Mothers’ Experiences of Wellbeing and Coping While Living with Rheumatoid Arthritis: A Qualitative Study

Author(s):  
Chloe Parton ◽  
Jane M. Ussher ◽  
Janette Perz

Abstract Background Rheumatoid arthritis (RA) can result in difficulties for mothers when undertaking daily care activities and increased psychological distress. However, few studies have examined how women with RA subjectively experience coping and wellbeing as part of their motherhood. Methods Twenty mothers with a diagnosis of RA and a dependent child (18 years or younger) who were living in Australia took part in a semi-structured interview between June and November 2017. Purposive sampling was undertaken to include participants across degree of current RA severity, number and age of children, and having received a diagnosis before or after a first child to take account of variability across these experiences. A qualitative thematic analysis was conducted on the interview transcripts. Results The following themes were identified: ‘Burden and complexity in the mothering role’, ‘Losing control: Women’s experiences of distress’, and ‘Adjusting and letting go: Women’s experiences of wellbeing’. Experiences of distress, including feelings of failure, were associated with accounts of a loss of control over mothering practices among women, regardless of child age. In contrast, accounts of adjusting mothering practices and relinquishing control were associated with reports of enhanced wellbeing. In addition, some mothers reported greater ease due to increased independence of older children. The absence of social support exacerbated burden and distress in the women’s accounts, while the availability of support alleviated burden and was associated with reports of wellbeing. Conclusion Health professionals and services can provide support to mothers with RA by addressing feelings of failure, acknowledging strategies of adjustment and letting go, and encouraging access to social support.

2014 ◽  
Vol 4 (3) ◽  
pp. 183-190 ◽  
Author(s):  
Astrid Nystedt ◽  
Lisbeth Kristiansen ◽  
Kerstin Ehrenstråle ◽  
Ingegerd Hildingsson

BACKGROUND: Caregivers need to better understand women’s experiences of support during childbirth because research suggests that social support positively influences childbirth.AIM: This study describes women’s experiences of support given by caregivers during pregnancy and childbirth.METHOD: The study design was inspired by grounded theory. Seven interviews of women were analyzed with an open coding, and different time-related categories related to the childbirth process emerged. The categories were marked by fear and a negative birth experience, being guided on own terms, feel supported, and transformation into courage to give birth. The analysis continued with a selective coding, reflecting the process of mistrust to trust in caregivers.FINDINGS: The mistrust in caregivers began with feelings of fear of birth and a negative birth experience. Through being guided on own terms and feeling supported by the caregivers, a trusting relationship could be established. If the trusting relationship continued during labor, then a woman could transform the fear of birth into the courage to give birth.CONCLUSIONS: Women’s experience of support can be seen as a product of earlier experiences from interactions with caregivers. Therefore, caregivers must be sensitive to the potential power and far-reaching consequences their actions can have.


2003 ◽  
Vol 73 (1) ◽  
pp. 104-113 ◽  
Author(s):  
Vesna Nikolic-Ristanovic

In this paper, I explore the experiences of women who found refuge in Serbia during the war in the former Yugoslavia. I look at the women's experiences of both leaving home and coping with everyday life in refuge. The exploration of refugee women's experiences is mainly based on analyses of their own stories, which I collected while researching women and war. In spite of all the hardship of their lives, refugee women who fled to Serbia have been treated by Western media, the public and aid organizations as ‘UNPEOPLE’ or as non-existent. Making their experiences visible as women, refugees and citizens is the main purpose of this article.


Author(s):  
Rabia Ali ◽  
Ume Habiba ◽  
Hazir Ullah

In Pakistan there are unique socio-cultural factors that contribute to women’s experiences of pregnancy and childbirth. This study explores Pakistani women’s experiences of pregnancy and childbirth an area that remains under researched in the country. Qualitative research was employed for data collection by using an un-structured interview guide. The informants included twelve women who had recently been through the childbirth process for the first and second time. The collected data reveals that women were unaware of the use of multi vitamins during pregnancy. They delayed physical check-ups with a gynaecologist. Women encountered challenges at work during pregnancy and encountered work family conflict after childbirth. Support from intimate relations including husbands and in-laws were reported by the respondents. Attitude of colleagues at work was not always positive during pregnancy. The working women reported being overburdened at work. It is suggested that women friendly policies are required for working women giving birth. Facilities including rest rooms, medical centres need to be provided to the women at work. Women need to be educated about the importance of health care during pregnancy.


2020 ◽  
Author(s):  
PATRICK ICEANYI PILLI ◽  
Peter Sekweyama ◽  
Anthony Kayira

Abstract Background Women who undergo emergency peripartum hysterectomy (EPH) are at greater risk of experiencing severe negative psychosocial sequelae. However at St. Francis Hospital Nsambya and much of Sub-Saharan Africa, these women are not routinely followed up to explore these experiences. This study sought to explore women’s experiences and coping strategies following EPH St. Francis Hospital Nsambya, Kampala, Uganda. Methods This qualitative study was based on in-depth interviews of women who had undergone EPH at St. Francis Hospital Nsambya EPH between January 2015 to August 2018. Out of 66 women who had undergone EPH during this period, 18 were purposively selected and interviewed between August to December 20018. All the information obtained was audio-recorded, transcribed and then analyzed in three phases of pre-analysis of intense reading, exploration and comparison and then interpretation. Results These women disclosed feelings of loss of womanhood, Uncertainty about the future, Joy for being Alive, and professional abandonment. Their coping strategies were living in denial, believing in God and acceptance. Conclusion Women experience severe negative psychosocial sequelae following EPH therefore routine ongoing psychotherapy should be offered to these women until full acceptance is achieved.


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