Effects of a parent education program on special education related services on parenting efficiency, family empowerment, and family quality of life in parents of young children with developmental delay

2016 ◽  
Vol 16 (1) ◽  
pp. 89-108
Author(s):  
Seo Hyung Jung ◽  
◽  
Jiyeon Park ◽  
Keyword(s):  
Quality Of Life ◽  
Special Education ◽  
Young Children ◽  
Developmental Delay ◽  
Parent Education ◽  
Education Program ◽  
Family Quality Of Life ◽  
Related Services ◽  
Family Empowerment

Confirmatory Factor Analysis of a Family Quality of Life Scale for Taiwanese Families of Children With Intellectual Disability/Developmental Delay

2017 ◽  
Vol 55 (2) ◽  
pp. 57-71 ◽  
Author(s):  
Chun-Yu Chiu ◽  
Hyojeong Seo ◽  
Ann P. Turnbull ◽  
Jean Ann Summers
Keyword(s):  
Quality Of Life ◽  
Intellectual Disability ◽  
Developmental Delay ◽  
Reliability And Validity ◽  
Family Quality Of Life ◽  
Family Outcomes ◽  
Quality Of Life Scale ◽  
Confirmatory Factor ◽  
Life Scale

Abstract The Beach Center Family Quality of Life Scale is an internationally validated instrument for measuring family outcomes. To revise the scale for better alignment with the Family Quality of Life theory, the authors excluded non-outcome items in this revision. In this study, we examined reliability and validity of the revised scale (i.e., the FQoL Scale-21) and its scores for Taiwanese families of children and youth with intellectual disability and developmental delay (age 0–18). Results from 400 Taiwanese respondents suggested that the FQoL Scale-21 has the potential to be used as an indicator of positive outcomes in intervention evaluation, policy making, and service delivery.

scholarly journals Eczema Education Program improves pediatric atopic dermatitis control and family quality of life

2021 ◽  
Vol 147 (2) ◽  
pp. AB36
Author(s):  
Thomas Rawliuk ◽  
Shannon Deane ◽  
Shauna Filuk ◽  
Jo-Anne St. Vincent ◽  
Allan Becker ◽  
...  
Keyword(s):  
Quality Of Life ◽  
Atopic Dermatitis ◽  
Education Program ◽  
Family Quality Of Life

Family Environment, Sibling Relationship and Rivalry towards Quality of Life

2016 ◽  
Vol 1 (3) ◽  
Author(s):  
Rugayah Hashim ◽  
Hashim Ahmad
Keyword(s):  
Quality Of Life ◽  
Family Environment ◽  
Quantitative Research ◽  
Publishing House ◽  
Sibling Rivalry ◽  
Sibling Relationship ◽  
Family Quality Of Life ◽  
Research Approach ◽  
Economic Developments

Kinship, family composition and household dynamics among siblings are developed positively or negatively in early life right through adulthood. Hence, the purpose of this paper is highlight the importance of family environment in influencing sibling relationship, with emphasis on sibling rivalry. Determining the factors that contribute towards sibling competition is important in counselling and assisting individuals with family issues. From a quantitative research approach, the findings showed that sibling relationships are problematic and has led to jealousies and prejudices especially if parents take sides. Family ties depend on happy sibling interactions which indirectly affects socio-economic developments as social ills are resolved. In ameliorating these private and sensitive issues among family members, the holistic society will benefit psychologically and happiness as well as a better quality of life will be attained.© 2016. The Authors. Published for AMER ABRA by e-International Publishing House, Ltd., UK. Peer–review under responsibility of AMER (Association of Malaysian Environment-Behaviour Researchers), ABRA (Association of Behavioural Researchers on Asians) and cE-Bs (Centre for Environment-Behaviour Studies, Faculty of Architecture, Planning & Surveying, Universiti Teknologi MARA, Malaysia.Keywords: Sibling rivalry; family; quality of life; socio-economic impact

scholarly journals Family reported outcomes, an unmet need in the management of a patient's disease: appraisal of the literature

2021 ◽  
Vol 19 (1) ◽  
Author(s):  
R. Shah ◽  
F. M. Ali ◽  
A. Y. Finlay ◽  
M. S. Salek
Keyword(s):  
Quality Of Life ◽  
Family Members ◽  
Unmet Need ◽  
Reliability And Validity ◽  
Chronic Health Condition ◽  
Family Quality Of Life ◽  
Good Reliability ◽  
Huge Impact ◽  
The Impact

Abstract Background A person’s chronic health condition or disability can have a huge impact on the quality of life (QoL) of the whole family, but this important impact is often ignored. This literature review aims to understand the impact of patients' disease on family members across all medical specialities, and appraise existing generic and disease-specific family quality of life (QoL) measures. Methods The databases Medline, EMBASE, CINHAL, ASSIA, PsycINFO and Scopus were searched for original articles in English measuring the impact of health conditions on patients' family members/partner using a valid instrument. Results Of 114 articles screened, 86 met the inclusion criteria. They explored the impact of a relative's disease on 14,661 family members, mostly 'parents' or 'mothers', using 50 different instruments across 18 specialities including neurology, oncology and dermatology, in 33 countries including the USA, China and Australia. These studies revealed a huge impact of patients' illness on family members. An appraisal of family QoL instruments identified 48 instruments, 42 disease/speciality specific and six generic measures. Five of the six generics are aimed at carers of children, people with disability or restricted to chronic disease. The only generic instrument that measures the impact of any condition on family members across all specialities is the Family Reported Outcome Measure (FROM-16). Although most instruments demonstrated good reliability and validity, only 11 reported responsiveness and only one reported the minimal clinically important difference. Conclusions Family members' QoL is greatly impacted by a relative's condition. To support family members, there is a need for a generic tool that offers flexibility and brevity for use in clinical settings across all areas of medicine. FROM-16 could be the tool of choice, provided its robustness is demonstrated with further validation of its psychometric properties.

Sign in / Sign up

Export Citation Format

Share Document