scholarly journals Refinement of a Parent-Child Shared Asthma Management mHealth App: Human Centered Design Study (Preprint)

10.2196/34117 ◽  
2021 ◽  
Author(s):  
Jennifer Sonney ◽  
Emily (Enubi) Cho ◽  
Qiming Zheng ◽  
Julie A. Kientz
2021 ◽  
Author(s):  
Jennifer Sonney ◽  
Emily (Enubi) Cho ◽  
Qiming Zheng ◽  
Julie A. Kientz

BACKGROUND The school-age years, approximately ages seven through eleven, represent a natural transition when children begin assuming some responsibility for their asthma management. Previously, we designed a theoretically-derived, tailored parent-child shared asthma management mHealth application (app), Improving Asthma Care Together (IMPACT). OBJECTIVE The purpose of this study was to use human centered design (HCD) to refine IMPACT to ensure that a developmentally appropriate, engaging app emerged. METHODS This study used a mixed methods design from December 2019 through April 2021. Our app refinement used the HCD process of research, ideation, design, evaluation, and implementation, including six cycles of design and evaluation. The design and evaluation cycles focused on core app functionality, child engagement, and overall refinement. Evaluation with parent-child dyads entailed in-person and remote concept testing and usability testing sessions, after which rapid cycle thematic analyses identified key insights that informed future design refinement. RESULTS Twelve parent-child dyads enrolled in at least one round of this study. Eight of the 12 child participants were male with a mean age of 9.9 + 1.6 years and all parent participants were female. Throughout evaluation cycles, dyads selected preferred app layouts, gamification concepts, and overall features with a final design prototype emerging for full-scale development and implementation. CONCLUSIONS A theoretically-derived, evidence-based shared asthma management app was co-designed with end users to address real-world pain points and priorities. An eight-week pilot testing app feasibility, acceptability, and preliminary efficacy is forthcoming.


10.2196/15295 ◽  
2020 ◽  
Vol 4 (7) ◽  
pp. e15295 ◽  
Author(s):  
Michelle Nichols ◽  
Sarah Miller ◽  
Frank Treiber ◽  
Kenneth Ruggiero ◽  
Erin Dawley ◽  
...  

Background Asthma is a common chronic pediatric disease that can negatively impact children and families. Self-management strategies are challenging to adopt but critical for achieving positive outcomes. Mobile health technology may facilitate self-management of pediatric asthma, especially as adolescents mature and assume responsibility for their disease. Objective This study aimed to explore the perceptions of youths with high-risk asthma and their caregivers on the use of a smartphone app, Smartphone Asthma Management System, in the prevention and treatment of asthma symptoms, possible use of the app to improve self-management of asthma outside traditional clinical settings, and the impact of asthma on everyday life to identify potential needs for future intervention development. Methods Key informant interviews were completed with parent-child dyads post participation in an asthma management feasibility intervention study to explore the perceptions of users on a smartphone app designed to monitor symptoms and medication use and offer synchronous and asynchronous provider encounters. A thematic qualitative analysis was conducted inductively through emergent findings and deductively based on the self-determination theory (SDT), identifying 4 major themes. Results A total of 19 parent-child dyads completed the postintervention interviews. The major themes identified included autonomy, competence, relatedness, and the impact of asthma on life. The participants also shared their perceptions of the benefits and challenges associated with using the app and in the self-management of asthma. Both children and parents conveyed a preference for using technology to facilitate medication and disease management, and children demonstrated a strong willingness and ability to actively engage in their care. Conclusions Our study included support for the app and demonstrated the feasibility of enhancing the self-management of asthma by youth in the community. Participant feedback led to intervention refinement and app improvements, and the use of the SDT allowed insight into motivational drivers of behavioral change. The use of mobile apps among high-risk children with asthma and their parents shows promise in improving self-management, medication adherence, and disease awareness and in reducing overall disease morbidity.


2018 ◽  
Vol 5 (1) ◽  
pp. e10 ◽  
Author(s):  
Nienke Elske Dijkstra ◽  
Carolina Geertruida Maria Sino ◽  
Eibert Rob Heerdink ◽  
Marieke Joanna Schuurmans

2020 ◽  
Author(s):  
Robert W. S. Coulter ◽  
Shannon Mitchell ◽  
Kelly Prangley ◽  
Seth Smallwood ◽  
Leyna Bonanno ◽  
...  

BACKGROUND Sexual and gender minority youth (SGMY; e.g., lesbian, gay, bisexual, and transgender youth) are at greater risk than their cisgender heterosexual peers for adolescent relationship abuse (ARA; physical, sexual, or psychological abuse in a romantic relationship). However, there is a death of efficacious interventions for reducing ARA among SGMY. To address this intervention gap, we designed a novel online methodology leveraging the field of human-centered design to have SGMY generate multiple ARA intervention concepts. OBJECTIVE This protocol paper aims to describe study procedures for a pilot study to rigorously test the feasibility, acceptability, and appropriateness for using online human-centered design methods with SGMY to create novel, stakeholder-driven ARA intervention concepts. METHODS We are conducting a longitudinal online human-centered design study with 45-60 SGMY (aged 14-18) recruited via social media from across the U.S. Using MURAL (a collaborative visual online workspace) and Zoom, SGMY participate in 4 group-based sessions (1.5 hours each). In Session 1, SGMY use Rose-Thorn-Bud to individually document their ideas about healthy and unhealthy relationship characteristics, and then use Affinity Clustering as a group to categorize their self-reported ideas by similarities and differences. In Session 2, SGMY use Rose-Thorn-Bud to individually critique a universal evidence-based intervention reducing ARA, and Affinity Clustering to aggregate their ideas as a group. In Session 3, SGMY use a Creative Matrix to generate intervention ideas for reducing ARA among SGMY, and force-ranked the intervention ideas based on their potential ease of implementation and potential impact using an Importance-Difficulty Matrix. In Session 4, SGMY generate and refine intervention concepts (from Session 3 ideations) for reducing ARA using Round Robin (for rapid iteration) and Concept Poster (for fleshing out ideas more fully). We will use content analyses to document the intervention concepts. In a follow-up survey, SGMY complete validated measures about the feasibility, acceptability, and appropriateness of the online human-centered design methods (a priori benchmarks for success: means>3.75 on each 5-point scale). RESULTS The study was funded in February 2020. Data collection started in August 2020, and will be completed by April 2021. CONCLUSIONS By rigorously testing the feasibility of our online human-centered design methodology, our study has the potential to help legitimize the use of human-centered design methods to engage hard-toreach stakeholders in the field of public health and to actively involve them in the co-creation of interventions that may impact them directly. Successful completion of this project also has the potential to catalyze intervention research for addressing ARA inequities for SGMY. Finally, our method can be transported to other populations and health topics, thereby more generally advancing prevention science and health equity.


2019 ◽  
Author(s):  
Michelle Nichols ◽  
Sarah Miller ◽  
Frank Treiber ◽  
Kenneth Ruggiero ◽  
Erin Dawley ◽  
...  

BACKGROUND Asthma is a common chronic pediatric disease that can negatively impact children and families. Self-management strategies are challenging to adopt but critical for achieving positive outcomes. Mobile health technology may facilitate self-management of pediatric asthma, especially as adolescents mature and assume responsibility for their disease. OBJECTIVE This study aimed to explore the perceptions of youths with high-risk asthma and their caregivers on the use of a smartphone app, Smartphone Asthma Management System, in the prevention and treatment of asthma symptoms, possible use of the app to improve self-management of asthma outside traditional clinical settings, and the impact of asthma on everyday life to identify potential needs for future intervention development. METHODS Key informant interviews were completed with parent-child dyads post participation in an asthma management feasibility intervention study to explore the perceptions of users on a smartphone app designed to monitor symptoms and medication use and offer synchronous and asynchronous provider encounters. A thematic qualitative analysis was conducted inductively through emergent findings and deductively based on the self-determination theory (SDT), identifying 4 major themes. RESULTS A total of 19 parent-child dyads completed the postintervention interviews. The major themes identified included autonomy, competence, relatedness, and the impact of asthma on life. The participants also shared their perceptions of the benefits and challenges associated with using the app and in the self-management of asthma. Both children and parents conveyed a preference for using technology to facilitate medication and disease management, and children demonstrated a strong willingness and ability to actively engage in their care. CONCLUSIONS Our study included support for the app and demonstrated the feasibility of enhancing the self-management of asthma by youth in the community. Participant feedback led to intervention refinement and app improvements, and the use of the SDT allowed insight into motivational drivers of behavioral change. The use of mobile apps among high-risk children with asthma and their parents shows promise in improving self-management, medication adherence, and disease awareness and in reducing overall disease morbidity.


2017 ◽  
Vol 5 (5) ◽  
pp. e71 ◽  
Author(s):  
Richard Harte ◽  
Leo R Quinlan ◽  
Liam Glynn ◽  
Alejandro Rodríguez-Molinero ◽  
Paul MA Baker ◽  
...  

2017 ◽  
Vol 20 (sup1) ◽  
pp. S2348-S2362 ◽  
Author(s):  
Gina A Taylor ◽  
Deana McDonagh ◽  
Michael J Hansen

2019 ◽  
Vol 62 (9) ◽  
pp. 3397-3412
Author(s):  
Michelle I. Brown ◽  
David Trembath ◽  
Marleen F. Westerveld ◽  
Gail T. Gillon

Purpose This pilot study explored the effectiveness of an early storybook reading (ESR) intervention for parents with babies with hearing loss (HL) for improving (a) parents' book selection skills, (b) parent–child eye contact, and (c) parent–child turn-taking. Advancing research into ESR, this study examined whether the benefits from an ESR intervention reported for babies without HL were also observed in babies with HL. Method Four mother–baby dyads participated in a multiple baseline single-case experimental design across behaviors. Treatment effects for parents' book selection skills, parent–child eye contact, and parent–child turn-taking were examined using visual analysis and Tau-U analysis. Results Statistically significant increases, with large to very large effect sizes, were observed for all 4 participants for parent–child eye contact and parent–child turn-taking. Limited improvements with ceiling effects were observed for parents' book selection skills. Conclusion The findings provide preliminary evidence for the effectiveness of an ESR intervention for babies with HL for promoting parent–child interactions through eye contact and turn-taking.


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