽  
...  
Keyword(s):  
Lived Experience ◽  
Northern Italy ◽  
Medical Residents ◽  
Epidemic Outbreak ◽  
Structured Interviews ◽  
Indirect Care ◽  
Specialty Education ◽  
Medical Volunteers ◽  
Voluntary Basis

Abstract Objective. During the first months of 2020, the coronavirus disease of 2019 (COVID-19) has rapidly spread as an unprecedented pandemic. With the increasing number of hospitalizations, the resources of medical and nursing personnel needed for the direct and indirect care of patients were soon inadequate. Consistently, medical volunteers became a key human resource and young medical residents in any specialty were hired on a voluntary basis to contribute to take care of patients with COVID-19. This study reports on the lived experience of residents in child neuropsychiatry who volunteered in Italian hotspot COVID-19-designated hospitals during the epidemic outbreak.Methods. A phenomenological, qualitative approach using semi-structured interviews with open-ended questions was used to obtain in-depth narratives of the experience of residents in child neuropsychiatry volunteering in the Italian hotspot COVID-19-designated hospitals. All residents (n=8) participated in the study. Interviews were conducted by an expert researcher trained in qualitative methods. Data analysis was performed by independent coders.Results. Five core themes were identified: Playing as a two-fold mediator, Facing the shock of COVID-19 reality, Capitalizing from the own specialty education, Growing as persons and professionals, and Humanizing medical care.Conclusions. This study is unique in providing an in-depth understanding of the experience of young residents in child neuropsychiatry volunteering in general hospitals during an unprecedented epidemic in Northern Italy. The findings suggest that this experience may be highly beneficial for both the residents and the hospital quality of care. Insights for accurate planning of residents’ engagement in future healthcare emergencies are provided.

scholarly journals Manajemen Mutu Pendidikan Anak Usia Dini Wijaya Kusuma Rejang Lebong

2020 ◽  
Vol 1 (2) ◽  
pp. 97
Author(s):  
Murni Yanto
Keyword(s):  
Work Group ◽  
Quality Of Services ◽  
Educational Goals ◽  
Educational Organizations ◽  
Structured Interviews ◽  
Childhood Education ◽  
Management Standards ◽  
Work Relationship ◽  
Data Collection Technique

This study aimed to discribe the application of management of Early Childoon Education in Wijaya Kusuma, jalan Suprapto, Talang Rimbo Baru, Curup Tengah District, Rejang Lebong Regency, Bengkulu. This tyfe of research is a qualitatifve descriptive study by taking a teacher at the wijaya Ealy Childhood Education Park Kusuma as the object of research. The data collection technique was carried out using structured interviews. The results showed that the Wijaya Kusuma Early Childhood Education Park had met management standards, namely (a) Planning, all institutational activities concerning what to do,where to do it,when it will be done, (b) Organization,planned to be compeleted by members of the work group, determining the work relationship between them and providing the appropriate work environment. (c) Direction,is the encouragement that will provide motivation in an organization. (d) Supervision to determine the realization of personnel behavior in educational organizations and whether the  level of attainment of educational goals is as desired. Supervision is carried out to collect data on the implementation of cooperation between tearhers, principals, counselors. (e) The quality of services provided to steakholders consisting of students, alumni and old school student.

Participation Versus Individual Support: Individual Goals and Curricular Access in Inclusive Special Needs Education

2017 ◽  
Vol 16 (2) ◽  
pp. 205-224 ◽  
Author(s):  
Ariane Paccaud ◽  
Reto Luder
Keyword(s):  
Inclusive Education ◽  
Goal Setting ◽  
Inclusive Classrooms ◽  
World Health ◽  
International Classification Of Functioning ◽  
Practical Implementation ◽  
Educational Systems ◽  
Educational Goals ◽  
Special Educational Needs

Following the recommendations and conventions of the United Nations on inclusion, many educational systems provide inclusive support for children with special educational needs (SEN) within mainstream classrooms. In this context, multiprofessional planning of inclusive support is crucial and individual educational plans (IEPs) are essential tools for professional implementation of inclusive education. IEP should at the same time provide suitable and achievable educational goals for individual learners with SEN as well as lead to adaptations in teaching methods, fostering participation and curricular access. These two functions are somewhat contradictory. Despite the importance of IEP for the inclusive support of children with SEN, its practical implementation has been often discussed and questioned, focusing on the quality of educational goals and on the curricular access of children with SEN.This article investigates goal setting in IEP for children with SEN in inclusive classrooms. Domain and quality of educational goals are analyzed as well as important factors influencing goal setting in IEP. Furthermore, the curricular access of children with SEN is focused.One hundred and twenty-five situations of children with SEN in inclusive classrooms in Switzerland were investigated using teacher questionnaires. Goals in IEPs were analyzed using categories from the International Classification of Functioning Disability and Health (World Health Education, 2007) and criteria for rating goal quality in IEP. Curricular access was investigated measuring the curricular distance of educational goals from the Swiss–French mainstream curriculum.Results indicate an average to low quality of the goals. Most goals concerned academic topics (56%), and two thirds of the children had goals corresponding to the curricular level. Therefore, the curricular access can be judged as quite good. On the other hand, the question of the right to follow the child’s own pace with adequate curricular adaptations stays under scrutiny.

Psychosocial distress in women diagnosed with gynecological cancer

2016 ◽  
Vol 23 (7) ◽  
pp. 893-904 ◽  
Author(s):  
Narelle Warren ◽  
Deirdre M Melrose ◽  
Joanne E Brooker ◽  
Sue Burney
Keyword(s):  
Quality Of Life ◽  
Social Support ◽  
Protective Factors ◽  
Lived Experience ◽  
Cancer Patients ◽  
Gynecological Cancer ◽  
Psychosocial Distress ◽  
Structured Interviews

Many women with gynecological cancer report psychosocial distress, and clarification of the risks, vulnerabilities, and protective factors is required. The aim of this study was to investigate the lived experience of gynecological cancer patients and to understand the factors that underlie psychosocial distress. Semi-structured interviews with seven women diagnosed with gynecological cancer revealed the role of social support, or its absence, selective withholding of information, and existential loneliness in women’s experience of distress. Social support provided a buffer against distress, while feelings of alienation and being alone exacerbated distress. Interventions to address these concerns may lead to improved quality of life for this patient group.

scholarly journals Exploring CBT therapists’ experience of feeling of safety within self-practice/self-reflection: an interpretative phenomenological analysis

2021 ◽  
Vol 14 ◽  
Author(s):  
Murray Mackenzie ◽  
James O’Mahony
Keyword(s):  
Lived Experience ◽  
Interpretative Phenomenological Analysis ◽  
Phenomenological Analysis ◽  
Future Research ◽  
List Type ◽  
Structured Interviews ◽  
Experiential Training ◽  
Self Reflection ◽  
Training Strategy ◽  
Group Members

Abstract Self-practice/self-reflection (SP/SR) is an experiential training strategy implemented to develop the skills of CBT therapists through the self-application of CBT techniques and subsequent reflection on the experience in relation to clinical practice. Outcome studies report significant personal and professional benefits from SP/SR but engagement studies suggest that CBT therapists’ experience is mixed. In order to inform the design and implementation of SP/SR within CBT, this study aims to explore CBT therapists’ experience of feeling of safety (FOS) within SP/SR. FOS has been identified as an important engagement factor. Three CBT therapists were interviewed using semi-structured interviews. The data, which took the form of verbatim transcripts, were subjected to interpretative phenomenological analysis. Four superordinate themes relating to participants’ experience of FOS within SP/SR emerged: FOS and its absence as embodied and non-verbal, role of the instructor, awareness of others and venturing beyond safety. Ensuing recommendations for instructors include proactive use of interventions within SP/SR which directly impact embodied FOS, monitoring the wellbeing and engagement of participants through awareness of physical cues and employment of measures designed to promote a sense of equality among group members. Areas of future research include exploration of factors which influence FOS, investigation of the effect on FOS of pre-existing relationships within the SP/SR group and review of interventions which are currently used by SP/SR instructors to promote FOS. Key learning aims (1) To explore the lived experience of FOS within SP/SR as experienced by CBT therapists. (2) To identify factors which influence CBT therapists’ experience of FOS within SP/SR. (3) To identify practical recommendations for use in SP/SR instruction which will promote participants’ FOS.

scholarly journals Threshold concepts in entrepreneurship – the entrepreneurs’ perspective

2018 ◽  
Vol 60 (2) ◽  
pp. 155-167 ◽  
Author(s):  
Lucy Hatt
Keyword(s):  
Higher Education ◽  
Lived Experience ◽  
Course Design ◽  
Subject Area ◽  
Threshold Concepts ◽  
Structured Interviews ◽  
Content Type ◽  
Pedagogical Innovations ◽  
Social Constructivist Approach

Purpose The purpose of this paper is to present research into the entrepreneurs’ perspective of concepts critical to thinking as an entrepreneur, in order to inform enterprise and entrepreneurship course design in higher education. Design/methodology/approach Taking a social constructivist approach, using a Delphi-style method, semi-structured interviews with entrepreneurs were conducted, transcribed, thematically coded and analysed, and a list of candidate threshold concepts was drawn up. Two rounds of Delphi were conducted with the entrepreneur panel and consensus was reached on a final collection of threshold concepts in entrepreneurship. Findings The threshold concepts identified are “I can create value” (or self-efficacy), “I see opportunities” (or opportunity), “I can manage risk” (or risk), “I know what’s important” (or focus) and “I take action” (or impact). Research limitations/implications Entrepreneurship is generally regarded as an important factor in economic growth, and higher education is an appropriate place for the development of entrepreneurship. However, there is a lack of consensus regarding how best to educate students for entrepreneurship in higher education or indeed what educating students for entrepreneurship really means. Identifying threshold concepts in entrepreneurship using the lived experience of entrepreneurs is likely to open up new and more effective approaches to teaching this multidisciplinary subject area. Originality/value This study contributes to the call for more research-grounded discussion on the quality of entrepreneurship education initiatives, particularly in relation to what makes pedagogical innovations effective by suggesting five entrepreneurship threshold concepts. These entrepreneurship threshold concepts can be used to set out a structure for the design and (re)development of enterprise and entrepreneurship curricula, as well as enabling more constructively aligned assessments.

scholarly journals “Living with a Stoma”: Exploring the Lived Experience of Patients with Permanent Colostomy

2021 ◽  
Vol 18 (16) ◽  
pp. 8512
Author(s):  
Areti Stavropoulou ◽  
Dimitrios Vlamakis ◽  
Evridiki Kaba ◽  
Ioannis Kalemikerakis ◽  
Maria Polikandrioti ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Lived Experience ◽  
Organizational Support ◽  
Traumatic Event ◽  
Depth Information ◽  
Structured Interviews ◽  
Interpretive Phenomenology ◽  
Permanent Colostomy ◽  
Significant Life

Introduction: Living with a permanent colostomy brings severe changes in patients’ lives. The general health status as well as the personal, social and professional life of patients are significantly affected. Aim: The aim of the present study was to investigate the lived experience of patients undergoing permanent colostomy. Material and Methods: A qualitative research design based on interpretive phenomenology was carried out. Semi-structured interviews were conducted as the data collection method to obtain in-depth information regarding the research topic. The study sample consisted of eight (8) patients who had undergone a permanent colostomy. The data analysis was performed by the method of content analysis. Results: From the analysis of the data, three main themes emerged, namely: (A) Experiencing a traumatic event; (B) Living a new reality; (C) Efforts to improve quality of life. Five subthemes were formulated which were encompassed within the respective main themes accordingly. Conclusion: Patients with permanent colostomy face significant life changes that are experienced in a traumatic way. Issues such as autonomy, family and organizational support, self-management and empowerment can significantly improve the patients’ quality of life. Further research, regarding caregivers’ experience, improved community nursing care as well as nurses’ views on the needs of colostomy patients and their families, is suggested.

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