scholarly journals Patient and Parent Perspectives on Improving Pediatric Asthma Self-Management Through a Mobile Health Intervention: Pilot Study

10.2196/15295 ◽  
2020 ◽  
Vol 4 (7) ◽  
pp. e15295 ◽  
Author(s):  
Michelle Nichols ◽  
Sarah Miller ◽  
Frank Treiber ◽  
Kenneth Ruggiero ◽  
Erin Dawley ◽  
...  
Keyword(s):  
High Risk ◽  
Mobile Health ◽  
Asthma Management ◽  
Pediatric Asthma ◽  
Intervention Development ◽  
The Self ◽  
Self Management ◽  
Smartphone App ◽  
The Impact ◽  
Parent Child

Background Asthma is a common chronic pediatric disease that can negatively impact children and families. Self-management strategies are challenging to adopt but critical for achieving positive outcomes. Mobile health technology may facilitate self-management of pediatric asthma, especially as adolescents mature and assume responsibility for their disease. Objective This study aimed to explore the perceptions of youths with high-risk asthma and their caregivers on the use of a smartphone app, Smartphone Asthma Management System, in the prevention and treatment of asthma symptoms, possible use of the app to improve self-management of asthma outside traditional clinical settings, and the impact of asthma on everyday life to identify potential needs for future intervention development. Methods Key informant interviews were completed with parent-child dyads post participation in an asthma management feasibility intervention study to explore the perceptions of users on a smartphone app designed to monitor symptoms and medication use and offer synchronous and asynchronous provider encounters. A thematic qualitative analysis was conducted inductively through emergent findings and deductively based on the self-determination theory (SDT), identifying 4 major themes. Results A total of 19 parent-child dyads completed the postintervention interviews. The major themes identified included autonomy, competence, relatedness, and the impact of asthma on life. The participants also shared their perceptions of the benefits and challenges associated with using the app and in the self-management of asthma. Both children and parents conveyed a preference for using technology to facilitate medication and disease management, and children demonstrated a strong willingness and ability to actively engage in their care. Conclusions Our study included support for the app and demonstrated the feasibility of enhancing the self-management of asthma by youth in the community. Participant feedback led to intervention refinement and app improvements, and the use of the SDT allowed insight into motivational drivers of behavioral change. The use of mobile apps among high-risk children with asthma and their parents shows promise in improving self-management, medication adherence, and disease awareness and in reducing overall disease morbidity.

scholarly journals Patient and Parent Perspectives on Improving Pediatric Asthma Self-Management Through a Mobile Health Intervention: Pilot Study (Preprint)

2019 ◽  
Author(s):  
Michelle Nichols ◽  
Sarah Miller ◽  
Frank Treiber ◽  
Kenneth Ruggiero ◽  
Erin Dawley ◽  
...  
Keyword(s):  
High Risk ◽  
Mobile Health ◽  
Asthma Management ◽  
Pediatric Asthma ◽  
Intervention Development ◽  
The Self ◽  
Self Management ◽  
Smartphone App ◽  
The Impact ◽  
Parent Child

BACKGROUND Asthma is a common chronic pediatric disease that can negatively impact children and families. Self-management strategies are challenging to adopt but critical for achieving positive outcomes. Mobile health technology may facilitate self-management of pediatric asthma, especially as adolescents mature and assume responsibility for their disease. OBJECTIVE This study aimed to explore the perceptions of youths with high-risk asthma and their caregivers on the use of a smartphone app, Smartphone Asthma Management System, in the prevention and treatment of asthma symptoms, possible use of the app to improve self-management of asthma outside traditional clinical settings, and the impact of asthma on everyday life to identify potential needs for future intervention development. METHODS Key informant interviews were completed with parent-child dyads post participation in an asthma management feasibility intervention study to explore the perceptions of users on a smartphone app designed to monitor symptoms and medication use and offer synchronous and asynchronous provider encounters. A thematic qualitative analysis was conducted inductively through emergent findings and deductively based on the self-determination theory (SDT), identifying 4 major themes. RESULTS A total of 19 parent-child dyads completed the postintervention interviews. The major themes identified included autonomy, competence, relatedness, and the impact of asthma on life. The participants also shared their perceptions of the benefits and challenges associated with using the app and in the self-management of asthma. Both children and parents conveyed a preference for using technology to facilitate medication and disease management, and children demonstrated a strong willingness and ability to actively engage in their care. CONCLUSIONS Our study included support for the app and demonstrated the feasibility of enhancing the self-management of asthma by youth in the community. Participant feedback led to intervention refinement and app improvements, and the use of the SDT allowed insight into motivational drivers of behavioral change. The use of mobile apps among high-risk children with asthma and their parents shows promise in improving self-management, medication adherence, and disease awareness and in reducing overall disease morbidity.

scholarly journals The Impact of Self-Management Techniques to Improve University Students’ Social Cognition

2021 ◽  
Vol 4 (1) ◽  
pp. 116-123
Author(s):  
Mita Sri Handayani ◽  
Muhammad Nur Wangid ◽  
Andre Julius
Keyword(s):  
Social Cognition ◽  
University Students ◽  
The Self ◽  
Self Report ◽  
Self Management ◽  
Social Changes ◽  
The Social ◽  
Management Techniques ◽  
The Impact ◽  
Cognition Scale

The background of the current study is the urgency of possessing good social cognition to adapt to the social changes that are happening quickly. Weak social cognition makes individuals less in empathy, aggressive or unhappy in their daily life. The link between self-management and social cognition lies in cognitive adjustment. Hence, the authors think it is important to do research that focuses on the implementation of counseling with self-management techniques in developing social cognition. The authors aimed to investigate the effectiveness of self-management in improving social cognition. The present study used one group pretest-posttest quasi-experiment. We invited 10 students from Universitas Ma'soem, Indonesia to participate in the experiment. They were selected based on a low social cognition score after filling the self-report of nineteen items social cognition scale. The results showed counseling with self-management techniques effective in improving university students' social cognition. Besides, limitations and recommendations are discussed.

scholarly journals Self-management mobile apps for people with epilepsy: A systematic review (Preprint)

2020 ◽  
Author(s):  
Mohsen Alzamanan Sr ◽  
LIM KHENG SEANG ◽  
Maizatul Akmar Ismail ◽  
Norjihan Abdul Ghani
Keyword(s):  
Medication Adherence ◽  
Mobile Health ◽  
Mobile Apps ◽  
The Self ◽  
Self Management ◽  
Keywords Epilepsy ◽  
Treatment Management ◽  
Mobile Health Applications ◽  
Patients With Epilepsy ◽  
Health Applications

BACKGROUND Patients with epilepsy (PWE) are motivated to manage and cope with their disorder by themselves, that is, self-management (SM). Mobile health applications (apps) have multiple features that show a huge potential to improve self-management of individuals with chronic disorders such as epilepsy. OBJECTIVE This study aims to review all available free apps related to the self-management of PWE and to determine the self-management domains included in these apps METHODS Systematic reviews were performed for all apps by searching in iOS and Android app databases using the keywords “epilepsy” and “seizure.” RESULTS We identified 22 epilepsy SM apps:6 were found in iOS, 7 in Android, and 9 in both.Of the 11 domains of self-management, seizure tracking and seizure response features were available in most Apps(N=22 and N=19respectively), followed by treatment management(N=17) and medication adherence(N=15).Three apps (Epilepsy Journal, Epilepsy Tool Kit and EpiDiary) were installed more than 10,000 times, with features focused specifically on a few domains (including treatment management, medication adherence, health-care communication, and seizure tracking). Two Apps had >6 SM domains (Young epilepsy and E-Epilepsy Inclusion) but both with lower installation rates (5000+ and 100+ respectively). CONCLUSIONS There were mobile health applications to improve self-management in epilepsy in both iOS and Android platform, but the installation rate of most apps was low. The self-management features in various Apps were different and common features included seizure tracking and seizure response.

scholarly journals Asthma management in pediatric age group

2018 ◽  
Vol 5 (9) ◽  
pp. 3673
Author(s):  
Mohammid Alzain ◽  
Hatem Mulla ◽  
Elaf Junainah ◽  
Abdullah Alasmari ◽  
Njood Albangali ◽  
...  
Keyword(s):  
Pediatric Population ◽  
Airflow Obstruction ◽  
Asthma Management ◽  
Pediatric Asthma ◽  
Beta Agonist ◽  
Control Drug ◽  
Pediatric Age Group ◽  
Comprehensive Search ◽  
Reversible Airflow Obstruction ◽  
The Impact

Asthma is one of the most prevalent chronic illnesses that affect the pediatric population, defined as chronic airway inflammation, remodeling of the airway wall, and airway hyper-responsiveness to leading to spasms in response to stimuli inducing a reversible airflow obstruction. The death rate from asthma around the world is as high as 0.7 per 100,000 children, therefore making it important to understand all aspect of its pathophysiology and management. We conducted this review using a comprehensive search of Pubmed, MEDLINE, and EMBASE from March 1980, through November 2017. The following search terms were used: asthma pathophysiology, chemokines, leukotriene, asthma management, steroids, beta agonist, leukotriene modifiers. Our aim was to understand detailed pathophysiology of pediatric asthma, and also have a look at the management of asthma. Optimal management of pediatric asthma is based upon a variety of measures, such as good symptomatic control, drug therapy, inhalers, but more importantly what matters is a good relationship of the physician with the patient and their care takers in order to achieve better result in short and long term. The impact of the relationship must be studied in more details to make asthma management more efficient for the pediatric group of patients.

scholarly journals Development and validation of the Adolescent Asthma Self-Efficacy Questionnaire (AASEQ)

2019 ◽  
Vol 54 (1) ◽  
pp. 1801375 ◽  
Author(s):  
Simone Holley ◽  
Rebecca Knibb ◽  
Sue Latter ◽  
Christina Liossi ◽  
Frances Mitchell ◽  
...  
Keyword(s):  
Self Efficacy ◽  
Symptom Management ◽  
Healthcare Professionals ◽  
Asthma Management ◽  
Reliability And Validity ◽  
Self Management ◽  
Future Research ◽  
The Impact ◽  
General Self Efficacy ◽  
Item Scale

Perceived self-efficacy is the belief that one can manage prospective situations. Good asthma self-management self-efficacy is associated with better asthma outcomes. However, a well-developed and validated tool to measure adolescent asthma self-management self-efficacy is lacking. Our objective was to develop and validate an Adolescent Asthma Self-Efficacy Questionnaire (AASEQ).The first stage of the study included a review of the literature, interviews with adolescents with asthma and consultations with parents and relevant healthcare professionals to develop a prototype scale. To assess reliability and validity, a further group of adolescents completed the prototype scale, the General Self-Efficacy Scale and KidCOPE (measures coping styles). Retesting was undertaken to assess longitudinal validity.Interviews with 28 adolescents and consultations with other stakeholders resulted in a 38-item prototype scale. Key themes were medication, symptom management, triggers, knowledge, attitude and beliefs around asthma, supportive relationships, schools and healthcare professionals. The prototype scale was completed by 243 adolescents. Factor and reliability analysis reduced it to a 27-item scale with four subsections: symptom management; medication; friends, family and school; and asthma beliefs. The 27-item scale had respectable to excellent internal consistency (α's 0.78–0.91) with results that were stable over time (intra-class correlation=0.82) in 63 subjects who completed it twice. Better adolescent asthma self-efficacy was associated with better general self-efficacy and indices of better asthma management.The AASEQ is a reliable and valid tool that is likely to aid future research and practice focused on adolescent asthma self-management and could be a useful intermediate outcome measure to assess the impact of behavioural interventions.

The impact of a large-scale population-based asthma management program on pediatric asthma patients and their caregivers

2003 ◽  
Vol 90 (3) ◽  
pp. 308-315 ◽  
Author(s):  
Archelle Georgiou ◽  
Deborah A. Buchner ◽  
Daniel H. Ershoff ◽  
Kristin M. Blasko ◽  
Linda V. Goodman ◽  
...  
Keyword(s):  
Large Scale ◽  
Asthma Management ◽  
Pediatric Asthma ◽  
Population Based ◽  
Management Program ◽  
Scale Population ◽  
Asthma Patients ◽  
The Impact

Web-Based Return of Individual Patient-Reported Outcome Results Among Patients With Lymphoma: A Randomized Controlled Trial (Preprint)

2021 ◽  
Author(s):  
Lindy Paulina Johanna Arts ◽  
Simone Oerlemans ◽  
Jacobien M Kieffer ◽  
Judith Prins ◽  
Mels Hoogendoorn ◽  
...  
Keyword(s):  
Psychological Distress ◽  
Breast Cancer Survivors ◽  
Controlled Trial ◽  
Patient Reported Outcome ◽  
The Self ◽  
Self Management ◽  
Web Based ◽  
Management Intervention ◽  
Patient Reported ◽  
The Impact

BACKGROUND There has been a cultural shift toward patient engagement in health with a growing demand from patients to access their results. OBJECTIVE The Lymphoma InterVEntion [LIVE] trial was conducted to examine the impact of return of individual patient-reported outcome (PRO) results and a web-based self-management intervention on psychological distress, self-management, and satisfaction with information in a population-based setting. METHODS Return of PRO results included comparison with age- and sex-matched peers and was built into the PROFILES registry. The self-management intervention is an adaptation of an fully-automated evidence-based intervention for breast cancer survivors. Patients with lymphoma who completed the web-based questionnaire were equally randomized to 1) care as usual (CAU), 2) return of PRO results, and 3) return of PRO results plus self-management intervention. Patients completed questionnaires 9 to 18 months after diagnosis (T0; n=227), after 4 months (T1; n=190), and after 12 months (T2; n=170). RESULTS Of all invited patients, 25% (227/892) were randomly assigned to CAU (n=76), return of PRO results (n=74), or return of PRO results and access to Living with lymphoma (n=77). Return of PRO results was viewed by 77% (115/150) of those with access. No significant differences were observed for psychological distress, self-management, satisfaction with information provision, and healthcare use between patients who received their PRO results and those who did not (P>.05). Usage of the self-management intervention was low (3%; 2/76) and an effect could therefore not be determined. CONCLUSIONS Return of individual PRO results seems to meet patients’ wishes, but had no beneficial effects on patient outcome. Also, no negative effects were found when individual PRO results were disclosed, and the return of individual PRO results can be safely implemented in daily clinical practice. CLINICALTRIAL Netherlands Trial Register NTR5953 INTERNATIONAL REGISTERED REPORT RR2-10.1186/s13063-017-1943-2

Development and utility of m-health enabled nutrition informatics intervention for self-care management of type 2 diabetes in home settings (Preprint)

2021 ◽  
Author(s):  
Abhijeet Prasad Sinha ◽  
Manmohan Singhal ◽  
Mansi Gupta ◽  
Ashish Joshi
Keyword(s):  
Public Health ◽  
Type 2 Diabetes ◽  
Care Management ◽  
Self Care ◽  
The Self ◽  
Self Management ◽  
Integrative Approach ◽  
Health Application ◽  
The Impact

BACKGROUND Diabetes represents an important public health challenge in India and Globally. It affects quality of life and is one of the leading causes of death and disability. The burden on global health is huge and about 463 million adults are currently living with diabetes. 77 million people in India in the age group of 20-79 years are affected by this pandemic and total cost to health expenditure is 8 billion US dollars, therefore huge burden, and great economic cost on Public health. The self-management of diabetes, the research priorities include exploring the concept of diabetes self-management and major research questions would comprise of asking what affects self-management in persons with diabetes and how do m-health application and interventions can impact on the self-management behaviors in development, utility of the m-health app in self-management of person with diabetes. Therefore, this project research is of great significance and would bring an integrative approach on self-care management OBJECTIVE To design, develop and evaluate the impact of m-health enabled nutrition informatics intervention for home based self-management of type 2 diabetes in an Indian setting. METHODS A mixed research study will be conducted between January 2022 and January 2023. A sample of approximately 250 individuals will be recruited and enrolled using a nonprobability complete enumeration sampling method from selected urban settings of Delhi inclusion and exclusion criteria with age20-79 years male and female with Type 2 diabetes and have access to Smart phone Data will be collected using which questionnaires. The collected data will be used to assess use and utility of mobile health application developed. The knowledge, attitudes, practices, and beliefs regarding Diabetes self-care management. Lastly, the study questionnaire system usability survey(SUS) will be used to assess the usability of mobile applications on selfcare management of Diabetes RESULTS A pilot of 250 individuals has been conducted to pretest the DBMS questionnaire. The data collection will be initiated from January 2022, and the initial results are planned for publication by October 2022.Descriptive analysis of the gathered data will be performed using SPSS V11, and reporting of the results will be done at 95% CIs and P=.0.05. CONCLUSIONS The findings of the study would inform the elements essential for the development of m-health intervention to improve self-care management of diabetes at home settings. The usefulness and acceptance of the proposed intervention will be conducted. CLINICALTRIAL DITU/UREC/2021/07/10

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