scholarly journals Men’s view on participation in decisions about Prostate-Specific Antigen (PSA) screening: Patient and public involvement in development of a survey

2020 ◽  
Author(s):  
Søren Birkeland ◽  
Susanne S Pedersen ◽  
Anders K Haakonsson ◽  
Michael J Barry ◽  
Nina Rottmann
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Prostate Specific Antigen ◽  
Public Involvement ◽  
Specific Antigen ◽  
Patient And Public Involvement ◽  
Fine Tuning ◽  
Case Vignette ◽  
Psa Screening ◽  
Participation In Decision Making

Abstract Background: Prostate-Specific Antigen (PSA) screening for early detection of prostate cancer (PCa) may prevent some cancer deaths, but also may miss some cancers or lead to unnecessary and potentially harmful treatment. Therefore, involving patients in decision-making about PSA screening is recommended. However, we know little about the attitude of men regarding participation in decisions about PSA screening and how to assess such attitudes. The purpose of this paper is to describe patient and public participation in the development of a national, web-based case vignette survey for studying men’s view on participation in decision-making about PSA screening. Methods: The project group developed a first draft plan for the survey, its vignettes and choice of measurements. This included multiple vignette variants representing various levels of patient participation in decision-making about PSA screening with different outcomes. Additionally, it included questions on respondents’ satisfaction with imagined courses of health care, their propensity to initiate a malpractice complaint, their own health care experiences, socio-demography, personality, and preferences for control regarding health care decision-making. Following feedback from a workshop with academic peers on the draft plan, a group of 30 adult men was engaged to help develop case vignette versions and questionnaire items by providing feedback on structure, comprehension, response patterns, and time required to complete the survey. Furthermore, a panel of three patients with PCa experience was assembled to assist development through a separate review-and-feedback process. Results: Based on reviews of survey drafts, the large group made further suggestions about construction of the survey (e.g. clarification and modification of case vignette versions, deletion of items and adjustment of wording, instructions to guide respondents, replacement of technical terms, and optimization of sequence of survey elements). The patient panel ensured fine-tuning of vignette versions and questionnaire items and helped review the internet version of the survey. Conclusions: Patient and public involvement during various phases of the survey development helped to improve survey structure and content. The survey exemplifies a way to measure health care users’ satisfaction with imagined courses of health care and wish to complain, taking into account their characteristics.

scholarly journals Men’s view on participation in decisions about Prostate-Specific Antigen (PSA) screening: Patient and public involvement in development of a survey

2019 ◽  
Author(s):  
Søren Birkeland ◽  
Susanne S Pedersen ◽  
Anders K Haakonsson ◽  
Michael J Barry ◽  
Nina Rottmann
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Prostate Specific Antigen ◽  
Public Involvement ◽  
Specific Antigen ◽  
Patient And Public Involvement ◽  
Fine Tuning ◽  
Case Vignette ◽  
Psa Screening ◽  
Participation In Decision Making

Abstract Background: Prostate-Specific Antigen (PSA) screening for early detection of prostate cancer (PCa) may prevent some cancer deaths, but also may miss some cancers or lead to unnecessary and potentially harmful treatment. Therefore, involving patients in decision-making about PSA screening may be warranted. However, we know little about the views of men on their participation in decisions about PSA screening and how to assess such views. The purpose of this paper is to describe patient and public participation in the development of a national, web-based case vignette survey for studying men’s view on participation in decision-making about PSA screening. Methods: The survey includes multiple vignette variants representing various levels of patient participation in decision-making about PSA screening with different outcomes. Additionally, the survey includes questions on respondents’ satisfaction with imagined courses of health care, their propensity to initiate a malpractice complaint, their own health care experiences, socio-demography, personality, and preferences for control regarding health care decision-making. Following feedback from a workshop with academic peers on study aims and procedures, a group of 30 adult men was engaged to help develop case vignette versions and questionnaire items by providing feedback on structure, comprehension, response patterns, and time required to complete the survey. Furthermore, a panel of three patients with PCa experience was assembled to assist development through a separate review-and-feedback process. Results: Based on reviews of survey drafts, the large group made further suggestions about construction of the survey (e.g. clarification and modification of case vignette versions, deletion of items and adjustment of wording, changes of instructions to guide respondents, replacement of technical terms, and optimization of sequence of survey elements). The patient panel ensured fine-tuning of vignette versions and questionnaire items and helped review the internet version of the survey. Conclusions: Patient and public involvement during various phases of the survey development helped to improve survey structure and content. The survey exemplifies a way to measure health care users’ satisfaction with imagined courses of health care and wish to complain, taking into account their characteristics.

scholarly journals Men’s view on participation in decisions about Prostate-Specific Antigen (PSA) screening: Patient and public involvement in development of a survey

2020 ◽  
Author(s):  
Søren Birkeland ◽  
Susanne S Pedersen ◽  
Anders K Haakonsson ◽  
Michael J Barry ◽  
Nina Rottmann
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Prostate Specific Antigen ◽  
Public Involvement ◽  
Specific Antigen ◽  
Patient And Public Involvement ◽  
Fine Tuning ◽  
Case Vignette ◽  
Psa Screening ◽  
Participation In Decision Making

Abstract Background: Prostate-Specific Antigen (PSA) screening for early detection of prostate cancer (PCa) may prevent some cancer deaths, but also may miss some cancers or lead to unnecessary and potentially harmful treatment. Therefore, involving patients in decision-making about PSA screening is recommended. However, we know little about the attitude of men regarding participation in decisions about PSA screening and how to assess such attitudes. The purpose of this paper is to describe patient and public participation in the development of a national, web-based case vignette survey for studying men’s view on participation in decision-making about PSA screening. Methods: The project group developed a first draft plan for the survey, its vignettes and choice of measurements. This included multiple vignette variants representing various levels of patient participation in decision-making about PSA screening with different outcomes. Additionally, it included questions on respondents’ satisfaction with imagined courses of health care, their propensity to initiate a malpractice complaint, their own health care experiences, socio-demography, personality, and preferences for control regarding health care decision-making. Following feedback from a workshop with academic peers on the draft plan, a group of 30 adult men was engaged to help develop case vignette versions and questionnaire items by providing feedback on structure, comprehension, response patterns, and time required to complete the survey. Furthermore, a panel of three patients with PCa experience was assembled to assist development through a separate review-and-feedback process. Results: Based on reviews of survey drafts, the large group made further suggestions about construction of the survey (e.g. clarification and modification of case vignette versions, deletion of items and adjustment of wording, instructions to guide respondents, replacement of technical terms, and optimization of sequence of survey elements). The patient panel ensured fine-tuning of vignette versions and questionnaire items and helped review the internet version of the survey. Conclusions: Patient and public involvement during various phases of the survey development helped modify and refine survey structure and content. The survey exemplifies a way to measure health care users’ satisfaction with imagined courses of health care and wish to complain, taking into account their characteristics.

Health technology assessment and priority setting for health policy in Sweden

2004 ◽  
Vol 20 (1) ◽  
pp. 44-54 ◽  
Author(s):  
Per Carlsson
Keyword(s):  
Health Care ◽  
Decision Making ◽  
Health Technology Assessment ◽  
Priority Setting ◽  
Technology Assessment ◽  
Health Care Services ◽  
Public Involvement ◽  
Health Technology ◽  
Patient And Public Involvement ◽  
Care Services

This article describes the development of health technology assessment (HTA) in Sweden, its influence on decision making, and its link with priority setting. Sweden has a well established governmental HTA body, the Swedish Council on Technology Assessment in Health Care (SBU), and an increasing number of regional/local HTA organizations. HTA has had an impact on clinical practice and is used to some extent in policy decisions. Several initiatives have now been taken to develop processes for open priority setting of health-care services. With the establishment of a new agency to undertake reimbursement decisions on pharmaceuticals, and greater patient and public involvement in decision making, it seems inevitable that HTA will play a more important role in priority setting in the near future.

Does Prostate-Specific Antigen Density Alter Decision Making on Biopsy?

1996 ◽  
Vol 29 (1) ◽  
pp. 10-14 ◽  
Author(s):  
Ruud Vleeming ◽  
Anton J.M. de Craen ◽  
Theo M. de Reijke ◽  
George van Andel ◽  
Karl-Heinz Kurth
Keyword(s):  
Decision Making ◽  
Prostate Specific Antigen ◽  
Specific Antigen ◽  
Prostate Specific Antigen Density

Prostate-specific antigen testing in the disabled population: A cross-sectional analysis of the Health Information National Trends Survey (HINTS).

2021 ◽  
Vol 39 (15_suppl) ◽  
pp. e17000-e17000
Author(s):  
Joon Yau Leong ◽  
Ruben Pinkhasov ◽  
Thenappan Chandrasekar ◽  
Oleg Shapiro ◽  
Michael Daneshvar ◽  
...  
Keyword(s):  
Health Insurance ◽  
Health Information ◽  
Prostate Specific Antigen ◽  
Healthcare Provider ◽  
Specific Antigen ◽  
Cross Sectional ◽  
Psa Screening ◽  
Psa Testing ◽  
The Usa ◽  
National Trends

e17000 Background: Disabled patients are a unique minority population that may have lower literacy levels and difficulty communicating with physicians. Furthermore, their knowledge for cancer prevention recommendations is unknown. Herein, we aim to compare prostate-specific antigen (PSA) testing rates and associated predictors among disabled men and non-disabled men in the USA. Methods: We performed a cross-sectional study utilizing the Health Information National Trends Survey (HINTS) to analyze factors predicting PSA testing rates in men with disabilities (disabled, deaf, blind). Multivariable logistic regression models were used to determine clinically significant predictors of PSA testing in men with disabilities compared to that of the healthy cohort. Results: A total of 782 (14.6%) disabled men were compared to 4,569 (85.4%) non-disabled men. Disabled men were older with a mean age of 65.0 ± 14.2 vs. 55.0 ± 15.9 years (p < 0.001). On multivariable analysis, after adjusting for all available confounders including race, age, geographical region, survey year, marital status, health insurance, healthcare provider, amongst others, men with any disability were less likely to undergo PSA screening (OR 0.772, 95% CI 0.623-0.956, p = 0.018). Variables associated with increased PSA screening rates included age, having a healthcare provider or health insurance, and living with a partner. Although prostate cancer detection rates were shown to be higher among disabled men, this did not reach statistical significance. Conclusions: Our data suggests that significant inequalities in PSA screening exist among men with disabilities in the USA, with disabled men, especially the deaf and the blind, being less likely to be offered PSA screening. There is a clear need to implement strategies to reduce existing gaps in the care of disabled men and strive to reach equality in PSA screening in this unique population.

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